Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Dean, Hypogonadism MAY BE, not is one of the complications from HIV infection. I'm not sure what incidence of primary hypo is in HIV/AIDS group. I don't think that I said that.... that approach had never occurred to me....I was just parroting what I remember from the poster...I was very surprised. OR eon Re: Low Testosterone I believe it was Oreon who originally said that hypogonadism is one of the complications of HIV/AIDS. And the reason it might be good to find a Dr. who has a lot of HIV/AIDS patients is that they would presumeably be much more experienced with Hormone Replacement Therapy. Dean > > > > I noticed posts about " low " T levels. More than one doctor > > around > > > here > > > > defines anything above 240 as normal because the lab > > report says > > > so based on > > > > my experience. In fact, my doctor tried to convince me that > > 214 > > > was only a > > > > little low and nothing to worry about. Here, posters claim > that > > > 391 is low. > > > > The doctors in my neck of the woods would label a 391er as > > a > > > Testosterone > > > > abuser. That is the real problem - T can be abused and is a > > > controlled > > > > substance. > > > > > > > > Conversely, I am not sure if TRT is the best option for a guy > > with > > > 391. 391 > > > > is not that low and is a good candidate for manipulation with > > > drugs like > > > > Clomid and HCG. The side effects of TRT are pretty rough - > > > sterile, E2 > > > > problems, normal T production shutdown, shrinking balls. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Many patients with full blown AIDS used to be (still are?) given testosterone to reduce muscle wasting. This may have lead the original poster to conclude that HIV/AIDS causes hypogonadism; but that's not how I interpreted the magazine articles I'd read on the subject a few years ago. Re: Low Testosterone I believe it was Oreon who originally said that hypogonadism is one of the complications of HIV/AIDS. And the reason it might be good to find a Dr. who has a lot of HIV/AIDS patients is that they would presumeably be much more experienced with Hormone Replacement Therapy. Dean > > > > I noticed posts about " low " T levels. More than one doctor > > around > > > here > > > > defines anything above 240 as normal because the lab > > report says > > > so based on > > > > my experience. In fact, my doctor tried to convince me that > > 214 > > > was only a > > > > little low and nothing to worry about. Here, posters claim > that > > > 391 is low. > > > > The doctors in my neck of the woods would label a 391er as > > a > > > Testosterone > > > > abuser. That is the real problem - T can be abused and is a > > > controlled > > > > substance. > > > > > > > > Conversely, I am not sure if TRT is the best option for a guy > > with > > > 391. 391 > > > > is not that low and is a good candidate for manipulation with > > > drugs like > > > > Clomid and HCG. The side effects of TRT are pretty rough - > > > sterile, E2 > > > > problems, normal T production shutdown, shrinking balls. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Dave, Good point! I tipped from HIV+ >>>> AIDS in July '98; May '98 my CD4 cell count dropped to double digit and viral load was ~500,000. That's one half criteria for AIDS diagnosis, CD4 cells <200. July I was diagnosed with HIV encephalopathy, an opportunistic infection (OI), so that was other half. I never had the two common OIs, Candida (thrush) and pneumocystis carinii pneumonia (PCP) and was hospitalized for a month; left leg was paralyzed from knee down so I had to learn too walk again. I lost a lot of weight ~25-30 lbs' but I recover fast. '00 I began a 12 wk weight training program at Body Positive here in Houston...a baseline BIA is run on all prospective clients and periodically over the 12 wk program. During the basic 12 wk program I gained 10 lbs lean cell mass; at the time I was injecting 200 mg depo-testosterone/weekly per my PCP's Rx. Below are my BIA values. My highest values in all parameters were on 10-27-00; going out of town two weeks over Thanksgiving in '00 threw my regular gym routine off; I made several attempts to start back to gym but have never sustained that effort. In spite of this....my values are still good as I had a BIA run on 5-17-04. Date.......Phase Angle.............%BCM................