Definition of 'symptom free'

[Guest guest]

Hi All,

BTVC states that certain foods can be added to the SCD once you are

symptom free. Does symptom free mean when you have no symptoms and you

are off all medication?

Thanks,

[Guest guest]

>

> Hi All,

> BTVC states that certain foods can be added to the SCD once you are

> symptom free.

For one year!

Carol F.

[Guest guest]

On Sun, 18 Dec 2005 17:12:43 -0500 W mail-lists@...> writes:

> Hi All,

> BTVC states that certain foods can be added to the SCD once you are

> symptom free. Does symptom free mean when you have no symptoms and

> you

> are off all medication?

> Thanks,

>

Symptom-free means just that. And many people with IBD or IBS have

reported success in going off SCD after being on the diet for at least a

year after symptoms stop. Though many people will wait 2 years, or stay

on longer. In any event when they go back to non-SCD eating they should

still eat as healthily as possible, i.e. not business as usual.

About medication: there are people who find that they can go off meds

when on the diet and that is great. Or they may be able to go off some

meds (e.g. steroids or Imuran or 6-MP) yet need to stay on others, like

Pentasa. If you would wait till you were off meds to introduce all the

legal food, well, that could take years or months. The meds are pretty

much irrelevant to how you introduce food. It's symptoms that count.

Here's my son's story: he started SCD after being on prednisone for

Crohn's for a month. By then he was symptom-free, and starving, so he

skipped the introductory diet but didn't start eating raw vegetables,

whole or chopped nuts (vs. ground), and I'm too tired to remember what

else, for a good month or two after starting SCD. Then he gradually

started on the others. We also started yogurt right away, and in larger

quantities than some of the kids are started here (like a quarter of a

cup or so vs. a quarter of a teaspoon).

Grammy Bauer of this list sets people up with SCD buddies; she'll give

you names and e-mail addresses for people in your area who've been on SCD

for a year or more, and you are likely to find someone with your

condition too, for more tailored help and I think she may also know of

SCD-friendly GIs by locale. If you check the archives for the last 2

weeks or so you should find her invitation to find buddies; she issues it

every so often. It may also be on this list's homepage. I don't have

internet access so I can't tell you for sure.

Take care, Fay

[Guest guest]

On Mon, 19 Dec 2005 00:27:03 -0000 " carolfrilegh "

c.frilegh@...> writes:

>

> >

> > Hi All,

> > BTVC states that certain foods can be added to the SCD once you

> are

> > symptom free.

>

> For one year!

>

> Carol F.

We may be understanding the meaning of " adding new foods " differently. I

was thinking in terms of adding legal foods such as nuts, seeds, raw

vegetables, etc. that are only for people who are symptom-free.

Carol, you seem to understand adding certain foods to mean reintroducing

foods that aren't legal, which is done very slowly once one is at a point

to be able to go off the diet.

, what do you mean?

Take care, Fay