Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Pam -- I'm so sorry that you have had to endure so much! It's horrible to watch a child be sick and so helpless. My son had surgery at 2-1/2 weeks of age and I know I was a nervous wreck. I'm glad he is coming along in leaps and strides. Know that we are all here for you. Tina > > > Although I've not yet phoned KPSSF to inquire as > > to what my next > > step > > > should be considering my significant weight gain > > since > > orientation, (I > > > feel like such a failure, and am very embarrassed > > by the weight > > gain), > > > I did go to KPSTK to see exactely how much I > > currently weigh. > > Imagine > > > my surprise to see that I do not weigh 450 lbs as > > previously > > thought, > > > but rather, 412!! That means that I need lose only > > 62 lbs to > > prepare > > > for surgery, not the 100 that I had originally > > thought. For some > > > reason, losing 62 lbs versus 100 is alot easier to > > swallow, (no pun > > > intended). > > > I am still unsure as to whether I should contact > > KPSSF to inform > > of > > > the weight gain, or if I should just wait until > > such time as I have > > > lost the 62 lbs, and then schedule the surgery. I > > will, of course, > > > begin going to the monthly meetings in SAC, as > > well as the support > > > group that is held at the KPSTK facility. In > > addition, I still > > plan to > > > attend, (beginning in August), the weekly Binge > > Eating/Overeaters > > > classes at KPSTK Mental Health department. > > > I just hope that I am doing the right thing by > > continuing on my > > own > > > instead of contacting KPSSF re the weight gain. > > Don't get me > > wrong; I > > > have every intention of telling the SSF physician > > of the weight > > gain, > > > I would just prefer to do it after all of the 62 > > lbs have been > > lost. > > > Any comments/suggestions from anyone? > > > > > > Pam > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Pam -- I'm so sorry that you have had to endure so much! It's horrible to watch a child be sick and so helpless. My son had surgery at 2-1/2 weeks of age and I know I was a nervous wreck. I'm glad he is coming along in leaps and strides. Know that we are all here for you. Tina > > > Although I've not yet phoned KPSSF to inquire as > > to what my next > > step > > > should be considering my significant weight gain > > since > > orientation, (I > > > feel like such a failure, and am very embarrassed > > by the weight > > gain), > > > I did go to KPSTK to see exactely how much I > > currently weigh. > > Imagine > > > my surprise to see that I do not weigh 450 lbs as > > previously > > thought, > > > but rather, 412!! That means that I need lose only > > 62 lbs to > > prepare > > > for surgery, not the 100 that I had originally > > thought. For some > > > reason, losing 62 lbs versus 100 is alot easier to > > swallow, (no pun > > > intended). > > > I am still unsure as to whether I should contact > > KPSSF to inform > > of > > > the weight gain, or if I should just wait until > > such time as I have > > > lost the 62 lbs, and then schedule the surgery. I > > will, of course, > > > begin going to the monthly meetings in SAC, as > > well as the support > > > group that is held at the KPSTK facility. In > > addition, I still > > plan to > > > attend, (beginning in August), the weekly Binge > > Eating/Overeaters > > > classes at KPSTK Mental Health department. > > > I just hope that I am doing the right thing by > > continuing on my > > own > > > instead of contacting KPSSF re the weight gain. > > Don't get me > > wrong; I > > > have every intention of telling the SSF physician > > of the weight > > gain, > > > I would just prefer to do it after all of the 62 > > lbs have been > > lost. > > > Any comments/suggestions from anyone? > > > > > > Pam > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Pam- Like Pam Marsh said, life can sure sometimes make you a stronger person. I admire all the struggles and stresses you have had in motherhood. I am glad your looking into your health to keep on top of yourself and your sons future welfare. good luck colleenPamela A Marsh wrote: Pam, I can totally relate to having a child withhealth issues as well as disabilities. Both of myboys are Autistic. I have a 14 year old and a 11 yearold. It was hard at first but I have beenstrengthened by the hurdles that we have had toovercome. It does get easier as time goes on becauseyou learn to accept more than battle situations andyour learn to stop looking someone who we can holdaccountable for the mishap. Its all part of life andwe don't know why things happen (and for me it nolonger matters to me because now my boys are a livingtestimony) they just do.I know I did not say much here to help you...rather Iwanted you to know that you are not alone.Pam Marsh--- flo boss wrote:> Yes, I am to attend the KPSTK Binge> Eating/Overeating> class in the Mental Health department. The classes> begin the first week of August. (Although, I am> fairly> confident that I know what the causes are.) > I don't want to bore anyone with the details, but in> the last three years my son, who is now a 4 y/o, has> been very, very ill, in and out of the hospital, has> stopped breathing on more than one occasion, has had> surgery at 2 1/2 years of age, has been on numerous> drugs that are designed to supress his central> nervous> system, (because of numerous seizures), has 40 hours> of therapy per week since the age of 2 years,> (physical, speech, occupational, and behavioral).> Because of all of this, I was forced to leave a> GREAT> career, and now stay at home FIVE DAYS A WEEK, 24/7,> (because of the therapy in the home, and then after> his 40 hours, he is exhausted, so we don't get a> chance to get out much.) And to top it off, his> Daddy> left us when he was 2.5 years of age, (just before> his> surgery!). And because my son was on so many central> nervous system suppressing drugs, he was unable to> take pain medication after his surgery as the> surgeon> feared that he would lapse into a coma, (poor little> guy. I still cry when I think of how much pain he> was> in!!) Not to mention that during the surgery, it was> necessary to have a multitude of doctors, (i.e.> surgeons, three ansthesiologists(?) including the> chief of Ansthesiology) as they were afraid he would> go into Status Eplectitus on the table,> (uncontrollable seizures which could ultimately lead> to death). In fact, I was told that they had bottles> of a drug, (can't remember the name, maybe sodium> panthenol?) that is designed to stop all brain> activity, (brain dead), had my son gone into Status> Epilectitus. Thankfully, he did not. (I sure could> have used some support at the hospital on that day!> But I was on my own, like we so often are these> days.)> However, he is getting great help that is> completely> paid for by the State and the school district, and> because of this, he will more than likely be> "mainstreamed" into regular school within the next> few> years. (ps, my son was completely healthy before he> turned 13 months of age, and was completely healthy> when I began my journey with WLS.) Also, he has been> almost seizure free since his surgery!!> Sorry, I did say that I would not bore you with> the> details, and here I probably have... At any rate, I> am> just saying that the last three years have been the> most stressful and saddening of my life. But with> the> medical and developmental strides that my son has> made> recently, (he started talking about six months ago!!> And has much more control of his fine motor> skills.),> I feel as if I am ready to concentrate on me now.> OK, enough said...> Thanks again to all of you for your kind words of> encouragement and support.> Pam > > --- Uncle Timmy wrote:> > > An appointment with the dietician may be in order,> > to modify your > > eating plan to help you adapt to the post-op> > lifestyle. Have you > > considered other professionals, to help deal with> > the root cause(s) > > of your weight gain? > > > > Uncle Timmy -240> > > > > > > Although I've not yet phoned KPSSF to inquire as> > to what my next > > step> > > should be considering my significant weight gain> > since > > orientation, (I> > > feel like such a failure, and am very> embarrassed> > by the weight > > gain),> > > I did go to KPSTK to see exactely how much I> > currently weigh. > > Imagine> > > my surprise to see that I do not weigh 450 lbs> as> > previously > > thought,> > > but rather, 412!! That means that I need lose> only> > 62 lbs to > > prepare> > > for surgery, not the 100 that I had originally> > thought. For some> > > reason, losing 62 lbs versus 100 is alot easier> to> > swallow, (no pun> > > intended).> > > I am still unsure as to whether I should> contact> > KPSSF to inform > > of> > > the weight gain, or if I should just wait until> > such time as I have> > > lost the 62 lbs, and then schedule the surgery.> I> > will, of course,> > > begin going to the monthly meetings in SAC, as> > well as the support> > > group that is held at the KPSTK facility. In> > addition, I still > > plan to> > > attend, (beginning in August), the weekly Binge> > Eating/Overeaters> > > classes at KPSTK Mental Health department. > > > I just hope that I am doing the right thing by> > continuing on my > > own> > > instead of contacting KPSSF re the weight gain.> > Don't get me > > wrong; I> > > have every intention of telling the SSF> physician> > of the weight > > gain,> > > I would just prefer to do it after all of the 62> > lbs have been > > lost. > > > Any comments/suggestions from anyone?> > > > > > Pam> > > > > > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Pam- Like Pam Marsh said, life can sure sometimes make you a stronger person. I admire all the struggles and stresses you have had in motherhood. I am glad your looking into your health to keep on top of yourself and your sons future welfare. good luck colleenPamela A Marsh wrote: Pam, I can totally relate to having a child withhealth issues as well as disabilities. Both of myboys are Autistic. I have a 14 year old and a 11 yearold. It was hard at first but I have beenstrengthened by the hurdles that we have had toovercome. It does get easier as time goes on becauseyou learn to accept more than battle situations andyour learn to stop looking someone who we can holdaccountable for the mishap. Its all part of life andwe don't know why things happen (and for me it nolonger matters to me because now my boys are a livingtestimony) they just do.I know I did not say much here to help you...rather Iwanted you to know that you are not alone.Pam Marsh--- flo boss wrote:> Yes, I am to attend the KPSTK Binge> Eating/Overeating> class in the Mental Health department. The classes> begin the first week of August. (Although, I am> fairly> confident that I know what the causes are.) > I don't want to bore anyone with the details, but in> the last three years my son, who is now a 4 y/o, has> been very, very ill, in and out of the hospital, has> stopped breathing on more than one occasion, has had> surgery at 2 1/2 years of age, has been on numerous> drugs that are designed to supress his central> nervous> system, (because of numerous seizures), has 40 hours> of therapy per week since the age of 2 years,> (physical, speech, occupational, and behavioral).