RE: Re: Can SCD help with seizure disorder?

[Guest guest]

pardon my ignorance - is seizure disorder like epilepsy?

if it is illexplain further in another post my question

thanks

emma

carolfrilegh c.frilegh@...> wrote:

> There is a 2.5 yr girl that goes to the same speech thearpy as my ASD son.

> She is not autistic, but has seizure disorder. She has been taking meds to

> control the seizures for the past year +

>

> Once she goes off the meds, she regresses and the seizures come back. I

> recommened SCD to her mother, but I'm not sure it will help her. Does anyone

> have any advice for me to give. I don't feel the meds will help her in the

long

> term, something more can be done.

>

> Thank you,

>

A former member of this list, Patty Dubrovic used a Ketogenic Diet for her

child Katera

who had a seizure disorder. I believe she had the child on SCD at some point.

Perhaps Jody

will be able to recall the details

Carol F.

SCD 5 years, celiac

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

just my 2 cents.. my son has had a seizure disorder since he was 6 months

old. He is now completely diagnosed as asd as well as seizure disorder.

we have now sucessfully weaned our 4 yr old son off his meds, it has only

been a short while though. I credit the diet along with other things.

Karla, mom to Jake, scd 9 months, sd, asd

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: Re: Can SCD help with seizure disorder?

>Date: Tue, 04 Oct 2005 21:40:27 -0000

>

>I don't really know either. I know that seizures play a role in epilepsy.

>

>

>

> > > There is a 2.5 yr girl that goes to the same speech thearpy as my ASD

>son.

> > > She is not autistic, but has seizure disorder. She has been taking

>meds to

> > > control the seizures for the past year +

> > >

> > > Once she goes off the meds, she regresses and the seizures come back.

>I

> > > recommened SCD to her mother, but I'm not sure it will help her. Does

>anyone

> > > have any advice for me to give. I don't feel the meds will help her in

>the

>long

> > > term, something more can be done.

> > >

> > > Thank you,

> > >

> >

> > A former member of this list, Patty Dubrovic used a Ketogenic Diet for

>her

>child Katera

> > who had a seizure disorder. I believe she had the child on SCD at some

>point. Perhaps Jody

> > will be able to recall the details

> >

> > Carol F.

> > SCD 5 years, celiac

> >

> >

> >

> >

> >

> >

> > For information on the Specific Carbohydrate Diet, please read the book

>_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

>websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

> >

> >

> >

> >

[Guest guest]

hi

my point of epilepsy is this, epilepsy, autistis spectrum disorders and migraine

all run along the same bio-chemical pathway

Dr Reichelt based in oslo university norway did a study on people with

schizophrenia and epilepsy and found that by removing wheat and dairy, their

symptoms either decreased so dramatically that they no longer required

medication or required very little

hth

emma

toekneeabc home@...> wrote:

Thank you all for your responses & emails. The information has been very

helpful. I have forwarded all the information and hope that she will give SCD a

try. She is very encouraged by the progress my son has made on SCD.

Thanks again,

> > > > There is a 2.5 yr girl that goes to the same speech thearpy as my ASD

> >son.

> > > > She is not autistic, but has seizure disorder. She has been taking

> >meds to

> > > > control the seizures for the past year +

> > > >

> > > > Once she goes off the meds, she regresses and the seizures come

back.

> >I

> > > > recommened SCD to her mother, but I'm not sure it will help her. Does

> >anyone

> > > > have any advice for me to give. I don't feel the meds will help her in

> >the

> >long

> > > > term, something more can be done.

> > > >

> > > > Thank you,

> > > >

> > >

> > > A former member of this list, Patty Dubrovic used a Ketogenic Diet for

> >her

> >child Katera

> > > who had a seizure disorder. I believe she had the child on SCD at some

> >point. Perhaps Jody

> > > will be able to recall the details

> > >

> > > Carol F.

> > > SCD 5 years, celiac

> > >

> > >

> > >

> > >

> > >

> > >

> > > For information on the Specific Carbohydrate Diet, please read the book

> >_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> >websites:

> > > http://www.breakingtheviciouscycle.info

> > > and

> > > http://www.pecanbread.com

> > >

> > >

> > >

> > >

> > >

[Guest guest]

What about arthritis? and thyroid/adrenal disorders?

I'm struggling with those, and wonder if SCD would help.

