Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 You are welcome. I think perhaps when they were removed so was some skin. I think you had an allergic reaction to the adhesive or patch itself, and so you had double the irritants. They stay around on me too.......I have gotten blistery from them as well...... Do ask, and let me know his thoughts.... Make a list of things and be sure and ask if you should have an epi pen handy in case you get bitten again...... I hope this is a good doctor and listener.......and thinker ! Let me know how it goes ~ Dede**************Remember Mom this Mother's Day! Find a florist near you now. (http://yellowpages.aol.com/search?query=florist & ncid=emlcntusyelp00000006) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Thanks Dede! Good link... I will be cautious in what I say...sad that we have to be so careful in how we come across as patients. Do you have any idea why I would still have the outline of those heart monitor patches on my torso? I'm going to ask him about that too. Have a great day! Patty > > Patty ~ > You can mention it in reference to your > hashi's and let him make the connection > for you to implants if it ever comes up....... > That way you wont be immediately judged > and the doctor, stop listening to why you are there. > Dr Jerome Groupman wrote some booksm > " How doctors think " and > " The doctors in but is he listening ? " > > Groopman: The Doctor's In, But Is He Listening? : NPR > http://www.npr.org/templates/story/story.php?storyId=8946558 > A little paragraph: > Jerome Groopman is a doctor who discovered that he needed a doctor. When > his hand was hurt, he went to six prominent surgeons and got four different > opinions about what was wrong. Groopman was advised to have unnecessary > surgery and got a seemingly made-up diagnosis for a nonexistent > condition.Groopman, who holds a chair in medicine at Harvard Medical School, eventually found > a doctor who helped (Audio). But he didn't stop wondering about why those > other doctors made the wrong diagnoses. And he wrote about their mistakes in a > new book called How Doctors Think (Excerpt). > " Usually doctors are right, but conservatively about 15 percent of all > people are misdiagnosed. Some experts think it's as high as 20 to 25 percent, " > Groopman tells Steve Inskeep. " And in half of those cases, there is serious > injury or even death to the patient. " Why do you think that doctors would be > wrong that often?Well, you know, it's very hard to be a doctor. We're working > under tremendous time pressure, especially in the current medical system. > But the reasons we are wrong are not related to technical mistakes, like > someone putting the wrong name on an X-ray or mixing up a blood specimen in the > lab. Nor is it really ignorance about what the actual disease is. We make > misdiagnoses because we make errors in thinking.Errors in thinking...We use > shortcuts. Most doctors, within the first 18 seconds of seeing a patient, will > interrupt him telling his story and also generate an idea in his mind [of] > what's wrong. And too often, we make what's called an anchoring mistake †" we > fix on that snap judgment.Which could be based on the first thing the > patient says. It could be based on something on their chart or in their file that > somebody else has concluded in the past. It could be anything. > It could be anything. There's very frequently a telephone call that > precedes a visit where the first doctor says, 'Oh, you know this is a very nervous > woman who's in menopause and the feelings she's having are related to change > of life.' And that causes what's called an attribution error or a > stereotype and I write about that in the book where a woman saw five doctors. And she > said, 'You know what, I really feel these explosions in my body.' And > everyone thought she was crazy.And it turned out that she had a tumor that was > producing adrenaline. So every once in a while, the tumor would release this > burst of adrenaline which made her jittery and sweaty and nervous. And she > was indeed a high-strung person. But she said finally to the doctor who made > the right diagnosis, 'I know that I'm a tense individual, but something's > different. Something has changed.'What is some advice that you would give to > avoid misdiagnosing in this kind of situation?Most importantly, I think, the > patient and the doctor can partner. These thinking errors are made in the > moment. They're made when the doctor is listening to the patient or examining > the patient †" these snap judgments.Or not listening to the patient...Or not > listening to the patient. And so a patient or a family member or a friend who > knows how doctors think well and how they don't think well can help get the > doctor back on track by asking some appropriate questions.Give me an > example of a diagnosis or a meeting that's starting to go wrong and how you can > get it back on track with the right questions.Well, it's very common, for > example, that people feel what's called indigestion, pressure or sometimes > burning or pain in the center of their chest. And usually it's remedied with > antacids. But if that symptom persists, a patient or family member can say to > the doctor, 'What else could it be?' That is a central question, so the doctor > doesn't anchor his thinking just on acid reflux. Another important question > is: Could two things be going on? Could I actually have acid reflux but > something else? It could be angina, cardiac pain. To think that there's not > just one answer for a common symptom.Let me ask about some