> Because of all of this, I was forced to leave a> GREAT> career, and now stay at home FIVE DAYS A WEEK, 24/7,> (because of the therapy in the home, and then after> his 40 hours, he is exhausted, so we don't get a> chance to get out much.) And to top it off, his> Daddy> left us when he was 2.5 years of age, (just before> his> surgery!). And because my son was on so many central> nervous system suppressing drugs, he was unable to> take pain medication after his surgery as the> surgeon> feared that he would lapse into a coma, (poor little> guy. I still cry when I think of how much pain he> was> in!!) Not to mention that during the surgery, it was> necessary to have a multitude of doctors, (i.e.> surgeons, three ansthesiologists(?) including the> chief of Ansthesiology) as they were afraid he would> go into Status Eplectitus on the table,> (uncontrollable seizures which could ultimately lead> to death). In fact, I was told that they had bottles> of a drug, (can't remember the name, maybe sodium> panthenol?) that is designed to stop all brain> activity, (brain dead), had my son gone into Status> Epilectitus. Thankfully, he did not. (I sure could> have used some support at the hospital on that day!> But I was on my own, like we so often are these> days.)> However, he is getting great help that is> completely> paid for by the State and the school district, and> because of this, he will more than likely be> "mainstreamed" into regular school within the next> few> years. (ps, my son was completely healthy before he> turned 13 months of age, and was completely healthy> when I began my journey with WLS.) Also, he has been> almost seizure free since his surgery!!> Sorry, I did say that I would not bore you with> the> details, and here I probably have... At any rate, I> am> just saying that the last three years have been the> most stressful and saddening of my life. But with> the> medical and developmental strides that my son has> made> recently, (he started talking about six months ago!!> And has much more control of his fine motor> skills.),> I feel as if I am ready to concentrate on me now.> OK, enough said...> Thanks again to all of you for your kind words of> encouragement and support.> Pam > > --- Uncle Timmy wrote:> > > An appointment with the dietician may be in order,> > to modify your > > eating plan to help you adapt to the post-op> > lifestyle. Have you > > considered other professionals, to help deal with> > the root cause(s) > > of your weight gain? > > > > Uncle Timmy -240> > > > > > > Although I've not yet phoned KPSSF to inquire as> > to what my next > > step> > > should be considering my significant weight gain> > since > > orientation, (I> > > feel like such a failure, and am very> embarrassed> > by the weight > > gain),> > > I did go to KPSTK to see exactely how much I> > currently weigh. > > Imagine> > > my surprise to see that I do not weigh 450 lbs> as> > previously > > thought,> > > but rather, 412!! That means that I need lose> only> > 62 lbs to > > prepare> > > for surgery, not the 100 that I had originally> > thought. For some> > > reason, losing 62 lbs versus 100 is alot easier> to> > swallow, (no pun> > > intended).> > > I am still unsure as to whether I should> contact> > KPSSF to inform > > of> > > the weight gain, or if I should just wait until> > such time as I have> > > lost the 62 lbs, and then schedule the surgery.> I> > will, of course,> > > begin going to the monthly meetings in SAC, as> > well as the support> > > group that is held at the KPSTK facility. In> > addition, I still > > plan to> > > attend, (beginning in August), the weekly Binge> > Eating/Overeaters> > > classes at KPSTK Mental Health department. > > > I just hope that I am doing the right thing by> > continuing on my > > own> > > instead of contacting KPSSF re the weight gain.> > Don't get me > > wrong; I> > > have every intention of telling the SSF> physician> > of the weight > > gain,> > > I would just prefer to do it after all of the 62> > lbs have been > > lost. > > > Any comments/suggestions from anyone?> > > > > > Pam> > > > > > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Pam- Like Pam Marsh said, life can sure sometimes make you a stronger person. I admire all the struggles and stresses you have had in motherhood. I am glad your looking into your health to keep on top of yourself and your sons future welfare. good luck colleenPamela A Marsh wrote: Pam, I can totally relate to having a child withhealth issues as well as disabilities. Both of myboys are Autistic. I have a 14 year old and a 11 yearold. It was hard at first but I have beenstrengthened by the hurdles that we have had toovercome. It does get easier as time goes on becauseyou learn to accept more than battle situations andyour learn to stop looking someone who we can holdaccountable for the mishap. Its all part of life andwe don't know why things happen (and for me it nolonger matters to me because now my boys are a livingtestimony) they just do.I know I did not say much here to help you...rather Iwanted you to know that you are not alone.Pam Marsh--- flo boss wrote:> Yes, I am to attend the KPSTK Binge> Eating/Overeating> class in the Mental Health department. The classes> begin the first week of August. (Although, I am> fairly> confident that I know what the causes are.) > I don't want to bore anyone with the details, but in> the last three years my son, who is now a 4 y/o, has> been very, very ill, in and out of the hospital, has> stopped breathing on more than one occasion, has had> surgery at 2 1/2 years of age, has been on numerous> drugs that are designed to supress his central> nervous> system, (because of numerous seizures), has 40 hours> of therapy per week since the age of 2 years,> (physical, speech, occupational, and behavioral).> Because of all of this, I was forced to leave a> GREAT> career, and now stay at home FIVE DAYS A WEEK, 24/7,> (because of the therapy in the home, and then after> his 40 hours, he is exhausted, so we don't get a> chance to get out much.) And to top it off, his> Daddy> left us when he was 2.5 years of age, (just before> his> surgery!). And because my son was on so many central> nervous system suppressing drugs, he was unable to> take pain medication after his surgery as the> surgeon> feared that he would lapse into a coma, (poor little> guy. I still cry when I think of how much pain he> was> in!!) Not to mention that during the surgery, it was> necessary to have a multitude of doctors, (i.e.> surgeons, three ansthesiologists(?) including the> chief of Ansthesiology) as they were afraid he would> go into Status Eplectitus on the table,> (uncontrollable seizures which could ultimately lead> to death). In fact, I was told that they had bottles> of a drug, (can't remember the name, maybe sodium> panthenol?) that is designed to stop all brain> activity, (brain dead), had my son gone into Status> Epilectitus. Thankfully, he did not. (I sure could> have used some support at the hospital on that day!> But I was on my own, like we so often are these> days.)> However, he is getting great help that is> completely> paid for by the State and the school district, and> because of this, he will more than likely be> "mainstreamed" into regular school within the next> few> years. (ps, my son was completely healthy before he> turned 13 months of age, and was completely healthy> when I began my journey with WLS.) Also, he has been> almost seizure free since his surgery!!> Sorry, I did say that I would not bore you with> the> details, and here I probably have... At any rate, I> am> just saying that the last three years have been the> most stressful and saddening of my life. But with> the> medical and developmental strides that my son has> made> recently, (he started talking about six months ago!!> And has much more control of his fine motor> skills.),> I feel as if I am ready to concentrate on me now.> OK, enough said...> Thanks again to all of you for your kind words of> encouragement and support.> Pam > > --- Uncle Timmy wrote:> > > An appointment with the dietician may be in order,> > to modify your > > eating plan to help you adapt to the post-op> > lifestyle. Have you > > considered other professionals, to help deal with> > the root cause(s) > > of your weight gain? > > > > Uncle Timmy -240> > > > > > > Although I've not yet phoned KPSSF to inquire as> > to what my next > > step> > > should be considering my significant weight gain> > since > > orientation, (I> > > feel like such a failure, and am very> embarrassed> > by the weight > > gain),> > > I did go to KPSTK to see exactely how much I> > currently weigh. > > Imagine> > > my surprise to see that I do not weigh 450 lbs> as> > previously > > thought,> > > but rather, 412!! That means that I need lose> only> > 62 lbs to > > prepare> > > for surgery, not the 100 that I had originally> > thought. For some> > > reason, losing 62 lbs versus 100 is alot easier> to> > swallow, (no pun> > > intended).> > > I am still unsure as to whether I should> contact> > KPSSF to inform > > of> > > the weight gain, or if I should just wait until> > such time as I have> > > lost the 62 lbs, and then schedule the surgery.> I> > will, of course,> > > begin going to the monthly meetings in SAC, as> > well as the support> > > group that is held at the KPSTK facility. In> > addition, I still > > plan to> > > attend, (beginning in August), the weekly Binge> > Eating/Overeaters> > > classes at KPSTK Mental Health department. > > > I just hope that I am doing the right thing by> > continuing on my > > own> > > instead of contacting KPSSF re the weight gain.> > Don't get me > > wrong; I> > > have every intention of telling the SSF> physician> > of the weight > > gain,> > > I would just prefer to do it after all of the 62> > lbs have been > > lost. > > > Any comments/suggestions from anyone?> > > > > > Pam> > > > > > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Hi Pam, My son is also Autistic, diagnosed by UC Mind Institute at approx 2 years of age. I know only too well all of the hurdles; although for me, getting him physically well was by far the biggest!!! I can not tell you how many sleepless nights were spent next to his bed as he lay helpless and hooked up to a multitude of monitors as well as an IV. But it looks as if that part of his life is, for the most part, over, thank God!!! From one Mom of a developmentally challenged and Autistic child to another, hang in there, it is sooo worth the headache of all the therapy! When my guy first said Mama, (approx 6 months ago), I cried and cried; those words were the most beautiful words that I had ever heard! After two years of therapy, I was beginning to wonder if my son would ever talk! (and now he never stops!! Pam --- Pamela A Marsh sweetnlow20012001@...