Re: My opinion about enzymes and Freeda vitamins

[Guest guest]

Hi, I'm new to the group, and I was wondering what 's protocol

is. I haven't started the diet for my ASD son yet, I'm still gathering

information. Thanks!

Schmoldt

> 1)SCDiet

> 2)enzymes

> 3)Proper vitamin/mineral supplementation ('s protocol, mixed

with our own)

> 4)Clean water (ie..no city water, not even filtered city water)

>

>

[Guest guest]

Hi, I'm new to the group, and I was wondering what 's protocol

is. I haven't started the diet for my ASD son yet, I'm still gathering

information. Thanks!

Schmoldt

> 1)SCDiet

> 2)enzymes

> 3)Proper vitamin/mineral supplementation ('s protocol, mixed

with our own)

> 4)Clean water (ie..no city water, not even filtered city water)

>

>

[Guest guest]

Hi, I'm new to the group, and I was wondering what 's protocol

is. I haven't started the diet for my ASD son yet, I'm still gathering

information. Thanks!

Schmoldt

> 1)SCDiet

> 2)enzymes

> 3)Proper vitamin/mineral supplementation ('s protocol, mixed

with our own)

> 4)Clean water (ie..no city water, not even filtered city water)

>

>

[Guest guest]

> Hi, I'm new to the group, and I was wondering what 's protocol

> is. I haven't started the diet for my ASD son yet, I'm still gathering

> information. Thanks!

>

Which is that?

We have had recent references to both Dr. Wakefield from the UK, who has

collected data and lectures on the gut-brain connection and Levin an

extremely

intelligent autistic adult who disagrees with some of our SCD protocols and

maintains his

own website.

Levin recently left this group.

Carol F.

SCD 5 years, celiac

[Guest guest]

> Hi, I'm new to the group, and I was wondering what 's protocol

> is. I haven't started the diet for my ASD son yet, I'm still gathering

> information. Thanks!

>

Which is that?

We have had recent references to both Dr. Wakefield from the UK, who has

collected data and lectures on the gut-brain connection and Levin an

extremely

intelligent autistic adult who disagrees with some of our SCD protocols and

maintains his

own website.

Levin recently left this group.

Carol F.

SCD 5 years, celiac

[Guest guest]

We tried enzymes for my daughter in our early days of SCD (and 3 different

brands) with no noticeable benefit. All of our benefits came from pure SCD,

nothing else. I've been out of touch with this list for quite a while so maybe

there's something I'm not aware of, a change in protocal or something but, to my

understanding, No Way are enzymes mandatory for SCD w/autism. We really have to

be careful making mandates for all out of our own personal success with

something. Moderators please feel free to correct me on this.

Marisol

mom to 11yo SCD since 12/01 and 8yo Lena SCD since sometime in 2002

Gertrude Snicklegrove hunterdrake2001@...> wrote:

I think it is important for folks to understand that enzymes are part of SCD for

ASD kids. Maybe not mandatory per the SCD book, but when I think of my family,

with two kids recovering from autsim and asd, and all the other people I know

using enzymes, it is impossible to deny they are NOT optional, but a much needed

part to the ASD equation. Yes, SCD can be done without using additional enzymes,

but especially for anyone new to the diet with ASD kids, enzymes are not

optional, but mandatory for improving past the limits.

__________________________________________________

[Guest guest]

We tried enzymes for my daughter in our early days of SCD (and 3 different

brands) with no noticeable benefit. All of our benefits came from pure SCD,

nothing else. I've been out of touch with this list for quite a while so maybe

there's something I'm not aware of, a change in protocal or something but, to my

understanding, No Way are enzymes mandatory for SCD w/autism. We really have to

be careful making mandates for all out of our own personal success with

something. Moderators please feel free to correct me on this.

Marisol

mom to 11yo SCD since 12/01 and 8yo Lena SCD since sometime in 2002

Gertrude Snicklegrove hunterdrake2001@...> wrote:

I think it is important for folks to understand that enzymes are part of SCD for

ASD kids. Maybe not mandatory per the SCD book, but when I think of my family,

with two kids recovering from autsim and asd, and all the other people I know

using enzymes, it is impossible to deny they are NOT optional, but a much needed

part to the ASD equation. Yes, SCD can be done without using additional enzymes,

but especially for anyone new to the diet with ASD kids, enzymes are not

optional, but mandatory for improving past the limits.

__________________________________________________

[Guest guest]

> We tried enzymes for my daughter in our early days of SCD (and 3 different

brands) with

no noticeable benefit. All of our benefits came from pure SCD, nothing else.

