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Re: Needing Help. Our 4 year old has Crohns SCD 2 months

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Brent,

The only way to find out of the dairy products are problematic is to

remove them completely. I would do it for at least a week. Then add

one back and see if you see problems.

Goat milk yogurt may not be her favorite, but you can put it in

smoothies or other things to hide the flavor and get the good bacteria

into her still.

Or you could try making the nut yogurt for a while.

Jody

mom to -7 and -9

SCD 1/03

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Brent,

The only way to find out of the dairy products are problematic is to

remove them completely. I would do it for at least a week. Then add

one back and see if you see problems.

Goat milk yogurt may not be her favorite, but you can put it in

smoothies or other things to hide the flavor and get the good bacteria

into her still.

Or you could try making the nut yogurt for a while.

Jody

mom to -7 and -9

SCD 1/03

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Share on other sites

Brent,

The only way to find out of the dairy products are problematic is to

remove them completely. I would do it for at least a week. Then add

one back and see if you see problems.

Goat milk yogurt may not be her favorite, but you can put it in

smoothies or other things to hide the flavor and get the good bacteria

into her still.

Or you could try making the nut yogurt for a while.

Jody

mom to -7 and -9

SCD 1/03

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Share on other sites

Hi Brent,

> Ella has been on the diet for two months now. She's been weaned

off

> the prednisolone since Nov 20th. We've been charting her foods

and

> poops. Prior to the last week she had been going twice a day.

One

> would be perfectly formed then the next would be soft mush. Now

the

> last three days she has gone down to one BM which is 1/2 formed

then

> mush that follows.

> 1. Does it take the colon muscle time to be able to form both

stools? > Or a completely formed stool? It seems that once

the " plug " comes out

> then the mush quickly follows after it. Ella never has had many

fomed

> stools in her 4 years of life. Is this a muscle issue?

It could be.

> 2. Perhaps its a food substance though that shes not tollerating

that

> well.

What is she eating? What foods were introduced in the last two

weeks since having less stool? When did you start the yogurt?

She did come up positive for an alergy to Milk several months

> ago. Her level was moderate in a range of .70 to 3.50 she was

a .93

> within that range. We want so much to feed her the yogurt due to

all

> the great bacteria and health benefits. However might this be

causing

> the softness? We've tried one batch of Goat's milk yogurt which

tasted

> awful to her. This last batch was 1/2 and 1/2 for more calories

since

> she is undersized.

You used cow's milk 1/2 and 1/2, right, did you notice any changes

since starting that?

Most the batches are made of whole milk. We've

> noted cheddar cheese might also cause problems but we were using

> Tillamook only aged 60 days. We're now using Sharp Tillamook

Cheddar

> which is aged 9 months. We also put Dried Cured into her yogurt

quite

> often.

What is dried cured?

Sharp cheese (old cheese) can be troublesome for some people still

having trouble and should only be an occasionally used item even for

those who tolerate it (see appendix in BTVC).

Sheila

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Share on other sites

>

> Hi Brent,

>

> > Ella has been on the diet for two months now. She's been weaned

> off

> > the prednisolone since Nov 20th. We've been charting her foods

> and

> > poops. Prior to the last week she had been going twice a day.

> One

> > would be perfectly formed then the next would be soft mush. Now

> the

> > last three days she has gone down to one BM which is 1/2 formed

> then

> > mush that follows.

>

> > 1. Does it take the colon muscle time to be able to form both

> stools? > Or a completely formed stool? It seems that once

> the " plug " comes out

> > then the mush quickly follows after it. Ella never has had many

> fomed

> > stools in her 4 years of life. Is this a muscle issue?

>

> It could be.

>

> > 2. Perhaps its a food substance though that shes not tollerating

> that

> > well.

>

> What is she eating? What foods were introduced in the last two

> weeks since having less stool? When did you start the yogurt?

***She's been eating the same things since she was on the

prednisolone. We started the drug and the diet together. Her poops

were very formed on the drug and diet. She was eating 4 chicken

thighs at a time on the prednisolone--more food more poops I

believe.

We have been feeding her:

Yogurt from the beginning with cow's milk 2-months. We started

adding Dried CURD Cottage Cheese last month.

Uncooked fruit grapes, apples, pears, bananas. Just bananas last

couple days.

