RE: Re: Is this an all-or-nothing deal?

September 15, 2005

My daughter, Kali, and I are both 95% SCD for 4 months and I have overcome

giving her sleeping and behavior meds and her bm's have returned from

constipation to that of an almost everyday sort. She is 5 and is now

beginning to talk. I would say, the gains may take longer if you are not

100% compliant but, it is definitely worth trying to hit.

Re: Is this an all-or-nothing deal?

>

> > Welcome to the list ,

> >

> > > From what I have read so far, if you don't COMPLETELY, FULLY, 100%

> > > follow the diet, it is no good. Am I understanding this

> > correctly?

> >

> ,

> Yes! After five years of SCD I can attest there is a lot more " all " than

there is " nothing. " :-)

>

> Carol F.

> SCD 5 years, celiac

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

September 15, 2005

> I make chicken nuggets with chicken pieces cut up and rolled in fine

ground blanched almond flour, some ground sage and salt as the

coating. Some kids who don't like to chew may find ground chicken

balls easier - make small balls flatten and bake to resemble

nuggets. You may be able to coat this if you dip the flattened

balls in egg or water first.

[ Fox]

Thanks for the suggestion, Sheila! As long as I can find something that

resembles a chix nugget and that he'll actually like the taste of, then the

diet seems more do-able. I've read all of the links you posted - I'll

forward them on to hubby but I'm not keeping my hopes up with him.

September 15, 2005

First, I can completely understand the

family issues (I have a 5.5 yo NT child and a foodie husband), but

what I always say when people ask me whether the diet is a hassle is

that yes, it's a huge pain in the rear end, but not nearly as much

of a pain as the behaviors that came from NOT doing the diet. For

me, it's really been worthwhile, and I resisted doing any dietary

intervention for the first 2 years after my son's diagnosis.

[ Fox]

You know, his behavior isn't bad. He's so mildly on the spectrum that I

get flack from some family members who think I'm making the whole autism

thing up just to create some drama. My goal here is to get rid of the

stinky, smelly black stools, not to change his behavior.

I do appreciate the muffin suggestion. When we were on the GFCF diet I

bought a lot of the Kinnicknick muffins and I ended up eating them! I never

thought to grind up meats and add them in - sounds gross!

Finally, on the family front, I've taken a new view since we went to

SCD. It's not realistic for me to have my whole family on the diet,

so we just give my son his own food. That way, he's used to

everyone else eating other stuff, and when he started school he

doesn't have a problem with other kids eating different foods from

him. At first it was hard, but since I never give in on it, he

doesn't protest any more.

[ Fox]

How old is your son? Mine is 3 and an only child so I don't have to deal

with other siblings, but my husband (and my in-laws) are not going to be

able to tell him no when he says he wants some toast or 'fish' (goldfish

crackers). They don't care if he has diarrhea as long as he's happy.

September 15, 2005

My son was a VERY picky eater before the diet. He could

not chew anything. I would have to feed him stage 2 & 3 baby jar foods, or

anything I made had to be mashed enough where he could just swallow it

whole. Within the 1-2 months of the diet he became more willing to try new

foods, textures, etc.. Now, he doesn't have that chewing problem anymore.

[ Fox] Wow - that's interesting. Did you ever think that it was

sensory or did you know it was because the food tore up his gut? So what

did you do when you started the diet? Wear out your food processor grinding

everthing up?

Regarding speech - he had no words before the diet - only babble. Within the

first month he had 25 words - I stopped counting because I couldn't keep up

with him.

[ Fox] My son is delayed by one year in speech. We have made huge gains

in the past year and he is now consistently using 4-5 word sentences. But

he does not ask any questions yet.

Just last night, he recited " Goodnight Moon " entirely on his own, as I

turned the pages - I almost fell off my seat.

[ Fox] way cool! Congratulations!

September 16, 2005

-

My family does not understand my kids problems with food and they think I am

obsessed about their bowels and behaviors. My one son was diagnosed with a rare

form of colitis and I was told that both my sons could end up with Chrohn's

disease. Both of my sisters are nurses and I got the diagnosis from a real

doctor, but they still think that I just feed my kids too much fruit and fiber

and this is why they have all the GI problems. You do what you know in your

heart is best for your child. TGhe SCD diet has worked for my boys and their

father eats a normal diet in front of them. My older son just started

kindergarten and is offered snacks after game practices, and he politely tells

people that he just can't eat these things, like Teddie Grams. You will get

thru this fine and starting your child at a young age is a blessing.

-Suzanne

Fox lisa_fox@...> wrote:

First, I can completely understand the

family issues (I have a 5.5 yo NT child and a foodie husband), but

what I always say when people ask me whether the diet is a hassle is

that yes, it's a huge pain in the rear end, but not nearly as much

of a pain as the behaviors that came from NOT doing the diet. For

me, it's really been worthwhile, and I resisted doing any dietary

intervention for the first 2 years after my son's diagnosis.

[ Fox]

You know, his behavior isn't bad. He's so mildly on the spectrum that I

get flack from some family members who think I'm making the whole autism

thing up just to create some drama. My goal here is to get rid of the

stinky, smelly black stools, not to change his behavior.

I do appreciate the muffin suggestion. When we were on the GFCF diet I

bought a lot of the Kinnicknick muffins and I ended up eating them! I never

thought to grind up meats and add them in - sounds gross!

Finally, on the family front, I've taken a new view since we went to

SCD. It's not realistic for me to have my whole family on the diet,

so we just give my son his own food. That way, he's used to

everyone else eating other stuff, and when he started school he

doesn't have a problem with other kids eating different foods from

him. At first it was hard, but since I never give in on it, he

doesn't protest any more.

[ Fox]

How old is your son? Mine is 3 and an only child so I don't have to deal

with other siblings, but my husband (and my in-laws) are not going to be

able to tell him no when he says he wants some toast or 'fish' (goldfish

crackers). They don't care if he has diarrhea as long as he's happy.

September 16, 2005

Thanks for the encouraging words, Suzanne!

_____