Re: Digest Number 1303

[Guest guest]

In a message dated 5/12/00 11:47:58 AM Pacific Daylight Time,

MiniGastricBypass (AT) e writes:

<< le

awaiting approval...currently in medical review. >>

le,Thank you! I was really not getting it! I'm sorry she had a roough

time with everything! I can imagine it's frustrating for her to wait 7 months

anfd then be turned down. I felt she was too rough on Dr.R,but I'm not

walking in her shoes! Thanks for not flaming me,I really didn't " get it! "

O.

[Guest guest]

Hello, I am new to this group. I have been lurking around for a couple of

months, just checking out what every one has to say. You have all been a

wealth of information and encouragement!! I am not quite sure how to reply

to you all. My email runs off lotus notes and when I try to email from the

list of patients on the site it wants to set me up a new email account

before I can do it. Well I can't have 2 email accounts at work so I can't

do it that way. So I am going to reply to the list digest and see how

that works. I am in need of patient contacts. Would any of you please

consider being a contact for me?

I have been researching wls for about 1 1/2 yrs. And actively persuing it

for about 8 months. I had started the process with Bariatic Treatment

Center in Ann Arbor Michigan. (I am from Michigan). They perform the open

RNY. During my initial consultation the surgeon brought up concerns he had

because I had a Lap Nisson Hiatal Hernia repair. He requested I get the go

ahead from the surgeon that performed the operation because he was not

familiar with the surgery. Well the surgeon said he could not recommend an

open procedure for me. I was heart broken! But then the surgeon who did

hernia repair said that I could have a lap bypass if I could find a surgeon

to do it who was familiar with hernia repair I had. He recommened me to a

DR. in NYC. But Dr. in NYC didn't accept my insurance, which is BC BS. Any

way to shorten this a bit I finally found Dr. R off another wls surgery

support group(the asbs site) and I emailed him and he said yes he would

consider me as a patient and was familiar with my hernia repair and had

other patients with the same surgery and they had done well. I am

elated!!! He sound like a wonderful man. I can't wait to meet him. Any

one who makes thier life work helping the obese has to be a caring and

compassionate person.

So i am hoping to be on the other side soon. Please feel feee to email me,

i am anxious to ask questions. About surgery, places to stay in durham

etc.

from Michigan

cmcquarter@...

[Guest guest]

Dear Group, I have not been in contact with you for sometime - Tom broke

his collar bone on Sept 11 - we were going to Boston. Due to his fall, we

realized it was time to move to a single level residence and we sold our

home and moved to Evergreen, Colorado to be our son and his family. Tom got

an electric cart which he loved and we liked our new place very much. Tom

wanted to do something special for our 40th wedding anniversary and since

our first date was on Valentine's 45 years ago we decided to go to NYC

Valentine weekend. We have 3 children and 2 of them along with their

husband and wife were able to join us. The Plaza was having a special. It

was the first time we had taken the cart on the plane. It was easy, but the

cart was not working when we got to NY. I was very depressed, thinking the

trip was going to be ruined, however, I was able to rent another and we were

off. Our son Ben had set up an appointment with Dr. Alterman who does brain

stimulation, and has done a couple of MSA patients, but Tom's response to

sinemet made the operation not worth while. We used van cabs to move the

cart around and only had one time where we just could not find one. We went

to Ground Zero, SoHo, Central Park, The Lion King, several dinners out, we

had a spectacular time. Our trip home was smooth, we flew Vanguard, and for

just $100 more had business class. Tom and I read together, and then had a

great conversation on our last leg. We arrived at Denver Airport around

9:30pm, got our suitcases, were heading to the car - Tom was using his

walker and Tom complained of shortness of breath, then he fell, Tammy and I

pulled him up, Ben put him on the cart to push him to the car, he did not

look right - he looked as if he were having a seizure - he has had this 2

times before, Ben performed CPR, medics arrived 10 minutes later and used

the defibrulator - but to no avail. I was expecting to have him at least 10

more years - Tom had been an integral part of my life for 45 years of my 60

years. It is wonderful that we had just completed a wonderful family

experience, his communication with his children has always been outstanding

so they have no regrets or need to have cleared up anything.

I have been more of an observer than a participant. We received so much

help and information from you all and I wish to thank you deeply - we are

asking that memorials be donations to the Shy-Drager Support Group because

it is such a vital service to those of us associated with this disease.

Joan , formerly of Seattle, and for now in Evergreen, Colorado

Re: Celeste O'Neill update & info you might be interested in.

>

> Very interesting. For what reason do we have our pets scanned when the

masters are ill?

>

> LOL,

> Timo

>

>

>

> " Also he said he would consider sending Celeste for a Pet Scan because

he said it maybe better to treat her with cholergenics rather than dopamine

drugs and that a pet scan would help him know that. He said however the

only places for her to get this!

> pet scan was at a V.A. Hospital in Minneapolis and at another place in

New York City. Anybody know anything about this? "

>

> I find this very interesting. There are quite a few PET Scanners in

the USA. The difficulty is to find sites that uses the radioactive source

that does the exam your Doctor wants and have the protocol to read the exam.