Applesauce

Banana Pancakes

Steak with and without garlic salt and pepper

Chicken with Tomato sauce, garlic salt, basil

Chicken Soup recipe with pureed carrots

Banana Pancakes

Cheddar Cheese slices

Chicken with melted cheese

Hard Boiled Eggs with salt

Cooked Broccoli, Asparagus and Bean Sprouts Occasionally and mostly

with butter.

Lil cooked squash.

100% natural Peanut butter on a spoon every so often.

Your questions are good ones. Makes me think that we really have no

structured way of knowing what food she is still sensitive to. We've

not really added foods one a time causing some of the confusion. At

the same token it wasn't mattering much with the Prednisolone. And we

thought she could still handle the dairy and fruits raw. Maybe she

can't.

Thus,

We are gonna try the dairy free for a few days and see if that forms

perfect stools and just one or two a day and also stop the raw fruit

and fruit juice. Then reintroduce a few grapes?? if she's having

great poops. Maybe even try 1/2 and 1/2 juice water mix slowly. We

are also gonna redo her allergy test to milk, casein, cheese since

she is getting a new CBC anyway.

Starting today she'll get:

Water

Chicken with tomato sauce, garlic, basil, salt

Tenderloin at Costco Expensive but tender to eat which she likes

Scrambled Eggs

Bannana Pancakes

Chicken Soup Recipe

Freeda Multi Vitamin in a little applesauce

Hard boiled Egg

Cooked Carrots

Hamburger

Is peanut butter easy?

>

> She did come up positive for an alergy to Milk several months

> > ago. Her level was moderate in a range of .70 to 3.50 she was

> a .93

> > within that range. We want so much to feed her the yogurt due

to

> all

> > the great bacteria and health benefits. However might this be

> causing

> > the softness? We've tried one batch of Goat's milk yogurt which

> tasted

> > awful to her. This last batch was 1/2 and 1/2 for more calories

> since

> > she is undersized.

>

> You used cow's milk 1/2 and 1/2, right, did you notice any changes

> since starting that?

>

>

> Most the batches are made of whole milk. We've

> > noted cheddar cheese might also cause problems but we were using

> > Tillamook only aged 60 days. We're now using Sharp Tillamook

> Cheddar

> > which is aged 9 months. We also put Dried Cured into her yogurt

> quite

> > often.

>

> What is dried cured?

> Sharp cheese (old cheese) can be troublesome for some people still

> having trouble and should only be an occasionally used item even

for

> those who tolerate it (see appendix in BTVC).

****Sorry. Dried Curd Cottage Cheese. Thank you for pointing that

the sharp cheddar can cause problems. I read somewhere that the

Cheddar should be aged at least 6 months so I went for the Sharp

without realizing. Its odd that she does Italize the Medium cheddar

for more regular use. Have you heard this 6 month aged cheddar is

important as well?

>

> Sheila

>

Thank you for your your reply.

Brent McKinney ELLA SCD 2 months

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>

> Hi Brent,

>

> > Ella has been on the diet for two months now. She's been weaned

> off

> > the prednisolone since Nov 20th. We've been charting her foods

> and

> > poops. Prior to the last week she had been going twice a day.

> One

> > would be perfectly formed then the next would be soft mush. Now

> the

> > last three days she has gone down to one BM which is 1/2 formed

> then

> > mush that follows.

>

> > 1. Does it take the colon muscle time to be able to form both

> stools? > Or a completely formed stool? It seems that once

> the " plug " comes out

> > then the mush quickly follows after it. Ella never has had many

> fomed

> > stools in her 4 years of life. Is this a muscle issue?

>

> It could be.

>

> > 2. Perhaps its a food substance though that shes not tollerating

> that

> > well.

>

> What is she eating? What foods were introduced in the last two

> weeks since having less stool? When did you start the yogurt?

***She's been eating the same things since she was on the

prednisolone. We started the drug and the diet together. Her poops

were very formed on the drug and diet. She was eating 4 chicken

thighs at a time on the prednisolone--more food more poops I

believe.

We have been feeding her:

Yogurt from the beginning with cow's milk 2-months. We started

adding Dried CURD Cottage Cheese last month.

