Re(2): Digest Number 125

[Guest guest]

Hi, Rose-Marie. Thank you for responding to my message. I was speaking of my

mom. She was never diagnosed with CMT, but it seems as if she might have.

She had high-arched feet and hammer toes. She had the colon cancer. Also I

had a lot of trouble with my digestive system when I was 11 years old to 14

years old. I vomited, etc. The doctors said it was chronic gastritis. It

seemed to pretty much clear up as I learned to calm down and talk about how

I was feeling. In my late twenties...it took me a long time. Marc

Re(2): Digest Number 125

> From: Rose-Marie.Isakson@... (Rose-Marie Isakson)

>

> CMTUS (AT) onelist (DOT) com skriver:

> > I am done closing my eyes and want to

> >check out all the options. It is empowering.

>

> The ords above express exactly what I´m feeling now.

>

> About the digestive problems; the persons in your family who have these

> problems

> do they also have CMT? One main reason I have begin surching for

> information about CMT right now is that I have a 8 year old boy with CMT

> who also is suffering a lot from problems with his stomach. He always have

> had a sensitive stomach but since three years now this problams have

> increased. He feels sick almost every day, sometimes he vomits and have

> pains. Among other things he also often belchis. The doctors have not

> found anything wrong with him. For a couple of months ago I found some

> information which sad that feeling sick and vomit can be related to CMT. I

> have discussed this with a doctor who thought we should test a med. called

> Prepulsid (at least it is called so in Sweden where I live). When I looked

> for information about that med. on the web I found some information (in

> Swedish) about problems with the stomach (including digestiveproblems)

> which can arise when you for example have diabetes or other DISEASE ON THE

> NEUROSYSTEM. The symtoms were like my sons including diarrhoea.

> Probably have this things to do with that also the autonomic nervous

> system is effected .

> I have also seen problems with the belly be mentioned together with

> informations about CMT in other different places even if these problems

> seems to be rare.

> Well, I hope Preulsid will help my son.

> Greetings from Rosis

>

>

> ---------------------------

[Guest guest]

Hello Rhonda!

I think your Swedish is o.k. Probebly like mine English. I know I have

relatives in the US but unfortunately I have no contact with them.

When I begin to raise in wheight too much I also feel that it is not good

for my legs especially the knees.

So I have been to the " Wheightwatchers " a couple of times which rally have

helped.

Have a good time, Rosis