Re: Support for CF patients in Georgia

[Guest guest]

I was wondering if your the same lady from Orlando or was it Ft. Lauderdale?

[Guest guest]

What is the Citibank in NY address. ??

Did the International CFF offer any help .They have a conference ,

perhaps they could have you attend that and others internationally would

response. Since they are closer in miles also would be easier, Maybe

they would waive your fee to attend as well.

Best wishes. I have sent items to indivual over in Europe So have

nothing at this time to send. But small $$ to Citibank if I had an

address.

Best wishes,

BSD............GrandmomBEV

Support for CF patients in Georgia

Dear Sirs/Madam,

The charitable foundation " Georgian Mucoviscidoze Center " " was

founded on December 19th, 2001.

There is no appropriate awareness of this illness in the countries

where it is spread. As a result of it, many children die without

making a proper diagnosis. CF patients are not treated appropriately.

Their life expectancy is very low compared to those patients who are

treated appropriately. Necessary procedures for making diagnosis are

not on a good level. The families of patients don't get any support.

The aim of clinic is to give a medical support to CF patients, to

establish an optimal scheme of medical measures and to implement

educational, diagnostic, medical, rehabilitation activities. But

financial problems, that are characterized for developing countries

prevent the foundation to implement the above-mentioned aim. That is

why at the primary stage foundation is needed apply for partial

financial support.

In first step the foundation has established a CF Treatment Center,

which consists of the representatives of the Ministry of health,

doctors and interested people.

For the purpose of development of CF treatment prophylactics and

establishing world experience in this direction, the foundation

invited the president of International Cystic Fibrosis Association

(ICF(M)A). By help Mr. Herman members of foundation make workplan " To

increase the care for children with Cystic Fibrosis in Georgia " .

On the first stage of the Clinic work, matter of urgent necessity is

the hospital equipment (Sweat analyzer, Microbiological research of

the sputum, X-ray of the stomach, X-ray of heart and nose, Lung- testing

and other);

We are obliged to refer you and other CF clinics of developed

countries for their purchase. We would be very grateful if you just

spared us the miserable sum, for this purpose, or organize donation

of the second hand medical facilities to our foundation. This would

be a step forward for saving the Georgian children's lives.

We are really sorry for asking the service, which is inevitable for

perfect Clinic work.

We are hopefully looking forward to your answer.

With best regards,

CF Coordinator, secretary of foundation

Khatuna Mgebrishvili

Our foundation requisites:

14 Rustaveli ave., 380008, Tbilisi, Georgia

Tel/fax: 995 32 92 21 24

E-mail:mucoviscidose@...

Bank requisites:

Charity Foundation " Georgian Mucoviscidoze Center "

Acc: 333618

At: United Georgian Bank,

Rustaveli Branch, Phone: +995 32 999127

SWIFT: UGEBGE22

C/A: 36021436

At: CitiBank NA

New Yourk, USA

SWIFT: CITIUS33

ABA: 021000089

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

[Guest guest]

Hi Grandmom Bev,

there's no such thing as the International CFF. And according to the

message the ICF(M)A is already involved through Mr. Herman Weggen.

But I am afraid their budget is very limited and they can only help

to organize the whole project.

There are private projects in the US to help pwcf in Mexico and I

hope that here in Europe we will be able to do the same for our

neighbors in Eastern Europe. As far as I know there are lots of

bureaucratic problems to solve first, but we have to do something.

Peace

Torsten, dad of Fiona 5wcf

> What is the Citibank in NY address. ??

> Did the International CFF offer any help .They have a conference ,

> perhaps they could have you attend that and others internationally

would

> response. Since they are closer in miles also would be easier, Maybe

> they would waive your fee to attend as well.

> Best wishes. I have sent items to indivual over in Europe So have

> nothing at this time to send. But small $$ to Citibank if I had an

> address.

>

> Best wishes,

> BSD............GrandmomBEV

>

>

> Support for CF patients in Georgia

>

>

> Dear Sirs/Madam,

>

> The charitable foundation " Georgian Mucoviscidoze Center " " was

> founded on December 19th, 2001.

> There is no appropriate awareness of this illness in the countries

> where it is spread. As a result of it, many children die without

> making a proper diagnosis. CF patients are not treated

appropriately.

> Their life expectancy is very low compared to those patients who

are

> treated appropriately. Necessary procedures for making diagnosis

are

> not on a good level. The families of patients don't get any

support.

