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Hello all

For my sins I write stories, mainly short stories and occasionally an

article but I've come up with an idea and I need your help.

What I want to do is write a novel about a family who have CMT running

through it. A very brief synopsis is as follows.

The story starts way back in n times in London, where a child is

born with deformed feet. The 'midwife' tells the new mother that the child has

deformed feet and probably has something else wrong with it as well. The child

grows up with very obvious problems etc, eventually marries has children of her

own, none of which appear to have her own problems. Her children grow up and

marry, her second son, also her second child marries, has a child dies, her

daughter in law dies and her grandson is brought up in an orphanage.

She dies and her dying wish is to see her grandson again. Unfortunately she

has no idea where he is and he has no knowledge of her. Round the time she's

dying, history is repeating itself in the fact that her grandson has a daughter,

his first child and she too is born with deformed feet. The story goes on about

how her grandchild grows up, marries, has children and eventually become

disabled because of neglect of her condition but her disablitity drives her on

to discover what exactly is wrong. This discovery leads the family into the next

generation and the effects that CMT has on that. Where it is going from there I

don't know. That's if it goes along these lines, hardly anything else I write

when I prepare a synopsis does.

However, I don't want it to be a sad story or just a history of the family.

I want to show people the laughter as well as the tears. We've all laughed and

cried at our own problems and I would like you guys to share your stories

anonymously if you wish with me. If you're a silver haired teenager tell me what

it was like when you were a child. What did they say was wrong with you? How

were you treated? Did children make fun of you. They did with me. One boy when I

was about five laughed at me because I wore big orthopedic boots, so I kicked

hell out of him. The headteacher called me into the office and said " , I

know it was wrong of to make fun of you but really dear, you shouldn't

kick him. " I'd left him bleeding and crying, I can still hear her voice today.

Please tell me what you want to tell me. This story is fiction based on fact

but as I said I really would appreciate your help.

To save clogging up the email group you can email me direct on

hordermason@... and I'll keep you informed on how things are going.

Maybe this is one way that we can all bring CMT into the public view and save

ourselves a hell of lot of question answering.

Thanks for listening and I'll look forward to hearing from you. Don't worry

about getting it down all in one go, send me a few lines every now and again.

That's the advantage of doing everything on the computer you can add bits here

and there without causing problems.

Thanks again and much love to you all

Sue XXXX