typing/music/bruises/feet/hikes

[Guest guest]

Hi Chen,

About the typing and music playing, I do both, also fast (typing and

piano) While I don't experience noticeable weakness in my hands/fingers,

I do seem to make more errors and bad music towards the end of the day.

(Just about everyday I am doing both). Guess this is just due to

fatigue in general. When I type, my arms/wrists are 'resting' on a

table, keyboard in front and low. But, can't do that with the piano!

About the bruises, used to get them, changed my diet, fewer falls and no

bruises. Don't know if there's a connection or not.

What has helped me in walking/hikes/ etc. is wearing in-shoe soft molded

orthotics specially made for my feet. This keeps me walking heel first,

then toe, not my 'normal' walk of toe first then heel, then trip - lol!

The orthotics seem to help my balance too, along with my cross-trainers

that I wear for just about everything.

Enjoy those hills!

Gretchen

Chen Lin wrote:

>

> Hi,

> I have CMT1A, diagnosed last year.

> My cmt is mild, the legs are the ones that are mostly affected

> - sprain ankles, falling down, triping etc...

> My question is about the hand though - my hand writing is the worst,

> so I usually type things, and usually I type really fast, but it

> seems that in some days I just don't feel the keyboard under my

> fingers, and I keep making mistakes, I already know to try avoid

> typing on those days - does it happen to you too? does it has a

> connection to the CMT?

> I also play the organ, I think in periods I don't practice a lot my

> hands are worst, it might have nothing to do with each other, but I

> do think that the playing keeps my hand a little stornger.

>

> Another question I want to ask is about all the bruises, it seems I'm

> always coverd with those nasty black and blue bruises, and it seems

> it takes them forever to disapear, is this the same with all of you?

>

> btw, I'm planning on going with some friends from uni, on a hiking a

> trip. I usually sprain my ankle (not to mention falling, and coming

> home all coverd with bruises), but this time I'm going to go with a

> Air Cast, I hope it would help, I've never tried it. These are new

> friends, none of them know anything about my CMT or anything. When I

> was diagnosed last year I was in high-school, and though I didn't

> tell people, most of my friends know something is wrong, just not by

> name - you can't hide all the falling and the sprains. These people

> haven't seen me fall so much, so most of them don't know anything,

> since I usually walk on high hills, and you can't see that normally I

> walk on my tiptoes

>

> tanks for letting me write,

>

> Chen

>

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