Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 But for the moment: -- How strict this diet should be? I´m seeing mixed signals. What sorts of variations have caused the greatest adverse reactions? Obviously, all diet regimes have to adapted to individuals´ medical conditions, problems, allergies. But we're trying to figure out where the pitfalls might be, especially in an autism case. The blunt use of " illegal " v. " legal " makes me very nervous. There is a vast difference between jayalking on a country road to help a friend across the way and committing a premeditated murder. From Marisol: If you want to know if the diet will help your child, you need to do it %110 for at least a couple of months otherwise you'll never know if it's helpful for not and to what degree it's helpful. For us, exactly 3 weeks into the diet and my daughter had her first trophy. But you cannot do this diet loosely in order to achieve therapeutic benefits. After being on the diet for a while you can experiment, if you really want but you might not be taking gut healing as far as it can go. To give an important example -- has anybody in autism spectrum had a clear reaction to things like the inulin in a capsule (e.g. Culturelle GG) or, say, the filler in methylcobalamine powder?. From Marisol: Yes, culturelle had a negative effect on my dd's poops when we briefly experimented with it. -- Given that all the experts we know have strongly discouraged the idea of yogurt or cheese or any dairy (beyond ghee) at this stage, we´re worried about adequate carbohydrates and possible health damage. A biochemist friend, who is deeply involved in autism issues, expressed deep concern about it. A fairly prominent herbalist today suggested that small -- repeat, small -- amounts of brown rice (rotated with other products) would be useful. From Marisol: For whatever it's worth, we didn't do any dairy on the diet for the first year (because back then we didn't know that my dd could tolerate goat, though not cow). We also didn't do fruit because my dd, believe it or not, doesn't like fruit. Nor did we do honey because of yeast fears. My dd's main source of carbs was a homemade veggie drink we made her with steamed-pureed greens, carrots and whatever other legal veggies were around. She had no health problems whatsoever in that first year. -- The issue of sweeteners. I wish there was a more sophisticated explanation on things like xylitol and stevia. Xylitol, for example, is double-blind proven to have anti-bacterial qualities in saliva (hence the use in toothpastes, etc.). The book says stevia is suspect because its structure seems to resemble that of a steroid. And that means. . . . what, in terms of the gut issues? From Marisol: Sorry, I don't know enough about this. We are committed to trying this diet, in a very serious way. The basic ideas seem enormously logical. From Marisol: That's great! I remember how many questions I had when I first started and how much I wished I could tweak the diet back then. I'm glad folks (from an adult SCD list)were tough and unbending with me otherwise I don't think we would have reaped the benefits that we did. Many thanks for any help. From Marisol: Good Luck! We'r here to help. Marisol Mom to 11yo SCD since 12/01 and 8yo Lena SCD since sometime in 2002 For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 > Hello. We´re new with the diet, but we´ve been through quite a few > things previously. My son, 12, is autism spectrum. His sister has > tried SCD for digestive problems and was very happy with it. The > Pfeiffer Center has recommended it for us, as a preliminary step. > > Naturally, as anybody would, we have a million questions after reading > the book and the web site. But for the moment: > > -- How strict this diet should be? I´m seeing mixed signals. What > sorts of variations have caused the greatest adverse reactions? > Obviously, all diet regimes have to adapted to individuals´ medical > conditions, problems, allergies. But we're trying to figure out where > the pitfalls might be, especially in an autism case. The blunt use of > " illegal " v. " legal " makes me very nervous. There is a vast difference > between jayalking on a country road to help a friend across the way > and committing a premeditated murder. > > To give an important example -- has anybody in autism spectrum had a > clear reaction to things like the inulin in a capsule (e.g. Culturelle > GG) or, say, the filler in methylcobalamine powder?. > > -- Given that all the experts we know have strongly discouraged the > idea of yogurt