things that make > this more difficult. The patient starts prodding the doctor to think a little > bit more. The reality is the doctor has three of his or her minutes left with > this particular patient and that's all the time they've got. Well, I think > both doctors and patients need to basically resist together. It's not easy, > but one thing can be done, which is to schedule a follow-up appointment. But > to cut off someone who's still suffering and doesn't have an answer is not > the solution.What if you're sitting there with a doctor and you think the > doctor doesn't like you?This is a setup for bad care. I actually write about > one woman who irritated me and I shut my mind off to her. Her voice sounded > to me like nails scratching on a blackboard. It was when I was a resident. > She kept complaining and I just became deaf. And it turned out she had a tear > in her aorta. And it was fatal. She may have died anyway, but it's a > terrible thing. > I think if you feel that a doctor doesn't like you, then you can first say > with all candor, 'I feel like we're not connecting well.' But it's > interesting, when I asked physicians if they were a patient, and they felt that their > doctor didn't like them, what would they do? Each doctor said to me, 'I'd > find another doctor.' > Brutal bottom-line question: If everybody followed your advice, listened > more carefully, spent a little more time with patients, thought a little bit > more, would our health care cost more? I think it would cost less because > when you make a misdiagnosis that means that the patient gets sicker and > sometimes dies. So that the intensity of treatment that's required by not > detecting something early is much more costly than coming to the right diagnosis. > > OK, I got off subject, but I love that man and how he thinks ! Just be > careful what you tell him, and how you tell him things.... > I hope it goes well ! ! > Info on the complement test below.... > Complement component 3 (C3) > http://www.nlm.nih.gov/medlineplus/ency/article/003539.htm > Understanding the Immune System > Adapted by Thyroid Guide, J. Shomon > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************** > Remember Mom this Mother's Day! Find a florist near you now. > (http://yellowpages.aol.com/search?query=florist & amp;ncid=emlcntusyelp00000006) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 I bet you are allergic to the tape, I was after explant. When Dr. Kolb removed the surgical tape, I had raised welts, it took them a few weeks to go away, it looked like they sort of burned my skin. As for the new doctor, sounds promising. Let me know how that turns out. What you could do is list all your surgeries, generally they like to know all that. In my case, when I've been asked why I removed the implants, my reason was a systemic infection, and of course, I have the pictures of mold in my implants. It always freaks them out when they see that, kind of like jeez, I didn't know that could happen. I've found for me, it was better not to bring up the implants right away, but they always saw in the surgery section I've had them removed, and they have always asked me why. You may want to get the TGF Beta test done and see if you're producing cytokines. hugs, Beth L > > > > Patty ~ > > You can mention it in reference to your > > hashi's and let him make the connection > > for you to implants if it ever comes up....... > > That way you wont be immediately judged > > and the doctor, stop listening to why you are there. > > Dr Jerome Groupman wrote some booksm > > " How doctors think " and > > " The doctors in but is he listening ? " > > > > Groopman: The Doctor's In, But Is He Listening? : NPR > > http://www.npr.org/templates/story/story.php?storyId=8946558 > > A little paragraph: > > Jerome Groopman is a doctor who discovered that he needed a doctor. When > > his hand was hurt, he went to six prominent surgeons and got four different > > opinions about what was wrong. Groopman was advised to have unnecessary > > surgery and got a seemingly made-up diagnosis for a nonexistent > > condition.Groopman, who holds a chair in medicine at Harvard Medical School, eventually found > > a doctor who helped (Audio). But he didn't stop wondering about why those > > other doctors made the wrong diagnoses. And he wrote about their mistakes in a > > new book called How Doctors Think (Excerpt). > > " Usually doctors are right, but conservatively about 15 percent of all > > people are misdiagnosed. Some experts think it's as high as 20 to 25 percent, " > > Groopman tells Steve Inskeep. " And in half of those cases, there is serious > > injury or even death to the patient. " Why do you think that doctors would be > > wrong that often?Well, you know, it's very hard to be a doctor. We're working > > under tremendous time pressure, especially in the current medical system. > > But the reasons we are wrong are not related to technical mistakes, like > > someone putting the wrong name on an X-ray or mixing up a blood specimen in the > > lab. Nor is it really ignorance about what the actual disease is. We make > > misdiagnoses because we make errors in thinking.Errors in thinking...We use > > shortcuts. Most doctors, within the first 18 seconds of seeing a patient, will > > interrupt him telling his story and also generate an idea in his mind [of] > > what's wrong. And too often, we make what's called an anchoring mistake †" we > > fix on that snap judgment.Which could be based on the first thing the > > patient says. It could be based on something on their chart or in their file that > > somebody