Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Hi everyone. Some of you may know me as Starr from the CMT chatroom and more recently, the CMT weight management list too. My name is and I am 23. I live in Philadelphia with my fiance Alan, whom I will be marrying in just 6 months. I was dx'ed with CMT type 2 almost 2 years ago. I am currently on disability too from the CMt as my symptoms are severe. I just had a triple arthrodeses done to my left ankle back in Oct which is basically just an ankle fusion. I was sick and tired of wearing braces that never helped me and I certainly didn't want to wear them forever. Sooo, surgery was my last option and I am quite happy with the choice I made. I am still in physical therapy for my ankle now and that has made a world of difference. If I didn't have a wedding coming up so soon, I would probably have the surgery done to my right foot as well, but for now I am waiting for the right time. I think I have alot of the same symptoms that many of you have, but I will tell you just a couple anyway. Severe chronic pain all mver my body, weakness, loss of feeling, numbness, poor balance and proprioception, bunions, claw/hammertoes, flat feet, tingling & shocking sensations. You name it, I have probably had it!! My brother was the first one dx'ed in my family. Then me and most recent my mom who found out last March. I hope to learn alot from this list and I can't wait to get to know all of you. Fell free to email me personally as well. I love to hear how other people are coping with this disease!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.