Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 Ninette and all, Good grief! I was just trying to inject a little humor, like in chilling out and lightning up!! Sometimes you can't win for loosing around here. ne, 59, Lawrenceville, NJ _____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 You could get your doctor to prescripe Ultrase 20s - that way would only need one pill with lunch . . . You definitely have a suit against the board of ed here . . . Krishnan Mom to Santosh, 5wcf (and starting kindergarten a week from today) and Leela, 3wocf Kindergarten Well, We made it. had a great day 8:00am - 11:00am. He told me on the way home that I didn't need to stay with him. He wants to learn by himself. I had to stay and make sure everyone involved in his care knew what to do and how things are done. At the beginning of summer, we wanted to try to get a nurse to follow him through his day at Kindergarten. Just to pull him away from SITUATIONS and to make sure he is getting his meds. They more or less told us no. Fine, I can live with that. Here's the ball dropper....there is a child IN HIS CLASS that has Asthma and I'm not sure what else. This child has been hospitalized more that 14 times in the past. Every little colds he gets is bad for him. He gets exasberbations. What I'm trying to say here is why was I denied a nurse for my CF child and a child with Asthma was granted a nurse. I'm scared. I asked the school officials to let me know when other children are sick or if another child with CF attends his school and they want to put them in the same class. I've also asked them to let me know if any children with low immune syatem(which this child is) will be in his class. Any advice for me? I'm going nuts. Maybe I'm overreacting but Both of these children could be bad for each other. I don't think they should be in the same class. Here where we live we have am kindergarten which they are in and pm kindergarten. Our school has no air-conditioning and a strict attendance policy so therefore we chose to put in morning kindy. What do I do or what can I do? Do any of you have a nurse with your child just to make sure they're properly taken care of? The nurse told me she couldn't give my child enzymes until clarifications were made. The Dr. wrote it like this: 3 enzymes (Ultrase MT 12 ) with lunch and 1 enzyme with snack. The bottle says 2-3 enzymes with meals and 1-2 enzymes with snacks. I give enzymes according to what he is going to eat. To start with would get breakfast at school if he would like but he's not there for lunch. That is the first thing she wants corrected. Secondly, if I send in a peanut butter and jelly sandwich and some chips with his chocolate milk then I would give him 2. She says she can only give 1. Oh, and another thing. Can you believe the nurse has no spoons or medication cups???? That's right. I pay taxes and I have to go out and buy spoons. Probably so she can use them on the rest of the kids! I couldn't believe that! And I have to take and leave a compressor at the school just in case would have a flare up. We have an extra but what happens if we didn't? Do any of you go into the school just to give your child meds? How do you know what they eat? This is driving me bonkers. I know I'm going to have a nervous break down. My baby (with CF) is starting school. Thanks for listening guys, Never Wear A Frown; It Brings Other People Down Mom to Alyssa 7 w/o cf and 5 1/2 w cf wife to Russ from Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 The food situation at school is really hard. Our Dr. wrote the same thing and our bottle is the same as you. Our son does not eat the same at school as he does at home and they don't like changes in what they are to give. What is written from the doctor is it. it doesn't matter what they eat so its hard. My son is now in 5th grade and its still a challenge. We lived in Maine and the teacher kept it on her desk and he just took it when he needed. Here in CT it is in the nurses office and it has to be precise. It is very frustrating...I don't think there is any solution unless you were to eat with them everyday and administer the medicine yourself. Maybe someone else has ideas. The whole being around sick kids is hard. I don't know how to keep them away from others. Alot of people send their sick kids to school. I don't know how you avoid it. Best of Luck to you. Mom to 10 cf Kindergarten > Well, > We made it. had a great day 8:00am - 11:00am. He told me on the way > home that I didn't need to stay with him. He wants to learn by himself. > I had to stay and make sure everyone involved in his care knew what to do and > how things are done. > At the beginning of summer, we wanted to try to get a nurse to follow him > through his day at Kindergarten. Just to pull him away from SITUATIONS and > to make sure he is getting his meds. They more or less told us no. Fine, I > can live with that. Here's the ball dropper....there is a child IN HIS CLASS > that has Asthma and I'm not sure what else. This child has been hospitalized > more that 14 times in the past. Every little colds he gets is bad for him. > He gets exasberbations. What I'm trying to say here is why was I denied a > nurse for my CF child and a child with Asthma was granted a nurse. I'm > scared. I asked the school officials to let me know when other children are > sick or if another child with CF attends his school and they want to put them > in the same