Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Anne, Thank you, I knew you could see me doing the 'MGB Happy dance' yeah! BTW how is your lawsuit coming along? And more importantly, how are YOU doing? (((hugs))) Raleigh, NC bmi=42 surgery date=May 26 (yippee!!) Re: APPROVED - FINALLY YEAH!!! >I can see you and I am so very very happy for you. Anne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 NO Fanney, dont give up! Your Sister loved you and would not want the sentence you have laid upon yourself...Get up and fight!! Make her proud. Let us love you WE want to! WE want you to live in light! Please what ever you need call me I will do what ever I can to help!!!! God does love you. and if you ask he will provide maybe not today but he will, I promise you! Fanney, you have brought so much sunshine to my days with your post please let us reciprocate. Please give us a chance. xoxox Trisha Lanman Littermate June 1, 2000 yippee Las Vegas NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 In a message dated 5/17/2000 5:07:46 PM Eastern Daylight Time, katla61@... writes: << I am leaving the list for now. The future presents nothing to me but darkness and confusion, and talking to people only makes me feel lonely and dying. >> Dear Fanney, I do so wish that I was eloquent enough to be able to offer you words that could somehow ease you're pain and suffering!!!!!! I too know what it is like to lose a loved one, I lost both my parents within a two and a half year period and at times I thought I would not be able to bear it. I've never experienced grief like that, but I know that I will again. I just pray that God will grant me the strength to get through it and the chance to be with them someday! I will be sad to see you leave the site, but I understand that we each have to deal with our grief and sorrow in our own way. No matter where to go my prayers are with you always!!!!! Wanting to be on the other side, Cathy in Lenoir, NC Patient Info Emailed on 5/2/00 BMI 42 " A Journey Of A Thousand Miles Begins With A Single Step! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 Can we help you? Please let us try! I am new to the list, but I do know about the loss of your sister. I lost a child, and have had many other things happen that have seemed unbearable. Please let us or someone help you! We love you! Call me or someone, please! Sara Schutz Fanney Iceland wrote: > I want to thank you for your support, e.a. how much you have > given to 's family. I also want to thank all of the people > who > answered my plea when I was asking for someone to take my dogs. > Yesterday I got some bad news that will affect me and 's > family in a very bad way. So again do the powers at be play with us > like rag dolls, thinking we do not have any feeling or say. > I am struggling every day, and have tried to keep up with what > is > happening on here. I am not able to answer nor patisipate in > discussions or celibrations. > Sorrow is a strange thing, but a very real thing, and putting a > smile on does not work any more, nor does giving it to God or pray. > Right now I only exist, go to work and sleep with aid of some > chemical > a doctor gave me. > Since yesterday, I feel like a dog who has been kicked too > much, > so much that it does not squeel anymore even though his master keeps > on kicking it. > I am leaving the list for now. The future presents nothing to > me > but darkness and confusion, and talking to people only makes me feel > lonely and dying. > I wish you all good things in your future, and hope you will get > some if not all your whishes to come true. May insurance companies, > etc. get sense enough to give you good people what you so greatly > deserve........................... F > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click.egroups.com/1/2567/2/_/453517/_/958597582/ > ------------------------------------------------------------------------ > > This message is from the Mini-Gastric Bypass Mailing List at Onelist.com > Please visit our web site at http://clos.net > Get the Patient Manual at http://clos.net/get_patient_manual.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 Dear Fanney, Obviously something terrible has happened to put you in such deep despair. I hope you can share it with us so we can help. Whatever has happened can be made bearable through the help of your friends. Please let us try. We love you and we know you have a Viking spirit that will not let you give up. Please let us help you. Call me if you want to talk. 817/ 577-0919. We love you, Genz Fanney Iceland wrote: > I want to thank you for your support, e.a. how much you have > given to 's family. I also want to thank all of the people > who > answered my plea when I was asking for someone to take my dogs. > Yesterday I got some bad news that will affect me and 's > family in a very bad way. So again do the powers at be play with us > like rag dolls, thinking we do not have any feeling or say. > I am struggling every day, and have tried to keep up with what > is > happening on here. I am not able to answer nor patisipate in > discussions or celibrations. > Sorrow is a strange thing, but a very real thing, and putting a > smile on does not work any more, nor does giving it to God or pray. > Right now I only exist, go to work and sleep with aid of some > chemical > a doctor gave me. > Since yesterday, I feel like a