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How are you guys. I subscribed to this list last week but havent left a

message yet. I have been very busy, but I wanted to tell everyone about

what happened to my mom at the doctors office and find out if anyone has

heard of this before. First of all I know some of you already but for

the ones I dont, I am Amy. I have never been diagnosed with CMT,but we

are pretty sure I have it to. I have the balance problem, high arches,

trembling in my hands etc. My son is 6 yrs old and he has been

diagnosed with it. I am having very bad probs with the school abd him.

My mom has it and is on several medications. My aunts have it and an

uncle several cousins. So as you can see it is all through my family.

Anyway on to my moms doctor visit. She went to see her Neurologist

today and she is excited because for the last 3 yrs she has not had any

reflexes. Well today she did! She has been having a little pain in her

left foot lately, and that is where the reflex was. Has anyone heard of

that happening before? Her doctor said he has never expeienced it with

a CMT patient. But then again, where we are from there is not a lot of

us. ha ha. Hope everyone is doing good and Ill talk later.

Amy

amy

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