I've been out

of touch with this list for quite a while so maybe there's something I'm not

aware of, a

change in protocal or something but, to my understanding, No Way are enzymes

mandatory for SCD w/autism. We really have to be careful making mandates for all

out of

our own personal success with something. Moderators please feel free to correct

me on

this.

> Marisol

I agree Marisol. SCD is getting to be like tracks in a snowstorm that tend to

disappear as

the snow gets deeper. It used to seem simple and clear cut to me.

I do take calcium, Vitamin D and magnesium supplements and a probiotic but never

knew

I should be taking more. Summer did say this applies to the children. I also

never knew it

was mandatory. Maybe it relates to her experience within her family.

Although you may not think there are visible results, poor absorption may not

allow full

utility of vitamins in food so vitamin supplements such as Freeda are

recommended.

Would one of the moderators suggest what additional supplements are required?

I will re- read the BTVC pages on Vitamins again more carefully !

Carol F., SCD 5 years, celiac

[Guest guest]

B 12 shots have DEFINITELY helped my ASD son.

Bivens

My opinion about enzymes and Freeda vitamins

I think it is important for folks to understand that enzymes are part of SCD

for ASD kids. Maybe not mandatory per the SCD book, but when I think of my

family, with two kids recovering from autsim and asd, and all the other people I

know using enzymes, it is impossible to deny they are NOT optional, but a much

needed part to the ASD equation. Yes, SCD can be done without using additional

enzymes, but especially for anyone new to the diet with ASD kids, enzymes are

not optional, but mandatory for improving past the limits.

This is not to downplay following SCD. For us, following SCD is both enjoyable

and an absolute necessity, diet is the primary necessity. I merely mention my

observations, because it breaks my heart to read that recommendations for ASD

kids following this diet, enzymes are described as optional. At the very least,

while the diet can be followed without enzymes, they are necessary for most ASD

kids.

About Freeda Vitamins, maybe they are excellent for some folks? But, I haven't

seem them personally do anything in helping to achieve or maintain health in ASD

kids, and this is from my experience, and a few other families I know. This does

not mean they may not be healthful to most people. I just want to put my two

cents in for a fair and balanced view of some of these recommendations, as a mom

with two sons, on spectrum, SCD for 1 year. The most important things that

have helped this family are

1)SCDiet

2)enzymes

3)Proper vitamin/mineral supplementation ('s protocol, mixed with our

own)

4)Clean water (ie..no city water, not even filtered city water)

Summer

__________________________________________________

[Guest guest]

B 12 shots have DEFINITELY helped my ASD son.

Bivens

My opinion about enzymes and Freeda vitamins

I think it is important for folks to understand that enzymes are part of SCD

for ASD kids. Maybe not mandatory per the SCD book, but when I think of my

family, with two kids recovering from autsim and asd, and all the other people I

know using enzymes, it is impossible to deny they are NOT optional, but a much

needed part to the ASD equation. Yes, SCD can be done without using additional

enzymes, but especially for anyone new to the diet with ASD kids, enzymes are

not optional, but mandatory for improving past the limits.

This is not to downplay following SCD. For us, following SCD is both enjoyable

and an absolute necessity, diet is the primary necessity. I merely mention my

observations, because it breaks my heart to read that recommendations for ASD

kids following this diet, enzymes are described as optional. At the very least,

while the diet can be followed without enzymes, they are necessary for most ASD

kids.

About Freeda Vitamins, maybe they are excellent for some folks? But, I haven't

seem them personally do anything in helping to achieve or maintain health in ASD

kids, and this is from my experience, and a few other families I know. This does

not mean they may not be healthful to most people. I just want to put my two

cents in for a fair and balanced view of some of these recommendations, as a mom

with two sons, on spectrum, SCD for 1 year. The most important things that

have helped this family are

1)SCDiet

2)enzymes

3)Proper vitamin/mineral supplementation ('s protocol, mixed with our

own)

4)Clean water (ie..no city water, not even filtered city water)

Summer

__________________________________________________

[Guest guest]

B 12 shots have DEFINITELY helped my ASD son.

Bivens

My opinion about enzymes and Freeda vitamins

I think it is important for folks to understand that enzymes are part of SCD

for ASD kids. Maybe not mandatory per the SCD book, but when I think of my

family, with two kids recovering from autsim and asd, and all the other people I

know using enzymes, it is impossible to deny they are NOT optional, but a much

needed part to the ASD equation. Yes, SCD can be done without using additional

enzymes, but especially for anyone new to the diet with ASD kids, enzymes are

not optional, but mandatory for improving past the limits.