Uncooked fruit grapes, apples, pears, bananas. Just bananas last

couple days.

Applesauce

Banana Pancakes

Steak with and without garlic salt and pepper

Chicken with Tomato sauce, garlic salt, basil

Chicken Soup recipe with pureed carrots

Banana Pancakes

Cheddar Cheese slices

Chicken with melted cheese

Hard Boiled Eggs with salt

Cooked Broccoli, Asparagus and Bean Sprouts Occasionally and mostly

with butter.

Lil cooked squash.

100% natural Peanut butter on a spoon every so often.

Your questions are good ones. Makes me think that we really have no

structured way of knowing what food she is still sensitive to. We've

not really added foods one a time causing some of the confusion. At

the same token it wasn't mattering much with the Prednisolone. And we

thought she could still handle the dairy and fruits raw. Maybe she

can't.

Thus,

We are gonna try the dairy free for a few days and see if that forms

perfect stools and just one or two a day and also stop the raw fruit

and fruit juice. Then reintroduce a few grapes?? if she's having

great poops. Maybe even try 1/2 and 1/2 juice water mix slowly. We

are also gonna redo her allergy test to milk, casein, cheese since

she is getting a new CBC anyway.

Starting today she'll get:

Water

Chicken with tomato sauce, garlic, basil, salt

Tenderloin at Costco Expensive but tender to eat which she likes

Scrambled Eggs

Bannana Pancakes

Chicken Soup Recipe

Freeda Multi Vitamin in a little applesauce

Hard boiled Egg

Cooked Carrots

Hamburger

Is peanut butter easy?

>

> She did come up positive for an alergy to Milk several months

> > ago. Her level was moderate in a range of .70 to 3.50 she was

> a .93

> > within that range. We want so much to feed her the yogurt due

to

> all

> > the great bacteria and health benefits. However might this be

> causing

> > the softness? We've tried one batch of Goat's milk yogurt which

> tasted

> > awful to her. This last batch was 1/2 and 1/2 for more calories

> since

> > she is undersized.

>

> You used cow's milk 1/2 and 1/2, right, did you notice any changes

> since starting that?

>

>

> Most the batches are made of whole milk. We've

> > noted cheddar cheese might also cause problems but we were using

> > Tillamook only aged 60 days. We're now using Sharp Tillamook

> Cheddar

> > which is aged 9 months. We also put Dried Cured into her yogurt

> quite

> > often.

>

> What is dried cured?

> Sharp cheese (old cheese) can be troublesome for some people still

> having trouble and should only be an occasionally used item even

for

> those who tolerate it (see appendix in BTVC).

****Sorry. Dried Curd Cottage Cheese. Thank you for pointing that

the sharp cheddar can cause problems. I read somewhere that the

Cheddar should be aged at least 6 months so I went for the Sharp

without realizing. Its odd that she does Italize the Medium cheddar

for more regular use. Have you heard this 6 month aged cheddar is

important as well?

>

> Sheila

>

Thank you for your your reply.

Brent McKinney ELLA SCD 2 months

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Share on other sites

>

> Hi Brent,

>

> > Ella has been on the diet for two months now. She's been weaned

> off

> > the prednisolone since Nov 20th. We've been charting her foods

> and

> > poops. Prior to the last week she had been going twice a day.

> One

> > would be perfectly formed then the next would be soft mush. Now

> the

> > last three days she has gone down to one BM which is 1/2 formed

> then

> > mush that follows.

>

> > 1. Does it take the colon muscle time to be able to form both

> stools? > Or a completely formed stool? It seems that once

> the " plug " comes out

> > then the mush quickly follows after it. Ella never has had many

> fomed

> > stools in her 4 years of life. Is this a muscle issue?

>

> It could be.

>

> > 2. Perhaps its a food substance though that shes not tollerating

> that

> > well.

>

> What is she eating? What foods were introduced in the last two

> weeks since having less stool? When did you start the yogurt?

***She's been eating the same things since she was on the

prednisolone. We started the drug and the diet together. Her poops

were very formed on the drug and diet. She was eating 4 chicken

thighs at a time on the prednisolone--more food more poops I

believe.

We have been feeding her:

Yogurt from the beginning with cow's milk 2-months. We started

adding Dried CURD Cottage Cheese last month.