> The aim of clinic is to give a medical support to CF patients, to

> establish an optimal scheme of medical measures and to implement

> educational, diagnostic, medical, rehabilitation activities. But

> financial problems, that are characterized for developing countries

> prevent the foundation to implement the above-mentioned aim. That

is

> why at the primary stage foundation is needed apply for partial

> financial support.

>

> In first step the foundation has established a CF Treatment Center,

> which consists of the representatives of the Ministry of health,

> doctors and interested people.

> For the purpose of development of CF treatment prophylactics and

> establishing world experience in this direction, the foundation

> invited the president of International Cystic Fibrosis Association

> (ICF(M)A). By help Mr. Herman members of foundation make

workplan " To

> increase the care for children with Cystic Fibrosis in Georgia " .

>

> On the first stage of the Clinic work, matter of urgent necessity

is

> the hospital equipment (Sweat analyzer, Microbiological research of

> the sputum, X-ray of the stomach, X-ray of heart and nose, Lung-

testing

> and other);

>

> We are obliged to refer you and other CF clinics of developed

> countries for their purchase. We would be very grateful if you just

> spared us the miserable sum, for this purpose, or organize donation

> of the second hand medical facilities to our foundation. This would

> be a step forward for saving the Georgian children's lives.

>

> We are really sorry for asking the service, which is inevitable for

> perfect Clinic work.

>

> We are hopefully looking forward to your answer.

>

> With best regards,

> CF Coordinator, secretary of foundation

> Khatuna Mgebrishvili

>

> Our foundation requisites:

>

> 14 Rustaveli ave., 380008, Tbilisi, Georgia

> Tel/fax: 995 32 92 21 24

> E-mail:mucoviscidose@h...

>

>

> Bank requisites:

> Charity Foundation " Georgian Mucoviscidoze Center "

> Acc: 333618

> At: United Georgian Bank,

> Rustaveli Branch, Phone: +995 32 999127

> SWIFT: UGEBGE22

> C/A: 36021436

> At: CitiBank NA

> New Yourk, USA

> SWIFT: CITIUS33

> ABA: 021000089

>

>

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Hi there, thanks for the post. I guess I was referring to the

organization that held an International CFAssociation conference a

couple years ago in Buenos Aires,AR. We were asked to exhibit by their

pres. Dr Macri & also the VP. of the Latin American Association, Dr

Silva. It was wonderful & I met some very nice folks from the

International group.Barbara Palys also wrote & said that the IACFA was

joining with the International Cystic Fibrosis Association .They

dissolved at this past conference held in Genoa, Italy to merge, and

will be a new entity. -CYSTIC FIBROSIS WORLDWIDE(CFW). I think that

will be great.

I hadn't attended the many others these past 18 years due to lack of

$$$. ..............I wanted so much to attend. I loved it when my

daughter lived in Germany & I went over each year for a couple months .

-traveling around Europe. Some lovely places ............& people.

I do hope these dear folks get some additional help. I have many friends

over there & have helped a wee bit from time to time .BUT that isn't

enough .YOU are SO very right about the politics that get in the

way........ A cure would be great :):)

Again , a big THANK you for all you do ..best to you & your precious

FIONA..

LOVE & HUGS,

GRANDMOMBEV.

Support for CF patients in Georgia

>

>

> Dear Sirs/Madam,

>

> The charitable foundation " Georgian Mucoviscidoze Center " " was

> founded on December 19th, 2001.

> There is no appropriate awareness of this illness in the countries

> where it is spread. As a result of it, many children die without

> making a proper diagnosis. CF patients are not treated

appropriately.

> Their life expectancy is very low compared to those patients who

are

> treated appropriately. Necessary procedures for making diagnosis

are

> not on a good level. The families of patients don't get any

support.

> The aim of clinic is to give a medical support to CF patients, to

> establish an optimal scheme of medical measures and to implement

> educational, diagnostic, medical, rehabilitation activities. But

> financial problems, that are characterized for developing countries

> prevent the foundation to implement the above-mentioned aim. That

is

> why at the primary stage foundation is needed apply for partial

> financial support.

>

> In first step the foundation has established a CF Treatment Center,

> which consists of the representatives of the Ministry of health,

> doctors and interested people.

> For the purpose of development of CF treatment prophylactics and

> establishing world experience in this direction, the foundation

> invited the president of International Cystic Fibrosis Association

> (ICF(M)A). By help Mr. Herman members of foundation make

workplan " To

> increase the care for children with Cystic Fibrosis in Georgia " .

