I could use some ideas!

[Guest guest]

My son Connor, age 6 1/2 and on SCD for 18 1/2 months now, is having

some sort of issue, although I don't know exactly what is going on. He

started refusing some foods about 3 weeks ago and his list has slowly

grown. Over the last 5 days he has dropped the last few foods he would

eat. Now he's down to nothing. Every meal he seems hungry, and I say

ok, what would you like to eat? We go over the possibilities and there

are SO MANY, but he doesn't want any of them. Finally I get him to say

ok to something and we make it. He helps. Then he takes a bite and

says he likes it! YIPPEE! but then he eats another bite and maybe

another and he's done. He sits there and he really looks done. Like he

feels sick almost. He doesn't even act hungry. Connor typically gets

really constipated but the funky thing is that he hasn't been for the

past month. He's been much more normal. He isn't bloated at all. I

can't imagine NOT being constipated is the problem! Could it be?

Connor has severe sensory issues. He eats only pureed foods, like baby

food level of puree, very smooth, or soft foods like muffins or

pancakes. That's it. He isn't into real crunchy. He doesn't like

gooey or soggy. All his pureed and soft foods he won't eat. I am

presently listening to my blender make almond milk, hoping he'll drink

some of that. What is the recipe for " formula " ? I'm doing honey,

almonds, water... Is there more than that in the formula? My BTVC book

is lent out to someone right now. I have to get something into him as

he is very medically fragile with epilepsy, hypoglycemia,

trach/vent/oxygen etc.. and super tiny for his age. We have checked his

blood sugars and kept his sugar up by squirting honey in his mouth when

his sugar is too low. He is drinking diluted juice (50% welch's white

grape/50% water right now to keep his sugar up,typically we water it

down significantly more!). Any help is appreciated! Thank you!

Deb