%Fat.............Wt 5-22-00 6.1 39 17 179 6-30-00 6.0 39 16 182 8-11-00 6.2 40 16 194 10-27-00 6.4 40 16 191 1-19-01 6.3 38 19 196 5-15-01 5.8 38 19 192 7-24-01 6.0 39 19 190 5-17-04 5.7 39 17 186 From this site http://www.poz.com/index.cfm?p=article & art_id=2294 Phase angle: This is a mathematically calculated value that normally averages more than 5 in healthy people. Body Cell Mass (BCM): For example, body cell mass (BCM) is calculated from weight and the BIA readings. The average normal ranges for BCM are 35 to 45 percent for men and 30 to 40 percent for women, but you simply need to be " normal " for your weight. The best outcome would be to match the " ideal body cell mass. " If you're dropping below that, you're losing ground. (the normal range is 35%-45%). From this site: http://interactive.rjlsystems.com/statistics.html Recommended Body Fat Levels: Male: Low: 6-10% fat Optimal: 11-17% fat Moderate: 18-20% fat Obesity: Greater than 25% fat Normal Fat Free Mass (FFM) FFM from BIA: = 62.48 +/- 10.21 FFM pred norm: = 62.46 +/- 10.85 The Advent of protease inhibitors for HIV+ individuals has curbed wasting significantly and allowed individuals wasted severely to recover. Re: Low Testosterone I believe it was Oreon who originally said that hypogonadism is one of the complications of HIV/AIDS. And the reason it might be good to find a Dr. who has a lot of HIV/AIDS patients is that they would presumeably be much more experienced with Hormone Replacement Therapy. Dean > > > > I noticed posts about " low " T levels. More than one doctor > > around > > > here > > > > defines anything above 240 as normal because the lab > > report says > > > so based on > > > > my experience. In fact, my doctor tried to convince me that > > 214 > > > was only a > > > > little low and nothing to worry about. Here, posters claim > that > > > 391 is low. > > > > The doctors in my neck of the woods would label a 391er as > > a > > > Testosterone > > > > abuser. That is the real problem - T can be abused and is a > > > controlled > > > > substance. > > > > > > > > Conversely, I am not sure if TRT is the best option for a guy > > with > > > 391. 391 > > > > is not that low and is a good candidate for manipulation with > > > drugs like > > > > Clomid and HCG. The side effects of TRT are pretty rough - > > > sterile, E2 > > > > problems, normal T production shutdown, shrinking balls. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 Ow! Get that man Testosterone STAT! > Hello, > I am a 36 year old male. I have been having health problems for > sometime and no Dr. is able to tell me what it is. They are wanting > to label me with fibromyalgia. I recently had test results come > back for my testosterone. The endocrinologist said that most of my > results are in the low portion of the normal range, but nevertheless > normal. He said that giving me testosterone would not help me. > Have any of you had the same experience only to find out that the > Dr. was wrong. I have always lead a very active lifestyle and for > the last year and a half I have been half the man. My little girl > begs be to wrestle with her and I'm too tired. My wife wants sex > and I have ED. My job has become very difficult. And my TREK road > bike is sitting in the shed. HELP!!! Below are the test results. > What do you all think? > > T4 FREE is 1.12 Normal is [0.89- > 1.80] > TSH is 0.50 Normal is [0.35- > 5.50] > Sex Hormone Globulin is 20 nmol/L Normal is 13-71 > Prolactin is 1.9 ng/mL Normal is 2.1-17.7 > Follicle Stimulating Hormone is 3.6 IU/L Normal is 1.4-14.6 IU/L > Luteinizing Hormone is 2.6 IU/L Normal is 1.5-9.3 IU/L > Testosterone, FREE is 65.9 pg/L Normal is 47.0-244.0 > Testosterone, % FREE is 2.3% Normal is 1.6-2.9 > Testosterone is 291 ng/dL Normal is 400-1080 > > If this means something to some one please let me know. > > Thank you! > 7 > BEGIN:VCARD > VERSION:2.1 > N:Tipton;;;Champaign County Wildlife Officer > FN: Tipton > ORG:ODNR, Division of Wildlife > TITLE:State Wildlife Officer > TEL;WORK;VOICE:614-644-3929 Ext. 1201 > ADR;WORK;ENCODING=QUOTED-PRINTABLE:;;P.O. Box 694 =0D=0A;St. > Paris;Ohio;43072;Champaign > LABEL;WORK;ENCODING=QUOTED-PRINTABLE:P.O. Box 694 =0D=0A=0D=0ASt. > Paris, Ohio 43072=0D=0AChampaign > EMAIL;PREF;INTERNET:tipton@b... > REV:20041009T182415Z > END:VCARD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 Phil, Dealing with CFS or Chronic Fatigue is not an easy matter and one has to deal with it systematically, tackling a number of different issues and going through a process of elimination until you hit the right issue or in many cases issues. 