Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 << Many of you are talking about medication for pains, chronic and sharp pains..... are these something that got worse or happened due to surgery? The burning nerves etc??? >> About 50% of CMTers do have significant nerve pain whether or not they have had surgery. For years, many doctors did not believe this, and told CMTers their pain was in their heads. Now CMT pain is more apt to be recognized. CMTers who do not have pain are fortunate. Sometimes they don't understand what the rest of us are coping with. I imagine some types of pain may be from surgery, but often it is not - it's just CMT nerves protesting their death, or something like that. I am not a medical person. This is my opinion based on reading and listening to others, including my neuro, and on my own unrelenting pain. Kat in Seattle PS, there is a CMT pain study available for anyone who needs documentation to convince his/her doc that the pain is legitimate. Quote Link to comment Share on other sites More sharing options...
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