Carol & other SCD veterans (was oxalates)

[Guest guest]

Hi,

> It's (*oxalate discussion*) not a dead horse just not living here

yet until we get a better handle on more research

> regarding SCD, gut bugs, and oxalates before changing existing

SCD protocols.

I was not trying to change the protocols (gee, sorta sounds like the

organic/ digestive enzyme discussion some time ago, lol) - just

offering our experience with our son. That would be awfully arrogant

considering how much work and time others have put into this site.

Just saying it ain't one size fits all, all the time :-)

>Our FAQs

> do not include discussions of other diets and protocols on this

list but there are other

> places to learn more about them and participate in such

discussions and I encourage

> those that are interested to do so.

>

That's a refreshingly open attitude (sometimes uncommon on message

boards, lol)...but you have to realize something exists before you

can go look it up elsewhere ;-)

I know that I first read about SCD on a gfcf board; and boy am I

glad I did.

SCD is an excellent resource. But there are a lot of families using

its applications...and there is a far cry from a non-verbal asd

child with (as yet undertermined) metabolic skews vs a totally

cogent adult (or NT child) with IBS, or Crohn's or diverticulitis

or " allergies " etc. And many asd " gut kids " do really well on just

SCD. Just like some do great on just GFCF. Or Feingold. Etc. But for

those who don't 'get all the way', we need to look further. And most

of the places parents start looking are with people who understand

their parameters (ie decent message boards like this one).

It is certainly not my place to suggest 'changing SCD protocols',

and I do hope my comments aren't taken that way. But as there ARE

(unfortunately) more asd kids coming along, there will be more

familes looking for 'out of the box' answers (which is good!). Even

on SCD. It's a tool, IMO. Just 'cause you need a saw doesn't mean

you throw away the hammer.

Carol (or others), I DO understand the benefit of having a message

board with a unified purpose...but do you think there is any way to

list links or allow (!brief!) discussions of other digestive

avenues/supps etc w/out appearing like pecanbread condones it? Like

a file for " things some SCD families have found interesting " . Or

something similar. Just so people know where to look should they

wish to find out more about something w/out taking up lots of board

space - as I am now :-)? Or other ideas for when the inevitable

question about something else 'non-exclusively-SCD' comes up? I just

think it will continue to happen. FWIW.

-christine