1. Check thyroid function 2. Check Adrenal Function 3. Check Hypoglycemia(low blood sugar) 3. Check Hormones The following link has a lot of information and links to other information that I have posted in other groups. This information is detailed enough for him to help himself. /message/17604 If he has any other questions, I would be glad to help. > Hello, > I am a 36 year old male. I have been having health problems for > sometime and no Dr. is able to tell me what it is. They are wanting > to label me with fibromyalgia. I recently had test results come > back for my testosterone. The endocrinologist said that most of my > results are in the low portion of the normal range, but nevertheless > normal. He said that giving me testosterone would not help me. > Have any of you had the same experience only to find out that the > Dr. was wrong. I have always lead a very active lifestyle and for > the last year and a half I have been half the man. My little girl > begs be to wrestle with her and I'm too tired. My wife wants sex > and I have ED. My job has become very difficult. And my TREK road > bike is sitting in the shed. HELP!!! Below are the test results. > What do you all think? > > T4 FREE is 1.12 Normal is [0.89- > 1.80] > TSH is 0.50 Normal is [0.35- > 5.50] > Sex Hormone Globulin is 20 nmol/L Normal is 13-71 > Prolactin is 1.9 ng/mL Normal is 2.1-17.7 > Follicle Stimulating Hormone is 3.6 IU/L Normal is 1.4-14.6 IU/L > Luteinizing Hormone is 2.6 IU/L Normal is 1.5-9.3 IU/L > Testosterone, FREE is 65.9 pg/L Normal is 47.0-244.0 > Testosterone, % FREE is 2.3% Normal is 1.6-2.9 > Testosterone is 291 ng/dL Normal is 400-1080 > > If this means something to some one please let me know. > > Thank you! > 7 > BEGIN:VCARD > VERSION:2.1 > N:Tipton;;;Champaign County Wildlife Officer > FN: Tipton > ORG:ODNR, Division of Wildlife > TITLE:State Wildlife Officer > TEL;WORK;VOICE:614-644-3929 Ext. 1201 > ADR;WORK;ENCODING=QUOTED-PRINTABLE:;;P.O. Box 694 =0D=0A;St. > Paris;Ohio;43072;Champaign > LABEL;WORK;ENCODING=QUOTED-PRINTABLE:P.O. Box 694 =0D=0A=0D=0ASt. > Paris, Ohio 43072=0D=0AChampaign > EMAIL;PREF;INTERNET:tipton@b... > REV:20041009T182415Z > END:VCARD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 > > I am putting this in for a new member I hope I don't get into > trouble. > Phil > No, but get him to sign up so he can read his replies. Brad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 > Hello, > I am a 36 year old male. I have been having health problems for > sometime and no Dr. is able to tell me what it is. They are wanting > to label me with fibromyalgia. I recently had test results come > back for my testosterone. The endocrinologist said that most of my > results are in the low portion of the normal range, but nevertheless > normal. He said that giving me testosterone would not help me. > Have any of you had the same experience only to find out that the > Dr. was wrong. I have always lead a very active lifestyle and for > the last year and a half I have been half the man. My little girl > begs be to wrestle with her and I'm too tired. My wife wants sex > and I have ED. My job has become very difficult. And my TREK road > bike is sitting in the shed. HELP!!! Below are the test results. > What do you all think? > > T4 FREE is 1.12 Normal is [0.89- > 1.80] > TSH is 0.50 Normal is [0.35- > 5.50] > Sex Hormone Globulin is 20 nmol/L Normal is 13-71 > Prolactin is 1.9 ng/mL Normal is 2.1-17.7 > Follicle Stimulating Hormone is 3.6 IU/L Normal is 1.4-14.6 IU/L > Luteinizing Hormone is 2.6 IU/L Normal is 1.5-9.3 IU/L > Testosterone, FREE is 65.9 pg/L Normal is 47.0-244.0 > Testosterone, % FREE is 2.3% Normal is 1.6-2.9 > Testosterone is 291 ng/dL Normal is 400-1080 > > If this means something to some one please let me know. > > Thank you! > 7 > BEGIN:VCARD > VERSION:2.1 > N:Tipton;;;Champaign County Wildlife Officer > FN: Tipton > ORG:ODNR, Division of Wildlife > TITLE:State Wildlife Officer > TEL;WORK;VOICE:614-644-3929 Ext. 1201 > ADR;WORK;ENCODING=QUOTED-PRINTABLE:;;P.O. Box 694 =0D=0A;St. > Paris;Ohio;43072;Champaign > LABEL;WORK;ENCODING=QUOTED-PRINTABLE:P.O. Box 694 =0D=0A=0D=0ASt. > Paris, Ohio 43072=0D=0AChampaign > EMAIL;PREF;INTERNET:tipton@b... > REV:20041009T182415Z > END:VCARD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 He did but it takes time. Phil brad999us <no_reply > wrote: > > I am putting this in for a new member I hope I don't get into > trouble. > Phil > No, but get him to sign up so he can read his replies. Brad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2005 Report Share Posted February 6, 2005 Sam, It is important to get some follow up testing done a few weeks after starting the androgel. You need to know if you are getting adequate absorbtion and if you are on the proper dosage. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hi Jim I am glaid you came and posted here. One thing when you put on the Testim just put it on your upper arms and shoulder no lower then your collar bone on your chest. Putting it lower will cause problems with converson into E2 Estradiol. And like Mark said get tested again after using Testim for 4 weeks. Get your Total and Free Testosterone along with E2 Estradiol, DHT, and DHEA-SO4. I had very high E2 and it caused me to have bad ED, and trouble reaching an orgasm. Plus a lot of the other things. Your case is different then mine you need to heal and time is on your side. But if you keep you HRT levels good you should recover faster. Ask your Dr. about using Cialis 20 mg evey 72 hrs. my Dr. has me doing this along with keeping my E2 down I have NE all night long and this is good health for the penis. Plus I can have sex when ever I want it don't have to wait for a pill to work. And it is keeping my BP down so I am not no BP meds. Phil Phil patandjimellis <sam@...> wrote: I posted this on a couple of groups to which I belong and someone asked me to post it here. Sam a.k.a. Jim I had a nerve sparing radical prostatectomy on Sept. 30, 2004. I was 66 years old at the time but have since turned 67. Shortly after the catheter was removed I was wearing regular underwear during the day but wearing pullups at night because of leakage. Complete continence returned in about 6 weeks after the surgery. I still have erection problems. 100 mg Viagra and 1000 mcg of MUSE produce a " plump " sensitive penis but not enough firmness for penetration. During the month of October at times I had problems with flu or cold like symptoms that just seemed to hang on so I went to my regular doctor on Nov. 1 and he told me my red blood count was 11 and to take a supplement. I started taking an over the counter iron supplement. During November and December I just seemed to drag around. I would get chills and then sweats. My Medicare HMO (Anthem Senior Advantage) offers partial payment on prescriptions up to a certain point. I reached the max in November and had to pay 308 dollars for 2 mail prescriptions that usually cost 80 (40 for each). Also, I had to refuse to accept a prescription at a local pharmacy when I was charged 132 dollars for one that usually cost 20 dollars. I went back to my Dr in January. He did blood work and said I was anemic and my testosterone was low. My blood count was 9.8 and with 30 days of meds it is now up to 11.4 so he discontinued that iron prescription. My total testosterone reading was 175 which was listed as low with the reference range being 241 to 827. He gave me a prescription for Testim which is a gel I apply to my chest, shoulders, and upper arms each morning after my shower. The dosage is 50 mg. He gave me a 6 month prescription and a copy of the report to give to my urologist when I go to see him in several months. Any comments on this dosage and on my 175 reading? I think things are changing somewhat. I still can't get an erection but my penis seems to be hanging a little lower and if I handle it I can " fluff " it a little. It now seems like it has some life and feeling in it. Before it was like a dead piece of rope hanging there. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hi Sam (Jim), I had that operation in June 2000, age 51, spared 1 of the 2 nerve bundles. I'd been diagnosed w/ hypogonadism, 10/21/98 151 ng/dL (241-827); highest know level between then and cancer diagnosis was 273 ng/dL, 12/98, on Androderm. Discontinued TRT after prostate cancer diagnosis, 3/00. First T test after surgery, 9/00, was 62 ng/dL. Resumed TRT (AndroGel). Interesting that we both were diagnosed with prostate cancer with very low T levels, but that's another subject. Glad you (like me) regained continence. Immediately after surgery I had to re-define the expression " taking a leak " . I really started getting soaking cold night sweats in the months following surgery. I still get them if hormones get out of balance. After recovery I was (am) able to have sex, sometimes with, sometimes without Viagra, sometimes not at all. Energy & libido seem to be the limiting factor. (Thought for the day: it's difficult to benefit from Viagra if I lack the energy to get the damn lid off the bottle...) IMO you will see improvement when hormone levels improve. I don't think you are receiving adequate treatment. I think starting from 175ng/dL requires frequent monitoring. Like blood tests for total T, free T & E2 (estradiol) every 6 weeks, with appropriate dosage adjustment. (I learned this the hard way.) Anemia treatment? I don't know much about it. What was tested, & what were the labs ranges? If those levels were for a RBC, you're