or cheese or any dairy (beyond ghee) at this stage, > we´re worried about adequate carbohydrates and possible health damage. > A biochemist friend, who is deeply involved in autism issues, > expressed deep concern about it. A fairly prominent herbalist today > suggested that small -- repeat, small -- amounts of brown rice > (rotated with other products) would be useful. The diet seems to > recognize that SOME complex carbohydrates, at least those in most > vegetables, are OK. It´s fuzzy about the specific issues that make a > complex carbohydrate good or bad. If taking a fair amount of a complex > carbohydrate in a vegetable or nut is ok, albeit with caution, why is > a minute amound of inulin illegal? > > -- The issue of sweeteners. I wish there was a more sophisticated > explanation on things like xylitol and stevia. Xylitol, for example, > is double-blind proven to have anti-bacterial qualities in saliva > (hence the use in toothpastes, etc.). The book says stevia is suspect > because its structure seems to resemble that of a steroid. And that > means. . . . what, in terms of the gut issues? > > We are committed to trying this diet, in a very serious way. The basic > ideas seem enormously logical. > > Many thanks for any help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Hi merinorice, > -- How strict this diet should be? I´m seeing mixed signals. What > sorts of variations have caused the greatest adverse reactions? > Obviously, all diet regimes have to adapted to individuals´ medical > conditions, problems, allergies. But we're trying to figure out where > the pitfalls might be, especially in an autism case. The blunt use of > " illegal " v. " legal " makes me very nervous. There is a vast difference > between jayalking on a country road to help a friend across the way > and committing a premeditated murder. > > To give an important example -- has anybody in autism spectrum had a > clear reaction to things like the inulin in a capsule (e.g. Culturelle > GG) or, say, the filler in methylcobalamine powder?. Yes, there have been reports on the list (and some offlist) of reactions to SCD illegals such as inulin. It often depends on the child how severe a reaction is - some have had pretty severe reactions - yeast flare ups or microbial flare ups (increased diarrhea, worsened constipation etc.). I wonder about those who you ilegals though and don't see any change in symptoms. Some that contact me offlist aren't having particular problems but aren't seeing any changes or results they hope for. Usually there is some SCD illegal whether in a supplement or occasional illegal. Removal of these usually speeds up the healing process. > -- Given that all the experts we know have strongly discouraged the > idea of yogurt or cheese or any dairy (beyond ghee) at this stage, > we´re worried about adequate carbohydrates and possible health damage. We don't discourage the use of yoghurt or cheese at the beginning of the diet. Some starting the diet have been CF and don't plan to try it or want to wait a while before gradually introducing it. If you have been using some dairy preSCD then making the 24 hr yoghurt (or using other SCD dairy) is fine and is often very beneficial. If doing 24 hr yoghurt we usually suggest starting small and building up because many experience die off when starting the diet and the yoghurt can cause more. (if unsure about using dairy/ or yoghurt we can help you work it out) > A biochemist friend, who is deeply involved in autism issues, > expressed deep concern about it. A fairly prominent herbalist today > suggested that small -- repeat, small -- amounts of brown rice > (rotated with other products) would be useful. The diet seems to > recognize that SOME complex carbohydrates, at least those in most > vegetables, are OK. It´s fuzzy about the specific issues that make a > complex carbohydrate good or bad. If taking a fair amount of a complex > carbohydrate in a vegetable or nut is ok, albeit with caution, why is > a minute amound of inulin illegal? It is because of the sterochemistry of the molecules - Elaine explains this in BTVC and I believe it may also be on her website. The injured body can't use the inulin but will feed the harmful microbes - ditto on the rice and starch. As for the complex carbs in veggies some are easier to tolerate at the beginning (depending on the state of the gut) and some are better to wait on until after some healing - like cabbage, dried beans, split peas etc. > > -- The issue of sweeteners. I wish there was a more sophisticated > explanation on things like