Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 Hi Jodi, I have not talked to anyone who has had a terribly serious adverse reaction to Sinimet, but I am new to the group. I know that it usually stops working at some point, but my neurologist told me that if you go back to it after a month or so the chances are that it will work again. All I know is that it works for me and I had terrible RLS ... maximum doses of sleeping pills, anticonvulsants .... nothing worked like Sinimet does for me. The one thing that I think Sinimet may do is increase daytime RLS. It has a tendency to postpone the problem so you can get to sleep but you may experience discomfort the next day. I have noticed this (but I don't know if it's due to Sinimet or just that my RLS is getting worse). I can deal with RLS better in the daytime (compared to when I am trying to go to sleep and like most of you cannot stay still for more than 15 seconds or so). The problem comes up when I am in a long meeting, at the movies, where I cannot get up and move around etc. I also take Mirapex along with the Sinimet but I really don't think it does much of anything. My neurologist (who is an expert in RLS) does try and switch people from Sinimet to other medications or at least decrease the Sinimet by using it in combination with another drug. My understanding is that she does this because of the reasons above, Sinimet loses its effectiveness over time and it tends to postpone (rather than eliminate) the RLS until daytime. janegf@... ---Jodi Judson wrote: > > > > I am forwarding this to the group, as it was sent to to old address. > > Jodi > > Subj: drug info > Date: 2/5/99 6:04:33 PM Central Standard Time > From: rstutt@... (Rigina Stuttkowski) > To: RLSSupport@... > > Hi: I've just read some responses to my question on " drug info please " . > > Question one to : You say you see a psychiatrist rather than a > neurologist. So do > I, but she says most anti-depressants will cause rls. What are you on? > > To Jane: I've never heard of Sinimet, and from what I read in this group > alot of people > don't like it or have adverse effects. Any comments? > > To E. Jude; thanks for the link, I will check it out. > > And for Donna: I am on amitriptyline for the fibromyalgia. I guess it's > the most > commonly used drug here in Canada for FMS. They don't prescribe enough for > benefits for > depression as it is mostly used in FMS patients as a sleep inducer. > Doesn't really > work though. It did in the beginning until I got this rls thing happening > and I'm still > not sure if it was the Effexor for depression or something else that gave it > a kick > start. Now though I wish it would go away cause I have enough with the > fibromyalgia. > > Thanks all for responding so quickly. Ah, before I forget, can anyone out > there > associate temperature fluctuation with the rls. I've never played with my > thermostat as > much as I have since the rls kicked in two weeks ago.??? > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 Hi Jodi, I have not talked to anyone who has had a terribly serious adverse reaction to Sinimet, but I am new to the group. I know that it usually stops working at some point, but my neurologist told me that if you go back to it after a month or so the chances are that it will work again. All I know is that it works for me and I had terrible RLS ... maximum doses of sleeping pills, anticonvulsants .... nothing worked like Sinimet does for me. The one thing that I think Sinimet may do is increase daytime RLS. It has a tendency to postpone the problem so you can get to sleep but you may experience discomfort the next day. I have noticed this (but I don't know if it's due to Sinimet or just that my RLS is getting worse). I can deal with RLS better in the daytime (compared to when I am trying to go to sleep and like most of you cannot stay still for more than 15 seconds or so). The problem comes up when I am in a long meeting, at the movies, where I cannot get up and move around etc. I also take Mirapex along with the Sinimet but I really don't think it does much of anything. My neurologist (who is an expert in RLS) does try and switch people from Sinimet to other medications or at least decrease the Sinimet by using it in combination with another drug. My understanding is that she does this because of the reasons above, Sinimet loses its effectiveness over time and it tends to postpone (rather than eliminate) the RLS until daytime. janegf@... ---Jodi Judson wrote: > > > > I am forwarding this to the group, as it was sent to to old address. > > Jodi > > Subj: drug info > Date: 2/5/99 6:04:33 PM Central Standard Time > From: rstutt@... (Rigina Stuttkowski) > To: RLSSupport@... > > Hi: I've just read some responses to my question on " drug info please " . > > Question one to : You say you see a psychiatrist rather than a > neurologist. So do > I, but she says most anti-depressants will cause rls. What are you on? > > To Jane: I've never heard of Sinimet, and from what I read in this group > alot of people > don't like it or have adverse effects. Any comments? > > To E. Jude; thanks for the link, I will check it out. > > And for Donna: I am on amitriptyline for the fibromyalgia. I guess it's > the most > commonly used drug here in Canada for FMS. They don't prescribe enough for > benefits for > depression as it is mostly used in FMS patients as a sleep inducer. > Doesn't really > work though. It did in the beginning until I got this rls thing happening > and I'm still > not sure if it was the Effexor for depression or something else that gave it > a kick > start. Now though I wish it would go away cause I have enough with the > fibromyalgia. > > Thanks all for responding so quickly. Ah, before I forget, can anyone out > there > associate temperature fluctuation with the rls. I've never played with my > thermostat as > much as I have since the rls kicked in two weeks ago.??? > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 1999 Report Share Posted February 7, 1999 Jane, Just keep doing whatever works, for as long as it works! The sinamet worked the longest and best for me for about 9 months. Then it gradually stopped helping me at night, and the rebound during the day was intolerable, so my neurologist prescribed the Mirapex. I've been taking it for close to a year. It sure is not a cure - still don't sleep well most nights, and still have some symptoms during the day, but I'll stick with it for now. I know from past experience that things could be worse! I have been tempted to try one of the benzos also, as so many in the group have reported good results, when taken in combination with the Parkinson's drugs. I'm really afraid to start with them however, due to the fact that a close family member and a good friend experienced serious addiction and withdrawal problems, not to mention diminished mental abilities - loss of short term memory, inability to concentrate, etc.. This obviously doesn't apply to many, but addiction runs in my family, and I am already addicted to cigarettes! Lack of sleep is no picnic either, but I've been functioning for years without enough sleep. My memory is no worse than others my age, and a lot better than some! Also, I am able to focus and concentrate, and am rarely sick. I am envious of those who can take the benzos and are able to sleep most nights as a result - it would be nice!! Good luck with whatever you choose,, and you are fortunate to have a doctor who is knowledgeable. ne, 59 (as of today- yikes!), Lawrenceville, NJ ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
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