dog who has been kicked too > much, > so much that it does not squeel anymore even though his master keeps > on kicking it. > I am leaving the list for now. The future presents nothing to > me > but darkness and confusion, and talking to people only makes me feel > lonely and dying. > I wish you all good things in your future, and hope you will get > some if not all your whishes to come true. May insurance companies, > etc. get sense enough to give you good people what you so greatly > deserve........................... F > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click.egroups.com/1/2567/2/_/453517/_/958597582/ > ------------------------------------------------------------------------ > > This message is from the Mini-Gastric Bypass Mailing List at Onelist.com > Please visit our web site at http://clos.net > Get the Patient Manual at http://clos.net/get_patient_manual.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 In a message dated 4/11/01 8:21:29 PM Central Daylight Time, judith98101@... writes: << I was just about to write and encourage members not to engage SW in conversation, hoping that if she was unable to 'get a rise' out of anyone, she would go away. In my participation over the last 18 months I have seen SW disrupt so many times, never with a productive outcome or even by-product. >> This thought has recently occurred to me too. We are giving her exactly what she wants, so I will no longer resond to any of her negative propaganda. We all know we are accepting some risk in our quest for surgery but no purpose is served by dwelling on it. It is a risk that many of us have decided to take based on our personal experience. Even if some of her claims were accurate, I asked myself, would I rather have 15-20 years of being a near normal weight (and most likely healthier), or the rest of my life in my present condition (or worse). I have never been a normal weight. Have absolutely no memory of ever being thin. I certainly do not expect losing weight to solve all my problems or make my life " exciting & wonderful " , but oh, how I want to experience what it feels like to buy clothes that I like rather than whatever fits, and to be out in public and not feel like a spectacle and to not be embarrassed for my husband (even though he never seems to be) to be seen with me. And yes, I would like to experience sex as a normal weight person. There are just so many things I have never done! I am 42 and feel like life is passing me by quickly. I want to do something about this before it's too late. Is that so hard for some people to understand? Sorry, feeling a little sorry for myself tonite. CindyW in MS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 In a message dated 4/11/01 8:21:29 PM Central Daylight Time, judith98101@... writes: << I was just about to write and encourage members not to engage SW in conversation, hoping that if she was unable to 'get a rise' out of anyone, she would go away. In my participation over the last 18 months I have seen SW disrupt so many times, never with a productive outcome or even by-product. >> This thought has recently occurred to me too. We are giving her exactly what she wants, so I will no longer resond to any of her negative propaganda. We all know we are accepting some risk in our quest for surgery but no purpose is served by dwelling on it. It is a risk that many of us have decided to take based on our personal experience. Even if some of her claims were accurate, I asked myself, would I rather have 15-20 years of being a near normal weight (and most likely healthier), or the rest of my life in my present condition (or worse). I have never been a normal weight. Have absolutely no memory of ever being thin. I certainly do not expect losing weight to solve all my problems or make my life " exciting & wonderful " , but oh, how I want to experience what it feels like to buy clothes that I like rather than whatever fits, and to be out in public and not feel like a spectacle and to not be embarrassed for my husband (even though he never seems to be) to be seen with me. And yes, I would like to experience sex as a normal weight person. There are just so many things I have never done! I am 42 and feel like life is passing me by quickly. I want to do something about this before it's too late. Is that so hard for some people to understand? Sorry, feeling a little sorry for myself tonite. CindyW in MS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 In a message dated 4/11/01 8:21:29 PM Central Daylight Time, judith98101@... writes: << I was just about to write and encourage members not to engage SW in conversation, hoping that if she was unable to 'get a rise' out of anyone, she would go away. In my participation over the last 18 months I have seen SW disrupt so many times, never with a productive outcome or even by-product. >> This thought has recently occurred to me too. We are giving her exactly what she wants, so I will no longer resond to any of her negative propaganda. We all know we are accepting some risk in our quest for surgery but no purpose is served by dwelling on it. It is a risk that many of us have decided to take based on our personal experience. Even if some of her claims were accurate, I asked myself, would I rather have 15-20 years of being a near normal weight (and most likely healthier), or the rest of my life in my present condition (or