Uncooked fruit grapes, apples, pears, bananas. Just bananas last

couple days.

Applesauce

Banana Pancakes

Steak with and without garlic salt and pepper

Chicken with Tomato sauce, garlic salt, basil

Chicken Soup recipe with pureed carrots

Banana Pancakes

Cheddar Cheese slices

Chicken with melted cheese

Hard Boiled Eggs with salt

Cooked Broccoli, Asparagus and Bean Sprouts Occasionally and mostly

with butter.

Lil cooked squash.

100% natural Peanut butter on a spoon every so often.

Your questions are good ones. Makes me think that we really have no

structured way of knowing what food she is still sensitive to. We've

not really added foods one a time causing some of the confusion. At

the same token it wasn't mattering much with the Prednisolone. And we

thought she could still handle the dairy and fruits raw. Maybe she

can't.

Thus,

We are gonna try the dairy free for a few days and see if that forms

perfect stools and just one or two a day and also stop the raw fruit

and fruit juice. Then reintroduce a few grapes?? if she's having

great poops. Maybe even try 1/2 and 1/2 juice water mix slowly. We

are also gonna redo her allergy test to milk, casein, cheese since

she is getting a new CBC anyway.

Starting today she'll get:

Water

Chicken with tomato sauce, garlic, basil, salt

Tenderloin at Costco Expensive but tender to eat which she likes

Scrambled Eggs

Bannana Pancakes

Chicken Soup Recipe

Freeda Multi Vitamin in a little applesauce

Hard boiled Egg

Cooked Carrots

Hamburger

Is peanut butter easy?

>

> She did come up positive for an alergy to Milk several months

> > ago. Her level was moderate in a range of .70 to 3.50 she was

> a .93

> > within that range. We want so much to feed her the yogurt due

to

> all

> > the great bacteria and health benefits. However might this be

> causing

> > the softness? We've tried one batch of Goat's milk yogurt which

> tasted

> > awful to her. This last batch was 1/2 and 1/2 for more calories

> since

> > she is undersized.

>

> You used cow's milk 1/2 and 1/2, right, did you notice any changes

> since starting that?

>

>

> Most the batches are made of whole milk. We've

> > noted cheddar cheese might also cause problems but we were using

> > Tillamook only aged 60 days. We're now using Sharp Tillamook

> Cheddar

> > which is aged 9 months. We also put Dried Cured into her yogurt

> quite

> > often.

>

> What is dried cured?

> Sharp cheese (old cheese) can be troublesome for some people still

> having trouble and should only be an occasionally used item even

for

> those who tolerate it (see appendix in BTVC).

****Sorry. Dried Curd Cottage Cheese. Thank you for pointing that

the sharp cheddar can cause problems. I read somewhere that the

Cheddar should be aged at least 6 months so I went for the Sharp

without realizing. Its odd that she does Italize the Medium cheddar

for more regular use. Have you heard this 6 month aged cheddar is

important as well?

>

> Sheila

>

Thank you for your your reply.

Brent McKinney ELLA SCD 2 months

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Share on other sites

Hi Brent,

> > What is she eating? What foods were introduced in the last two

> > weeks since having less stool? When did you start the yogurt?

>

> ***She's been eating the same things since she was on the

> prednisolone. We started the drug and the diet together. Her

poops

> were very formed on the drug and diet. She was eating 4 chicken

> thighs at a time on the prednisolone--more food more poops I

> believe.

>

> We have been feeding her:

>

> Yogurt from the beginning with cow's milk 2-months. We started

> adding Dried CURD Cottage Cheese last month.

> Uncooked fruit grapes, apples, pears, bananas. Just bananas last

> couple days.

> Applesauce

> Banana Pancakes

> Steak with and without garlic salt and pepper

> Chicken with Tomato sauce, garlic salt, basil

> Chicken Soup recipe with pureed carrots

> Banana Pancakes

> Cheddar Cheese slices

> Chicken with melted cheese

> Hard Boiled Eggs with salt

> Cooked Broccoli, Asparagus and Bean Sprouts Occasionally and

mostly

> with butter.

> Lil cooked squash.

> 100% natural Peanut butter on a spoon every so often.

> Your questions are good ones. Makes me think that we really have

no

> structured way of knowing what food she is still sensitive to.