else has concluded in the past. It could be anything. > > It could be anything. There's very frequently a telephone call that > > precedes a visit where the first doctor says, 'Oh, you know this is a very nervous > > woman who's in menopause and the feelings she's having are related to change > > of life.' And that causes what's called an attribution error or a > > stereotype and I write about that in the book where a woman saw five doctors. And she > > said, 'You know what, I really feel these explosions in my body.' And > > everyone thought she was crazy.And it turned out that she had a tumor that was > > producing adrenaline. So every once in a while, the tumor would release this > > burst of adrenaline which made her jittery and sweaty and nervous. And she > > was indeed a high-strung person. But she said finally to the doctor who made > > the right diagnosis, 'I know that I'm a tense individual, but something's > > different. Something has changed.'What is some advice that you would give to > > avoid misdiagnosing in this kind of situation?Most importantly, I think, the > > patient and the doctor can partner. These thinking errors are made in the > > moment. They're made when the doctor is listening to the patient or examining > > the patient †" these snap judgments.Or not listening to the patient...Or not > > listening to the patient. And so a patient or a family member or a friend who > > knows how doctors think well and how they don't think well can help get the > > doctor back on track by asking some appropriate questions.Give me an > > example of a diagnosis or a meeting that's starting to go wrong and how you can > > get it back on track with the right questions.Well, it's very common, for > > example, that people feel what's called indigestion, pressure or sometimes > > burning or pain in the center of their chest. And usually it's remedied with > > antacids. But if that symptom persists, a patient or family member can say to > > the doctor, 'What else could it be?' That is a central question, so the doctor > > doesn't anchor his thinking just on acid reflux. Another important question > > is: Could two things be going on? Could I actually have acid reflux but > > something else? It could be angina, cardiac pain. To think that there's not > > just one answer for a common symptom.Let me ask about some things that make > > this more difficult. The patient starts prodding the doctor to think a little > > bit more. The reality is the doctor has three of his or her minutes left with > > this particular patient and that's all the time they've got. Well, I think > > both doctors and patients need to basically resist together. It's not easy, > > but one thing can be done, which is to schedule a follow-up appointment. But > > to cut off someone who's still suffering and doesn't have an answer is not > > the solution.What if you're sitting there with a doctor and you think the > > doctor doesn't like you?This is a setup for bad care. I actually write about > > one woman who irritated me and I shut my mind off to her. Her voice sounded > > to me like nails scratching on a blackboard. It was when I was a resident. > > She kept complaining and I just became deaf. And it turned out she had a tear > > in her aorta. And it was fatal. She may have died anyway, but it's a > > terrible thing. > > I think if you feel that a doctor doesn't like you, then you can first say > > with all candor, 'I feel like we're not connecting well.' But it's > > interesting, when I asked physicians if they were a patient, and they felt that their > > doctor didn't like them, what would they do? Each doctor said to me, 'I'd > > find another doctor.' > > Brutal bottom-line question: If everybody followed your advice, listened > > more carefully, spent a little more time with patients, thought a little bit > > more, would our health care cost more? I think it would cost less because > > when you make a misdiagnosis that means that the patient gets sicker and > > sometimes dies. So that the intensity of treatment that's required by not > > detecting something early is much more costly than coming to the right diagnosis. > > > > OK, I got off subject, but I love that man and how he thinks ! Just be > > careful what you tell him, and how you tell him things.... > > I hope it goes well ! ! > > Info on the complement test below.... > > Complement component 3 (C3) > > http://www.nlm.nih.gov/medlineplus/ency/article/003539.htm > > Understanding the Immune System > > Adapted by Thyroid Guide, J. Shomon > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************** > > Remember Mom this Mother's Day! Find a florist near you now. > > (http://yellowpages.aol.com/search?query=florist & amp;ncid=emlcntusyelp00000006) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 HI Sandy, I'm sorry you don't like your juicer! What don't you like about it? I have a Green Life twin gear juicer. It looks like the one in this picture: http://www.discountjuicers.com/greenlife.html For pots and pans, I use CorningWare porcelain casseroles, or Visions Glass cookware. These are not available in stores anymore (The Visions), but must be purchased on Ebay. I've had good luck with the Visions, though I guess some people have not. I use the saucepans, frying pans, and dutch oven of Visions cookware. I also like the white casseroles with lids, as I have an electric stovetop that is flat, and the flat bottoms of these white porcelain pans works well on it. The goal with the cookware is to stay away from metals that will react with acidic foods and put either teflon coating pieces