Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 Hello, There is a new survey for the CMTUS community: ------------------------------------------------------------ How can we increase CMT awareness and visibility within the public, therefore reaching not only more doctors but more CMTers and family members as well? o Get a story on " Dateline " o Get a story on " Oprah " o Someone should make a documentary of our lives o Write brochures with all on-line CMT support; in many languages and give to doctors and newly diagnosed CMTers + families o Send CMT speakers into Medical Schools to " teach " o Write storys in different languages for major world newspapers o At the next Neurologists annual meeting, schedule workshops with CMTers present to share their experiences in an open dialogue o Write articles in different languages for Time, Newsweek, and other in-print weekly media o Send CMTers who know sign language into the deaf community o Make all in-print media available in Braille with up todate CMT info o Write an awareness story and send to " Dear Abby " and " Ann Landers " o Lobby U.S. Congress directly for specialized finanical support for upgraded CMT research o Get Geraldo Riveria to do a story on the lives of CMTers o Get info. on CMT out to doctors working in 3rd world countries o Other (please email liliwigg@...) or post on CMTUS list ------------------------------------------------------------ To vote, please visit the following web page: http://www.onelist.com/surveys/CMTUS Note: Please do not reply to this message. Survey votes are not collected via email. To vote, you must go to the ONElist website. Thanks! Moderator, CMTUS Quote Link to comment Share on other sites More sharing options...
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