Mirapex, Sinemet, Permax, Requip?

[Guest guest]

I certainly understand how you feel. Kathy, what was your

reaction to Permax? I haven't tried Requip, butI have been the

route with Sinemet, Mirapex, Neurontin, and started the Permax

last Thursday. It hasn't done a thing. I have had to go back to

the Mirapex, which causes the insommnia and headaches. But, I

then take a OTC pain killer for the headache. I am about to go

crazy. With the Mirapex, I developed a cough over several

months. The pharmacist and I looked over the insert and found it

in the bottom in little bitty print that 1% of Mirapex patients

get a cough. Wouldn't you know it would be me? Too bad, the

Mirapex is the best thing yet, but I don't know how much longer I

can go with the cough, headaches, and insommnia. Am taking .5 to

1 mg. Klonopin to get to sleep, but 1 mg just about draggs me out

the next day. Oh, what to do, what to do? We're damned if we do

and damned if we don't.

I have a new neuro and he is an arrogant a--hole, which I told

his nurse. He is supposed to be a sleep specialist straight from

UCLA to little old Conroe, Texas. Obviously he doesn't have RLS,

or he would know that the only thing that is for sure is that RLS

will be there at night. What we don't know is the severity and

whether it will be one leg, two legs, including one arm, or both,

or whether there will be hip and knee joint pain along with it.

I told him I needed some pain medicine sometimes with the Mirapex

and that Tylenol #3 worked best--for now. He said I didn't need

it, but he would give me 10 until the sleep study he wants me to

go through. I don't think so. His office called me today to set

up the sleep study and I said I wasn't ready. I'll never be

ready with this guy.

So, I have a new neuro. I have an appt with her next week. I

hope she works out because she is the last neuro in town. She

doesn't take my insurance, either, but, I will PAY for anything

right now. If she doesn't work out I'll go to Houston to Baylor

in the Medical Center.

I have found a new RLS friend that is my neighbor. My pharmacist

told me she was looking for other RLS folks and it just so

happened she lives right here about a 1/2 mile from me. I called

her and we talked for an hour and she told me about this new

neuro. She is 80 yrs old and has had RLS all her life, too.

First thing she asked me was, " How old are you? You sound so

young! " So I told her I was 49 and I guess she decided I was old

enough to have

RLS!!! So happens she is a retired teacher and principal. We

have a lot in common. She had been going to a RLS doctor in

Austin and has started going to this local neuro.

I didn't realize how much I've rambled. I'll report back after I

see the new neuro--my third in the last 4 months.

Lindy B. (49) in Southeast Texas

Serdikof wrote:

> Hi Group, Since Sinemet caused severe augmentation and

> rebound, Mirapex caused insomnia, and Permax almost killed me,

> it is with some trepidation that I take my first dose of

> Requip. Any information that this group could give me about

> dosage, effectiveness, side effects, etc. would be most

> helpful. Thanks in advance. Kathy, 56, PA

--