Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 Hi again, Jenn and Kali. Sorry, I missed a post " digest " and didn't see that others already mentioned using McD's boxes to you. Sorry for the repeat. Also, Carol's suggestion is good to write " Doing our best and getting there " instead of " 95% SCD. " But I'll share that though we're 100% compliant with my ASD daughter, some days I'm far from 100% compliant. That's because my IBS is better, so I take that sliver of cake at a function, or a taste of my husband's ice cream after the kids have gone to bed. (But, my tummy and bowels soon provide me all the natural consequence/incentive I need to be 100% compliant tomorrow.) However, on the days I cheat AND post here, I just write SCD after my name, not " SCD, but cheating! " or " SCD most days, but only 80% today! " ;-) Cut yourself some slack. I think the assumption here is that everyone's intention is 100%, but sometimes we're going to slip up, or our kids' extreme needs are going to make compliance impossible. Another help (maybe): When we were going GF (on top of CF), to get people to take my daughter's diet seriously, I compared it to an allergy to ant bites. I wrote in a note, or said to them: " If it were not certain foods had hurtful reactions to, but instead, ant bites, what would you do? If you knew that one tiny ant bite could severely hurt this child for life, how vigilant would you be if you saw an ant anywhere near her? Wouldn't you bat it away with a vengeance, stamp on it to ensure it's dead, then still exit the room in case there are more nearby? " Think of illegal starches as life-threatening ants. (This may be an easier jump for me, because our family " lost " our daughter to autism, and now she's coming back to us, thanks to SCD.) Biting into an illegal food is an ant bite. Consider it a frightening thing and it will be easier to " bat it away " for your child's own safety. My husband has often said that his greatest sadness as 's dad is his inability to " keep her safe from harm, " which he'd always held as the primary responsibility of a dad. He couldn't keep her safe from autism, despite us thinking we were doing everything right (by medical standards) when she was young. Your husband has the opportunity to be the hero, to keep Kali safe from harm. Let him know that. And when Kali has made improvements obvious to both of you because Dad finally kicked the Mc's habit, buy this superhero a cape and give him a great, big kiss when you present it to him. Nannette, IBS, SCD 2 months daughter, , autism, 13yo, SCD 2 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 >But I'll share that though we're 100% compliant with my ASD daughter, some days I'm far >from 100% compliant. That's because my IBS is better, so I take that sliver of cake at a >function, or a taste of my husband's ice cream after the kids have gone to bed. (But, my >tummy and bowels soon provide me all the natural consequence/incentive I need to be >100% compliant tomorrow.) Boy, can I ever relate to your last statement. I guess Hamlet had IBS when he said: " Tomorrow and tomorrow and tomorrow, " because I have suffered the same consequences you describe. Jody G. says it can also take up to two weeks to feel the effects of these " sliver " experiments. Cheating is defeating! Carol F. Toronto, Celiac, SCD 5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Thank you for putting this so nicely. Yes. I need to get those nuggets out of her diet and I have tried the scd nuggets but, to no avail. We just need to replace this habit with a good, fun thing to do. This really is great stuff! I will use these ideas and hopefully and finally break this habit and continue to reaching my daughter. I will have a talk with dad and let you all know how things are going. Think of illegal starches as life-threatening ants. (This may be an easier jump for me, because our family " lost " our daughter to autism, and now she's coming back to us, thanks to SCD.) Biting into an illegal food is an ant bite. Consider it a frightening thing and it will be easier to " bat it away " for your child's own safety > My husband has often said that his greatest sadness as 's dad is his inability to " keep her safe from harm, " which he'd always held as the primary responsibility of a dad. He couldn't keep her safe from autism, despite us thinking we were doing everything right (by medical standards) when she was young. Your husband has the opportunity to be the hero, to keep Kali safe from harm. Let him know that. And when Kali has made improvements obvious to both of you because Dad finally kicked the Mc's habit, buy this superhero a cape and give him a great, big kiss when you present it to him THANK YOU NANNETTE! Jenn Lessard Re: 95% SCD > Hi again, Jenn and Kali. > > Sorry, I missed a post " digest " and didn't see that others already mentioned using McD's boxes to you. Sorry for the repeat. > > Also, Carol's suggestion is good to write " Doing our best and getting there " instead of " 95% SCD. " But I'll share that though we're 100% compliant with my ASD daughter, some days I'm far from 100% compliant. That's because my IBS is better, so I take that sliver of cake at a function, or a taste of my husband's ice cream after the kids have gone to bed. (But, my tummy and bowels soon provide me all the natural consequence/incentive I need to be 100% compliant tomorrow.) However, on the days I cheat AND post here, I just write SCD after my name, not " SCD, but cheating! " or " SCD most days, but only 80% today! " ;-) Cut yourself some slack. I think the assumption here is that everyone's intention is 100%, but sometimes we're going to slip up, or our kids' extreme needs are going to make compliance impossible. > > Another help (maybe): When we were going GF (on top of CF), to get people to take my daughter's diet seriously, I compared it to an allergy to ant bites. I wrote in a note, or said to them: " If it were not certain foods had hurtful reactions to, but instead, ant bites, what would you do? If you knew that one tiny ant bite could severely hurt this child for life, how vigilant would you be if you saw an ant anywhere near her? Wouldn't you bat it away with a vengeance, stamp on it to ensure it's dead, then still exit the room in case there are more nearby? " > > Think of illegal starches as life-threatening ants. (This may be an easier jump for me, because our family " lost " our daughter to autism, and now she's coming back to us, thanks to SCD.) Biting into an illegal food is an ant bite. Consider it a frightening thing and it will be easier to " bat it away " for your child's own safety. > > My husband has often said that his greatest sadness as 's dad is his inability to " keep her safe from harm, " which he'd always held as the primary responsibility of a dad. He couldn't keep her safe from autism, despite us thinking we were doing everything right (by medical standards) when she was young. Your husband has the opportunity to be the hero, to keep Kali safe from harm. Let him know that. And when Kali has made improvements obvious to both of you because Dad finally kicked the Mc's habit, buy this superhero a cape and give him a great, big kiss when you present it to him. > > Nannette, IBS, SCD 2 months > daughter, , autism, 13yo, SCD 2 months > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 A good way to replace the McNuggets with SCD nuggets is to eliminate the McNuggets for a few weeks or a month before trying to replace them. There is such a thing as a " food memory " . If you taste one thing right after another, you will see the difference - like if you drink whole milk then in the next sip you try 2% or skim milk. But, if you haven't had any milk for a month and try skim milk, it will taste more like what you " remember " milk to taste like. Also, canola is not legal - we use sunflower oil and olive oil is even better for you. Sandy, mom to SCD 10 months. > > Thank you for putting this so nicely. Yes. I need to get those nuggets out > of her diet and I have tried the scd nuggets but, to no avail. We just need > to replace this habit with a good, fun thing to do. Quote Link to comment Share on other sites More sharing options...
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