> wrote: > Pam, I can totally relate to having a child with > health issues as well as disabilities. Both of my > boys are Autistic. I have a 14 year old and a 11 > year > old. It was hard at first but I have been > strengthened by the hurdles that we have had to > overcome. It does get easier as time goes on > because > you learn to accept more than battle situations and > your learn to stop looking someone who we can hold > accountable for the mishap. Its all part of life > and > we don't know why things happen (and for me it no > longer matters to me because now my boys are a > living > testimony) they just do. > > I know I did not say much here to help you...rather > I > wanted you to know that you are not alone. > > Pam Marsh > > --- flo boss florenceboss@...> wrote: > > > Yes, I am to attend the KPSTK Binge > > Eating/Overeating > > class in the Mental Health department. The classes > > begin the first week of August. (Although, I am > > fairly > > confident that I know what the causes are.) > > I don't want to bore anyone with the details, but > in > > the last three years my son, who is now a 4 y/o, > has > > been very, very ill, in and out of the hospital, > has > > stopped breathing on more than one occasion, has > had > > surgery at 2 1/2 years of age, has been on > numerous > > drugs that are designed to supress his central > > nervous > > system, (because of numerous seizures), has 40 > hours > > of therapy per week since the age of 2 years, > > (physical, speech, occupational, and behavioral). > > Because of all of this, I was forced to leave a > > GREAT > > career, and now stay at home FIVE DAYS A WEEK, > 24/7, > > (because of the therapy in the home, and then > after > > his 40 hours, he is exhausted, so we don't get a > > chance to get out much.) And to top it off, his > > Daddy > > left us when he was 2.5 years of age, (just before > > his > > surgery!). And because my son was on so many > central > > nervous system suppressing drugs, he was unable to > > take pain medication after his surgery as the > > surgeon > > feared that he would lapse into a coma, (poor > little > > guy. I still cry when I think of how much pain he > > was > > in!!) Not to mention that during the surgery, it > was > > necessary to have a multitude of doctors, (i.e. > > surgeons, three ansthesiologists(?) including the > > chief of Ansthesiology) as they were afraid he > would > > go into Status Eplectitus on the table, > > (uncontrollable seizures which could ultimately > lead > > to death). In fact, I was told that they had > bottles > > of a drug, (can't remember the name, maybe sodium > > panthenol?) that is designed to stop all brain > > activity, (brain dead), had my son gone into > Status > > Epilectitus. Thankfully, he did not. (I sure could > > have used some support at the hospital on that > day! > > But I was on my own, like we so often are these > > days.) > > However, he is getting great help that is > > completely > > paid for by the State and the school district, and > > because of this, he will more than likely be > > " mainstreamed " into regular school within the next > > few > > years. (ps, my son was completely healthy before > he > > turned 13 months of age, and was completely > healthy > > when I began my journey with WLS.) Also, he has > been > > almost seizure free since his surgery!! > > Sorry, I did say that I would not bore you with > > the > > details, and here I probably have... At any rate, > I > > am > > just saying that the last three years have been > the > > most stressful and saddening of my life. But with > > the > > medical and developmental strides that my son has > > made > > recently, (he started talking about six months > ago!! > > And has much more control of his fine motor > > skills.), > > I feel as if I am ready to concentrate on me now. > > OK, enough said... > > Thanks again to all of you for your kind words of > > encouragement and support. > > Pam > > > > --- Uncle Timmy n01un0@...> wrote: > > > > > An appointment with the dietician may be in > order, > > > to modify your > > > eating plan to help you adapt to the post-op > > > lifestyle. Have you > > > considered other professionals, to help deal > with > > > the root cause(s) > > > of your weight gain? > > > > > > Uncle Timmy -240 > > > > > > > > > > Although I've not yet phoned KPSSF to inquire > as > > > to what my next > > > step > > > > should be considering my significant weight > gain > > > since > > > orientation, (I > > > > feel like such a failure, and am very > > embarrassed > > > by the weight > > > gain), > > > > I did go to KPSTK to see exactely how much I > > > currently weigh. > > > Imagine > > > > my surprise to see that I do not weigh 450 lbs > > as > > > previously > > > thought, > > > > but rather, 412!! That means that I need lose > > only > > > 62 lbs to > > > prepare > > > > for surgery, not the 100 that I had originally > > > thought. For some > > > > reason, losing 62 lbs versus 100 is alot > easier > > to > > > swallow, (no pun > > > > intended). > > > > I am still unsure as to whether I should > > contact > > > KPSSF to inform > > > of > > > > the weight gain, or if I should just wait > until > > > such time as I have > > > > lost the 62 lbs, and then schedule the > surgery. > > I > > > will, of course, > > > > begin going to the monthly meetings in SAC, as > > > well as the support > > > > group that is held at the KPSTK facility. In > > > addition, I still > > > plan to > > > > attend, (beginning in August), the weekly > Binge > > > Eating/Overeaters > > > > classes at KPSTK Mental Health department. > > > > I just hope that I am doing the right thing > by > > > continuing on my > > > own > > > > instead of contacting KPSSF re the weight > gain. > > > Don't get me > > > wrong; I > > > > have every intention of telling the SSF > > physician > > > of the weight > > > gain, > > > > I would just prefer to do it after all of the > 62 > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Tina, How is your son now? --- Tina ma2two@...> wrote: > Pam -- > > I'm so sorry that you have had to endure so much! > It's horrible to > watch a child be sick and so helpless. My son had > surgery at 2-1/2 > weeks of age and I know I was a nervous wreck. > > I'm glad he is coming along in leaps and strides. > Know that we are > all here for you. > > Tina > > > > > Although I've not yet phoned KPSSF to inquire > as > > > to what my next > > > step > > > > should be considering my significant weight > gain > > > since > > > orientation, (I > > > > feel like such a failure, and am very > embarrassed > > > by the weight > > > gain), > > > > I did go to KPSTK to see exactely how much I > > > currently weigh. > > > Imagine > > > > my surprise to see that I do not weigh 450 lbs > as > > > previously > > > thought, > > > > but rather, 412!! That means that I need lose > only > > > 62 lbs to > > > prepare > > > > for surgery, not the 100 that I had originally > > > thought. For some > > > > reason, losing 62 lbs versus 100 is alot > easier to > > > swallow, (no pun > > > > intended). > > > > I am still unsure as to whether I should > contact > > > KPSSF to inform > > > of > > > > the weight gain, or if I should just wait > until > > > such time as I have > > > > lost the 62 lbs, and then schedule the > surgery. I > > > will, of course, > > > > begin going to the monthly meetings in SAC, as > > > well as the support > > > > group that is held at the KPSTK facility. In > > > addition, I still > > > plan to > > > > attend, (beginning in August), the weekly > Binge > > > Eating/Overeaters > > > > classes at KPSTK Mental Health department. > > > > I just hope that I am doing the right thing > by > > > continuing on my > > > own > > > > instead of contacting KPSSF re the weight > gain. > > > Don't get me > > > wrong; I > > > > have every intention of telling the SSF > physician > > > of the weight > > > gain, > > > > I would just prefer to do it after all of the > 62 > > > lbs have been > > > lost. > > > > Any comments/suggestions from anyone? > > > > > > > > Pam > > > > > > > > > > > > > > > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 He's prefectly fine now. It was a just a minor thing but scared the crap out of me. He was sick for the first couple of years of his life (lots of pneumonia and lung problems) but now (at age 7), he doesn't get sick at all. It was just a long road and one that my employer constantly complained about (me being gone). It's all worth it though. My baby boy is the love of my life! Tina > > > > > Although I've not yet phoned KPSSF to inquire > > as > > > > to what my next > > > > step > > > > > should be considering my significant weight > > gain > > > > since > > > > orientation, (I > > > > > feel like such a failure, and am very > > embarrassed > > > > by the weight > > > > gain), > > > > > I did go to KPSTK to see exactely how much I > > > > currently weigh. > > > > Imagine > > > > > my surprise to see that I do not weigh 450 lbs > > as > > > > previously > > > > thought, > > > > > but rather, 412!! That means that I need lose > > only > > > > 62 lbs to > > > > prepare > > > > > for surgery, not the 100 that I had originally > > > > thought. For some > > > > > reason, losing 62 lbs versus 100 is alot > > easier to > > > > swallow, (no pun > > > > > intended). > > > > > I am still unsure as to whether I should > > contact > > > > KPSSF to inform > > > > of > > > > > the weight gain, or if I should just wait > > until > > > > such time as I have > > > > > lost the 62 lbs, and then schedule the > > surgery. I > > > > will, of course, > > > > > begin going to the monthly meetings in SAC, as > > > > well as the support > > > > > group that is held at the KPSTK facility. In > > > > addition, I still > > > > plan to > > > > > attend, (beginning in August), the weekly > > Binge > > > > Eating/Overeaters > > > > > classes at KPSTK Mental Health department. > > > > > I just hope that I am doing the right thing > > by > > > > continuing on my > > > > own > > > > > instead of contacting KPSSF re the weight > > gain. > > > > Don't get me > > > > wrong; I > > > > > have every intention of telling the SSF > > physician > > > > of the weight > > > > gain, > > > > > I would just prefer to do it after all of the > > 62 > > > > lbs have been > > > > lost. > > > > > Any comments/suggestions from anyone? > > > > > > > > > > Pam > > > > > > > > > > > > > > > > > > > > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 He's prefectly fine now. It was a just a minor thing but scared the crap out of me. He was sick for the first couple of years of his life (lots of pneumonia and lung problems) but now (at age 7), he doesn't get sick at all. It was just a long road and one