Thanks,

Marilyn

Re: Re: Can SCD help with seizure disorder?

hi

my point of epilepsy is this, epilepsy, autistis spectrum disorders and

migraine all run along the same bio-chemical pathway

Dr Reichelt based in oslo university norway did a study on people with

schizophrenia and epilepsy and found that by removing wheat and dairy, their

symptoms either decreased so dramatically that they no longer required

medication or required very little

hth

emma

toekneeabc home@...> wrote:

Thank you all for your responses & emails. The information has been very

helpful. I have forwarded all the information and hope that she will give

SCD a

try. She is very encouraged by the progress my son has made on SCD.

Thanks again,

> > > > There is a 2.5 yr girl that goes to the same speech thearpy as my

> > > > ASD

> >son.

> > > > She is not autistic, but has seizure disorder. She has been taking

> >meds to

> > > > control the seizures for the past year +

> > > >

> > > > Once she goes off the meds, she regresses and the seizures come

back.

> >I

> > > > recommened SCD to her mother, but I'm not sure it will help her.

> > > > Does

> >anyone

> > > > have any advice for me to give. I don't feel the meds will help her

> > > > in

> >the

> >long

> > > > term, something more can be done.

> > > >

> > > > Thank you,

> > > >

> > >

> > > A former member of this list, Patty Dubrovic used a Ketogenic Diet

> > > for

> >her

> >child Katera

> > > who had a seizure disorder. I believe she had the child on SCD at some

> >point. Perhaps Jody

> > > will be able to recall the details

> > >

> > > Carol F.

> > > SCD 5 years, celiac

> > >

> > >

> > >

> > >

> > >

> > >

> > > For information on the Specific Carbohydrate Diet, please read the

> > > book

> >_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> >websites:

> > > http://www.breakingtheviciouscycle.info

> > > and

> > > http://www.pecanbread.com

> > >

> > >

> > >

> > >

> > >

[Guest guest]

What about arthritis? and thyroid/adrenal disorders?

I'm struggling with those, and wonder if SCD would help.

Thanks,

Marilyn

Re: Re: Can SCD help with seizure disorder?

hi

my point of epilepsy is this, epilepsy, autistis spectrum disorders and

migraine all run along the same bio-chemical pathway

Dr Reichelt based in oslo university norway did a study on people with

schizophrenia and epilepsy and found that by removing wheat and dairy, their

symptoms either decreased so dramatically that they no longer required

medication or required very little

hth

emma

toekneeabc home@...> wrote:

Thank you all for your responses & emails. The information has been very

helpful. I have forwarded all the information and hope that she will give

SCD a

try. She is very encouraged by the progress my son has made on SCD.

Thanks again,

> > > > There is a 2.5 yr girl that goes to the same speech thearpy as my

> > > > ASD

> >son.

> > > > She is not autistic, but has seizure disorder. She has been taking

> >meds to

> > > > control the seizures for the past year +

> > > >

> > > > Once she goes off the meds, she regresses and the seizures come

back.

> >I

> > > > recommened SCD to her mother, but I'm not sure it will help her.

> > > > Does

> >anyone

> > > > have any advice for me to give. I don't feel the meds will help her

> > > > in

> >the

> >long

> > > > term, something more can be done.

> > > >

> > > > Thank you,

> > > >

> > >

> > > A former member of this list, Patty Dubrovic used a Ketogenic Diet

> > > for

> >her

> >child Katera

> > > who had a seizure disorder. I believe she had the child on SCD at some

> >point. Perhaps Jody

> > > will be able to recall the details

> > >

> > > Carol F.

> > > SCD 5 years, celiac

> > >

> > >

> > >

> > >

> > >

> > >

> > > For information on the Specific Carbohydrate Diet, please read the

> > > book

> >_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> >websites:

> > > http://www.breakingtheviciouscycle.info

> > > and

> > > http://www.pecanbread.com

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I'm so happy to answer this question. I have Grave's

disease, and that's why I started SCD. I've only been

on it for about a month, but get this: my joint pain

has vanished. Since grave's is an autoimmune disease

and autoimmunity starts in the gut, this seems the

logical choice. Try it!

--- Marilyn Sawyer marilyn1972@...> wrote:

> What about arthritis? and thyroid/adrenal disorders?

>

> I'm struggling with those, and wonder if SCD would

> help.

>

> Thanks,

> Marilyn

>

>

>

>

>

> Re: Re: Can SCD help with

> seizure disorder?

>

>

> hi

>

> my point of epilepsy is this, epilepsy, autistis

> spectrum disorders and

> migraine all run along the same bio-chemical pathway

>

> Dr Reichelt based in oslo university norway did a

> study on people with

> schizophrenia and epilepsy and found that by

> removing wheat and dairy, their

> symptoms either decreased so dramatically that they

> no longer required

> medication or required very little

>

> hth

>

> emma

> toekneeabc home@...> wrote:

> Thank you all for your responses & emails. The

> information has been very

> helpful. I have forwarded all the information and

> hope that she will give

> SCD a

> try. She is very encouraged by the progress my son

> has made on SCD.