class. I've also asked them to let me know if any children with > low immune syatem(which this child is) will be in his class. > Any advice for me? I'm going nuts. Maybe I'm overreacting but Both of these > children could be bad for each other. I don't think they should be in the > same class. Here where we live we have am kindergarten which they are in and > pm kindergarten. Our school has no air-conditioning and a strict attendance > policy so therefore we chose to put in morning kindy. > What do I do or what can I do? Do any of you have a nurse with your child > just to make sure they're properly taken care of? > The nurse told me she couldn't give my child enzymes until clarifications > were made. The Dr. wrote it like this: > 3 enzymes (Ultrase MT 12 ) with lunch and 1 enzyme with snack. The bottle > says 2-3 enzymes with meals and 1-2 enzymes with snacks. > I give enzymes according to what he is going to eat. To start with > would get breakfast at school if he would like but he's not there for lunch. > That is the first thing she wants corrected. Secondly, if I send in a peanut > butter and jelly sandwich and some chips with his chocolate milk then I would > give him 2. She says she can only give 1. Oh, and another thing. Can you > believe the nurse has no spoons or medication cups???? That's right. I pay > taxes and I have to go out and buy spoons. Probably so she can use them on > the rest of the kids! I couldn't believe that! And I have to take and leave > a compressor at the school just in case would have a flare up. We have > an extra but what happens if we didn't? Do any of you go into the school > just to give your child meds? How do you know what they eat? > This is driving me bonkers. I know I'm going to have a nervous break down. > My baby (with CF) is starting school. > Thanks for listening guys, > > Never Wear A Frown; It Brings Other People Down > Mom to Alyssa 7 w/o cf and 5 1/2 w cf wife to Russ > from Pennsylvania > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 In a message dated 8/27/2002 3:28:59 PM Central Daylight Time, ck570@... writes: > Well, > We made it. had a great day 8:00am - 11:00am. He told me on the way > > home that I didn't need to stay with him. He wants to learn by himself. > I had to stay and make sure everyone involved in his care knew what to do > and > how things are done. > At the beginning of summer, we wanted to try to get a nurse to follow him > through his day at Kindergarten. Just to pull him away from SITUATIONS and > > to make sure he is getting his meds. They more or less told us no. Fine, > I > can live with that. Here's the ball dropper....there is a child IN HIS > CLASS > that has Asthma and I'm not sure what else. This child has been > hospitalized > more that 14 times in the past. Every little colds he gets is bad for him. > > He gets exasberbations. What I'm trying to say here is why was I denied a > nurse for my CF child and a child with Asthma was granted a nurse. I'm > scared. I asked the school officials to let me know when other children > are > sick or if another child with CF attends his school and they want to put > them > in the same class. I've also asked them to let me know if any children > with > low immune syatem(which this child is) will be in his class. > Any advice for me? I'm going nuts. Maybe I'm overreacting but Both of > these > children could be bad for each other. I don't think they should be in the > same class. Here where we live we have am kindergarten which they are in > and > pm kindergarten. Our school has no air-conditioning and a strict > attendance > policy so therefore we chose to put in morning kindy. > What do I do or what can I do? Do any of you have a nurse with your child > just to make sure they're properly taken care of? > The nurse told me she couldn't give my child enzymes until clarifications > were made. The Dr. wrote it like this: > 3 enzymes (Ultrase MT 12 ) with lunch and 1 enzyme with snack. The bottle > says 2-3 enzymes with meals and 1-2 enzymes with snacks. > I give enzymes according to what he is going to eat. To start with > would get breakfast at school if he would like but he's not there for > lunch. > That is the first thing she wants corrected. Secondly, if I send in a > peanut > butter and jelly sandwich and some chips with his chocolate milk then I > would > give him 2. She says she can only give 1. Oh, and another thing. Can you > > believe the nurse has no spoons or medication cups???? That's right. I > pay > taxes and I have to go out and buy spoons. Probably so she can use them on > > the rest of the kids! I couldn't believe that! And I have to take and > leave > a compressor at the school just in case would have a flare up. We > have > an extra but what happens if we didn't? Do any of you go into the school > just to give your child meds? How do you know what they eat? > This is driving me bonkers. I know I'm going to have a nervous break down. > > My baby (with CF) is starting school. > Thanks for listening guys, > > Never Wear A Frown; It Brings Other People Down > Mom to Alyssa 7 w/o cf and 5 1/2 w cf wife to Russ > from Pennsylvania You need to talk to the Superintendent of the school because you child has a disability and by law they have to abide to you needs. If not they can have the CF foundation all over then. Deb A Quote Link to comment Share on other sites More sharing options...
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