that my employer constantly complained about (me being gone). It's all worth it though. My baby boy is the love of my life! Tina > > > > > Although I've not yet phoned KPSSF to inquire > > as > > > > to what my next > > > > step > > > > > should be considering my significant weight > > gain > > > > since > > > > orientation, (I > > > > > feel like such a failure, and am very > > embarrassed > > > > by the weight > > > > gain), > > > > > I did go to KPSTK to see exactely how much I > > > > currently weigh. > > > > Imagine > > > > > my surprise to see that I do not weigh 450 lbs > > as > > > > previously > > > > thought, > > > > > but rather, 412!! That means that I need lose > > only > > > > 62 lbs to > > > > prepare > > > > > for surgery, not the 100 that I had originally > > > > thought. For some > > > > > reason, losing 62 lbs versus 100 is alot > > easier to > > > > swallow, (no pun > > > > > intended). > > > > > I am still unsure as to whether I should > > contact > > > > KPSSF to inform > > > > of > > > > > the weight gain, or if I should just wait > > until > > > > such time as I have > > > > > lost the 62 lbs, and then schedule the > > surgery. I > > > > will, of course, > > > > > begin going to the monthly meetings in SAC, as > > > > well as the support > > > > > group that is held at the KPSTK facility. In > > > > addition, I still > > > > plan to > > > > > attend, (beginning in August), the weekly > > Binge > > > > Eating/Overeaters > > > > > classes at KPSTK Mental Health department. > > > > > I just hope that I am doing the right thing > > by > > > > continuing on my > > > > own > > > > > instead of contacting KPSSF re the weight > > gain. > > > > Don't get me > > > > wrong; I > > > > > have every intention of telling the SSF > > physician > > > > of the weight > > > > gain, > > > > > I would just prefer to do it after all of the > > 62 > > > > lbs have been > > > > lost. > > > > > Any comments/suggestions from anyone? > > > > > > > > > > Pam > > > > > > > > > > > > > > > > > > > > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 This kind of puts into perspective how small our problems really are. Pam, God bless you and your son on a real journey. His saying Mama was far more exciting and memorable than any weight loss and more dramatic than any weight gain. I think sometimes perspective is good for the mind, body and soul! My son was diagnosed with Asperger's Syndrome, which is on the autism spectrum and to see him succeed in school and socially makes all that I struggle with seem so silly at times. Pam, you celebrate all of his " Mama's " ...God love him and you! Rory > > > > > Although I've not yet phoned KPSSF to inquire > > as > > > > to what my next > > > > step > > > > > should be considering my significant weight > > gain > > > > since > > > > orientation, (I > > > > > feel like such a failure, and am very > > > embarrassed > > > > by the weight > > > > gain), > > > > > I did go to KPSTK to see exactely how much I > > > > currently weigh. > > > > Imagine > > > > > my surprise to see that I do not weigh 450 lbs > > > as > > > > previously > > > > thought, > > > > > but rather, 412!! That means that I need lose > > > only > > > > 62 lbs to > > > > prepare > > > > > for surgery, not the 100 that I had originally > > > > thought. For some > > > > > reason, losing 62 lbs versus 100 is alot > > easier > > > to > > > > swallow, (no pun > > > > > intended). > > > > > I am still unsure as to whether I should > > > contact > > > > KPSSF to inform > > > > of > > > > > the weight gain, or if I should just wait > > until > > > > such time as I have > > > > > lost the 62 lbs, and then schedule the > > surgery. > > > I > > > > will, of course, > > > > > begin going to the monthly meetings in SAC, as > > > > well as the support > > > > > group that is held at the KPSTK facility. In > > > > addition, I still > > > > plan to > > > > > attend, (beginning in August), the weekly > > Binge > > > > Eating/Overeaters > > > > > classes at KPSTK Mental Health department. > > > > > I just hope that I am doing the right thing > > by > > > > continuing on my > > > > own > > > > > instead of contacting KPSSF re the weight > > gain. > > > > Don't get me > > > > wrong; I > > > > > have every intention of telling the SSF > > > physician > > > > of the weight > > > > gain, > > > > > I would just prefer to do it after all of the > > 62 > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 This kind of puts into perspective how small our problems really are. Pam, God bless you and your son on a real journey. His saying Mama was far more exciting and memorable than any weight loss and more dramatic than any weight gain. I think sometimes perspective is good for the mind, body and soul! My son was diagnosed with Asperger's Syndrome, which is on the autism spectrum and to see him succeed in school and socially makes all that I struggle with seem so silly at times. Pam, you celebrate all of his " Mama's " ...God love him and you! Rory > > > > > Although I've not yet phoned KPSSF to inquire > > as > > > > to what my next > > > > step > > > > > should be considering my significant weight > > gain > > > > since > > > > orientation, (I > > > > > feel like such a failure, and am very > > > embarrassed > > > > by the weight > > > > gain), > > > > > I did go to KPSTK to see exactely how much I > > > > currently weigh. > > > > Imagine > > > > > my surprise to see that I do not weigh 450 lbs > > > as > > > > previously > > > > thought, > > > > > but rather, 412!! That means that I need lose > > > only > > > > 62 lbs to > > > > prepare > > > > > for surgery, not the 100 that I had originally > > > > thought. For some > > > > > reason, losing 62 lbs versus 100 is alot > > easier > > > to > > > > swallow, (no pun > > > > > intended). > > > > > I am still unsure as to whether I should > > > contact > > > > KPSSF to inform > > > > of > > > > > the weight gain, or if I should just wait > > until > > > > such time as I have > > > > > lost the 62 lbs, and then schedule the > > surgery. > > > I > > > > will, of course, > > > > > begin going to the monthly meetings in SAC, as > > > > well as the support > > > > > group that is held at the KPSTK facility. In > > > > addition, I still > > > > plan to > > > > > attend, (beginning in August), the weekly > > Binge > > > > Eating/Overeaters > > > > > classes at KPSTK Mental Health department. > > > > > I just hope that I am doing the right thing > > by > > > > continuing on my > > > > own > > > > > instead of contacting KPSSF re the weight > > gain. > > > > Don't get me > > > > wrong; I > > > > > have every intention of telling the SSF > > > physician > > > > of the weight > > > > gain, > > > > > I would just prefer to do it after all of the > > 62 > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Hi Pam and Rory, getting the diagnoses for my boys of being Autistic changed my world. Not once did I ask God " why " but then He already knew I had this burning question. I just asked for strength because I just did not see how I could walk through this thing with two Autistic children. Nonetheless, God has been great to my family and through each passing year, it only gets better. This board is great. Just when you have something to share and you don't because you don't want to take away from what the board is meant for, someone out there says something and you are blessed because again, I believe that God places people in your life for a reason. Rory and Pam, if I can ever be of support with anything...more importantly the issues with the children, PLEASE let me know. Rory, you are right the words that the children speak and the progress that they make that the physicians said they would not make but yet they do are so much more than any weight I could ever lose. Okay, getting emotional here ...and I thought I was beyond this stage but I guess not. I am going to simply say thanks for sharing your stories with me. God bless you and your families. Pam Marsh --- " Rory G. " rorman212@...> wrote: > This kind of puts into perspective how small our > problems really > are. Pam, God bless you and your son on a real > journey. His saying > Mama was far more exciting and memorable than any > weight loss and > more dramatic than any weight gain. I think > sometimes perspective > is good for the mind, body and soul! > My son was diagnosed with Asperger's > Syndrome, which is on > the autism spectrum and to see him succeed in school > and socially > makes all that I struggle with seem so silly at > times. Pam, you > celebrate all of his " Mama's " ...God love him and > you! > > Rory > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > Eating/Overeating > > > > class in the Mental Health department. The > classes > > > > begin the first week of August. (Although, I > am > > > > fairly > > > > confident that I know what the causes are.) > > > > I don't want to bore anyone with the details, > but > > > in > > > > the last three years my son, who is now a 4 > y/o, > > > has > > > > been very, very ill, in and out of the > hospital, > > > has > > > > stopped breathing on more than one occasion, > has > > > had > > > > surgery at 2 1/2 years of age, has been on > > > numerous > > > > drugs that are designed to supress his central > > > > nervous > > > > system, (because of numerous seizures), has 40 > > > hours > > > > of therapy per week since the age of 2 years, > > > > (physical, speech, occupational, and > behavioral). > > > > Because of all of this, I was forced to leave > a > > > > GREAT > > > > career, and now stay at home FIVE DAYS A WEEK, > > > 24/7, > > > > (because of the therapy in the home, and then > > > after > > > > his 40 hours, he is exhausted, so we don't get > a > > > > chance to get out much.) And to top it off, > his > > > > Daddy > > > > left us when he was 2.5 years of age, (just > before > > > > his > > > > surgery!). And because my son was on so many > > > central > > > > nervous system suppressing drugs, he was > unable to > > > > take pain medication after his surgery as the > > > > surgeon > > > > feared that he would lapse into a coma, (poor > > > little > > > > guy. I still cry when I think of how much pain > he > > > > was > > > > in!!) Not to mention that during the surgery, > it > > > was > > > > necessary to have a multitude of doctors, > (i.e. > > > > surgeons, three ansthesiologists(?) including > the > > > > chief of Ansthesiology) as they were afraid he > > > would > > > > go into Status Eplectitus on the table, > > > > (uncontrollable seizures which could > ultimately > > > lead > > > > to death). In fact, I was told that they had > > > bottles > > > > of a drug, (can't remember the name, maybe > sodium > > > > panthenol?) that is designed to stop all brain > > > > activity, (brain dead), had my son gone into > > > Status > > > > Epilectitus. Thankfully, he did not. (I sure > could > > > > have used some support at the hospital on that > > > day! > > > > But