>

> Thanks again,

>

>

>

>

>

> > > > > There is a 2.5 yr girl that goes to the same

> speech thearpy as my

> > > > > ASD

> > >son.

> > > > > She is not autistic, but has seizure

> disorder. She has been taking

> > >meds to

> > > > > control the seizures for the past year +

> > > > >

> > > > > Once she goes off the meds, she regresses

> and the seizures come

> back.

> > >I

> > > > > recommened SCD to her mother, but I'm not

> sure it will help her.

> > > > > Does

> > >anyone

> > > > > have any advice for me to give. I don't feel

> the meds will help her

> > > > > in

> > >the

> > >long

> > > > > term, something more can be done.

> > > > >

> > > > > Thank you,

> > > > >

> > > >

> > > > A former member of this list, Patty Dubrovic

> used a Ketogenic Diet

> > > > for

> > >her

> > >child Katera

> > > > who had a seizure disorder. I believe she had

> the child on SCD at some

> > >point. Perhaps Jody

> > > > will be able to recall the details

> > > >

> > > > Carol F.

> > > > SCD 5 years, celiac

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > For information on the Specific Carbohydrate

> Diet, please read the

> > > > book

> > >_Breaking the Vicious Cycle_ by Elaine

> Gottschall and read the following

> > >websites:

> > > > http://www.breakingtheviciouscycle.info

> > > > and

> > > > http://www.pecanbread.com

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I absolutely agree, consult your neuro FIRST. We were fortunate enough to

have a forward thinking neuro who is open to these types of intervention.

As for blood levels, ours was checked on a regular basis to ensure that

there was enough med in his system to prevent seizures, as his were so

extreme he would stop breathing every time- every day.

What convinced us to give this diet a try was not so much the Autism aspect

but the mention of possible seizure control in the book BTVC, chapter 7,

page 46. I must mention that the description of the seizure in the book is

exactly like the ones we were fighting, as you mentioned ;not all seizures

are equal or from the same origin.

Karla, mom to Jake, 4 yrs, asd. s.d , scd 9 months

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: Re: Can SCD help with seizure disorder?

>Date: Wed, 05 Oct 2005 19:37:43 -0000

>

>Before starting SCD, especially since this is a seizure

>disorder/epilepsy concern... Make certain the pediatric neurologist

>and pediatrician are well aware of the dietary changes contemplated

>because my understanding is that such dietary changes can change the

>medication levels found in the blood. This means, if on Trileptal

>for example (a widely used anticonvulsant drug), the simple blood

>test to check Trileptal level would probably be increased to watch

>for sudden increase within the bloodstream (there are known risk

>factors to having too much Trileptal in the system).

>

>I'm not against SCD by any means, but playing around with diet while

>on anticonvulsants is something that needs doctor supervision as

>well. Good luck... Here's a link describing epilepsy and seizure

>disorders: http://www.epilepsyfoundation.org/answerplace/faq.cfm

>seizures are one " symptom " of epilepsy, but seizures do not equal

>epilepsy diagnosis.

>

>Granted, ASD and Epilepsy are in the same realm. My best

>recommendation would be talk with your ped. neuro. and pediatrician

>FIRST... A diet change for a child w/ epilepsy is NOT something that

>should be done without Dr consultation (and constant monitoring).

>

>Best wishes,

>

>Carol

>Mom of 4; 5 yr old daughter has childhood epilepsy and 3.5 year old

>son has regressive autism

>

>

>

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[Guest guest]

Does Grave's disease usually have joint pain associated with it?

I thought I had hypothyroidism. My body is attacking my thyroid gland. I'm

tired. I take medication, but since my adrenal glands are also depleted, the

medication is of only limited benefit.

But I like your point that autoimmunity starts in the gut, and so it's

logical to fix the gut. I know my gut is totally messed up.

I've also got alot of joint pain, but don't know why. Is it arthritis, or

something from the thyroid? or another autoimmune condition?

Thanks for your help,

Marilyn

Re: Re: Can SCD help with

>> seizure disorder?

>>

>>

>> hi

>>

>> my point of epilepsy is this, epilepsy, autistis

>> spectrum disorders and

>> migraine all run along the same bio-chemical pathway

>>

>> Dr Reichelt based in oslo university norway did a

>> study on people with

>> schizophrenia and epilepsy and found that by

>> removing wheat and dairy, their

>> symptoms either decreased so dramatically that they

>> no longer required

>> medication or required very little

>>

>> hth

>>

>> emma

>> toekneeabc home@...> wrote:

>> Thank you all for your responses & emails. The

>> information has been very

>> helpful. I have forwarded all the information and

>> hope that she will give

>> SCD a

>> try. She is very encouraged by the progress my son

>> has made on SCD.