over range. If they were for hemoglobin, you're below range. So... if I understand correctly, your November level of 11 was sufficient to warrant treatment (with supplements), Your December level was 9.8 (supplements didn't help), and your most recent level was 11.4, so the doc took you off supplements. Again, I don't know anemia, but I don't see the logic in that treatment. You mention your total T level, but others are conspicuous in their absence: free T, DHEA-S, Estradiol (E2), FSH, LH, Prolactin and SHBG. A bone density test (DEXA) is appropriate. An MRI should be done to rule out a pituitary tumor (if found, almost certainly benign and treatable). Suggestion: call your doc & ask if you can get the above tests, or at least total T, free T & estradiol 4-6 weeks after when you started Testim. If he has a problem with the tests or timing, get back to us. We'll help you find a new doc who understands this stuff. Any military service? Access to the VA pharmacy has been great for me. $7 max. copay, great service. Prostate cancer is now presumed to be agent-orange related for anyone who was in, over or offshore Viet Nam. Testim or a similar compounded cream or gel shouldn't be that expensive. Have you searched prices online? Of course any med that doesn't work is too expensive. As is any doctor's visit without correct treatment. I do believe you will see major improvement with correct hormone levels and anemia resolution. Best, Bruce (corrections & contrary opinions welcome.) > > > I posted this on a couple of groups to which I belong and someone > asked me to post it here. > Sam a.k.a. Jim > > > I had a nerve sparing radical prostatectomy on Sept. 30, 2004. > I was 66 years old at the time but have since turned 67. > > Shortly after the catheter was removed I was wearing regular underwear > during > the day but wearing pullups at night because of leakage. Complete > continence > returned in about 6 weeks after the surgery. > > I still have erection problems. 100 mg Viagra and 1000 mcg of MUSE produce > a " plump " sensitive penis but not enough firmness for penetration. > > During the month of October at times I had problems with flu or cold like > symptoms that just seemed to hang on so I went to my regular doctor on > Nov. > 1 and he told me my red blood count was 11 and to take a supplement. I > started taking an over the counter iron supplement. During November and > December I just seemed to drag around. I would get chills and then > sweats. My > Medicare HMO (Anthem Senior Advantage) offers partial payment on > prescriptions up to a certain point. I reached the max in November and > had to > pay 308 dollars for 2 mail prescriptions that usually cost 80 (40 for > each). Also, I had to refuse to > > accept a prescription at a local pharmacy when I was charged 132 > dollars for one that usually cost > 20 dollars. > > I went back to my Dr in January. He did blood work and said I was > anemic and > my testosterone was low. > > My blood count was 9.8 and with 30 days of meds it is now up to 11.4 so he > discontinued that iron prescription. > > My total testosterone reading was 175 which was listed as low with the > reference range being 241 to 827. He gave me a prescription for Testim > which > is a gel I apply to my chest, shoulders, and upper arms each morning > after my > shower. The dosage is 50 mg. He gave me a 6 month prescription and a copy > of the report to give to my urologist when I go to see him in several > months. > > Any comments on this dosage and on my 175 reading? I think things are > changing somewhat. I still can't get an erection but my penis seems to be > hanging a little lower and if I handle it I can " fluff " it a little. > It now > seems like it > has some life and feeling in it. Before it was like a dead piece of > rope hanging > > there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Your results sound similar to mine, which was caused by Hemochromatosis. My endo says it is a petuitary problem because the LH and FSH, produced by the petuitary, should be higher trying to raise the testosterone level. HH is a genetic blood disorder where your body absorbs too much iron from food when it passes through the intestines. The iron overload then starts fouling up the other organs in your body. To check for HH, have them do tests for serum iron, ferritin, and TIBC. If they are high, they will do a DNA test that checks for the genetic mutation that causes it. But there are probably be many different causes besides this one. Just something to look at. winters1jm <Lwwinters6@...