I was on my own, like we so often are > these > > > > days.) > > > > However, he is getting great help that is > > > > completely > > > > paid for by the State and the school district, > and > > > > because of this, he will more than likely be > > > > " mainstreamed " into regular school within the > next > > > > few > > > > years. (ps, my son was completely healthy > before > > > he > > > > turned 13 months of age, and was completely > > > healthy > > > > when I began my journey with WLS.) Also, he > has > > > been > > > > almost seizure free since his surgery!! > > > > Sorry, I did say that I would not bore you > with > > > > the > > > > details, and here I probably have... At any > rate, > > > I > > > > am > > > > just saying that the last three years have > been > > > the > === message truncated === ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Hi Pam and Rory, getting the diagnoses for my boys of being Autistic changed my world. Not once did I ask God " why " but then He already knew I had this burning question. I just asked for strength because I just did not see how I could walk through this thing with two Autistic children. Nonetheless, God has been great to my family and through each passing year, it only gets better. This board is great. Just when you have something to share and you don't because you don't want to take away from what the board is meant for, someone out there says something and you are blessed because again, I believe that God places people in your life for a reason. Rory and Pam, if I can ever be of support with anything...more importantly the issues with the children, PLEASE let me know. Rory, you are right the words that the children speak and the progress that they make that the physicians said they would not make but yet they do are so much more than any weight I could ever lose. Okay, getting emotional here ...and I thought I was beyond this stage but I guess not. I am going to simply say thanks for sharing your stories with me. God bless you and your families. Pam Marsh --- " Rory G. " rorman212@...> wrote: > This kind of puts into perspective how small our > problems really > are. Pam, God bless you and your son on a real > journey. His saying > Mama was far more exciting and memorable than any > weight loss and > more dramatic than any weight gain. I think > sometimes perspective > is good for the mind, body and soul! > My son was diagnosed with Asperger's > Syndrome, which is on > the autism spectrum and to see him succeed in school > and socially > makes all that I struggle with seem so silly at > times. Pam, you > celebrate all of his " Mama's " ...God love him and > you! > > Rory > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > Eating/Overeating > > > > class in the Mental Health department. The > classes > > > > begin the first week of August. (Although, I > am > > > > fairly > > > > confident that I know what the causes are.) > > > > I don't want to bore anyone with the details, > but > > > in > > > > the last three years my son, who is now a 4 > y/o, > > > has > > > > been very, very ill, in and out of the > hospital, > > > has > > > > stopped breathing on more than one occasion, > has > > > had > > > > surgery at 2 1/2 years of age, has been on > > > numerous > > > > drugs that are designed to supress his central > > > > nervous > > > > system, (because of numerous seizures), has 40 > > > hours > > > > of therapy per week since the age of 2 years, > > > > (physical, speech, occupational, and > behavioral). > > > > Because of all of this, I was forced to leave > a > > > > GREAT > > > > career, and now stay at home FIVE DAYS A WEEK, > > > 24/7, > > > > (because of the therapy in the home, and then > > > after > > > > his 40 hours, he is exhausted, so we don't get > a > > > > chance to get out much.) And to top it off, > his > > > > Daddy > > > > left us when he was 2.5 years of age, (just > before > > > > his > > > > surgery!). And because my son was on so many > > > central > > > > nervous system suppressing drugs, he was > unable to > > > > take pain medication after his surgery as the > > > > surgeon > > > > feared that he would lapse into a coma, (poor > > > little > > > > guy. I still cry when I think of how much pain > he > > > > was > > > > in!!) Not to mention that during the surgery, > it > > > was > > > > necessary to have a multitude of doctors, > (i.e. > > > > surgeons, three ansthesiologists(?) including > the > > > > chief of Ansthesiology) as they were afraid he > > > would > > > > go into Status Eplectitus on the table, > > > > (uncontrollable seizures which could > ultimately > > > lead > > > > to death). In fact, I was told that they had > > > bottles > > > > of a drug, (can't remember the name, maybe > sodium > > > > panthenol?) that is designed to stop all brain > > > > activity, (brain dead), had my son gone into > > > Status > > > > Epilectitus. Thankfully, he did not. (I sure > could > > > > have used some support at the hospital on that > > > day! > > > > But I was on my own, like we so often are > these > > > > days.) > > > > However, he is getting great help that is > > > > completely > > > > paid for by the State and the school district, > and > > > > because of this, he will more than likely be > > > > " mainstreamed " into regular school within the > next > > > > few > > > > years. (ps, my son was completely healthy > before > > > he > > > > turned 13 months of age, and was completely > > > healthy > > > > when I began my journey with WLS.) Also, he > has > > > been > > > > almost seizure free since his surgery!! > > > > Sorry, I did say that I would not bore you > with > > > > the > > > > details, and here I probably have... At any > rate, > > > I > > > > am > > > > just saying that the last three years have > been > > > the > === message truncated === ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 I'm so glad to hear that your guy is much better now. It is so very tough when your " baby " is ill, no matter what the age, I'm guessing, but a newborn being ill, I would not even want to imagine... Pam --- Tina ma2two@...> wrote: > He's prefectly fine now. It was a just a minor thing > but scared the > crap out of me. He was sick for the first couple of > years of his > life (lots of pneumonia and lung problems) but now > (at age 7), he > doesn't get sick at all. It was just a long road and > one that my > employer constantly complained about (me being > gone). > > It's all worth it though. My baby boy is the love of > my life! > > Tina > > > > > > > > Although I've not yet phoned KPSSF to > inquire > > > as > > > > > to what my next > > > > > step > > > > > > should be considering my significant > weight > > > gain > > > > > since > > > > > orientation, (I > > > > > > feel like such a failure, and am very > > > embarrassed > === message truncated === ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 I'm so glad to hear that your guy is much better now. It is so very tough when your " baby " is ill, no matter what the age, I'm guessing, but a newborn being ill, I would not even want to imagine... Pam --- Tina ma2two@...> wrote: > He's prefectly fine now. It was a just a minor thing > but scared the > crap out of me. He was sick for the first couple of > years of his > life (lots of pneumonia and lung problems) but now > (at age 7), he > doesn't get sick at all. It was just a long road and > one that my > employer constantly complained about (me being > gone). > > It's all worth it though. My baby boy is the love of > my life! > > Tina > > > > > > > > Although I've not yet phoned KPSSF to > inquire > > > as > > > > > to what my next > > > > > step > > > > > > should be considering my significant > weight > > > gain > > > > > since > > > > > orientation, (I > > > > > > feel like such a failure, and am very > > > embarrassed > === message truncated === ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Rory, your e-mail made me cry... You are so right! Our problems seem so trivial when compared to some of the plights that our children must suffer through. I am aware of Asperger's Syndrome, and wish you and your son all of the best. It sounds as if he is doing very well. Take care! Pam --- " Rory G. " rorman212@...> wrote: > This kind of puts into perspective how small our > problems really > are. Pam, God bless you and your son on a real > journey. His saying > Mama was far more exciting and memorable than any > weight loss and > more dramatic than any weight gain. I think > sometimes perspective > is good for the mind, body and soul! > My son was diagnosed with Asperger's > Syndrome, which is on > the autism spectrum and to see him succeed in school > and socially > makes all that I struggle with seem so silly at > times. Pam, you > celebrate all of his " Mama's " ...God love him and > you! > > Rory > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > Eating/Overeating > > > > class in the Mental Health department. The > classes > > > > begin the first week of August. (Although, I > am > > > > fairly > > > > confident that I know what the causes are.) > > > > I don't want to bore anyone with the details, > but > > > in > > > > the last three years my son, who is now a 4 > y/o, > > > has > > > > been very, very ill, in and out of the > hospital, > > > has > > > > stopped breathing on more than one occasion, > has > > > had > > > > surgery at 2 1/2 years of age, has been on > > > numerous > > > > drugs that are designed to supress his central > > > > nervous > > > > system, (because of numerous seizures), has 40 > > > hours > > > > of therapy per week since the age of 2 years, > > > > (physical, speech, occupational, and > behavioral). > > > > Because of all of this, I was forced to leave > a > > > > GREAT > > > > career, and now stay at home FIVE DAYS A WEEK, > > > 24/7, > > > > (because of the therapy in the home, and then > > > after > > > > his 40 hours, he is exhausted, so we don't get > a > > > > chance to get out much.) And to top it off, > his > > > > Daddy > > > > left us when he was 2.5 years of age, (just > before > > > > his > > > > surgery!). And because my son was on so many > > > central > > > > nervous system suppressing drugs, he was > unable to > > > > take pain medication after his surgery as the > > > > surgeon > > > > feared that he would lapse into a coma, (poor > > > little > > > > guy. I still cry when I think of how much pain > he > > > > was > > > > in!!) Not to mention that during the surgery, > it > > > was > > > > necessary to have a multitude of doctors, > (i.e. > > > > surgeons, three ansthesiologists(?) including > the > > > > chief of Ansthesiology) as they were afraid he > > > would > > > > go into Status Eplectitus on the table, > > > > (uncontrollable seizures which could > ultimately > > > lead > > > > to death). In fact, I was told that they had > > > bottles > > > > of a drug, (can't remember the name, maybe > sodium > > > > panthenol?) that is designed to stop all brain > > > > activity, (brain dead), had my son gone into > > > Status > > > > Epilectitus. Thankfully, he did not. (I sure > could > > > > have used some support at the hospital on that > > > day! > > > > But I was on my own, like we so often are > these > > > > days.) > > > > However, he is getting great help that is > > > > completely > > > > paid for by the State and the school district, > and > > > > because of this, he will more than likely be > > > > " mainstreamed " into regular school within the > next > > > > few > > > > years. (ps, my son was completely healthy > before > > > he > > > > turned 13 months of age, and was completely > > > healthy > > > > when I began my journey with WLS.) Also, he > has > > > been > > > > almost seizure free since his surgery!! > > > > Sorry, I did say that I would not bore you > with > > > > the > > > > details, and here I probably have... At any > rate, > > > I > > > > am > > > > just saying that the last three years have > been > > > the > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Rory, your e-mail made me cry... You are so right! Our problems seem so trivial when compared to some of the plights that our children must suffer through. I am aware of Asperger's Syndrome, and wish you and your son all of the best. It sounds as if he is doing very well. Take care! Pam --- " Rory G. " rorman212@...