Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hello , Wecome, Cinda > Greetings all! > > My name is and I've been fighting the diagnosis of fibromyalgia > for the past 10 years. I say 'fighting the diagnosis' because I knew > I had the disease, but I wasn't ready to accept actually having it. > I'm not sure if that really makes sense. > > Besides the FMS, I also have a lot of other diagnosis (doesn't that > go with the turf?). I have chronic kidney stones; asthma; sleep > apnea; I'll stop here, I'm getting depressed. > > I am so glad I found this group, because I feel that fibromyalgia is > a lonely disease. If people don't have it, they don't understand > that yesterday I was feeling almost okay, but today, I can barely > move. > > I'm really glad to be here and look forward to meeting you all. > > ~ :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hello , Wecome, Cinda > Greetings all! > > My name is and I've been fighting the diagnosis of fibromyalgia > for the past 10 years. I say 'fighting the diagnosis' because I knew > I had the disease, but I wasn't ready to accept actually having it. > I'm not sure if that really makes sense. > > Besides the FMS, I also have a lot of other diagnosis (doesn't that > go with the turf?). I have chronic kidney stones; asthma; sleep > apnea; I'll stop here, I'm getting depressed. > > I am so glad I found this group, because I feel that fibromyalgia is > a lonely disease. If people don't have it, they don't understand > that yesterday I was feeling almost okay, but today, I can barely > move. > > I'm really glad to be here and look forward to meeting you all. > > ~ :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hi , and Cinda and Kim too, Welcome to the group. This is a wonderful place to get support and understanding, and be able to vent when it's necessary. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hi , and Cinda and Kim too, Welcome to the group. This is a wonderful place to get support and understanding, and be able to vent when it's necessary. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Welcome & all our Newbies! I agree with what you said, , of " I am so glad I found this group, because I feel that fibromyalgia is a lonely disease. If people don't have it, they don't understand that yesterday I was feeling almost okay, but today, I can barely move. " I have said for years that unless one has symptoms that are " tangible " , people want to lump us in as hyperchondriacs, lazy, faking, etc... Now that I have a 6 inch scar running down my neck, hands crippling up, losing my hair, etc.... my family and local town folk say, " oh wow....you do have health problems " ! I am so grateful for this group where we can share, read, or " stay in the shadows " ; just being able to read (and not even answer) makes me feel understood and validated! I pray all members here gain that as well. LOVE & LIGHT, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Welcome & all our Newbies! I agree with what you said, , of " I am so glad I found this group, because I feel that fibromyalgia is a lonely disease. If people don't have it, they don't understand that yesterday I was feeling almost okay, but today, I can barely move. " I have said for years that unless one has symptoms that are " tangible " , people want to lump us in as hyperchondriacs, lazy, faking, etc... Now that I have a 6 inch scar running down my neck, hands crippling up, losing my hair, etc.... my family and local town folk say, " oh wow....you do have health problems " ! I am so grateful for this group where we can share, read, or " stay in the shadows " ; just being able to read (and not even answer) makes me feel understood and validated! I pray all members here gain that as well. LOVE & LIGHT, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 I want to welcome all you newbies. You've come to a caring group of people. =-)) I hope you feel free to ask questions and post thoughts. ~ --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 I want to welcome all you newbies. You've come to a caring group of people. =-)) I hope you feel free to ask questions and post thoughts. ~ --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 It is a shame that a person has to have outward appearances of illness to be recognized. I try to look presentable and at anytime that I even try to have a smile - those that don't understand ( even close family that does) automatatically think and comment on how I must be getting better - when actually I'm not - I'm just trying not to be so gloomy. Cinda Re: Newbie Here Welcome & all our Newbies! I agree with what you said, , of " I am so glad I found this group, because I feel that fibromyalgia is a lonely disease. If people don't have it, they don't understand that yesterday I was feeling almost okay, but today, I can barely move. " I have said for years that unless one has symptoms that are " tangible " , people want to lump us in as hyperchondriacs, lazy, faking, etc... Now that I have a 6 inch scar running down my neck, hands crippling up, losing my hair, etc.... my family and local town folk say, " oh wow....you do have health problems " ! I am so grateful for this group where we can share, read, or " stay in the shadows " ; just being able to read (and not even answer) makes me feel understood and validated! I pray all members here gain that as well. LOVE & LIGHT, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 It is a shame that a person has to have outward appearances of illness to be recognized. I try to look presentable and at anytime that I even try to have a smile - those that don't understand ( even close family that does) automatatically think and comment on how I must be getting better - when actually I'm not - I'm just trying not to be so gloomy. Cinda Re: Newbie Here Welcome & all our Newbies! I agree with what you said, , of " I am so glad I found this group, because I feel that fibromyalgia is a lonely disease. If people don't have it, they don't understand that yesterday I was feeling almost okay, but today, I can barely move. " I have said for years that unless one has symptoms that are " tangible " , people want to lump us in as hyperchondriacs, lazy, faking, etc... Now that I have a 6 inch scar running down my neck, hands crippling up, losing my hair, etc.... my family and local town folk say, " oh wow....you do have health problems " ! I am so grateful for this group where we can share, read, or " stay in the shadows " ; just being able to read (and not even answer) makes me feel understood and validated! I pray all members here gain that as well. LOVE & LIGHT, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hi Cinda, I know exactly where u r coming rom. It makes u a bit scared to smile or look presentable doesnt it. I find people make comments like " its nice to see that u r feeling better " and " u have finally bucked up then " that sort of thing. So infuriating isnt it. Only we know wot we r going thru as people just see wot is on the outside they cant comprehend wot is happening on the inside. Take care hun and thanx for letting me vent some. gentle fibro hugs Lin x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hi Cinda, I know exactly where u r coming rom. It makes u a bit scared to smile or look presentable doesnt it. I find people make comments like " its nice to see that u r feeling better " and " u have finally bucked up then " that sort of thing. So infuriating isnt it. Only we know wot we r going thru as people just see wot is on the outside they cant comprehend wot is happening on the inside. Take care hun and thanx for letting me vent some. gentle fibro hugs Lin x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 it is a real kick in the back side. I would love to feel as good as others think or percieve me to feel !!!!!!!!!!!!!!!! but the one that is really bad is when this particular person calls me ( she has CFIDS) and says - well you sound better today !!!!!!! She if anyone should know that is a crock !!!!!!!!! And my family doc often says " I see you better today " ( speaking of this auro around me or something ) and usually comes when I have finally put on a dab of makeup in hopes to lift my spirit and keep from looking like the walking dead - my reply is usually - I'm glad you can see it - because I certainly can't feel it !!!!!! Hang in there !!! Cinda Re: Re: Newbie Here Hi Cinda, I know exactly where u r coming rom. It makes u a bit scared to smile or look presentable doesnt it. I find people make comments like " its nice to see that u r feeling better " and " u have finally bucked up then " that sort of thing. So infuriating isnt it. Only we know wot we r going thru as people just see wot is on the outside they cant comprehend wot is happening on the inside. Take care hun and thanx for letting me vent some. gentle fibro hugs Lin x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 it is a real kick in the back side. I would love to feel as good as others think or percieve me to feel !!!!!!!!!!!!!!!! but the one that is really bad is when this particular person calls me ( she has CFIDS) and says - well you sound better today !!!!!!! She if anyone should know that is a crock !!!!!!!!! And my family doc often says " I see you better today " ( speaking of this auro around me or something ) and usually comes when I have finally put on a dab of makeup in hopes to lift my spirit and keep from looking like the walking dead - my reply is usually - I'm glad you can see it - because I certainly can't feel it !!!!!! Hang in there !!! Cinda Re: Re: Newbie Here Hi Cinda, I know exactly where u r coming rom. It makes u a bit scared to smile or look presentable doesnt it. I find people make comments like " its nice to see that u r feeling better " and " u have finally bucked up then " that sort of thing. So infuriating isnt it. Only we know wot we r going thru as people just see wot is on the outside they cant comprehend wot is happening on the inside. Take care hun and thanx for letting me vent some. gentle fibro hugs Lin x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 it is a real kick in the back side. I would love to feel as good as others think or percieve me to feel !!!!!!!!!!!!!!!! but the one that is really bad is when this particular person calls me ( she has CFIDS) and says - well you sound better today !!!!!!! She if anyone should know that is a crock !!!!!!!!! And my family