Re: Is this an all-or-nothing deal?

[Guest guest]

Welcome to the list ,

> From what I have read so far, if you don't COMPLETELY, FULLY, 100%

> follow the diet, it is no good. Am I understanding this

correctly?

Yes. But many of us -self included make mistakes along the way,

or the kids get into SCD illegals. That's where the list comes into

play - with support and help.

> My son has really big sensory issues with food (won't touch

> meat/fruit/veggies as they require too much chewing). How in the

> world am I going to overcome the sensory issues in order to do this

> diet? Does anyone else have a kid with huge sensory issues

towards food?

>

> I'm feeling quite overwhelmed. I had thought of trying to find

> replacements for his current staples (chix nuggest/goldfish

crackers)

> but it appears that there are no substitutes for these types of

foods.

I make chicken nuggets with chicken pieces cut up and rolled in fine

ground blanched almond flour, some ground sage and salt as the

coating. Some kids who don't like to chew may find ground chicken

balls easier - make small balls flatten and bake to resemble

nuggets. You may be able to coat this if you dip the flattened

balls in egg or water first.

> So, has anyone else gradually changed their diet to reflect the SCD

> and had success? It's not going to work for us if we have to go

cold

> turkey.

Some do this quite successfully - it depends on the child. Some go

cold turkey but for others this isn't an option.

> Any advice on how to do this diet with others in the house

following a

> regular american diet? If I tell my husband he can never eat white

> toast in front of my son again, he'll tell me to take a hike. I

had

> enough fighting/arguing over the GFCF diet - this one is going to

be

> worse.

Maybe it would help if your husband looked at the website

www.pecanbread.com

and also looked at some of the posts to see how the diet has helped

others, it might encourage him

Here are a few recent ones:

http://health.groups.yahoo.com/group/pecanbread/message/35612

http://health.groups.yahoo.com/group/pecanbread/message/35330

http://health.groups.yahoo.com/group/pecanbread/message/35749

http://health.groups.yahoo.com/group/pecanbread/message/35738

Here are some links about transitioning to the diet:

http://pecanbread.com/foodprep.html#transition

http://pecanbread.com/foodprep.html#intro

http://www.breakingtheviciouscycle.info/beginners_guide/beginners.htm

http://pecanbread.com/foodprep.html#menu

http://pecanbread.com/foodprep.html#homemade

Sheila, SCD 55 mos, 21 yrs UC

mom of , SCD 40 mos

[Guest guest]

Hi ,

Here's a really long-winded response. I am also somewhat new to

this SCD world (3 months), and my son (ASD 4 yo) is an extremely

picky eater. We have also got a whole other list of no-nos in

addition to the SCD limitations because my son has phenol

sensitivity as well as some IGG sensitivities, but we have found

some things that work. First, I can completely understand the

family issues (I have a 5.5 yo NT child and a foodie husband), but

what I always say when people ask me whether the diet is a hassle is

that yes, it's a huge pain in the rear end, but not nearly as much

of a pain as the behaviors that came from NOT doing the diet. For

me, it's really been worthwhile, and I resisted doing any dietary

intervention for the first 2 years after my son's diagnosis.

First, I will say that doing the beginning of the SCD diet where you

go cold turkey and just eat the few things on the starter diet,

while it was a trying few days, made a world of difference for us.

The reason is that when you really cut out everything but a few

foods, then when you add in foods one at a time you really get to

see where the problems are. This is how we learned about phenol

sensitivity -- when we added back my son's beloved berries, for

example, he started bouncing off the walls and became really

aggressive for two days. Much as I hate having to say no to these

for him, leaving them out has made a big difference.

Things that my son will eat: MUFFINS! I bake muffins about 2-3

times a week. I generally use pecans and walnuts because almonds

are high phenol. I started with the basic recipe, but since then

I've started putting in cooked meats into the batter (I do the whole

thing in the food processor), as well as raw veggies. I just

experiment with the amounts. Then I freeze the muffins and just put

in the microwave when he's going to eat them. I also have a little

trick that works wonders with my son -- FROSTING. I make my own

frosting with Spectrum Naturals shortening (I get it at Whole

Foods). It's SCD-legal and has no trans fats, so although it's

really just fat, I figure for a kid with a very limited diet, some

extra calories aren't such a bad thing. I just mix it with honey

until it tastes good, and that's our frosting. Basically, my kid

will eat muffins with any of the other foods cooked into them if it

has frosting on it. Beyond that, he eats hard boiled eggs,

Applegate Farms fresh deli sliced smoked chicken and turkey (from

Whole Foods), canteloupe, honeydew, and pears. I also make the

coconut macaroons and some cookies from Lucy's cookbook, but he will

only eat them about half the time. That's it -- that's all he'll

eat. But before SCD when we were GF/CF, it was just a different

list of 5 things he ate, and when we were on no diet, it was

similarly a small list but just different foods.

