EMG Definitive?

April 19, 2000

Hi Peggie, is that EMG a definite test? I mean, from the results, is it

absolutely 100% CMT or not? Do you know?

Gretchen

Peggie S. Weston wrote:

>

> Oh, sorry, I thought you asked if there was a test that told you if you had

> CMT or not. And that the doctors had told you that they didn't think you

> did have it, but that you kind of thought you did.... Did I mis-understand?

> The EMG is the test that tells you if you have it or not. Any type. I

> thought you hadn't had these done.

>

> Screening at age 36

> >

> > Hello, I am 36 years of age and live in Melbourne, Australia. I have

> > a

> > sister and father with CMT. My sister, who is 32, is very severely

> > affected. I show no signs of CMT, although sometimes I think my hands

> > are very weak or uncoordinated. Two years ago my husband and I

> > visited

> > the genetics clinic at the major childrens teaching hospital for

> > counselling. We are still considering a family. My knee reflexes were

> > tested. Apart from that I was told they dont think I have CMT. I have

> > always felt this summation was unsatisfactory. I wish there was a

> > definitive test that could tell me if I have CMT. How rare is it that

> > a person of my age would show no symptoms? Have I received the right

> > counselling? I am afraid of pregnancy inducing CMT symptoms and

> > therefore already exposed the fetus to a risk I am trying to prevent.

> > I do not want to bring this upon someone, knowing the agony my sister

> > has been through. Any thoughts or comments would be helpful,

> > especially from those faced with the same dilemma.

> >

> > ------------------------------------------------------------------------

> > Get paid for the stuff you know!

> > Get answers for the stuff you don't. And get $10 to spend on the site!

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> >

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