> wrote: > This kind of puts into perspective how small our > problems really > are. Pam, God bless you and your son on a real > journey. His saying > Mama was far more exciting and memorable than any > weight loss and > more dramatic than any weight gain. I think > sometimes perspective > is good for the mind, body and soul! > My son was diagnosed with Asperger's > Syndrome, which is on > the autism spectrum and to see him succeed in school > and socially > makes all that I struggle with seem so silly at > times. Pam, you > celebrate all of his " Mama's " ...God love him and > you! > > Rory > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > Eating/Overeating > > > > class in the Mental Health department. The > classes > > > > begin the first week of August. (Although, I > am > > > > fairly > > > > confident that I know what the causes are.) > > > > I don't want to bore anyone with the details, > but > > > in > > > > the last three years my son, who is now a 4 > y/o, > > > has > > > > been very, very ill, in and out of the > hospital, > > > has > > > > stopped breathing on more than one occasion, > has > > > had > > > > surgery at 2 1/2 years of age, has been on > > > numerous > > > > drugs that are designed to supress his central > > > > nervous > > > > system, (because of numerous seizures), has 40 > > > hours > > > > of therapy per week since the age of 2 years, > > > > (physical, speech, occupational, and > behavioral). > > > > Because of all of this, I was forced to leave > a > > > > GREAT > > > > career, and now stay at home FIVE DAYS A WEEK, > > > 24/7, > > > > (because of the therapy in the home, and then > > > after > > > > his 40 hours, he is exhausted, so we don't get > a > > > > chance to get out much.) And to top it off, > his > > > > Daddy > > > > left us when he was 2.5 years of age, (just > before > > > > his > > > > surgery!). And because my son was on so many > > > central > > > > nervous system suppressing drugs, he was > unable to > > > > take pain medication after his surgery as the > > > > surgeon > > > > feared that he would lapse into a coma, (poor > > > little > > > > guy. I still cry when I think of how much pain > he > > > > was > > > > in!!) Not to mention that during the surgery, > it > > > was > > > > necessary to have a multitude of doctors, > (i.e. > > > > surgeons, three ansthesiologists(?) including > the > > > > chief of Ansthesiology) as they were afraid he > > > would > > > > go into Status Eplectitus on the table, > > > > (uncontrollable seizures which could > ultimately > > > lead > > > > to death). In fact, I was told that they had > > > bottles > > > > of a drug, (can't remember the name, maybe > sodium > > > > panthenol?) that is designed to stop all brain > > > > activity, (brain dead), had my son gone into > > > Status > > > > Epilectitus. Thankfully, he did not. (I sure > could > > > > have used some support at the hospital on that > > > day! > > > > But I was on my own, like we so often are > these > > > > days.) > > > > However, he is getting great help that is > > > > completely > > > > paid for by the State and the school district, > and > > > > because of this, he will more than likely be > > > > " mainstreamed " into regular school within the > next > > > > few > > > > years. (ps, my son was completely healthy > before > > > he > > > > turned 13 months of age, and was completely > > > healthy > > > > when I began my journey with WLS.) Also, he > has > > > been > > > > almost seizure free since his surgery!! > > > > Sorry, I did say that I would not bore you > with > > > > the > > > > details, and here I probably have... At any > rate, > > > I > > > > am > > > > just saying that the last three years have > been > > > the > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Rory, your e-mail made me cry... You are so right! Our problems seem so trivial when compared to some of the plights that our children must suffer through. I am aware of Asperger's Syndrome, and wish you and your son all of the best. It sounds as if he is doing very well. Take care! Pam --- " Rory G. " rorman212@...> wrote: > This kind of puts into perspective how small our > problems really > are. Pam, God bless you and your son on a real > journey. His saying > Mama was far more exciting and memorable than any > weight loss and > more dramatic than any weight gain. I think > sometimes perspective > is good for the mind, body and soul! > My son was diagnosed with Asperger's > Syndrome, which is on > the autism spectrum and to see him succeed in school > and socially > makes all that I struggle with seem so silly at > times. Pam, you > celebrate all of his " Mama's " ...God love him and > you! > > Rory > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > Eating/Overeating > > > > class in the Mental Health department. The > classes > > > > begin the first week of August. (Although, I > am > > > > fairly > > > > confident that I know what the causes are.) > > > > I don't want to bore anyone with the details, > but > > > in > > > > the last three years my son, who is now a 4 > y/o, > > > has > > > > been very, very ill, in and out of the > hospital, > > > has > > > > stopped breathing on more than one occasion, > has > > > had > > > > surgery at 2 1/2 years of age, has been on > > > numerous > > > > drugs that are designed to supress his central > > > > nervous > > > > system, (because of numerous seizures), has 40 > > > hours > > > > of therapy per week since the age of 2 years, > > > > (physical, speech, occupational, and > behavioral). > > > > Because of all of this, I was forced to leave > a > > > > GREAT > > > > career, and now stay at home FIVE DAYS A WEEK, > > > 24/7, > > > > (because of the therapy in the home, and then > > > after > > > > his 40 hours, he is exhausted, so we don't get > a > > > > chance to get out much.) And to top it off, > his > > > > Daddy > > > > left us when he was 2.5 years of age, (just > before > > > > his > > > > surgery!). And because my son was on so many > > > central > > > > nervous system suppressing drugs, he was > unable to > > > > take pain medication after his surgery as the > > > > surgeon > > > > feared that he would lapse into a coma, (poor > > > little > > > > guy. I still cry when I think of how much pain > he > > > > was > > > > in!!) Not to mention that during the surgery, > it > > > was > > > > necessary to have a multitude of doctors, > (i.e. > > > > surgeons, three ansthesiologists(?) including > the > > > > chief of Ansthesiology) as they were afraid he > > > would > > > > go into Status Eplectitus on the table, > > > > (uncontrollable seizures which could > ultimately > > > lead > > > > to death). In fact, I was told that they had > > > bottles > > > > of a drug, (can't remember the name, maybe > sodium > > > > panthenol?) that is designed to stop all brain > > > > activity, (brain dead), had my son gone into > > > Status > > > > Epilectitus. Thankfully, he did not. (I sure > could > > > > have used some support at the hospital on that > > > day! > > > > But I was on my own, like we so often are > these > > > > days.) > > > > However, he is getting great help that is > > > > completely > > > > paid for by the State and the school district, > and > > > > because of this, he will more than likely be > > > > " mainstreamed " into regular school within the > next > > > > few > > > > years. (ps, my son was completely healthy > before > > > he > > > > turned 13 months of age, and was completely > > > healthy > > > > when I began my journey with WLS.) Also, he > has > > > been > > > > almost seizure free since his surgery!! > > > > Sorry, I did say that I would not bore you > with > > > > the > > > > details, and here I probably have... At any > rate, > > > I > > > > am > > > > just saying that the last three years have > been > > > the > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Pam, Thank you so much for sharing your experiences. I know that it is difficult having one child with Autism, but two?! You are right, though, the progress that " our " kids make, especially when thier physicians said that they would never get there, is unbelievably gratifying and exciting. It's like Christmas, a birthday, and every other holiday rolled into one. Good luck and God bless. And a great big Thank You to all in this group who allow Rory, Pam and myself to discuss something so off topic. (Although, perhaps it is not. Nobody is immune to having to face challenges, and it is important to know how to deal with those challenges instead of using food.) Pam --- Pamela A Marsh sweetnlow20012001@...> wrote: > Hi Pam and Rory, getting the diagnoses for my boys > of > being Autistic changed my world. Not once did I ask > God " why " but then He already knew I had this > burning > question. I just asked for strength because I just > did not see how I could walk through this thing with > two Autistic children. Nonetheless, God has been > great to my family and through each passing year, it > only gets better. > > This board is great. Just when you have something > to > share and you don't because you don't want to take > away from what the board is meant for, someone out > there says something and you are blessed because > again, I believe that God places people in your life > for a reason. Rory and Pam, if I can ever be of > support with anything...more importantly the issues > with the children, PLEASE let me know. Rory, you > are > right the words that the children speak and the > progress that they make that the physicians said > they > would not make but yet they do are so much more than > any weight I could ever lose. > > Okay, getting emotional here ...and I thought I was > beyond this stage but I guess not. I am going to > simply say thanks for sharing your stories with me. > God bless you and your families. > > Pam Marsh > > --- " Rory G. " rorman212@...