> wrote: I am a 28 year old male and have recently had to start testosterone replacement. I have been seeing an endocrinologist and he has put me on androgel. I have had an MRI of my pituitary gland and all of my hormone levels checked and everything but the testosterone is normal. He says from this info that there is really no way to find out whats causing my low testosterone. He thinks its probably secondary hypogonadism because my FSH and LH levels were normal. Is this reliable or do i need a second opinion?? If so, what kind of doc do i need to see for the second opinion, an endo or a urologist? I would really like to know what is causing this since i am so young. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 If you can post your test results with the range and units we can help you much better. Phil winters1jm <Lwwinters6@...> wrote: I am a 28 year old male and have recently had to start testosterone replacement. I have been seeing an endocrinologist and he has put me on androgel. I have had an MRI of my pituitary gland and all of my hormone levels checked and everything but the testosterone is normal. He says from this info that there is really no way to find out whats causing my low testosterone. He thinks its probably secondary hypogonadism because my FSH and LH levels were normal. Is this reliable or do i need a second opinion?? If so, what kind of doc do i need to see for the second opinion, an endo or a urologist? I would really like to know what is causing this since i am so young. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 FSH and LH levels are normal or high in cases of primary hypogonadism. I hope that was a misspeak on his part. If not, RUN from this doctor, he does not know about low T. Like Phil said, post your results and the reference ranges supplied with them. > > I am a 28 year old male and have recently had to start testosterone > replacement. I have been seeing an endocrinologist and he has put me > on androgel. I have had an MRI of my pituitary gland and all of my > hormone levels checked and everything but the testosterone is normal. > He says from this info that there is really no way to find out whats > causing my low testosterone. He thinks its probably secondary > hypogonadism because my FSH and LH levels were normal. Is this > reliable or do i need a second opinion?? If so, what kind of doc do i > need to see for the second opinion, an endo or a urologist? I would > really like to know what is causing this since i am so young. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 , Thanks for your reply. What did your doc do when they found out you had hemochromatasis or is it curable. Thanks Josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Sorry guys i forgot to put my info in yesterday. Also, i made a mistake and said my FSH and LH was normal. It is, however according to these results it is very low normal. Back in August here were the labs that were taken at that time. Total Testosterone 247 ng/dL Normal-241-827ng/dL Prolactin 20.0 ng/mL Normal 2.1-17.7 ng/dL LH 2.5 Normal mIU/mL Normal 1.5-9.3 FSH 4.4 mIU/mL Normal 1.4-18.1 ACTH 11 pg/mL Normal 6-48 At this time I start taking Testosterone by shot from my Urologist and then he referred me to an Endo. I also had a MRI of my pituitary which came back OK. The Endo wanted me to get off of an antidepressant i was taking called Lexapro, he felt that this might be the culprit of my low T. However, after getting off the shots and the Lexapro i was retested and my T was still low so he started me on Androgel. I started out on a low dose taking 3.25 mg a day. I went back about three weeks ago and was retested and here's what i got. Total Test - 2.17 ng/mL (2.00-11.00) Free Test - 44.7 pg/mL (47.0-244.0) Prolactin 8.9 ng/mL (<15) Estradiol <20 pg/mL (<56) Also had my thyroid checked TSH 0.90mcU/mL 0.3-5 FT4 1.23 ng/dL 0.6-1.8 He has now doubled my dose of test to 7.5 mg of Androgel a day. He says he thinks my case is secondary hypogonadism and as of right now there is no way of telling what the culprit is?? Any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 I'm sorry i told you guys wrong, my LH and FSH are normal but very low normal as was my ACTH. I posted all of my labwork so you can see. Thanks for your reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Make sure you get back and test in 4 to 6 weeks some men can't do gels it does not get there levels up high enough. I do shots of T every 3 days and HCG everyday this works the best for me. I need to work hard on my E2 levels and as long as I keep them down I do good. You should start to feel better in a short time. Phil winters1jm <Lwwinters6@...