>

> On the first stage of the Clinic work, matter of urgent necessity

is

> the hospital equipment (Sweat analyzer, Microbiological research of

> the sputum, X-ray of the stomach, X-ray of heart and nose, Lung-

testing

> and other);

>

> We are obliged to refer you and other CF clinics of developed

> countries for their purchase. We would be very grateful if you just

> spared us the miserable sum, for this purpose, or organize donation

> of the second hand medical facilities to our foundation. This would

> be a step forward for saving the Georgian children's lives.

>

> We are really sorry for asking the service, which is inevitable for

> perfect Clinic work.

>

> We are hopefully looking forward to your answer.

>

> With best regards,

> CF Coordinator, secretary of foundation

> Khatuna Mgebrishvili

>

> Our foundation requisites:

>

> 14 Rustaveli ave., 380008, Tbilisi, Georgia

> Tel/fax: 995 32 92 21 24

> E-mail:mucoviscidose@h...

>

>

> Bank requisites:

> Charity Foundation " Georgian Mucoviscidoze Center "

> Acc: 333618

> At: United Georgian Bank,

> Rustaveli Branch, Phone: +995 32 999127

> SWIFT: UGEBGE22

> C/A: 36021436

> At: CitiBank NA

> New Yourk, USA

> SWIFT: CITIUS33

> ABA: 021000089

>

>

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Who is this to??? I am from Orlando FL ,

LOVE & HUGS, grandmomBEV

Re: Support for CF patients in Georgia

I was wondering if your the same lady from Orlando or was it Ft.

Lauderdale?

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

[Guest guest]

Who is this to??? I am from Orlando FL ,

LOVE & HUGS, grandmomBEV

Re: Support for CF patients in Georgia

I was wondering if your the same lady from Orlando or was it Ft.

Lauderdale?

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

[Guest guest]

Who is this to??? I am from Orlando FL ,

LOVE & HUGS, grandmomBEV

Re: Support for CF patients in Georgia

I was wondering if your the same lady from Orlando or was it Ft.

Lauderdale?

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

[Guest guest]

Dear Torsten, dear Bev, dear friend

Thank you for your massages.

Goergia is country of Former Soviet Union. When we live in Soviet Union, in this

years we had CF Clinic in Russia. After broke up of Soviet Union we stey without

CF clinic and beside of, in country is many social and economical problems. Now

we need visa to go to Russia.

Starting working of CF Treatment Center is a good idea for pwcf. Patients are

only children, because of there is no healthcare and medications. One of them is

18 years old, who make diagnose in Russia.

So, thanks for all, who can help with something our aim.

Khatuna,

CF coordinator in Georgia

CF Coordinator in Georgia

Khatuna

torstenkrafft Torstenkrafft@...> wrote: Hi Grandmom Bev,

there's no such thing as the International CFF. And according to the

message the ICF(M)A is already involved through Mr. Herman Weggen.

But I am afraid their budget is very limited and they can only help

to organize the whole project.

There are private projects in the US to help pwcf in Mexico and I

hope that here in Europe we will be able to do the same for our

neighbors in Eastern Europe. As far as I know there are lots of

bureaucratic problems to solve first, but we have to do something.

Peace

Torsten, dad of Fiona 5wcf

> What is the Citibank in NY address. ??

> Did the International CFF offer any help .They have a conference ,

> perhaps they could have you attend that and others internationally

would

> response. Since they are closer in miles also would be easier, Maybe

> they would waive your fee to attend as well.

> Best wishes. I have sent items to indivual over in Europe So have

> nothing at this time to send. But small $$ to Citibank if I had an

> address.

>

> Best wishes,

> BSD............GrandmomBEV

>

>

> Support for CF patients in Georgia

>

>

> Dear Sirs/Madam,

>

> The charitable foundation " Georgian Mucoviscidoze Center " " was

> founded on December 19th, 2001.

> There is no appropriate awareness of this illness in the countries

> where it is spread. As a result of it, many children die without

> making a proper diagnosis. CF patients are not treated

appropriately.

> Their life expectancy is very low compared to those patients who

are

> treated appropriately. Necessary procedures for making diagnosis

are

> not on a good level. The families of patients don't get any

support.

> The aim of clinic is to give a medical support to CF patients, to

> establish an optimal scheme of medical measures and to implement

> educational, diagnostic, medical, rehabilitation activities. But

> financial problems, that are characterized for developing countries

> prevent the foundation to implement the above-mentioned aim. That

is

> why at the primary stage foundation is needed apply for partial

> financial support.