> wrote: > > > This kind of puts into perspective how small our > > problems really > > are. Pam, God bless you and your son on a real > > journey. His saying > > Mama was far more exciting and memorable than any > > weight loss and > > more dramatic than any weight gain. I think > > sometimes perspective > > is good for the mind, body and soul! > > My son was diagnosed with Asperger's > > Syndrome, which is on > > the autism spectrum and to see him succeed in > school > > and socially > > makes all that I struggle with seem so silly at > > times. Pam, you > > celebrate all of his " Mama's " ...God love him and > > you! > > > > Rory > > > > > > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > > Eating/Overeating > > > > > class in the Mental Health department. The > > classes > > > > > begin the first week of August. (Although, I > > am > > > > > fairly > > > > > confident that I know what the causes are.) > > > > > I don't want to bore anyone with the > details, > > but > > > > in > > > > > the last three years my son, who is now a 4 > > y/o, > > > > has > > > > > been very, very ill, in and out of the > > hospital, > > > > has > > > > > stopped breathing on more than one occasion, > > has > > > > had > > > > > surgery at 2 1/2 years of age, has been on > > > > numerous > > > > > drugs that are designed to supress his > central > > > > > nervous > > > > > system, (because of numerous seizures), has > 40 > > > > hours > > > > > of therapy per week since the age of 2 > years, > > > > > (physical, speech, occupational, and > > behavioral). > > > > > Because of all of this, I was forced to > leave > > a > > > > > GREAT > > > > > career, and now stay at home FIVE DAYS A > WEEK, > > > > 24/7, > > > > > (because of the therapy in the home, and > then > > > > after > > > > > his 40 hours, he is exhausted, so we don't > get > > a > > > > > chance to get out much.) And to top it off, > > his > > > > > Daddy > > > > > left us when he was 2.5 years of age, (just > > before > > > > > his > > > > > surgery!). And because my son was on so many > > > > central > > > > > nervous system suppressing drugs, he was > > unable to > > > > > take pain medication after his surgery as > the > > > > > surgeon > > > > > feared that he would lapse into a coma, > (poor > > > > little > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Pam, Thank you so much for sharing your experiences. I know that it is difficult having one child with Autism, but two?! You are right, though, the progress that " our " kids make, especially when thier physicians said that they would never get there, is unbelievably gratifying and exciting. It's like Christmas, a birthday, and every other holiday rolled into one. Good luck and God bless. And a great big Thank You to all in this group who allow Rory, Pam and myself to discuss something so off topic. (Although, perhaps it is not. Nobody is immune to having to face challenges, and it is important to know how to deal with those challenges instead of using food.) Pam --- Pamela A Marsh sweetnlow20012001@...> wrote: > Hi Pam and Rory, getting the diagnoses for my boys > of > being Autistic changed my world. Not once did I ask > God " why " but then He already knew I had this > burning > question. I just asked for strength because I just > did not see how I could walk through this thing with > two Autistic children. Nonetheless, God has been > great to my family and through each passing year, it > only gets better. > > This board is great. Just when you have something > to > share and you don't because you don't want to take > away from what the board is meant for, someone out > there says something and you are blessed because > again, I believe that God places people in your life > for a reason. Rory and Pam, if I can ever be of > support with anything...more importantly the issues > with the children, PLEASE let me know. Rory, you > are > right the words that the children speak and the > progress that they make that the physicians said > they > would not make but yet they do are so much more than > any weight I could ever lose. > > Okay, getting emotional here ...and I thought I was > beyond this stage but I guess not. I am going to > simply say thanks for sharing your stories with me. > God bless you and your families. > > Pam Marsh > > --- " Rory G. " rorman212@...> wrote: > > > This kind of puts into perspective how small our > > problems really > > are. Pam, God bless you and your son on a real > > journey. His saying > > Mama was far more exciting and memorable than any > > weight loss and > > more dramatic than any weight gain. I think > > sometimes perspective > > is good for the mind, body and soul! > > My son was diagnosed with Asperger's > > Syndrome, which is on > > the autism spectrum and to see him succeed in > school > > and socially > > makes all that I struggle with seem so silly at > > times. Pam, you > > celebrate all of his " Mama's " ...God love him and > > you! > > > > Rory > > > > > > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > > Eating/Overeating > > > > > class in the Mental Health department. The > > classes > > > > > begin the first week of August. (Although, I > > am > > > > > fairly > > > > > confident that I know what the causes are.) > > > > > I don't want to bore anyone with the > details, > > but > > > > in > > > > > the last three years my son, who is now a 4 > > y/o, > > > > has > > > > > been very, very ill, in and out of the > > hospital, > > > > has > > > > > stopped breathing on more than one occasion, > > has > > > > had > > > > > surgery at 2 1/2 years of age, has been on > > > > numerous > > > > > drugs that are designed to supress his > central > > > > > nervous > > > > > system, (because of numerous seizures), has > 40 > > > > hours > > > > > of therapy per week since the age of 2 > years, > > > > > (physical, speech, occupational, and > > behavioral). > > > > > Because of all of this, I was forced to > leave > > a > > > > > GREAT > > > > > career, and now stay at home FIVE DAYS A > WEEK, > > > > 24/7, > > > > > (because of the therapy in the home, and > then > > > > after > > > > > his 40 hours, he is exhausted, so we don't > get > > a > > > > > chance to get out much.) And to top it off, > > his > > > > > Daddy > > > > > left us when he was 2.5 years of age, (just > > before > > > > > his > > > > > surgery!). And because my son was on so many > > > > central > > > > > nervous system suppressing drugs, he was > > unable to > > > > > take pain medication after his surgery as > the > > > > > surgeon > > > > > feared that he would lapse into a coma, > (poor > > > > little > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Pam, Thank you so much for sharing your experiences. I know that it is difficult having one child with Autism, but two?! You are right, though, the progress that " our " kids make, especially when thier physicians said that they would never get there, is unbelievably gratifying and exciting. It's like Christmas, a birthday, and every other holiday rolled into one. Good luck and God bless. And a great big Thank You to all in this group who allow Rory, Pam and myself to discuss something so off topic. (Although, perhaps it is not. Nobody is immune to having to face challenges, and it is important to know how to deal with those challenges instead of using food.) Pam --- Pamela A Marsh sweetnlow20012001@...> wrote: > Hi Pam and Rory, getting the diagnoses for my boys > of > being Autistic changed my world. Not once did I ask > God " why " but then He already knew I had this > burning > question. I just asked for strength because I just > did not see how I could walk through this thing with > two Autistic children. Nonetheless, God has been > great to my family and through each passing year, it > only gets better. > > This board is great. Just when you have something > to > share and you don't because you don't want to take > away from what the board is meant for, someone out > there says something and you are blessed because > again, I believe that God places people in your life > for a reason. Rory and Pam, if I can ever be of > support with anything...more importantly the issues > with the children, PLEASE let me know. Rory, you > are > right the words that the children speak and the > progress that they make that the physicians said > they > would not make but yet they do are so much more than > any weight I could ever lose. > > Okay, getting emotional here ...and I thought I was > beyond this stage but I guess not. I am going to > simply say thanks for sharing your stories with me. > God bless you and your families. > > Pam Marsh > > --- " Rory G. " rorman212@...> wrote: > > > This kind of puts into perspective how small our > > problems really > > are. Pam, God bless you and your son on a real > > journey. His saying > > Mama was far more exciting and memorable than any > > weight loss and > > more dramatic than any weight gain. I think > > sometimes perspective > > is good for the mind, body and soul! > > My son was diagnosed with Asperger's > > Syndrome, which is on > > the autism spectrum and to see him succeed in > school > > and socially > > makes all that I struggle with seem so silly at > > times. Pam, you > > celebrate all of his " Mama's " ...God love him and > > you! > > > > Rory > > > > > > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > > Eating/Overeating > > > > > class in the Mental Health department. The > > classes > > > > > begin the first week of August. (Although, I > > am > > > > > fairly > > > > > confident that I know what the causes are.) > > > > > I don't want to bore anyone with the > details, > > but > > > > in > > > > > the last three years my son, who is now a 4 > > y/o, > > > > has > > > > > been very, very ill, in and out of the > > hospital, > > > > has > > > > > stopped breathing on more than one occasion, > > has > > > > had > > > > > surgery at 2 1/2 years of age, has been on > > > > numerous > > > > > drugs that are designed to supress his > central > > > > > nervous > > > > > system, (because of numerous seizures), has > 40 > > > > hours > > > > > of therapy per week since the age of 2 > years, > > > > > (physical, speech, occupational, and > > behavioral). > > > > > Because of all of this, I was forced to > leave > > a > > > > > GREAT > > > > > career, and now stay at home FIVE DAYS A > WEEK, > > > > 24/7, > > > > > (because of the therapy in the home, and > then > > > > after > > > > > his 40 hours, he is exhausted, so we don't > get > > a > > > > > chance to get out much.) And to top it off, > > his > > > > > Daddy > > > > > left us when he was 2.5 years of age, (just > > before > > > > > his > > > > > surgery!). And because my son was on so many > > > > central > > > > > nervous system suppressing drugs, he was > > unable to > > > > > take pain medication after his surgery as > the > > > > > surgeon > > > > > feared that he would lapse into a coma, > (poor > > > > little > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 You are certainly welcome Pam. Take care! Pam Marsh --- flo boss florenceboss@...