> wrote: Sorry guys i forgot to put my info in yesterday. Also, i made a mistake and said my FSH and LH was normal. It is, however according to these results it is very low normal. Back in August here were the labs that were taken at that time. Total Testosterone 247 ng/dL Normal-241-827ng/dL Prolactin 20.0 ng/mL Normal 2.1-17.7 ng/dL LH 2.5 Normal mIU/mL Normal 1.5-9.3 FSH 4.4 mIU/mL Normal 1.4-18.1 ACTH 11 pg/mL Normal 6-48 At this time I start taking Testosterone by shot from my Urologist and then he referred me to an Endo. I also had a MRI of my pituitary which came back OK. The Endo wanted me to get off of an antidepressant i was taking called Lexapro, he felt that this might be the culprit of my low T. However, after getting off the shots and the Lexapro i was retested and my T was still low so he started me on Androgel. I started out on a low dose taking 3.25 mg a day. I went back about three weeks ago and was retested and here's what i got. Total Test - 2.17 ng/mL (2.00-11.00) Free Test - 44.7 pg/mL (47.0-244.0) Prolactin 8.9 ng/mL (<15) Estradiol <20 pg/mL (<56) Also had my thyroid checked TSH 0.90mcU/mL 0.3-5 FT4 1.23 ng/dL 0.6-1.8 He has now doubled my dose of test to 7.5 mg of Androgel a day. He says he thinks my case is secondary hypogonadism and as of right now there is no way of telling what the culprit is?? Any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Josh, It is not curable, but the treatment is simple. No drugs! You just get rid of the iron through blood draws, very similar to donating blood. Since it is blood related, you are treated by a hematologist. Lwwinters6@... wrote: , Thanks for your reply. What did your doc do when they found out you had hemochromatasis or is it curable. Thanks Josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 So your telling me that you dont have to have testosterone replacement you just get rid of some blood which lowers your iron levels?? Was you LH and FSH low to low normal when tested as well? Josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 No, not exactly. I was saying that HH can cause the low Testosterone (hypogonadism), and to stop HH from doing further damage, such as Hypogonadism, the iron levels have to be kept at the low normal range. That is where I am at now. I have to wait until next month to retest to see if the testosterone levels will come back up now that the iron level is ok. The endocrinologist says that some guys in their 30's and younger with HH under control can have their testosterone levels rebound back to normal. If the levels do not come up by the middle of March, I will have to do the Testosterone treatment. My LH and FSH were low normal, with very low T levels, about 180. winters1jm <Lwwinters6@...> wrote: So your telling me that you dont have to have testosterone replacement you just get rid of some blood which lowers your iron levels?? Was you LH and FSH low to low normal when tested as well? Josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I hope this works for you I have read from many men that doing this worked for them but it was a slow process. Some had to jump start there testis with Clomid. Phil Bowling <bowling6715@...> wrote: No, not exactly. I was saying that HH can cause the low Testosterone (hypogonadism), and to stop HH from doing further damage, such as Hypogonadism, the iron levels have to be kept at the low normal range. That is where I am at now. I have to wait until next month to retest to see if the testosterone levels will come back up now that the iron level is ok. The endocrinologist says that some guys in their 30's and younger with HH under control can have their testosterone levels rebound back to normal. If the levels do not come up by the middle of March, I will have to do the Testosterone treatment. My LH and FSH were low normal, with very low T levels, about 180. winters1jm wrote: So your telling me that you dont have to have testosterone replacement you just get rid of some blood which lowers your iron levels?? Was you LH and FSH low to low normal when tested as well? Josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Oh ok, i got you. i'm definitely going to check that out and see. Thanks for the help. josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Phil, What does Clomid do exactly? Josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 I have never used it so here is a link to a search. http://www.google.com/search?hl=en & lr= & q=clomid Phil winters1jm <Lwwinters6@...> wrote: Phil, What does Clomid do exactly? Josh Quote Link to comment Share on other sites More sharing options...
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