Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 , Selenium is notoriously low in UK soils. karen asd adults i know with pronounced response to selenium are from canada and tasmania both selenium deficent areas... so i can't exactly know how it will be for you since i don't know your selenium intake from food... i reckon you should really notice something with three weeks/one month max. your posts indicate decreasing mercury toxicty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 mercury in the fish, low selenium, amalgams.... north scotland is so asd .... puffins up ther to... > , > > Selenium is notoriously low in UK soils. > > > karen > > > asd adults i know with pronounced response to selenium are from > canada and tasmania both selenium deficent areas... > > so i can't exactly know how it will be for you since i don't know > your selenium intake from food... > > i reckon you should really notice something with three weeks/one > month max. > > your posts indicate decreasing mercury toxicty > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 , I agree with Jan & others. You have to somehow get these bozo's to agree on who will be head clown. My doc's can be like this and the head clown in my case seems to be the Head transplant coordination who is a nurse practitioner. All the docs clear everything through her. She is not really a clown, she takes her job seriously and keeps my med list up to date on her computer. I am fortunate to have her. Find someone to do this. Maybe it will be someone at Vanderbilt. I have been in the situation where I have been in pain and didn't know who to go to. I don't know your situation but seems like your PCP should be making sure you are getting the right care. Take care & good luck Patty -----Original Message-----From: Ian & Janet [mailto:ianjanaust@...] Sent: Wednesday, June 04, 2003 1:09 AM Subject: [ ] KAREN ......dont hesitate go to the ER.....gosh I feel so sorry for you, when youre free of pain Ill write again but meantime go to ER and hopefully this time your problems will get sorted out. I have a suspicion that you're falling between the cracks in your care, it can happen when two or more doctors are involved. Love Jan : Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 , I agree with Ginger, if your # are not going down something needs to be adjusted. The drugs we take are awful but they should work. Patty -----Original Message-----From: gehud119@... [mailto:gehud119@...] Sent: Wednesday, June 04, 2003 3:11 PM Subject: [ ] KARENHi, , I am surprized that the hep doc did not put you on imuran. I do not get my meds from rhemy, but from GI/hep. If your numbers are not going down, then something is wrong.Hugs, Ginger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Ginger, The hep that I went to didn't do a thing other than confirm that I have AIH. He gave suggestions on meds and then basically passed the buck and said for me to see him in a year! I now have a new GI in Huntsville (the closest decent sized town - about 30 miles away). He is going to put me on Imuran when I see him on June 25th. He wanted to give my pancreas a chance to recover from the latest attacks. He also told me that I definitely have chronic pancreatitis and the episodes of severe RUQ abdominal pain, nausea, vomiting, and elevated liver enzymes are caused by my pancreas, not my liver. As you can imagine, this makes managing the AIH more complicated since the pancreatitis causes pretty major spikes in my liver enzymes. What we didn't know was that the spikes in my liver enzymes were most likely associated with a spike in one of the pancreas enzymes, lipase. The small hospital in my town doesn't bother to check the lipase since they can't do it in house. They only check the other pancreas enzyme, amylase. They would insist the pain couldn't be from the pancreas because my amylase was normal. I finally put the puzzle pieces together after a couple of visits to the hospital in Huntsville. They tested my lipase and the higher my liver enzymes, the higher the lipase. According to my internal med doc and my new GI, it is very common to have a normal amylase, but elevated lipase with pancreatitis. They said my lipase should have been checked every time I had an episode of pain, nausea, and vomiting. My labs last week revealed a normal AST and an ALT in the 90s - much improved from an AST of almost 800 and an ALT of about 500! As you can see, I don't make things easy for my doctors as it seems I never present with a typical picture! The GI that was on call for my GI and saw me in the hospital over the weekend said that I 'certainly am a complicated and interesting case'. Don't know if she was talking about from a medical or psychiatric standpoint! Thanks to all for the prayers and kind e-mails. I was going to try to thank each one personally but I just keep getting further behind on my e-mails. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Amy, Thanks. I am glad that my good news brightened your day. I hope that you receive some good news soon, too. Take care, karen W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 --how did you tests go the other day?? how is everything--been waiting to hear back from your visit---tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2003 Report Share Posted October 4, 2003 thanks Tina! So, I got there at noon and the doc told me I could have been drinking as much water as I wanted and could eat right after the first test (around 1). I was so peeved b/c I actually called and expressed concern to the secretary saying that I was breastfeeding and didn't want to go without water and she told me that she e mailed the doc who told her that I could have 1 glass in the early morning. So, needless to say, I'm pissed. It's not only the world of endocrinology that has incompetent people. Anyway, without getting into too much details, I'm pretty sure I have a medical malpractice suit against the hosp. that delivered my baby a year ago. Believe me, I'm not a sue-happy person AT ALL, but what has occurred is absolutely rediculous and then to boot, THREE of their doctors misdiagnosed what they should have not missed in the first place. Anyway, thanks for asking! It was great to see you write your daughter's name the other day. We've heard so much about her and never knew her name ----Original Message Follows---- From: " tina83862 " <tina8386@...> Reply-hypothyroidism hypothyroidism Subject: Re: karen Date: Thu, 02 Oct 2003 17:34:30 -0000 --how did you tests go the other day?? how is everything--been waiting to hear back from your visit---tina _________________________________________________________________ Instant message during games with MSN Messenger 6.0. Download it now FREE! http://msnmessenger-download.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2003 Report Share Posted October 4, 2003 this always makes me crazy since I used to run a large doctor's office (before kids)---why don't the girls at the desk --get up to ask the doctor--ugggggg---anyway I am sorry you were told the wrong info--gee this reminds me of when my dad had surgery and the hospital lost his test results for surgery, they made him go from Sat. midnight till Wed. noon time--He had colon cancer---anyway I flew into town and gave him those complete liquid meals--told him he would never make it into surgery because of the dehydration--we were right and he survived the surgery after I yelled at the doctor for almost killing my dad!!!!! It's amazing what total idiots they can be--one did not tell the other and so forth--my dad dropped over 10 pounds from no water or food in that time frame--imagine before surgery!!!!!! Talk about a lawsuit!!!And this was after chemo--we did chemo first to kill the cancer--it all worked out great and he is totally recovered!!! Opps I got off track--let us know what tests results you get--take care tina > thanks Tina! > So, I got there at noon and the doc told me I could have been drinking as > much water as I wanted and could eat right after the first test (around 1). > I was so peeved b/c I actually called and expressed concern to the secretary > saying that I was breastfeeding and didn't want to go without water and she > told me that she e mailed the doc who told her that I could have 1 glass in > the early morning. So, needless to say, I'm pissed. It's not only the > world of endocrinology that has incompetent people. Anyway, without getting > into too much details, I'm pretty sure I have a medical malpractice suit > against the hosp. that delivered my baby a year ago. Believe me, I'm not a > sue-happy person AT ALL, but what has occurred is absolutely rediculous and > then to boot, THREE of their doctors misdiagnosed what they should have not > missed in the first place. Anyway, thanks for asking! It was great to see > you write your daughter's name the other day. We've heard so much about her > and never knew her name > > > > > ----Original Message Follows---- > From: " tina83862 " <tina8386@a...> > Reply-hypothyroidism > hypothyroidism > Subject: Re: karen > Date: Thu, 02 Oct 2003 17:34:30 -0000 > > --how did you tests go the other day?? how is everything--been > waiting to hear back from your visit---tina > > _________________________________________________________________ > Instant message during games with MSN Messenger 6.0. Download it now FREE! > http://msnmessenger-download.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 I am giving my two cents here! ABSOLUTELY! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 that's an interesting spin on things - thanks ----Original Message Follows---- From: Aprilcupcake@... Reply-hypothyroidism hypothyroidism Subject: karen Date: Mon, 8 Dec 2003 08:26:44 EST I was talking with my doc on friday about the reluctance of many physicians to prescribe medication according to symptoms and not numbers. She tells me it is most likely that they are in fear of legal action should something go wrong. And therefore they tend to " play by the rules " . She wondered if they could perhaps have their patients sign something like a release form that would limit their liability if the patient wanted to increase their meds on their own. Something to think about? Chriss. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 My doctor was really against giving me Armour. He said no one else prescribed it, and other doctors would think he was crazy. That DOES have something to do with fear of lawsuits, since many medical boards and quality assurance boards use " peer review. " Peer review means the person's actions are reviewed by a group of people in the same profession. If you're asking for something many doctors are against, it makes sense that your doctor would not be very compliant with your requests. I did get my doctor to give me Armour, though. I brought some medical journal articles on T3 and was arguing for Thyrolar (which he was REALLY against--he said it was only used for thyroid cancer and any other doctor would think he was absolutely crazy to prescribe it). I finally said, " Look. I'm in an HMO. I CAN'T sue you, even if I were willing to. And, you're agreeing to try me on something *I* am asking for. You really can't lose here. " He agreed to the Armour, but I had to agree to call him once a week to check in on progress. K a r e n P <karlynn17@...> wrote:that's an interesting spin on things - thanks ----Original Message Follows---- From: Aprilcupcake@... Reply-hypothyroidism hypothyroidism Subject: karen Date: Mon, 8 Dec 2003 08:26:44 EST I was talking with my doc on friday about the reluctance of many physicians to prescribe medication according to symptoms and not numbers. She tells me it is most likely that they are in fear of legal action should something go wrong. And therefore they tend to " play by the rules " . She wondered if they could perhaps have their patients sign something like a release form that would limit their liability if the patient wanted to increase their meds on their own. Something to think about? Chriss. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 do you feel better on Armour? ----Original Message Follows---- From: <melmac2525@...> Reply-hypothyroidism hypothyroidism Subject: RE: karen Date: Mon, 8 Dec 2003 08:41:52 -0800 (PST) My doctor was really against giving me Armour. He said no one else prescribed it, and other doctors would think he was crazy. That DOES have something to do with fear of lawsuits, since many medical boards and quality assurance boards use " peer review. " Peer review means the person's actions are reviewed by a group of people in the same profession. If you're asking for something many doctors are against, it makes sense that your doctor would not be very compliant with your requests. I did get my doctor to give me Armour, though. I brought some medical journal articles on T3 and was arguing for Thyrolar (which he was REALLY against--he said it was only used for thyroid cancer and any other doctor would think he was absolutely crazy to prescribe it). I finally said, " Look. I'm in an HMO. I CAN'T sue you, even if I were willing to. And, you're agreeing to try me on something *I* am asking for. You really can't lose here. " He agreed to the Armour, but I had to agree to call him once a week to check in on progress. _________________________________________________________________ Don’t worry if your Inbox will max out while you are enjoying the holidays. Get MSN Extra Storage! http://join.msn.com/?PAGE=features/es Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Your Dr. is an idiot,...I take Thyrolar and actually prefer it over Armour.It is basically the same thing except for it doesn't contain the other T's.I feel absolutely wonderful on it.Find another dr.!!..My mother treid the same thing with her Dr. and she was also told no for Thyrolar because her dr. told her is was a drug for depression,not thyroid...HELLO??...look at the name???....hehehe Deneen:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Well, he did give me the Armour, but he was a bit of an idiot. I am going to visit one of the doctors from Shomon's Top Docs list in January. I will be off of my HMO and will be able to choose my own doctor. I think if you have something like Hashimoto's that requires a lot of understanding and lots of tinkering with medicine, an HMO is not the best route...at least not for me. jezebel56@... wrote:Your Dr. is an idiot,...I take Thyrolar and actually prefer it over Armour.It is basically the same thing except for it doesn't contain the other T's.I feel absolutely wonderful on it.Find another dr.!!..My mother treid the same thing with her Dr. and she was also told no for Thyrolar because her dr. told her is was a drug for depression,not thyroid...HELLO??...look at the name???....hehehe Deneen:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 Ginger, You already have done something to help - your prayers mean the world to me. They must be working because I am feeling close to human again! thanks to everyone for all the prayers and kind words. you guys are the greatest! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 I think u need a new biopsy with a hospital you trust. I was told to always go to the same place because different people read slides different ways. I hope you get some answers and feel better soon. We know the liver can heal it self but since they are all looking at the same slide it is very confusing. Being tired could be from yur liver or all th panc. attacks you've had you need someone to do a full work up and get to the bottom of this. Good luck the WV hillbilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 I agree in getting the biopsy re-done, but what a pain. One is bad enough. Whatever clinic U are going to doctor with, have it done there. The Mayo Clinic and Dr Czar(?) is what Kels specialists follow as her treatment. Trish > I think u need a new biopsy with a hospital you trust. I was told to > always go to the same place because different people read slides different ways. > I hope you get some answers and feel better soon. We know the liver can heal > it self but since they are all looking at the same slide it is very confusing. > Being tired could be from yur liver or all th panc. attacks you've had you > need someone to do a full work up and get to the bottom of this. > Good luck > the WV hillbilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 : So it ok to give more than 1 PEP & ZP at a meal. I only give one per meal and not any in between. My son usually only snacks in school. By the time he gets home it is dinner time. His largest meal is dinner. He has been on the enzymes building up for the past month. Seeing some small improvements but not too much. What do you think? EIleen >From: " jornmatt " <kjorn@...> >Reply- > >Subject: Re: new on enzymes and have questions >Date: Sat, 27 Nov 2004 22:05:06 -0000 > > >> >The Complete isn't as effective for most people so a higher dose >(like 3-4 capsules per meal instead of the 1-2 most people discuss >here with HNI) might give you the improvements again. > >. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 FIGURES!!!!!!!!!!!!!!!!!!!!!! >From: " jornmatt " <kjorn@...> >Reply- > >Subject: ***Re: mature moms/ header >Date: Sat, 15 Jan 2005 19:57:36 -0000 > > >As interesting as this is, you might want to continue this thread >with a different header....it is being picked up and flagged by some >spam watching software utilities (as adult content). > >. ><smiling widely> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 Hello! I'm so sorry that you are having such a time of it! I do hope that you might call the doc's office and see if you might be able to arrange someone to at least get a wheel chair for you to be able to get up the ramp to recovery! I know what you mean when it comes to a chain of events that just never seems to end! Hopefully for your sake it will soon!!! I just want to let you know that you are in my thoughts and prayers!!! Take care and God Bless!!! XXX's Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 , Since my daughter is constipated, would it help her to take magnesium oxide? Thanks, Re: karen/ andrea >>She was taking a magnesium oxide and I think that causes loose stools so we need to maybe try a different mag. Mag oxide is cheap and common is supplement but it is not absorbed well. It promotes the laxative effect more that other forms. just about any other form is better. Supernuthera can cause hyperactivity and sleep problems. Phenols can too, so your plan sounds wise. After take out the supernuthera and add No-Fenol, you'll know more then. It would be great if you could post on if these steps help or not. It is kind of a process getting everything taken care of. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 > , > Since my daughter is constipated, would it help her to take magnesium oxide? I am not , but here are constipation ideas for you to consider http://www.danasview.net/constip.htm Magnesium works at my house. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Hi - I finally was diagnosed a couple of years ago with lyme and babesia..... buhner's book on lyme is really very good and tells you more than you would ever want to know about the herbs he uses... Before I had the lyme/babs diagnosis, my attittude was to try anything and everything in the hopes something would work!!! and occasionally things did work - but only for awhile......but antibiotics have alwats helped.... Good luck, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Hi Deb. " Healing Lyme " is the book? I googled his name and " lyme " and that's what came up first. Yes, boy, to I know about the virtues of antibiotics! Whew...yes, knock wood. But I'm a little limited in what I can do right now. Major life adjustments going on, big-time, so I'm trying to start with " small " and " natural. " I'm thinking I will probably get to being tested for Lyme, too, eventually, as there's that possibility in my history too. It certainly gets to be a big mess, trying to figure out where all the " this " came from. Thank you for the help, Deb. I can see there's even more reading on my horizon! > > > > > Hi - I finally was diagnosed a couple of years ago with lyme and babesia..... buhner's book on lyme is really very good and tells you more than you would ever want to know about the herbs he uses... > > Before I had the lyme/babs diagnosis, my attittude was to try anything and everything in the hopes something would work!!! and occasionally things did work - but only for awhile......but antibiotics have alwats helped.... > > Good luck, > Deb Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.