Re: Could I also have RLS

[Guest guest]

Hi Ed:

I do have most of what you describe, except that I wake up in terrible

pain as well. Tickle on the inside of the bone. Now that's one that

makes sense. When that happens I just go nuts. No that in itself is

not a pain per se, but almost a bone deep constant slight electric

shock pulse that makes me want to crawl out of my skin. I can go

absolutely nuts until some medication of some kind (torodol is usually

best for that one) relieves it so it is manageable. Ants crawling

around in my bones; worms writhing; I guess we all can find a correct

term that fits our own condition.

I have had constant anemia for many years. Not terribly serious, but

there. That is one clue that made me think yea that's me. I just

started some iron yesterday and I'm doing better today -- maybe from

the iron, maybe because the storm front pressure broke and we're

getting snow instead of just the pressure clouds.

Yes, I thrash in my sleep and rarely wake up with covers still on.

That can make it worse in the morning because then I'm freezing cold

and that adds to the morning pain. I wake my hubby up too. I usually

wake about 4 times in the night, usually in a panic it seems from

pain. But maybe the RLS is exacerbating my pain syndrome and it's a

whole other thing. I think I'm a Pandora's box of many yukkie things.

The night I had knee replacement surgery and before they hooked up my

pain pump, the pain from the surgery was worsened by the " worms " , that

I was kicking and crying (something I rarely do) and I thought I was

going to tear my legs and arms off. The pain was one thing, and it

was very bad, but the " worms " made me want to put a bullet in my head.

My husband stayed with me until I finally got to sleep, but I woke up

from it all through the night.

Shaking is one thing I do, when I am able to move my legs (ms

paralysis); Since I can't walk, I pound on my muscles both arms and

legs which really upsets my husband. But what else can I do.

I hope you don't mind that I sent this to the group as well. But

right now I can use any and all input.

Thanks for caring. Joanne

---EJude958@... wrote:

>

>

>

> Yo Joanne,

>

> I maybe wrong but what you are describing is not RLS. Do you limbs

thrash

> around while sleep also. Although some feel true pain from RLS it is

more like

> a gnawing, creepy feeling in our limbs, mostly the legs. Frequent

shaking of

> the effected area helps. Night time is usually worse. Most severe

cases of RLS

> subside by 4-5am and can be absent for 2-4 hours. Some of us suffer

cyclic RLS

> where the sensations ebb and flow on a weekly or monthly basis.

>

> Get a blood test and rule out the obvious factors such as low iron and

> ferritin(Sp) levels in the blood. Good luck to you. Some people have

described

> the RLS sensation like that of being tickled on the inside of your

bone and

> there's noting you can do, except shake, to find relief.

>

> Ed-Cyberphilly

>

==

God, grant me the serenity to accept the things I cannot change; courage to

change the things I can; and the wisdom to know the difference