When we first started out, I was also able to get him to eat the

chicken pancakes (just take boiled chicken and put in the food

processor with eggs and a bit of baking soda to make the batter),

and that got us through the first few days, but now he refuses those

as well.

Good luck with it -- it really is a pain, but once you get into a

routine with a few things your child will tolerate it gets easier.

In the beginning you wind up doing a lot of cooking of foods that

get thrown out because either the recipes don't work right for you

or your kid won't eat them.

Finally, on the family front, I've taken a new view since we went to

SCD. It's not realistic for me to have my whole family on the diet,

so we just give my son his own food. That way, he's used to

everyone else eating other stuff, and when he started school he

doesn't have a problem with other kids eating different foods from

him. At first it was hard, but since I never give in on it, he

doesn't protest any more. (I find that NEVER cheating actually

makes the diet much easier from the behavior perspective -- he just

knows he's not going to get different foods, so it's not an issue.

If it's okay sometimes, then he'll want it all the time, and who can

blame him.)

Sorry so long a message.

Rochelle

> Hi-

>

> I'm new to this list as my DAN! dr. recommended we put my son on

the

> SCD because of unresolved yeast/clostridia issues. I have read the

> scd.info site and read some of the archives in this list. I'll be

> getting the book tomorrow.

>

> Here's a brief history:

>

> We had tried the GFCF diet for almost three months before we threw

in

> the towel. Instead of seeing improvements in his health, it

> deteriorated. When we got down to nothing but bacon and McD's

french

> fries, I threw in the towel. His eyes had sunken into his head, he

> had lost weight and was refusing to eat. So we went back to a

regular

> diet and he improved immediately.

>

> We have been doing the biomed and his vitamin/Nystatin regimine did

> improve his stools - for awhile. He got a viral infection and the

> black, liquidy stools were back. So that's when our dr.

recommended

> the SCD.

>

> From what I have read so far, if you don't COMPLETELY, FULLY, 100%

> follow the diet, it is no good. Am I understanding this

correctly?

>

> My son has really big sensory issues with food (won't touch

> meat/fruit/veggies as they require too much chewing). How in the

> world am I going to overcome the sensory issues in order to do this

> diet? Does anyone else have a kid with huge sensory issues

towards food?

>

> I'm feeling quite overwhelmed. I had thought of trying to find

> replacements for his current staples (chix nuggest/goldfish

crackers)

> but it appears that there are no substitutes for these types of

foods.

>

> So, has anyone else gradually changed their diet to reflect the SCD

> and had success? It's not going to work for us if we have to go

cold

> turkey.

>

> Any advice on how to do this diet with others in the house

following a

> regular american diet? If I tell my husband he can never eat white

> toast in front of my son again, he'll tell me to take a hike. I

had

> enough fighting/arguing over the GFCF diet - this one is going to

be

> worse.

>

> Any advice is appreciated-

>

> (sorry for the long post)

[Guest guest]

> Welcome to the list ,

>

> > From what I have read so far, if you don't COMPLETELY, FULLY, 100%

> > follow the diet, it is no good. Am I understanding this

> correctly?

>

,

Yes! After five years of SCD I can attest there is a lot more " all " than there

is " nothing. " :-)

Carol F.

SCD 5 years, celiac

[Guest guest]

" Applegate Farms fresh deli sliced smoked chicken and turkey "

I'd suggest that you double check the ingredients in this. I am not aware of

any sliced lunch meats that are okay for SCD.

Plus, if these are being sliced in the deli for you, you run the risk of cross-

contamination from the previously sliced foods on the slicer.