into your foods, or metals, such as aluminum with tomato sauces. I believe there is some excellent cookware out now that is enamel coated cast iron. I have not used these yet, but I just got one of these for a gift, so I will let you know. My mother loves hers. I want to research the enamel coating. The safe thing with the glass or porcelain Corningware is that nothing will leach into your food from these materials. Your food is safe from metals contamination, or chemicals from the teflon coating. Sandy, my knees became painful right after my ROOT CANALS. It was not from silver fillings, but brand new root canals, which I had never had before. It took less than 6 months for my right knee to go from fine to making me limp badly. I would not have made the connection....I'm so glad I have a holistic dentist, whose wife was very astute and offered her experience with root canals....which was nearly the same! After I had the root canals removed (teeth pulled), my knee went back to being fine again, and the pain has never returned. I was so astounded, but I am telling only what happened to me. The ROOT CANALS made my right knee painful! I had my silver fillings removed in 1998 by a holistic dentist in Tucson, AZ, right after my explant. My knee pain occurred in the winter of 2005/2006, (root canals placed in September/October 2005 and removed in May 2006.) Do you have root canals that are going to be removed? Patty > > Please e-mail what brand you have at home and send me the links > I do not like my juicer and should have purchased the one you have > > Juicer - ? > Pots & Pans - ? > > When your knees became painful .... > Did you have new silver fillings or was it from old silver fillings ? > > I still have extreme pain in my knees... > For me I believe it's from the toxic chemicals in the making of implants not the silver fillings > > As of today my dentist started removal of the old silver fillings in my mouth > I have silver fillings from when I was just a kid > > Sandy~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Nannette, You can go into menopause earlier than you normally would when you've been sick from implants. I just firmly believe this is all part of the hormonal imbalance...both of my sisters, one younger and one older still have their cycles, and I've not had one for almost 3 years--and they have more SAD diet health issues than I do. It's just odd. I know other women have discussed hormonal issues from implants, ranging from missed periods, to infertility to miscarriages and more. It is not out of the realm of possibility that you are in pre-menopause an in need of hormonal help. There are doctors who have written books and/or articles about the connection between Fibromyalgia and hormones...it's definitely worth looking into. Wishing you wellness Nan! Patty > > > > > > I bet someone here can help with this one. my tsh is 0.019 normal is > > 0.450 - 4.500, my t4 free is 0.44 normal is 0.61-1.76 and my tri free > > serum is normal. I do not understand this and have no idea what this > > means. they put me on synthroid at 25 and this seems to be of minimal > > help at this point. i have been complaining for years about my thyroid > > gland hurting, it hurts to touch it, they did an u/s and said it looks > > perfect, well what the heck does that have to do with whether it is > > working correctly! i am in dr hell. patti i would love to get out of > > it, but it just seems to get unmanageable, bladder infections, had > > walking pneumen and now I just wheeze a bit, but every time i get > > through one thing another pops up. like all of you, i have done the > > cleansing the diets the supplements the everything, the holistic doctors > > the environmental drs, just don't seem to get anywhere. i paid a > > fortune to go to a famous center, the meds they gave me landed me in the > > hospital for 4 days. the thyroid thing is over my head, so of course i > > will end up at a specialist. like beth said, it is sometimes just too > > much to take. nannette > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Hello, Nan, you can ask me on specific parts which you don't quite understand and I'll try to do my best to explain further. Understand that the best way to help heal oneself is to understand your condition.From: nannettewilliams7 <nannettewilliams7@...>Subject: Patty Date: Wednesday, June 17, 2009, 2:45 AM yes that is the way the dr explained it, still don't get it! sure seems like this is all in some sort of pit gland disorder, which the drs here don't even mention in fibromyalgia. but it explains why i don't sleep, my thyroid problems, and i am going to get my other hormones checked, just went off the pill so i have to wait. any one with experience, i am 42, i don't think i am near menopause, had a history of endometriosis in my 20's, still suspicious of that, but may consider bio hormone replacement if the levels are off, which I bet they are if my pit gland is messed up. Nannette > > > > I bet someone here can help with this one. my tsh is 0.019 normal is > 0.450 - 4.500, my t4 free is 0.44 normal is 0.61-1.76 and my tri free > serum is normal. I do not understand this and have no idea what this > means. they put me on synthroid at 25 and this seems to be of minimal > help at this point. i have been complaining for years about my thyroid > gland hurting, it hurts to touch it, they did an u/s and said it looks > perfect, well what the heck does that have to do with whether it is > working correctly! i am in dr hell. patti i would love to get out of > it, but it just seems to get unmanageable, bladder