Guest guest Posted March 25, 2000 Report Share Posted March 25, 2000 alisha here, thanks for the kind words and reminders. to the subject of hand writing, i have pretty good writing and printing but i am suppose to take breaks while i am writing but sometimes i don't and i end up in more pain than i started with. also if i don't break i will not be able to write for a long time, when my hands get in tons of pain they swell up and stay in one position, my fingers and thumb will bend in and the inside of my palm looks caved in. i am unable to move my hand, fingers, thumb and i can't feel them at all. it takes a really really long time for my hand(s) to feel normal again, it also looks really really strange. i am also unable to hold things in my hand ie silverwear. my grandfather is affected and he uses silverwear with an extra big grip on it and b/c my type is x-linked my grandparents gave us all this type of silverwear to everyone. they gave us other things to be prepared for the future ie plates, bowls, wash cloths, towels, etc thats my two cents " I am not crazy, I am just a teenager! " http://home.talkcity.com/OceanBlvd/cmtx/index.html ICQ # 47695812 for information on CMT go here www.cmtint.org/ are u a kid or teenager with CMT??? wanna talk to others with CMT???? join here if u want to CMTchildren-subscribe (AT) onelist (DOT) com ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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