This is not to downplay following SCD. For us, following SCD is both enjoyable

and an absolute necessity, diet is the primary necessity. I merely mention my

observations, because it breaks my heart to read that recommendations for ASD

kids following this diet, enzymes are described as optional. At the very least,

while the diet can be followed without enzymes, they are necessary for most ASD

kids.

About Freeda Vitamins, maybe they are excellent for some folks? But, I haven't

seem them personally do anything in helping to achieve or maintain health in ASD

kids, and this is from my experience, and a few other families I know. This does

not mean they may not be healthful to most people. I just want to put my two

cents in for a fair and balanced view of some of these recommendations, as a mom

with two sons, on spectrum, SCD for 1 year. The most important things that

have helped this family are

1)SCDiet

2)enzymes

3)Proper vitamin/mineral supplementation ('s protocol, mixed with our

own)

4)Clean water (ie..no city water, not even filtered city water)

Summer

__________________________________________________

[Guest guest]

Summer,

The protocol was written a long,long time ago. I reposted it because I

am concerned about our kids consuming too many nut products.

At the time that I wrote it,suggesting enzymes in a SCD list was

radical. I did not have a lot of time yesterday to formulate an enzyme

policy. If I had written that enzymes were required,many new mothers

would say to themselves:my kid cannot tolerate enzymes;therefore I can

go back to good ole GFCF and easy to make foods. Most of the mothers

who visit our list do not stay....many have admitted that they hate

SCD because they would have to make their own bread. DO we need to

give them an excuse to run away from this diet?

BTW,I really understand their feelings. Our mothers are overwhelmed by

treatments,lack of sleep from being awakened by their kids,exhaustion

from needing to watch the kids.....

I do buy enzymes for my children and think that they are a good thing

to try. However,some children might not tolerate them. I also believe

in giving parents the right to choose the supplements that their

children need. For me to try to formulate a supplement policy would be

an enormous undertaking. I am exhausted and ready to run to bed...

Mimi

PS,Message to the parents who object to the lack of ready made SCD

products:

Please find someone in your area to cook for you. There are may lonely

older women who love cooking for free. There are also two companies

that were instructed by Elaine on how to make SCD breads and cookies.

I will write about them when I am more awake;I do not need any more

controversies. LOL

> I think it is important for folks to understand that enzymes are

part of SCD for ASD kids. Maybe not mandatory per the SCD book, but

when I think of my family, with two kids recovering from autsim and

asd, and all the other people I know using enzymes, it is impossible

to deny they are NOT optional, but a much needed part to the ASD

equation. Yes, SCD can be done without using additional enzymes, but

especially for anyone new to the diet with ASD kids, enzymes are not

optional, but mandatory for improving past the limits.

>

> This is not to downplay following SCD. For us, following SCD is both

enjoyable and an absolute necessity, diet is the primary necessity. I

merely mention my observations, because it breaks my heart to read

that recommendations for ASD kids following this diet, enzymes are

described as optional. At the very least, while the diet can be

followed without enzymes, they are necessary for most ASD kids.

>

> About Freeda Vitamins, maybe they are excellent for some folks? But,

I haven't seem them personally do anything in helping to achieve or

maintain health in ASD kids, and this is from my experience, and a few

other families I know. This does not mean they may not be healthful to

most people. I just want to put my two cents in for a fair and

balanced view of some of these recommendations, as a mom with two

sons, on spectrum, SCD for 1 year. The most important things that

have helped this family are

> 1)SCDiet

> 2)enzymes

> 3)Proper vitamin/mineral supplementation ('s protocol, mixed

with our own)

> 4)Clean water (ie..no city water, not even filtered city water)

>

>

>

> Summer

>

>

>

> __________________________________________________

>

[Guest guest]

> I am also NOT asking anything be made MANDATORY. Not that enzymes aren't

required.

I was merely pointing out " optional " does not quite impart that enzymes should

be

seriously considered, if at all possible. Again, like any supplement, some

people,

especially those with severe gut problems, may not find ones they can tolerate,

that help,

or may have to go on a very slow enzyme introduction plan. There is freedom of

choice,

but if a mom doesn't run away because of introducing yogurt gradually, and being

aware

of reactions, why would it be any different with enzymes. Any new supplement

should be

given in such a fashion, period.