doc often says " I see you better today " ( speaking of this auro around me or something ) and usually comes when I have finally put on a dab of makeup in hopes to lift my spirit and keep from looking like the walking dead - my reply is usually - I'm glad you can see it - because I certainly can't feel it !!!!!! Hang in there !!! Cinda Re: Re: Newbie Here Hi Cinda, I know exactly where u r coming rom. It makes u a bit scared to smile or look presentable doesnt it. I find people make comments like " its nice to see that u r feeling better " and " u have finally bucked up then " that sort of thing. So infuriating isnt it. Only we know wot we r going thru as people just see wot is on the outside they cant comprehend wot is happening on the inside. Take care hun and thanx for letting me vent some. gentle fibro hugs Lin x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 writes, > My name is and I've been fighting the diagnosis of fibromyalgia > for the past 10 years. I say 'fighting the diagnosis' because I knew > I had the disease, but I wasn't ready to accept actually having it. > I'm not sure if that really makes sense. First and formost, I want to welcome you to our group. I think it is a very good group. Secondly, the " fighting the diagnosis " is something that we all have done. some of us have not accepted the fact that we have fibro, others are starting to know that they have fibro to finally accepting the fact that that they do have fibro. It does make sense. None of us want to accept the fact that we have fibro. Some of us refuse to accept that we do have fibro. But sooner or later, we do accept that fact and then we begin to try and learn to cope. That is the hard part. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 writes, > My name is and I've been fighting the diagnosis of fibromyalgia > for the past 10 years. I say 'fighting the diagnosis' because I knew > I had the disease, but I wasn't ready to accept actually having it. > I'm not sure if that really makes sense. First and formost, I want to welcome you to our group. I think it is a very good group. Secondly, the " fighting the diagnosis " is something that we all have done. some of us have not accepted the fact that we have fibro, others are starting to know that they have fibro to finally accepting the fact that that they do have fibro. It does make sense. None of us want to accept the fact that we have fibro. Some of us refuse to accept that we do have fibro. But sooner or later, we do accept that fact and then we begin to try and learn to cope. That is the hard part. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Irene I second your words on this subject. I've gone through denial to eccepting that I have it, but denying the effect it has, to just 2 days ago eccepting that I will not be able to go back to work this time. Which just opens more doors to fight - disability. FM/CFIDS takes all your energy away along with everything else, yet it still manages to keep you fighting !!!!!! Fighting something all the time. Cinda > writes, > > > My name is and I've been fighting the diagnosis of fibromyalgia > > for the past 10 years. I say 'fighting the diagnosis' because I knew > > I had the disease, but I wasn't ready to accept actually having it. > > I'm not sure if that really makes sense. > > > First and formost, I want to welcome you to our group. I think it is a very > good group. > > Secondly, the " fighting the diagnosis " is something that we all have done. > some of us have not accepted the fact that we have fibro, others are starting > to know that they have fibro to finally accepting the fact that that they do > have fibro. > > It does make sense. None of us want to accept the fact that we have fibro. > Some of us refuse to accept that we do have fibro. But sooner or later, we > do accept that fact and then we begin to try and learn to cope. That is the > hard part. > > > Take care, > Irene > > Books may well be the only true magic > Alice Hoffman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Irene I second your words on this subject. I've gone through denial to eccepting that I have it, but denying the effect it has, to just 2 days ago eccepting that I will not be able to go back to work this time. Which just opens more doors to fight - disability. FM/CFIDS takes all your energy away along with everything else, yet it still manages to keep you fighting !!!!!! Fighting something all the time. Cinda > writes, > > > My name is and I've been fighting the diagnosis of fibromyalgia > > for the past 10 years. I say 'fighting the diagnosis' because I knew > > I had the disease, but I wasn't ready to accept actually having it. > > I'm not sure if that really makes sense. > > > First and formost, I want to welcome you to our group. I think it is a very > good group. > > Secondly, the " fighting the diagnosis " is something that we all have done. > some of us have not accepted the fact that we have fibro, others are starting > to know that they have fibro to finally accepting the fact that that they do > have fibro. > > It does make sense. None of us want to accept the fact that we have fibro. > Some of us refuse to accept that we do have fibro. But sooner or later, we > do accept that fact and then we begin to try and learn to cope. That is the > hard part. > > > Take care, > Irene > > Books may well be the only true magic > Alice Hoffman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Irene I second your words on this subject. I've gone through denial to eccepting that I have it, but denying the effect it has, to just 2 days ago eccepting that I will not be able to go back to work this time. Which just opens more doors to fight - disability. FM/CFIDS takes all your energy away along with everything else, yet it still manages to keep you fighting !!!!!! Fighting something all the time. Cinda > writes, > > > My name is and I've been fighting the diagnosis of fibromyalgia > > for the past 10 years. I say 'fighting the diagnosis' because I knew > > I had the disease, but I wasn't ready to accept actually having it. > > I'm not sure if that really makes sense. > > > First and formost, I want to welcome you to our group. I think it is a very > good group. > > Secondly, the " fighting the diagnosis " is something that we all have done. > some of us have not accepted the fact that we have fibro, others are starting > to know that they have fibro to finally accepting the fact that that they do > have fibro. > > It does make sense. None of us want to accept the fact that we have fibro. > Some of us refuse to accept that we do have fibro. But sooner or later, we > do accept that fact and then we begin to try and learn to cope. That is the > hard part. > > > Take care, > Irene > > Books may well be the only true magic > Alice Hoffman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Hi, I'm new here. My family eats terribly (I'm not even going to tell you, because you'll be horrified). Anyway, I have struggled with persistant yeast/thrush issues since I began breastfeeding my toddler 2.5 years ago and my husband has ADD and a host of other learning disabilities. I've only briefly read about SCD, but I'm already getting quite excited about the possibilities. I figured that I would probably never actually make the leap, however, if I didn't join a community where I'd get a lot of support. So, after looking at the lists of what is and isn't allowed on this diet, my first concern is that my toddler *loves* cows milk (as does my husband). What do you substitute for this? My daugther would probably go into fits of rage if I took milk away from her. So, this is my first question for you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 > Hi, I'm new here. My family eats terribly (I'm not even going to tell > you, because you'll be horrified). Anyway, I have struggled with > persistant yeast/thrush issues since I began breastfeeding my toddler > 2.5 years ago and my husband has ADD and a host of other learning > disabilities. I've only briefly read about SCD, but I'm already > getting quite excited about the possibilities. About changing eating habits-- Dr. Phil has excellent suggestions book about that can be applied to any diet even those tthat are not about weight control The first half of the book is not about kinds of food. So we can all benfit. The link to his seven suggestions is: http://www2.oprah.com/health/omag/health_omag_200310_philweight.jhtml Although very careful about eating the right SCD foods, I was beginning to overdo foods one can be sensitive to like too many nuts and dried fruits as snacks. Using some of Dr. Phil's behavior awareness, I am optimizing my SCD cpmpliance and renforcing better general eating habits.. You can make SCD the basic platform for an entire family and arrange for them to have non SCD food at other times or even at meal times if it does not cause a big problem. Example: Present a meal of soup, meat fish and or poultry, several vegetables, salad, fruit and a legal beverage and some legal cookies with dessert. It is is so helpful when making any major dietary changes to try and gain support from family and friends or at least ask them not to create opposition. Carol F. SCD 5 yearsCeliac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 We have been on SCD for a little over 3 wks now. We have had great success with it in helping our 5 yr old with volcanic emotions, anger, rages, oppositional etc. Life is not perfect but sooooo much improved. The first two weeks we had some infractions with seasonings I was using and didn't realize they were illegal. I have also gotten him off a suppliment that could have been affecting him adversally. The first two weeks we saw improvement with interjected slide backs. Last week there were about 3-4 days that was pretty bad, not back to before diet but still pretty stressful. Our whole family is convinced that this diet is a real key though and we are ready for the long haul at this point. Much of the information that I have read talks about ups and downs to start with. I think one article talked about the first 3 months could be this way. One thing I would maybe do is make sure that there is not something that he is getting that may be affecting him. I posted all the supplements that our son was taking and got feed back. this is how I discovered the one ill affecting one. Also, does your child go to school, church school, play dates that he may