>>

>> Thanks again,

>>

>>

>>

>>

>>

>> > > > > There is a 2.5 yr girl that goes to the same

>> speech thearpy as my

>> > > > > ASD

>> > >son.

>> > > > > She is not autistic, but has seizure

>> disorder. She has been taking

>> > >meds to

>> > > > > control the seizures for the past year +

>> > > > >

>> > > > > Once she goes off the meds, she regresses

>> and the seizures come

>> back.

>> > >I

>> > > > > recommened SCD to her mother, but I'm not

>> sure it will help her.

>> > > > > Does

>> > >anyone

>> > > > > have any advice for me to give. I don't feel

>> the meds will help her

>> > > > > in

>> > >the

>> > >long

>> > > > > term, something more can be done.

>> > > > >

>> > > > > Thank you,

>> > > > >

>> > > >

>> > > > A former member of this list, Patty Dubrovic

>> used a Ketogenic Diet

>> > > > for

>> > >her

>> > >child Katera

>> > > > who had a seizure disorder. I believe she had

>> the child on SCD at some

>> > >point. Perhaps Jody

>> > > > will be able to recall the details

>> > > >

>> > > > Carol F.

>> > > > SCD 5 years, celiac

>> > > >

>> > > >

>> > > >

>> > > >

>> > > >

>> > > >

>> > > > For information on the Specific Carbohydrate

>> Diet, please read the

>> > > > book

>> > >_Breaking the Vicious Cycle_ by Elaine

>> Gottschall and read the following

>> > >websites:

>> > > > http://www.breakingtheviciouscycle.info

>> > > > and

>> > > > http://www.pecanbread.com

>> > > >

>> > > >

>> > > >

>> > > >

>> > > >

[Guest guest]

On Wed, 5 Oct 2005 19:13:28 -0700 (PDT) Kathy Henninger

thisiskathys@...> writes:

> I'm so happy to answer this question. I have Grave's

> disease, and that's why I started SCD. I've only been

> on it for about a month, but get this: my joint pain

> has vanished. Since grave's is an autoimmune disease

> and autoimmunity starts in the gut, this seems the

> logical choice. Try it!

>

Hi Kathy.

This is really interesting. I've been in remission from Graves for over 4

years after 14 months on methimazole. I ate well but hadn't heard of SCD.

People on the yahoo graves support list (graves_support )

have also gone on fairly radical diets but no one's tried SCD.

Take care, Fay

[Guest guest]

On Wed, 5 Oct 2005 22:51:54 -0500 " Marilyn Sawyer "

marilyn1972@...> writes:

> Does Grave's disease usually have joint pain associated with it?

>

> I thought I had hypothyroidism. My body is attacking my thyroid

> gland. I'm

> tired. I take medication, but since my adrenal glands are also

> depleted, the

> medication is of only limited benefit.

>

> But I like your point that autoimmunity starts in the gut, and so

> it's

> logical to fix the gut. I know my gut is totally messed up.

>

> I've also got alot of joint pain, but don't know why. Is it

> arthritis, or

> something from the thyroid? or another autoimmune condition?

>

> Thanks for your help,

Hi. Check out thyroidhealth@bellaonline and Shomon's book Living

Well with Hypothyroidism. Take care, Fay

[Guest guest]

All I know is that when I started the diet, the joint

pain vanished. That's good enough for me.

Please worry less and try the diet.

--- cf young cfyoung4@...> wrote:

>

>

> On Wed, 5 Oct 2005 22:51:54 -0500 " Marilyn Sawyer "

> marilyn1972@...> writes:

> > Does Grave's disease usually have joint pain

> associated with it?

> >

> > I thought I had hypothyroidism. My body is

> attacking my thyroid

> > gland. I'm

> > tired. I take medication, but since my adrenal

> glands are also

> > depleted, the

> > medication is of only limited benefit.

> >

> > But I like your point that autoimmunity starts in

> the gut, and so

> > it's

> > logical to fix the gut. I know my gut is totally

> messed up.

> >

> > I've also got alot of joint pain, but don't know

> why. Is it

> > arthritis, or

> > something from the thyroid? or another autoimmune

> condition?

> >

> > Thanks for your help,

>

>

>

> Hi. Check out thyroidhealth@bellaonline and

> Shomon's book Living

> Well with Hypothyroidism. Take care, Fay

>

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