xylitol and stevia. Xylitol, for example, > is double-blind proven to have anti-bacterial qualities in saliva > (hence the use in toothpastes, etc.). The book says stevia is suspect > because its structure seems to resemble that of a steroid. And that > means. . . . what, in terms of the gut issues? Elaine wrote that because of the structure and beacse the physilological effects of stevia were unknown she didn't recommend it. Here are some posts from Elaine on Stevia from the old list: http://lyris.dundee.net/read/messages?id=217629#217629 http://lyris.dundee.net/read/messages?id=261396#261396 http://lyris.dundee.net/read/messages?id=256880#256880 Also some stevia is not pure but contains sugar alcohols http://lyris.dundee.net/read/messages?id=229017#229017 Sheila, SCD 55 mos, 21 yrs UC mom of , SCD 40 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Hi merinorice, > -- How strict this diet should be? I´m seeing mixed signals. What > sorts of variations have caused the greatest adverse reactions? > Obviously, all diet regimes have to adapted to individuals´ medical > conditions, problems, allergies. But we're trying to figure out where > the pitfalls might be, especially in an autism case. The blunt use of > " illegal " v. " legal " makes me very nervous. There is a vast difference > between jayalking on a country road to help a friend across the way > and committing a premeditated murder. > > To give an important example -- has anybody in autism spectrum had a > clear reaction to things like the inulin in a capsule (e.g. Culturelle > GG) or, say, the filler in methylcobalamine powder?. Yes, there have been reports on the list (and some offlist) of reactions to SCD illegals such as inulin. It often depends on the child how severe a reaction is - some have had pretty severe reactions - yeast flare ups or microbial flare ups (increased diarrhea, worsened constipation etc.). I wonder about those who you ilegals though and don't see any change in symptoms. Some that contact me offlist aren't having particular problems but aren't seeing any changes or results they hope for. Usually there is some SCD illegal whether in a supplement or occasional illegal. Removal of these usually speeds up the healing process. > -- Given that all the experts we know have strongly discouraged the > idea of yogurt or cheese or any dairy (beyond ghee) at this stage, > we´re worried about adequate carbohydrates and possible health damage. We don't discourage the use of yoghurt or cheese at the beginning of the diet. Some starting the diet have been CF and don't plan to try it or want to wait a while before gradually introducing it. If you have been using some dairy preSCD then making the 24 hr yoghurt (or using other SCD dairy) is fine and is often very beneficial. If doing 24 hr yoghurt we usually suggest starting small and building up because many experience die off when starting the diet and the yoghurt can cause more. (if unsure about using dairy/ or yoghurt we can help you work it out) > A biochemist friend, who is deeply involved in autism issues, > expressed deep concern about it. A fairly prominent herbalist today > suggested that small -- repeat, small -- amounts of brown rice > (rotated with other products) would be useful. The diet seems to > recognize that SOME complex carbohydrates, at least those in most > vegetables, are OK. It´s fuzzy about the specific issues that make a > complex carbohydrate good or bad. If taking a fair amount of a complex > carbohydrate in a vegetable or nut is ok, albeit with caution, why is > a minute amound of inulin illegal? It is because of the sterochemistry of the molecules - Elaine explains this in BTVC and I believe it may also be on her website. The injured body can't use the inulin but will feed the harmful microbes - ditto on the rice and starch. As for the complex carbs in veggies some are easier to tolerate at the beginning (depending on the state of the gut) and some are better to wait on until after some healing - like cabbage, dried beans, split peas etc. > > -- The issue of sweeteners. I wish there was a more sophisticated > explanation on things like xylitol and stevia. Xylitol, for example, > is double-blind proven to have anti-bacterial qualities in saliva > (hence the use in toothpastes, etc.). The book says stevia is suspect > because its structure seems to resemble that of a steroid. And that > means. . . . what, in terms of the gut issues? Elaine wrote that because of the structure and beacse the physilological effects of stevia were unknown she didn't recommend it. Here