Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 hello every one alisha here, welcome cathy to the group and any others if there were any new people. i am 16, i have x-linked and i use a walker for mobility only. i was tested by an EMG and DNA testing, but also a family history helped too. i am affected from my shoulders to my hands and every thing in between and my hips to my toes and everything in between. i have muscle wasting, weakness, fatigue and PAIN!!! i am the only female affected that i know of so far, it like a family secret for us. i have docs that say that all these problems are in my head and i hate it all. i actually got rid of my family doc, who delivered me because of the treatment that i got. well i guess thats it for now again welcome to the group " I am not crazy, I am just a teenager! " http://home.talkcity.com/OceanBlvd/cmtx/index.html ICQ # 47695812 for information on CMT go here www.cmtint.org/ are u a kid or teenager with CMT??? wanna talk to others with CMT???? join here if u want to CMTchildren-subscribe (AT) onelist (DOT) com ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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