Re: Waking up is hard to do

[Guest guest]

Joanne,

Mirapex is the medication many of us take, with at least partial success.

The panic you describe upon waking sounds familiar to me, as though I

have experienced it, but can't really remember when, and not to the

extent you describe.I occasionally have brutal nightmares, which are so

real that even upon waking, I'm sure it's really happening. These have

not occurred since I stopped all meds except for the mirapex. If you are

having these types of dreams, it may account for the panic upon waking

up.

It must be awful not to be able to walk away the creepies. The deep

electrical pain you describe sounds like rls, but in spades. I don't

know if this would help you, but I have found St. 's Wort with Kava

to be very calming and mood-stabilizing. Panic used to be a problem with

me, but not anymore.

I certainly hope you find some relief soon for at least some of your

symptoms.

Write us and share the horrors whenever you need to - sometimes that

alone makes things more bearable.

ne, 58, Lawrenceville, NJ

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[Guest guest]

Joanne,

Mirapex is the medication many of us take, with at least partial success.

The panic you describe upon waking sounds familiar to me, as though I

have experienced it, but can't really remember when, and not to the

extent you describe.I occasionally have brutal nightmares, which are so

real that even upon waking, I'm sure it's really happening. These have

not occurred since I stopped all meds except for the mirapex. If you are

having these types of dreams, it may account for the panic upon waking

up.

It must be awful not to be able to walk away the creepies. The deep

electrical pain you describe sounds like rls, but in spades. I don't

know if this would help you, but I have found St. 's Wort with Kava

to be very calming and mood-stabilizing. Panic used to be a problem with

me, but not anymore.

I certainly hope you find some relief soon for at least some of your

symptoms.

Write us and share the horrors whenever you need to - sometimes that

alone makes things more bearable.

ne, 58, Lawrenceville, NJ

___________________________________________________________________

You don't need to buy Internet access to use free Internet e-mail.

Get completely free e-mail from Juno at http://www.juno.com/getjuno.html

or call Juno at (800) 654-JUNO [654-5866]

[Guest guest]

Hi Donna:

Your symptoms certainly suggest MS and if I were you I would get to a

neurologist ASAP If upon having MRI both brain and spinal cord, as

well as a positive spinal tap and/or diagnosed optic neuritis, you are

eligible for one of the three medications that will probably cut down

on the number of relapses you have and possibly nip this one in the

bud. Most people swear by Copaxone, so if given a choice, I would go

with that one. My doctor is so concerned that the medications will

increase my symptoms which are so bad to begin with that he is

reluctant to try them on me. However most people on Copaxone complain

very little about side effects.

Aren't we so furtunate to have both MS and RLS. Actually I would

never have found what was causing these horrible " worms " and " bugs " in

my legs ifI hadn't just decided to look something up that I'd heard

about. God always works overtime with me, most of the time just

giving me a pace I could not live without, but also leading me to

places that can give me some clues about what's going on. He's aalso

given me some of the most personal gifts of his constant presence

which I know is rare and I don't take for granted.

Don't give up, honey, there are answers for you out there too. Maybe

God sent me to RLS especially for you. God bless you, my friend

Love, Joanne

---Donna Elliott delliott@...> wrote:

>

> Joanne wrote:

> >

> >

> >

> > Hi Friends

> > As a new member I'm pobably going to have a lot of questions

> > you've all heard before, but I need to figure this thing out.

> >

> > I have no idea if there is a relationship here to RLs, but

one of

> > the most disturbing things that happens to me, is that I'll wake

up in

> > a panic, with a sudden gasp, squeel, or moaning before I'm even

> > concious. The sensation I have is electrical pain in my limbs (both

> > calves and both forearms). Since I can't jump up and walk, I sit in

> > bed and rock back and forth, back and forth until once of my meds

> > takes effect. It is such a frightening way to wake, and I'm usually

> > in the middle of a disturbing dream. This can be at 11, 2am 4am, or

> > during the day after a one hour nap. If I've said this before

please

> > bear with me. Other than the intense pain I have from m MS, it is

one

> > of the most frightening things I deal with.

> >

> > Thank you for any input you can give. I'm already on Klonopin,

but am

> > considering asking my Dr. for Miramax. Is that the meds you would

> > recommend my trying?

> >

> > Thank you all - Joanne

> >

> > ==

> > God, grant me the serenity to accept the things I cannot change;

courage to change the things I can; and the wisdom to know the

difference

> >

> >

------------------------------------------------------------------------

> >