Jody

mom to -6 and -9

SCD 31 months

[Guest guest]

Hi ,

I'm also somewhat new to SCD - my son has been on it since May 05 and he'll

be 3 on next week. My son was a VERY picky eater before the diet. He could

not chew anything. I would have to feed him stage 2 & 3 baby jar foods, or

anything I made had to be mashed enough where he could just swallow it

whole. Within the 1-2 months of the diet he became more willing to try new

foods, textures, etc.. Now, he doesn't have that chewing problem anymore.

Regarding speech - he had no words before the diet - only babble. Within the

first month he had 25 words - I stopped counting because I couldn't keep up

with him. Just last night, he recited " Goodnight Moon " entirely on his own, as I

turned the pages - I almost fell off my seat. So as you can see, the diet has

been working for us. It's a lot of work, but well worth it. At least give it one

month - you'll start to see results. I really notice his speech improve after

starting him on cod liver oil.

Best of luck to you - keep us posted on your progress.

> Hi-

>

> I'm new to this list as my DAN! dr. recommended we put my son on the

> SCD because of unresolved yeast/clostridia issues. I have read the

> scd.info site and read some of the archives in this list. I'll be

> getting the book tomorrow.

>

> Here's a brief history:

>

> We had tried the GFCF diet for almost three months before we threw in

> the towel. Instead of seeing improvements in his health, it

> deteriorated. When we got down to nothing but bacon and McD's french

> fries, I threw in the towel. His eyes had sunken into his head, he

> had lost weight and was refusing to eat. So we went back to a regular

> diet and he improved immediately.

>

> We have been doing the biomed and his vitamin/Nystatin regimine did

> improve his stools - for awhile. He got a viral infection and the

> black, liquidy stools were back. So that's when our dr. recommended

> the SCD.

>

> From what I have read so far, if you don't COMPLETELY, FULLY, 100%

> follow the diet, it is no good. Am I understanding this correctly?

>

> My son has really big sensory issues with food (won't touch

> meat/fruit/veggies as they require too much chewing). How in the

> world am I going to overcome the sensory issues in order to do this

> diet? Does anyone else have a kid with huge sensory issues towards food?

>

> I'm feeling quite overwhelmed. I had thought of trying to find

> replacements for his current staples (chix nuggest/goldfish crackers)

> but it appears that there are no substitutes for these types of foods.

>

> So, has anyone else gradually changed their diet to reflect the SCD

> and had success? It's not going to work for us if we have to go cold

> turkey.

>

> Any advice on how to do this diet with others in the house following a

> regular american diet? If I tell my husband he can never eat white

> toast in front of my son again, he'll tell me to take a hike. I had

> enough fighting/arguing over the GFCF diet - this one is going to be

> worse.

>

> Any advice is appreciated-

>

> (sorry for the long post)

[Guest guest]

> I make chicken nuggets with chicken pieces cut up and rolled in fine

> ground blanched almond flour, some ground sage and salt as the

> coating.

Tonight I dipped my chicken pieces in SCD mayo and dredged them with a mixture

of half

unsweetened coconut and half almond flour.

Carol F.

SCD 5 years, celiac

[Guest guest]

Hi Carol,

Your recipe seems delicious. I can't wait to try it. I hope to do it

when my daughter finally completes 4 months of " pure SCD " . Then I will

be able to serve coconuts and other advanced foods.

I have been waiting for 3 years for her to comply....teenagers are tough.

Hi List,

Don't wait until your child is a teenager to implement SCD,do it now!

Mimi

> Tonight I dipped my chicken pieces in SCD mayo and dredged them with

a mixture of half

> unsweetened coconut and half almond flour.

>

> Carol F.

> SCD 5 years, celiac

[Guest guest]

> My son was a VERY picky eater before the diet. He could

> not chew anything. I would have to feed him stage 2 & 3 baby jar foods, or

> anything I made had to be mashed enough where he could just swallow it

> whole. Within the 1-2 months of the diet he became more willing to try new

> foods, textures, etc.. Now, he doesn't have that chewing problem anymore.

>

> [ Fox] Wow - that's interesting. Did you ever think that it was

> sensory or did you know it was because the food tore up his gut? So what

> did you do when you started the diet? Wear out your food processor

grinding

> everthing up?