>

Gertrude,

It makes sense to be concerned about enzymes since a compromised digestive sytem

interferes with the enzymes that aid digestion and they are smothered by the

layers of

mucous that form.

Use of enzymes is an individual option. It is hoped that as balance is restored

in the gut,

the enzymes will flow again and perform thir task in digestion. The whole

science behind

the diet is to effect sufficient healing to allow the digestive process to

resume optimum

functionality.

It is important that when we share embellishments that have aided us we qualify

that

although they are not proscribed in SCD, they happened to be useful to us

personally.

I say this because we had members who pulled fruit and honey right out of the

diet in fear

of yeast overgrowth and did not provide sufficient carbohydrates to prevent

ketosis.

It became a distorted version of SCD they proposed to apply generally and

without

approval by Elaine Gottschall.

Carol F.

SCD5 years, celiac

[Guest guest]

Summer,

Thank you for the lovely email that you sent me by private email.

I have been to busy to write to the moderators of pecanbread and ask

their opinion about the old protocol. It is not an urgent matter since

the old protocol is not on www.pecanbread but in the old pecanbread

website. No one ever reads the old version of pecanbread,there are no

links to it and I only keep it for sentimental reasons.

Another problem is that this is not the right time to get official

approval for any changes to the protocol. When I wrote the old list

protocol,I made sure that I got Elaine's permission. Judy,Elaine's

daughter is now in charge of SCD and is going through the difficult

time of mourning and taking care of Elaine's things. I do not want to

burden her with these matters.

This list encourages parents to share their experience with SCD. If

you feel enzymes are important,then please write about this topic!

Mimi

[Guest guest]

Hi Marisol,

> We tried enzymes for my daughter in our early days of SCD (and 3

different brands) with no noticeable benefit. All of our benefits

came from pure SCD, nothing else. I've been out of touch with this

list for quite a while so maybe there's something I'm not aware of,

a change in protocal or something but, to my understanding, No Way

are enzymes mandatory for SCD w/autism. We really have to be careful

making mandates for all out of our own personal success with

something. Moderators please feel free to correct me on this.

You are correct Marisol. Enzymes are not a mandatory part of SCD.

Some ASD families find them helpful, others find them essential and

others don't use them at all.

Sheila,

moderator

> Gertrude Snicklegrove wrote:

> I think it is important for folks to understand that enzymes are

part of SCD for ASD kids. Maybe not mandatory per the SCD book, but

when I think of my family....

[Guest guest]

> Help! My daughter has been taking Acid Easy digestive enzymes by PreVail

> for years and they have helped her a lot with assimilating and digesting

> food and growth. However, I just noticed though the bottle says they have

> " no sugar, salt, yeasty, wheat, gluten, corn, soy, dairy, artificial

> coloring, artificial flavoring, or preservatives " , one of the enzymes listed

> Gamma-orzanol is made from rice bran so now that we are on the SCD I need to

> change. Does anyone know what the enzymes in Kirkmans Enzymeaid are made

> from? I am presuming since they are legal that there is no rice bran in

> them. My daughter is sensitive to citrus--just wanted to make sure that

> also would not be in them.

>

I believe Elaine said if that enzyme is helping to continue it. This was one of

the

discussions that took place with . I prevail on Mimi or Sheila to recall

what

transpired and clarify this..

Carol F.

[Guest guest]

,

How about if we changed the protocol to this:

Although enzymes are not part of the original SCD,many parents have

found them to be very helpful in combination with SCD.

The reason I did not change the protocol before is because it is on a

website that no one reads anymore.

I just do not understand why you compare me to a horse who is incapable

of understanding the value of enzymes despite the admonitions of .

Long before discovered SCD,I promoted enzymes on our lists that

began on August 2002. (We had 3 other lists before we moved to

pecanbread).

I will be delighted to give proof to any one who writes me in private

email.

Mimi,

SCD Human

> I completely agree with Summer. There is an extreme benefit with the

enzimes and scd which cannot in my case be compared with scd alone. I

was one of the parents who sought enzymes did not help. I was using it

in a innefective way. After clearly trying diferent formats and

finding the most effective way to use it, the benefits were " tripled "

to quote Summer. I think has harped on this often enough and

the response seems to be always the same, people take it to personal,

and decide to dismiss if it was just one person opnion. There are a

lot of parents that have come to the conclusion of the imense benefit

of it, but usually get a defensive response when the concept is

introduced. I guess as the old say go " you can lead a horse to the

water...... "

>

>

>

>