be getting something that he should not have. I have had to really be proactive with the other people that are in his life and give him food. I feel like a real pain in the....but we are talking about the well being of our child and our families sanity. One of the things that I have had to do on the 'bad' days or times is really remember what it was like before SCD. Even the worst time has not been anything like then. I don' know if this is proper here but the other thing that I do constantly is seek my Heavenly Father for wisdom and as we have gone on this seemingly very long journey, He keeps showing me the next step to see my children completely free from much of the ugly stuff that they brought with them to our home. I am very willing to share with you privately if you want. Be blessed Sandy M. Whole family SCD 3 weeks in support of 5 yr old son who rages. (Not nearly as often nor as long) It just keeps getting better. > > > > > > > > Hi, I am new to this group. I have a 3 year old who lives > >casein > > > > free, gluten free, soy free and egg free, due to food > >sensitivities. > > > > > > > > > > Anyone who is SCD without eggs? It seems really > > > > hard to go without eggs on SCD. > > > > > > > > Colby > > > > > > > > > > > > > > > Hi! > > > > > > My DS3 also can't have those things along with some other foods > >here and > > > there (kiwi, spinach, mushrooms that I've figured out). He is > >celiac as > > > well. We do fine without eggs. There is a most excellent cookie > >recipe at > > > the pecanbread site. I think it's called cookie cutter cookies, or > >something > > > like that. I do think buying the nut flour makes a big difference > >when it > > > comes to egg free cooking (versus making your own flour in the food > > > processor - at least as far as my food processor goes). There are > >some > > > things that we don't do, like pancakes and bread. I could probably > >figure > > > them out, but we don't miss them. We just do a very basic meat, > >veggies and > > > fruit diet with occasional treats. > > > > > > We've actually all gone egg free for now. They seemed to be > >upsetting my > > > stomach, though I haven't isolated them yet to be sure. It is much > >easier > > > on my DS3 not to see some of us eating cake in front of him that he > >can't > > > have, as you can imagine. :-) > > > > > > This diet is great for many reasons. Welcome! > > > > > > Steph, Aspie, IgA allergies to gluten & casein > > > DH, IgA to gluten - mostly SCD > > > DS8, Aspie, Derm. Herp. Celiac, IgA to gluten & casein > > > DS3, Celiac, IgA to gluten, casein & eggs, & other food allergies > > > All SCD 10 weeks > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 We have been on SCD for a little over 3 wks now. We have had great success with it in helping our 5 yr old with volcanic emotions, anger, rages, oppositional etc. Life is not perfect but sooooo much improved. The first two weeks we had some infractions with seasonings I was using and didn't realize they were illegal. I have also gotten him off a suppliment that could have been affecting him adversally. The first two weeks we saw improvement with interjected slide backs. Last week there were about 3-4 days that was pretty bad, not back to before diet but still pretty stressful. Our whole family is convinced that this diet is a real key though and we are ready for the long haul at this point. Much of the information that I have read talks about ups and downs to start with. I think one article talked about the first 3 months could be this way. One thing I would maybe do is make sure that there is not something that he is getting that may be affecting him. I posted all the supplements that our son was taking and got feed back. this is how I discovered the one ill affecting one. Also, does your child go to school, church school, play dates that he may be getting something that he should not have. I have had to really be proactive with the other people that are in his life and give him food. I feel like a real pain in the....but we are talking about the well being of our child and our families sanity. One of the things that I have had to do on the 'bad' days or times is really remember what it was like before SCD. Even the worst time has not been anything like then. I don' know if this is proper here but the other thing that I do constantly is seek my Heavenly Father for wisdom and as we have gone on this seemingly very long journey, He keeps showing me the next step to see my children completely free from much of the ugly stuff that they brought with them to our home. I am very willing to share with you privately if you want. Be blessed Sandy M. Whole family SCD 3 weeks in support of 5 yr old son who rages. (Not nearly as often nor as long) It just keeps getting better. > > > > > > > > Hi, I am new to this group. I have a 3 year old who lives > >casein > > > > free, gluten free, soy free and egg free, due to food > >sensitivities. > > > > > > > > > > Anyone who is SCD without eggs? It seems really > > > > hard to go without eggs on SCD. > > > > > > > > Colby > > > > > > > > > > > > > > > Hi! > > > > > > My DS3 also can't have those things along with some other foods > >here and > > > there (kiwi, spinach, mushrooms that I've figured out). He is > >celiac as > > > well. We do fine without eggs. There is a most excellent cookie > >recipe at > > > the pecanbread site. I think it's called cookie cutter cookies, or > >something > > > like that. I do think buying the nut flour makes a big difference > >when it > > > comes to egg free cooking (versus making your own flour in the food > > > processor - at least as far as my food processor goes). There are > >some > > > things that we don't do, like pancakes and bread. I could probably > >figure > > > them out, but we don't miss them. We just do a very basic meat, > >veggies and > > > fruit diet with occasional treats. > > > > > > We've actually all gone egg free for now. They seemed to be > >upsetting my > > > stomach, though I haven't isolated them yet to be sure. It is much > >easier > > > on my DS3 not to see some of us eating cake in front of him that he > >can't > > > have, as you can imagine. :-) > > > > > > This diet is great for many reasons. Welcome! > > > > > > Steph, Aspie, IgA allergies to gluten & casein > > > DH, IgA to gluten - mostly SCD > > > DS8, Aspie, Derm. Herp. Celiac, IgA to gluten & casein > > > DS3, Celiac, IgA to gluten, casein & eggs, & other food allergies > > > All SCD 10 weeks > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 We have been on SCD for a little over 3 wks now. We have had great success with it in helping our 5 yr old with volcanic emotions, anger, rages, oppositional etc. Life is not perfect but sooooo much improved. The first two weeks we had some infractions with seasonings I was using and didn't realize they were illegal. I have also gotten him off a suppliment that could have been affecting him adversally. The first two weeks we saw improvement with interjected slide backs. Last week there were about 3-4 days that was pretty bad, not back to before diet but still pretty stressful. Our whole family is convinced that this diet is a real key though and we are ready for the long haul at this point. Much of the information that I have read talks about ups and downs to start with. I think one article talked about the first 3 months could be this way. One thing I would maybe do is make sure that there is not something that he is getting that may be affecting him. I posted all the supplements that our son was taking and got feed back. this is how I discovered the one ill affecting one. Also, does your child go to school, church school, play dates that he may be getting something that he should not have. I have had to really be proactive with the other people that are in his life and give him food. I feel like a real pain in the....but we are talking about the well being of our child and our families sanity. One of the things that I have had to do on the 'bad' days or times is really remember what it was like before SCD. Even the worst time has not been anything like then. I don' know if this is proper here but the other thing that I do constantly is seek my Heavenly Father for wisdom and as we have gone on this seemingly very long journey, He keeps showing me the next step to see my children completely free from much of the ugly stuff that they brought with them to our home. I am very willing to share with you privately if you want. Be blessed Sandy M. Whole family SCD 3 weeks in support of 5 yr old son who rages. (Not nearly as often nor as long) It just keeps getting better. > > > > > > > > Hi, I am new to this group. I have a 3 year old who lives > >casein > > > > free, gluten free, soy free and egg free, due to food > >sensitivities. > > > > > > > > > > Anyone who is SCD without eggs? It seems really > > > > hard to go without eggs on SCD. > > > > > > > > Colby > > > > > > > > > > > > > > > Hi! > > > > > > My DS3 also can't have those things along with some other foods > >here and > > > there (kiwi, spinach, mushrooms that I've figured out). He is > >celiac as > > > well. We do fine without eggs. There is a most excellent cookie > >recipe at > > > the pecanbread site. I think it's called cookie cutter cookies, or > >something > > > like that. I do think buying the nut flour makes a big difference > >when it > > > comes to egg free cooking (versus making your own flour in the food > > > processor - at least as far as my food processor goes). There are > >some > > > things that we don't do, like pancakes and bread. I could probably > >figure > > > them out, but we don't miss them. We just do a very basic meat, > >veggies and > > > fruit diet with occasional treats. > > > > > > We've actually all gone egg free for now. They seemed to be > >upsetting my > > > stomach, though I haven't isolated them yet to be sure. It is much > >easier > > > on my DS3 not to see some of us eating cake in front of him that he > >can't > > > have, as you can imagine. :-) > > > > > > This diet is great for many reasons. Welcome! > > > > > > Steph, Aspie, IgA allergies to gluten & casein > > > DH, IgA to gluten - mostly SCD > > > DS8, Aspie, Derm. Herp. Celiac, IgA to gluten & casein > > > DS3, Celiac, IgA to gluten, casein & eggs, & other food allergies > > > All SCD 10 weeks > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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