We've

> not really added foods one a time causing some of the confusion.

At

> the same token it wasn't mattering much with the Prednisolone. And

we

> thought she could still handle the dairy and fruits raw. Maybe

she

> can't.

>

> Thus,

>

> We are gonna try the dairy free for a few days and see if that

forms

> perfect stools and just one or two a day and also stop the raw

fruit

> and fruit juice. Then reintroduce a few grapes?? if she's having

> great poops. Maybe even try 1/2 and 1/2 juice water mix slowly.

We

> are also gonna redo her allergy test to milk, casein, cheese since

> she is getting a new CBC anyway.

>

> Starting today she'll get:

> Water

> Chicken with tomato sauce, garlic, basil, salt

> Tenderloin at Costco Expensive but tender to eat which she likes

> Scrambled Eggs

> Bannana Pancakes

> Chicken Soup Recipe

> Freeda Multi Vitamin in a little applesauce

> Hard boiled Egg

> Cooked Carrots

> Hamburger

>

> Is peanut butter easy?

Not really. Everyone is a bit different on what they tolerate but

in general it is more complex than either blanched almond butter or

pecan butter.

>

> >

> > She did come up positive for an alergy to Milk several months

> > > ago. Her level was moderate in a range of .70 to 3.50 she was

> > a .93

> > > within that range. We want so much to feed her the yogurt

due

> to

> > all

> > > the great bacteria and health benefits. However might this be

> > causing

> > > the softness?

It is possible but there are more likely offenders than the yogurt.

We've tried one batch of Goat's milk yogurt which

> > tasted

> > > awful to her. This last batch was 1/2 and 1/2 for more

calories

> > since

> > > she is undersized.

> >

> > You used cow's milk 1/2 and 1/2, right, did you notice any

changes

> > since starting that?

> >

> >

> > Most the batches are made of whole milk. We've

> > > noted cheddar cheese might also cause problems but we were

using

> > > Tillamook only aged 60 days. We're now using Sharp Tillamook

> > Cheddar

> > > which is aged 9 months. We also put Dried Cured into her

yogurt

> > quite

> > > often.

> >

> > What is dried cured?

> > Sharp cheese (old cheese) can be troublesome for some people

still

> > having trouble and should only be an occasionally used item even

> for

> > those who tolerate it (see appendix in BTVC).

>

> ****Sorry. Dried Curd Cottage Cheese. Thank you for pointing

that

> the sharp cheddar can cause problems. I read somewhere that the

> Cheddar should be aged at least 6 months so I went for the Sharp

> without realizing. Its odd that she does Italize the Medium

cheddar

> for more regular use. Have you heard this 6 month aged cheddar is

> important as well?

No, it used to be 60 days minimum, but after conversing with cheese

producers Elaine changed it to " If a cheese is not a processed

cheese (manufactured) but is a cheese that has had a bacterial

culture involved with its production and is aged at least 30 days... "

Medium cheddar is not aged too long.

Yogurt from the beginning with cow's milk 2-months. We started

The more complex items on her food list (starting with most complex):

grapes ( the skins are very tough)

apples, pears (if raw and unpeeled these could be a culprit)

Cooked Broccoli (even cooked can be troublesome because it is part

of the cabbage family)

100% natural Peanut butter on a spoon every so often.

Asparagus and Bean Sprouts (not as likely)

Lil cooked squash. (not too likely either)

If the more basic diet you are going to start today doesn't clear

things up you could try removing first the garlic and then the

tomato sauce.

Or you could do the intro for a day or two and gradually readd more

complex foods (if unsure which to restart with i could help you out)

Sheila

Link to comment
Share on other sites

Hi Brent,

> > What is she eating? What foods were introduced in the last two

> > weeks since having less stool? When did you start the yogurt?

>

> ***She's been eating the same things since she was on the

> prednisolone. We started the drug and the diet together. Her

poops

> were very formed on the drug and diet. She was eating 4 chicken

> thighs at a time on the prednisolone--more food more poops I

> believe.

>

> We have been feeding her:

>

> Yogurt from the beginning with cow's milk 2-months. We started

> adding Dried CURD Cottage Cheese last month.

> Uncooked fruit grapes, apples, pears, bananas. Just bananas last

> couple days.