are some posts from Elaine on Stevia from the old list: http://lyris.dundee.net/read/messages?id=217629#217629 http://lyris.dundee.net/read/messages?id=261396#261396 http://lyris.dundee.net/read/messages?id=256880#256880 Also some stevia is not pure but contains sugar alcohols http://lyris.dundee.net/read/messages?id=229017#229017 Sheila, SCD 55 mos, 21 yrs UC mom of , SCD 40 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Hi merinorice, > -- How strict this diet should be? I´m seeing mixed signals. What > sorts of variations have caused the greatest adverse reactions? > Obviously, all diet regimes have to adapted to individuals´ medical > conditions, problems, allergies. But we're trying to figure out where > the pitfalls might be, especially in an autism case. The blunt use of > " illegal " v. " legal " makes me very nervous. There is a vast difference > between jayalking on a country road to help a friend across the way > and committing a premeditated murder. > > To give an important example -- has anybody in autism spectrum had a > clear reaction to things like the inulin in a capsule (e.g. Culturelle > GG) or, say, the filler in methylcobalamine powder?. Yes, there have been reports on the list (and some offlist) of reactions to SCD illegals such as inulin. It often depends on the child how severe a reaction is - some have had pretty severe reactions - yeast flare ups or microbial flare ups (increased diarrhea, worsened constipation etc.). I wonder about those who you ilegals though and don't see any change in symptoms. Some that contact me offlist aren't having particular problems but aren't seeing any changes or results they hope for. Usually there is some SCD illegal whether in a supplement or occasional illegal. Removal of these usually speeds up the healing process. > -- Given that all the experts we know have strongly discouraged the > idea of yogurt or cheese or any dairy (beyond ghee) at this stage, > we´re worried about adequate carbohydrates and possible health damage. We don't discourage the use of yoghurt or cheese at the beginning of the diet. Some starting the diet have been CF and don't plan to try it or want to wait a while before gradually introducing it. If you have been using some dairy preSCD then making the 24 hr yoghurt (or using other SCD dairy) is fine and is often very beneficial. If doing 24 hr yoghurt we usually suggest starting small and building up because many experience die off when starting the diet and the yoghurt can cause more. (if unsure about using dairy/ or yoghurt we can help you work it out) > A biochemist friend, who is deeply involved in autism issues, > expressed deep concern about it. A fairly prominent herbalist today > suggested that small -- repeat, small -- amounts of brown rice > (rotated with other products) would be useful. The diet seems to > recognize that SOME complex carbohydrates, at least those in most > vegetables, are OK. It´s fuzzy about the specific issues that make a > complex carbohydrate good or bad. If taking a fair amount of a complex > carbohydrate in a vegetable or nut is ok, albeit with caution, why is > a minute amound of inulin illegal? It is because of the sterochemistry of the molecules - Elaine explains this in BTVC and I believe it may also be on her website. The injured body can't use the inulin but will feed the harmful microbes - ditto on the rice and starch. As for the complex carbs in veggies some are easier to tolerate at the beginning (depending on the state of the gut) and some are better to wait on until after some healing - like cabbage, dried beans, split peas etc. > > -- The issue of sweeteners. I wish there was a more sophisticated > explanation on things like xylitol and stevia. Xylitol, for example, > is double-blind proven to have anti-bacterial qualities in saliva > (hence the use in toothpastes, etc.). The book says stevia is suspect > because its structure seems to resemble that of a steroid. And that > means. . . . what, in terms of the gut issues? Elaine wrote that because of the structure and beacse the physilological effects of stevia were unknown she didn't recommend it. Here are some posts from Elaine on Stevia from the old list: http://lyris.dundee.net/read/messages?id=217629#217629 http://lyris.dundee.net/read/messages?id=261396#261396 http://lyris.dundee.net/read/messages?id=256880#256880 Also some stevia is not pure but contains sugar alcohols http://lyris.dundee.net/read/messages?id=229017#229017 Sheila, SCD 55 mos, 21 yrs UC mom of , SCD 40 mos Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.