[] Actually it was a combination of both. If the food I feed him had the

slightest chunck in it, he would gag it up before it reached his gut. He also

did

his fair share of vomiting after food sat in him for a while, so I definitely

think it

was a combination of both. Starting the intro diet, mostly everything was

processed (my food processor has a permenant place on my counter top )

Then little by little, I would increase the thickness and chucks based on what

he could handle. He's also more willing to try new foods. Before SCD, I would

have to force feed him. It took a few tries to get him to eat jello because of

the

texture, but he loves it now.

>

>

> Regarding speech - he had no words before the diet - only babble. Within

the

>

> first month he had 25 words - I stopped counting because I couldn't keep up

> with him.

> [ Fox] My son is delayed by one year in speech. We have made huge

gains

> in the past year and he is now consistently using 4-5 word sentences. But

> he does not ask any questions yet.

[] That's wonderful that your son can form sentences. My son also does

not ask questions yet, but I believe it's only a matter of time. Once you see

the

progress, you won't look back!! I know I didn't and we're only 4 months in.

>

> Just last night, he recited " Goodnight Moon " entirely on his own, as I

> turned the pages - I almost fell off my seat.

> [ Fox] way cool! Congratulations!

>

>

>

>

[Guest guest]

,

We also saw a regression on GFCF, but have seen fantastic results in 3

weeks on this diet.

Both my kids LOVE the chicken nuggets I make from scratch which are

coated in almond flour and a little salt and either baked or fried. I

have even got them to eat fish (GASP!!) made the same way. I make

giant batches and freeze them. My son and I both love the pancakes

from the book (I have got used to throwing in apple). As a last resort

I make french toast by dipping SC bread in an egg and frying it, and

coating it with syrup made with 1/2 melted butter, 1/2 honey and a

dash of maple flavour.

We have started on smoothies. This diet is time consuming, but the

food at least tastes great and is healthy, unlike GFCF.

> Hi-

>

> I'm new to this list as my DAN! dr. recommended we put my son on the

> SCD because of unresolved yeast/clostridia issues. I have read the

> scd.info site and read some of the archives in this list. I'll be

> getting the book tomorrow.

>

> Here's a brief history:

>

> We had tried the GFCF diet for almost three months before we threw in

> the towel. Instead of seeing improvements in his health, it

> deteriorated. When we got down to nothing but bacon and McD's french

> fries, I threw in the towel. His eyes had sunken into his head, he

> had lost weight and was refusing to eat. So we went back to a regular

> diet and he improved immediately.

>

> We have been doing the biomed and his vitamin/Nystatin regimine did

> improve his stools - for awhile. He got a viral infection and the

> black, liquidy stools were back. So that's when our dr. recommended

> the SCD.

>

> From what I have read so far, if you don't COMPLETELY, FULLY, 100%

> follow the diet, it is no good. Am I understanding this correctly?

>

> My son has really big sensory issues with food (won't touch

> meat/fruit/veggies as they require too much chewing). How in the

> world am I going to overcome the sensory issues in order to do this

> diet? Does anyone else have a kid with huge sensory issues towards

food?

>

> I'm feeling quite overwhelmed. I had thought of trying to find

> replacements for his current staples (chix nuggest/goldfish crackers)

> but it appears that there are no substitutes for these types of foods.

>

> So, has anyone else gradually changed their diet to reflect the SCD

> and had success? It's not going to work for us if we have to go cold

> turkey.

>

> Any advice on how to do this diet with others in the house following a

> regular american diet? If I tell my husband he can never eat white

> toast in front of my son again, he'll tell me to take a hike. I had

> enough fighting/arguing over the GFCF diet - this one is going to be

> worse.

>

> Any advice is appreciated-

>

> (sorry for the long post)

[Guest guest]

Hi ,

> able to tell him no when he says he wants some toast or 'fish'

(goldfish

> crackers). They don't care if he has diarrhea as long as he's happy.

If you are okay with some dairy there is a fantastic cracker recipe at

http://www.scdrecipe.com/r_014_00082.html

I haven't tasted goldfish crackers but some who have said they are

very similar. They are a huge hit in my house and friends love them

too.

When I make them I omit the water and don't use the poppy or sesame

seeds. I just sprinkle with some salt.

Sheila, SCD 55 mos, 21 yrs UC

mom of , SCD 40 mos