> Applesauce

> Banana Pancakes

> Steak with and without garlic salt and pepper

> Chicken with Tomato sauce, garlic salt, basil

> Chicken Soup recipe with pureed carrots

> Banana Pancakes

> Cheddar Cheese slices

> Chicken with melted cheese

> Hard Boiled Eggs with salt

> Cooked Broccoli, Asparagus and Bean Sprouts Occasionally and

mostly

> with butter.

> Lil cooked squash.

> 100% natural Peanut butter on a spoon every so often.

> Your questions are good ones. Makes me think that we really have

no

> structured way of knowing what food she is still sensitive to.

We've

> not really added foods one a time causing some of the confusion.

At

> the same token it wasn't mattering much with the Prednisolone. And

we

> thought she could still handle the dairy and fruits raw. Maybe

she

> can't.

>

> Thus,

>

> We are gonna try the dairy free for a few days and see if that

forms

> perfect stools and just one or two a day and also stop the raw

fruit

> and fruit juice. Then reintroduce a few grapes?? if she's having

> great poops. Maybe even try 1/2 and 1/2 juice water mix slowly.

We

> are also gonna redo her allergy test to milk, casein, cheese since

> she is getting a new CBC anyway.

>

> Starting today she'll get:

> Water

> Chicken with tomato sauce, garlic, basil, salt

> Tenderloin at Costco Expensive but tender to eat which she likes

> Scrambled Eggs

> Bannana Pancakes

> Chicken Soup Recipe

> Freeda Multi Vitamin in a little applesauce

> Hard boiled Egg

> Cooked Carrots

> Hamburger

>

> Is peanut butter easy?

Not really. Everyone is a bit different on what they tolerate but

in general it is more complex than either blanched almond butter or

pecan butter.

>

> >

> > She did come up positive for an alergy to Milk several months

> > > ago. Her level was moderate in a range of .70 to 3.50 she was

> > a .93

> > > within that range. We want so much to feed her the yogurt

due

> to

> > all

> > > the great bacteria and health benefits. However might this be

> > causing

> > > the softness?

It is possible but there are more likely offenders than the yogurt.

We've tried one batch of Goat's milk yogurt which

> > tasted

> > > awful to her. This last batch was 1/2 and 1/2 for more

calories

> > since

> > > she is undersized.

> >

> > You used cow's milk 1/2 and 1/2, right, did you notice any

changes

> > since starting that?

> >

> >

> > Most the batches are made of whole milk. We've

> > > noted cheddar cheese might also cause problems but we were

using

> > > Tillamook only aged 60 days. We're now using Sharp Tillamook

> > Cheddar

> > > which is aged 9 months. We also put Dried Cured into her

yogurt

> > quite

> > > often.

> >

> > What is dried cured?

> > Sharp cheese (old cheese) can be troublesome for some people

still

> > having trouble and should only be an occasionally used item even

> for

> > those who tolerate it (see appendix in BTVC).

>

> ****Sorry. Dried Curd Cottage Cheese. Thank you for pointing

that

> the sharp cheddar can cause problems. I read somewhere that the

> Cheddar should be aged at least 6 months so I went for the Sharp

> without realizing. Its odd that she does Italize the Medium

cheddar

> for more regular use. Have you heard this 6 month aged cheddar is

> important as well?

No, it used to be 60 days minimum, but after conversing with cheese

producers Elaine changed it to " If a cheese is not a processed

cheese (manufactured) but is a cheese that has had a bacterial

culture involved with its production and is aged at least 30 days... "

Medium cheddar is not aged too long.

Yogurt from the beginning with cow's milk 2-months. We started

The more complex items on her food list (starting with most complex):

grapes ( the skins are very tough)

apples, pears (if raw and unpeeled these could be a culprit)

Cooked Broccoli (even cooked can be troublesome because it is part

of the cabbage family)

100% natural Peanut butter on a spoon every so often.

Asparagus and Bean Sprouts (not as likely)

Lil cooked squash. (not too likely either)

If the more basic diet you are going to start today doesn't clear

things up you could try removing first the garlic and then the

tomato sauce.

Or you could do the intro for a day or two and gradually readd more

complex foods (if unsure which to restart with i could help you out)

Sheila

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