For example at North Shore Long Island Jewish Hospital uses PET/FDG and does

this type exam.. Some other sites are testing F-dopamine with PET in this

area. If the Doctor has email I would like very much to discuss his Dx and

Rx concepts. These PET scans are still considered experimental for PD and

MSA, etc, thus check on whether your insurance will cover. Good luck. Please

let me know what you elect to do.

>

> Al

>

>

>

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

--Dear Joan,

My heart goes out to you and your family. I am so thankful that you

were able to spend a joyous time with him before his passing. My

thoughts and prayers are with you and your family.

God Bless,

Belinda Wiggins

- In shydrager@y..., " Joan " wrote:

> Dear Group, I have not been in contact with you for sometime - Tom

broke

> his collar bone on Sept 11 - we were going to Boston. Due to his

fall, we

> realized it was time to move to a single level residence and we

sold our

> home and moved to Evergreen, Colorado to be our son and his

family. Tom got

> an electric cart which he loved and we liked our new place very

much. Tom

> wanted to do something special for our 40th wedding anniversary and

since

> our first date was on Valentine's 45 years ago we decided to go to

NYC

> Valentine weekend. We have 3 children and 2 of them along with

their

> husband and wife were able to join us. The Plaza was having a

special. It

> was the first time we had taken the cart on the plane. It was

easy, but the

> cart was not working when we got to NY. I was very depressed,

thinking the

> trip was going to be ruined, however, I was able to rent another

and we were

> off. Our son Ben had set up an appointment with Dr. Alterman who

does brain

> stimulation, and has done a couple of MSA patients, but Tom's

response to

> sinemet made the operation not worth while. We used van cabs to

move the

> cart around and only had one time where we just could not find

one. We went

> to Ground Zero, SoHo, Central Park, The Lion King, several dinners

out, we

> had a spectacular time. Our trip home was smooth, we flew

Vanguard, and for

> just $100 more had business class. Tom and I read together, and

then had a

> great conversation on our last leg. We arrived at Denver Airport

around

> 9:30pm, got our suitcases, were heading to the car - Tom was using

his

> walker and Tom complained of shortness of breath, then he fell,

Tammy and I

> pulled him up, Ben put him on the cart to push him to the car, he

did not

> look right - he looked as if he were having a seizure - he has had

this 2

> times before, Ben performed CPR, medics arrived 10 minutes later

and used

> the defibrulator - but to no avail. I was expecting to have him at

least 10

> more years - Tom had been an integral part of my life for 45 years

of my 60

> years. It is wonderful that we had just completed a wonderful

family

> experience, his communication with his children has always been

outstanding

> so they have no regrets or need to have cleared up anything.

> I have been more of an observer than a participant. We received

so much

> help and information from you all and I wish to thank you deeply -

we are

> asking that memorials be donations to the Shy-Drager Support Group

because

> it is such a vital service to those of us associated with this

disease.

> Joan , formerly of Seattle, and for now in Evergreen,

Colorado

> Re: Celeste O'Neill update & info you might be

interested in.

> >

> > Very interesting. For what reason do we have our pets scanned

when the

> masters are ill?

> >

> > LOL,

> > Timo

> >

> >

> >

> > " Also he said he would consider sending Celeste for a Pet

Scan because

> he said it maybe better to treat her with cholergenics rather than

dopamine

> drugs and that a pet scan would help him know that. He said

however the

> only places for her to get this!

> > pet scan was at a V.A. Hospital in Minneapolis and at another

place in

> New York City. Anybody know anything about this? "

> >

> > I find this very interesting. There are quite a few PET

Scanners in

> the USA. The difficulty is to find sites that uses the radioactive

source

> that does the exam your Doctor wants and have the protocol to read

the exam.

> For example at North Shore Long Island Jewish Hospital uses PET/FDG

and does

> this type exam.. Some other sites are testing F-dopamine with PET

in this

> area. If the Doctor has email I would like very much to discuss his

Dx and

> Rx concepts. These PET scans are still considered experimental for

PD and

> MSA, etc, thus check on whether your insurance will cover. Good

luck. Please

> let me know what you elect to do.

> >

> > Al

> >

> >

> >

> >

> >

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >

[Guest guest]

In a message dated 05/08/2002 7:13:24 AM Eastern Daylight Time,

rosacea-support writes:

<< It sounds like you

feel everyone should " go unrefined " rather than use processed foods

in moderation, as a conventional healthy diet recommends. >>

Process foods are processed for convenience and taste NOT FOR HEALTH!!!

[Guest guest]

In a message dated 05/08/2002 7:13:24 AM Eastern Daylight Time,

rosacea-support writes:

<< It sounds like you

feel everyone should " go unrefined " rather than use processed foods

in moderation, as a conventional healthy diet recommends. >>

Process foods are processed for convenience and taste NOT FOR HEALTH!!!