> wrote: > Pam, Thank you so much for sharing your experiences. > I > know that it is difficult having one child with > Autism, but two?! You are right, though, the > progress > that " our " kids make, especially when thier > physicians > said that they would never get there, is > unbelievably > gratifying and exciting. It's like Christmas, a > birthday, and every other holiday rolled into one. > Good luck and God bless. And a great big Thank You > to > all in this group who allow Rory, Pam and myself to > discuss something so off topic. (Although, perhaps > it > is not. Nobody is immune to having to face > challenges, and it is important to know how to deal > with those challenges instead of using food.) > > Pam > > --- Pamela A Marsh sweetnlow20012001@...> > wrote: > > > Hi Pam and Rory, getting the diagnoses for my boys > > of > > being Autistic changed my world. Not once did I > ask > > God " why " but then He already knew I had this > > burning > > question. I just asked for strength because I > just > > did not see how I could walk through this thing > with > > two Autistic children. Nonetheless, God has been > > great to my family and through each passing year, > it > > only gets better. > > > > This board is great. Just when you have > something > > to > > share and you don't because you don't want to take > > away from what the board is meant for, someone out > > there says something and you are blessed because > > again, I believe that God places people in your > life > > for a reason. Rory and Pam, if I can ever be of > > support with anything...more importantly the > issues > > with the children, PLEASE let me know. Rory, you > > are > > right the words that the children speak and the > > progress that they make that the physicians said > > they > > would not make but yet they do are so much more > than > > any weight I could ever lose. > > > > Okay, getting emotional here ...and I thought I > was > > beyond this stage but I guess not. I am going to > > simply say thanks for sharing your stories with > me. > > God bless you and your families. > > > > Pam Marsh > > > > --- " Rory G. " rorman212@...> wrote: > > > > > This kind of puts into perspective how small our > > > problems really > > > are. Pam, God bless you and your son on a real > > > journey. His saying > > > Mama was far more exciting and memorable than > any > > > weight loss and > > > more dramatic than any weight gain. I think > > > sometimes perspective > > > is good for the mind, body and soul! > > > My son was diagnosed with Asperger's > > > Syndrome, which is on > > > the autism spectrum and to see him succeed in > > school > > > and socially > > > makes all that I struggle with seem so silly at > > > times. Pam, you > > > celebrate all of his " Mama's " ...God love him and > > > you! > > > > > > Rory > > > > > > > > > > > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > > > Eating/Overeating > > > > > > class in the Mental Health department. The > > > classes > > > > > > begin the first week of August. (Although, > I > > > am > > > > > > fairly > > > > > > confident that I know what the causes > are.) > > > > > > I don't want to bore anyone with the > > details, > > > but > > > > > in > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 You are certainly welcome Pam. Take care! Pam Marsh --- flo boss florenceboss@...> wrote: > Pam, Thank you so much for sharing your experiences. > I > know that it is difficult having one child with > Autism, but two?! You are right, though, the > progress > that " our " kids make, especially when thier > physicians > said that they would never get there, is > unbelievably > gratifying and exciting. It's like Christmas, a > birthday, and every other holiday rolled into one. > Good luck and God bless. And a great big Thank You > to > all in this group who allow Rory, Pam and myself to > discuss something so off topic. (Although, perhaps > it > is not. Nobody is immune to having to face > challenges, and it is important to know how to deal > with those challenges instead of using food.) > > Pam > > --- Pamela A Marsh sweetnlow20012001@...> > wrote: > > > Hi Pam and Rory, getting the diagnoses for my boys > > of > > being Autistic changed my world. Not once did I > ask > > God " why " but then He already knew I had this > > burning > > question. I just asked for strength because I > just > > did not see how I could walk through this thing > with > > two Autistic children. Nonetheless, God has been > > great to my family and through each passing year, > it > > only gets better. > > > > This board is great. Just when you have > something > > to > > share and you don't because you don't want to take > > away from what the board is meant for, someone out > > there says something and you are blessed because > > again, I believe that God places people in your > life > > for a reason. Rory and Pam, if I can ever be of > > support with anything...more importantly the > issues > > with the children, PLEASE let me know. Rory, you > > are > > right the words that the children speak and the > > progress that they make that the physicians said > > they > > would not make but yet they do are so much more > than > > any weight I could ever lose. > > > > Okay, getting emotional here ...and I thought I > was > > beyond this stage but I guess not. I am going to > > simply say thanks for sharing your stories with > me. > > God bless you and your families. > > > > Pam Marsh > > > > --- " Rory G. " rorman212@...> wrote: > > > > > This kind of puts into perspective how small our > > > problems really > > > are. Pam, God bless you and your son on a real > > > journey. His saying > > > Mama was far more exciting and memorable than > any > > > weight loss and > > > more dramatic than any weight gain. I think > > > sometimes perspective > > > is good for the mind, body and soul! > > > My son was diagnosed with Asperger's > > > Syndrome, which is on > > > the autism spectrum and to see him succeed in > > school > > > and socially > > > makes all that I struggle with seem so silly at > > > times. Pam, you > > > celebrate all of his " Mama's " ...God love him and > > > you! > > > > > > Rory > > > > > > > > > > > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > > > Eating/Overeating > > > > > > class in the Mental Health department. The > > > classes > > > > > > begin the first week of August. (Although, > I > > > am > > > > > > fairly > > > > > > confident that I know what the causes > are.) > > > > > > I don't want to bore anyone with the > > details, > > > but > > > > > in > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 You are certainly welcome Pam. Take care! Pam Marsh --- flo boss florenceboss@...> wrote: > Pam, Thank you so much for sharing your experiences. > I > know that it is difficult having one child with > Autism, but two?! You are right, though, the > progress > that " our " kids make, especially when thier > physicians > said that they would never get there, is > unbelievably > gratifying and exciting. It's like Christmas, a > birthday, and every other holiday rolled into one. > Good luck and God bless. And a great big Thank You > to > all in this group who allow Rory, Pam and myself to > discuss something so off topic. (Although, perhaps > it > is not. Nobody is immune to having to face > challenges, and it is important to know how to deal > with those challenges instead of using food.) > > Pam > > --- Pamela A Marsh sweetnlow20012001@...> > wrote: > > > Hi Pam and Rory, getting the diagnoses for my boys > > of > > being Autistic changed my world. Not once did I > ask > > God " why " but then He already knew I had this > > burning > > question. I just asked for strength because I > just > > did not see how I could walk through this thing > with > > two Autistic children. Nonetheless, God has been > > great to my family and through each passing year, > it > > only gets better. > > > > This board is great. Just when you have > something > > to > > share and you don't because you don't want to take > > away from what the board is meant for, someone out > > there says something and you are blessed because > > again, I believe that God places people in your > life > > for a reason. Rory and Pam, if I can ever be of > > support with anything...more importantly the > issues > > with the children, PLEASE let me know. Rory, you > > are > > right the words that the children speak and the > > progress that they make that the physicians said > > they > > would not make but yet they do are so much more > than > > any weight I could ever lose. > > > > Okay, getting emotional here ...and I thought I > was > > beyond this stage but I guess not. I am going to > > simply say thanks for sharing your stories with > me. > > God bless you and your families. > > > > Pam Marsh > > > > --- " Rory G. " rorman212@...> wrote: > > > > > This kind of puts into perspective how small our > > > problems really > > > are. Pam, God bless you and your son on a real > > > journey. His saying > > > Mama was far more exciting and memorable than > any > > > weight loss and > > > more dramatic than any weight gain. I think > > > sometimes perspective > > > is good for the mind, body and soul! > > > My son was diagnosed with Asperger's > > > Syndrome, which is on > > > the autism spectrum and to see him succeed in > > school > > > and socially > > > makes all that I struggle with seem so silly at > > > times. Pam, you > > > celebrate all of his " Mama's " ...God love him and > > > you! > > > > > > Rory > > > > > > > > > > > > > > > > > > > > Yes, I am to attend the KPSTK Binge > > > > > > Eating/Overeating > > > > > > class in the Mental Health department. The > > > classes > > > > > > begin the first week of August. (Although, > I > > > am > > > > > > fairly > > > > > > confident that I know what the causes > are.) > > > > > > I don't want to bore anyone with the > > details, > > > but > > > > > in > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 > > Oh my goodness, I didn't know there's a mustard that's SCD > legal...look at Digestive Wellness.com they have dijon mustard and > yellow mustard! > > They're great! I don't know how I would manage without them! Always > new ideas and new delicious products! There are lots of legal mustards. I did mention Orphee a few days ago. In Canada President's Choice Dijon is legal. Carol F. Toronto, Celiac, SCD 5 years Quote Link to comment Share on other sites More sharing options...
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