>

> In first step the foundation has established a CF Treatment Center,

> which consists of the representatives of the Ministry of health,

> doctors and interested people.

> For the purpose of development of CF treatment prophylactics and

> establishing world experience in this direction, the foundation

> invited the president of International Cystic Fibrosis Association

> (ICF(M)A). By help Mr. Herman members of foundation make

workplan " To

> increase the care for children with Cystic Fibrosis in Georgia " .

>

> On the first stage of the Clinic work, matter of urgent necessity

is

> the hospital equipment (Sweat analyzer, Microbiological research of

> the sputum, X-ray of the stomach, X-ray of heart and nose, Lung-

testing

> and other);

>

> We are obliged to refer you and other CF clinics of developed

> countries for their purchase. We would be very grateful if you just

> spared us the miserable sum, for this purpose, or organize donation

> of the second hand medical facilities to our foundation. This would

> be a step forward for saving the Georgian children's lives.

>

> We are really sorry for asking the service, which is inevitable for

> perfect Clinic work.

>

> We are hopefully looking forward to your answer.

>

> With best regards,

> CF Coordinator, secretary of foundation

> Khatuna Mgebrishvili

>

> Our foundation requisites:

>

> 14 Rustaveli ave., 380008, Tbilisi, Georgia

> Tel/fax: 995 32 92 21 24

> E-mail:mucoviscidose@h...

>

>

> Bank requisites:

> Charity Foundation " Georgian Mucoviscidoze Center "

> Acc: 333618

> At: United Georgian Bank,

> Rustaveli Branch, Phone: +995 32 999127

> SWIFT: UGEBGE22

> C/A: 36021436

> At: CitiBank NA

> New Yourk, USA

> SWIFT: CITIUS33

> ABA: 021000089

>

>

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Thank you for your note.I pray all starts to get better for you all soon.

Your clinic idea is a wonderful one & I hope it succeeds.

LOVE & HUGS, GrandmomBEV

Support for CF patients in Georgia

>

>

> Dear Sirs/Madam,

>

> The charitable foundation " Georgian Mucoviscidoze Center " " was

> founded on December 19th, 2001.

> There is no appropriate awareness of this illness in the countries

> where it is spread. As a result of it, many children die without

> making a proper diagnosis. CF patients are not treated

appropriately.

> Their life expectancy is very low compared to those patients who

are

> treated appropriately. Necessary procedures for making diagnosis

are

> not on a good level. The families of patients don't get any

support.

> The aim of clinic is to give a medical support to CF patients, to

> establish an optimal scheme of medical measures and to implement

> educational, diagnostic, medical, rehabilitation activities. But

> financial problems, that are characterized for developing countries

> prevent the foundation to implement the above-mentioned aim. That

is

> why at the primary stage foundation is needed apply for partial

> financial support.

>

> In first step the foundation has established a CF Treatment Center,

> which consists of the representatives of the Ministry of health,

> doctors and interested people.

> For the purpose of development of CF treatment prophylactics and

> establishing world experience in this direction, the foundation

> invited the president of International Cystic Fibrosis Association

> (ICF(M)A). By help Mr. Herman members of foundation make

workplan " To

> increase the care for children with Cystic Fibrosis in Georgia " .

>

> On the first stage of the Clinic work, matter of urgent necessity

is

> the hospital equipment (Sweat analyzer, Microbiological research of

> the sputum, X-ray of the stomach, X-ray of heart and nose, Lung-

testing

> and other);

>

> We are obliged to refer you and other CF clinics of developed

> countries for their purchase. We would be very grateful if you just

> spared us the miserable sum, for this purpose, or organize donation

> of the second hand medical facilities to our foundation. This would

> be a step forward for saving the Georgian children's lives.

>

> We are really sorry for asking the service, which is inevitable for

> perfect Clinic work.

>

> We are hopefully looking forward to your answer.

>

> With best regards,

> CF Coordinator, secretary of foundation

> Khatuna Mgebrishvili

>

> Our foundation requisites:

>

> 14 Rustaveli ave., 380008, Tbilisi, Georgia

> Tel/fax: 995 32 92 21 24

> E-mail:mucoviscidose@h...

>

>

> Bank requisites:

> Charity Foundation " Georgian Mucoviscidoze Center "

> Acc: 333618

> At: United Georgian Bank,

> Rustaveli Branch, Phone: +995 32 999127

> SWIFT: UGEBGE22

> C/A: 36021436

> At: CitiBank NA

> New Yourk, USA

> SWIFT: CITIUS33

> ABA: 021000089

>

>

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

>