infections, had > walking pneumen and now I just wheeze a bit, but every time i get > through one thing another pops up. like all of you, i have done the > cleansing the diets the supplements the everything, the holistic doctors > the environmental drs, just don't seem to get anywhere. i paid a > fortune to go to a famous center, the meds they gave me landed me in the > hospital for 4 days. the thyroid thing is over my head, so of course i > will end up at a specialist. like beth said, it is sometimes just too > much to take. nannette > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Nannette ~ Please give your body a good 6 months to regulate before you do much of anything in the hormone department....... No less than 3 months......but better at 6. Dede When the power of love overcomes the love of power the world will know peace. ~ Jimi Hendrix Love the life you live, live the life you love ~ Bob Marley **************Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown00000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 interesting about the menopause stuff. I don't know much about the hormone connection. What do you think about being on birth control pills? I went off because at 42, I felt I needed a break from all the artificial stuff, I have been through the ringer with trying all the drs suggs for meds, only to end up worse off. I am off ambien now after 4 years, but having to take clonapin at night to replace it, at least for a few weeks to see if I can sleep on my own. That is all I am on now except the thyroid meds, which is huge, I was on a boatload before and much worse off, go figure. Back to the hormone stuff, any suggs or books? What about doing natural replacement therapy? I mentioned the dr wants me to come in after I get a natural cycle (maybe I won't!). Then she wants to test me and talk about the results and is open to natural therapy, most drs here won't even talk about it. Aren't you young to be in menopause, I just remember your picture that is posted. PS How is your health now? How many years has it been for you? Nannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Hi Sandy and everyone,I wanted to first apologize for the long delays in responding to your letters. On the one hand I hope it is a good sign for you that I am living life well and too active to participate, but on the other hand, I know how much you ladies are needing support. I am trusting that all of the members of this group are continuing to reach out to each other through whatever means they have available to them.I am back in school with a difficult subject...Physics...and it's taking most of my free time to keep up with the volumes of homework our professor assigns.Sandy, I am all better from that scorpion sting. At least I believe so. I don't get the numbness and tingling anymore, and I am feeling really great again these days. So that is good news. But I can tell you that I still do suffer in this way from it: When I see a scorpion anymore, I freak OUT!!!! I hate those things....because I know if I get zapped ever again, it will mean a hospital trip, and I don't want to go there. I've had two near run-ins with scorpions since then, and I've almost been paralyzed with fear when I see them. I remember how horrific the pain was.I'm hoping that your upper front dental implants will work out well for you.I know how much you want them. I am glad to hear you are getting rid of your silver fillings anyway.Please keep us posted on the outcome of your adventure with the new dental work. I am sorry to hear the knee pain still exists as well. I don't know what to say for that, because my experience with the knee pain resolved when I removed the dental work. I have not had it back at all, and if I ever did, (without any dental work involved), my first step would be to fast until it cleared up. If you have not tried a water only fast, you may want to look into it. Also, have you tried colloidal silver? I am using that for a dental rinse and it works really, really well.It will be a staple for me now.One other product that I am totally loving right now is Nutritional Yeast flakes. I've always had trouble with supplementing the B vitamins in the past. Kefir makes me gain weight (there are B vitamins from the fermentation process), and pills seemed to make me nauseous. Since I started Nutritional Yeast flakes, I found that I love the flavor, and I just mix it in plain water and drink. I can get down tons of the stuff this way! So, my B vitamin issue is resolved and I am feeling wonderful.Hope you all feel better and better every day...Hugs,Patty>> Are you all better from that Scorpian Sting ?> Do you suffer in any way from it?> > I am still in the process of > getting the old silver fillings removed> > I will be getting upper front dental implants soon> I hate the word implants but ...> > False teeth are not an option for me !!> Sadly the knee pain still exists> > Sandy~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Hi Sandy, I'm so sorry to hear that your juicer broke! Were you juicing daily? I know you've been doing great! I use a Green Life juicer and have had it for almost 10 years. It's awesome..I love it! http://www.discountjuicers.com/greenlife.html I bought mine used and I have never had any issues with it ever. Patty > > The second juicer I purchased broke > I lost your e-mail you had sent me > > Please tell me the name of the Juicer you own > Can you also re-send me the link > > Thank you, > Sandy~ > Quote Link to comment Share on other sites More sharing options...
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