Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 Welcome ! So glad you found us. I love the different views and opinions everyone has on this site. I can honestly say I am always learning something new every day when I check my CMTUS email!!!!! Good work on starting up a support group. I think it helps to be proactive in our day-to-day challenges with CMT. Ruth Warren > >Reply-To: CMTUS (AT) onelist (DOT) com >To: CMTUS (AT) onelist (DOT) com> >Subject: Hello >Date: Tue, 18 Jan 2000 21:07:34 -0700 > > > > >Hello. My name is . I glad this community is here. We all need >that positive aspect in our lives. I have been tested for CMT. My MDA >neurologist tells me that my neuropathy is definitely inherited and is a >99% chance of being CMT. The neuropathy is severe but that depends on ones >attitude and what it is compared to. My whole body is affected. I have >worn AFO's now for over ten years. I am in the process of getting new >hinged AFO's and have splints for my hands. I wish I could find more to do >for my hands because the muscles are gone. My right shoulder is a problem >because my muscles are not doing their job and the bones are rubbing >together at the joint. I try to keep up with my physical therapy and have >swim therapy three times a week. The therapy is helping but it is time >consuming. I do have some minor vision, swallowing and breathing problems. > I have lot of determination. I am disabled now but am continuing my >career through writing. So I hope to find some solutions to some of the >things I am working with. I have met another CMT person and we are in >process of setting up a support site in our town with the help of the MDA . > I will continue to stay in touch. > > > > Quote Link to comment Share on other sites More sharing options...
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