worse). I have never been a normal weight. Have absolutely no memory of ever being thin. I certainly do not expect losing weight to solve all my problems or make my life " exciting & wonderful " , but oh, how I want to experience what it feels like to buy clothes that I like rather than whatever fits, and to be out in public and not feel like a spectacle and to not be embarrassed for my husband (even though he never seems to be) to be seen with me. And yes, I would like to experience sex as a normal weight person. There are just so many things I have never done! I am 42 and feel like life is passing me by quickly. I want to do something about this before it's too late. Is that so hard for some people to understand? Sorry, feeling a little sorry for myself tonite. CindyW in MS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 > Dear all > > Just to say thank you for all the kind words last week - really helped > me when I was feeling exceptionally low. The out look is no brighter > this week - ho hum. I think I must have missed this one Beverly - what's the problem? Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 Marty, Welcome, though I am sorry you are here and that both you and your wife face such problems. You have come to the right place for your wife. I just wanted to say that my family was from Jericho, NY, and my mother Joyce, who died at 71 of MSA (11/5/00), saw many neuros and movement disorder specialists. I am glad you found a doctor you like. My mother attended a Parkinson's support group (Young at Heart) in Syosset--they are a great group of people and deal with symptoms and issues similar to my mom's. My mother loved them. She also went for physical therapy at the Westbury Osteopathic place, part of NY Institute for something or other (I wish I could remember it!). The people there were wonderful. I wish you luck. Stay tuned. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 Marty, Welcome, though I am sorry you are here and that both you and your wife face such problems. You have come to the right place for your wife. I just wanted to say that my family was from Jericho, NY, and my mother Joyce, who died at 71 of MSA (11/5/00), saw many neuros and movement disorder specialists. I am glad you found a doctor you like. My mother attended a Parkinson's support group (Young at Heart) in Syosset--they are a great group of people and deal with symptoms and issues similar to my mom's. My mother loved them. She also went for physical therapy at the Westbury Osteopathic place, part of NY Institute for something or other (I wish I could remember it!). The people there were wonderful. I wish you luck. Stay tuned. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2002 Report Share Posted December 5, 2002 Grace, I wish you strength during this difficult time. It is inevitable that one of the major issues we deal with at this point is guilt, even when it shouldn't be a factor, so it's so good for you that you were able to achieve this level of closeness and love. We'll be thinking of you, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2002 Report Share Posted December 5, 2002 Grace, I wish you strength during this difficult time. It is inevitable that one of the major issues we deal with at this point is guilt, even when it shouldn't be a factor, so it's so good for you that you were able to achieve this level of closeness and love. We'll be thinking of you, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Hi, Thank you all for the support. This has been the most difficult time of my life and the holland story made me feel much better. My son, Arjun is 26 months old. I am glad that after the last 2 years of uncertainty i am finally close to an answer. I have managed to get in touch with Dr. H. She thinks that Arjun has RSS. I have an appointment to see her on the 1st of October (that's the earliest date that i could get). It was a big decision for us to decide to come all the way from India just to see Dr. H, but after all that i've heard i think it will be worth it. I wanted to come to the convention but there was a delay in getting our visas. I was looking forward to meeting all of you. Maybe, next year... Nisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi, Thank you all for the support. This has been the most difficult time of my life and the holland story made me feel much better. My son, Arjun is 26 months old. I am glad that after the last 2 years of uncertainty i am finally close to an answer. I have managed to get in touch with Dr. H. She thinks that Arjun has RSS. I have an appointment to see her on the 1st of October (that's the earliest date that i could get). It was a big decision for us to decide to come all the way from India just to see Dr. H, but after all that i've heard i think it will be worth it. I wanted to come to the convention but there was a delay in getting our visas. I was looking forward to meeting all of you. Maybe, next year... Nisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Nisha, How wonderful that you will be traveling all the way from India to see Dr. H.! It will be worth the trip. She will take care of you and your son and you will be so glad you came here. I'm just sorry that you have to wait until October. Actually, that is a better time as the weather will be cooler and her office may be less hectic because kids will be back in school. I'm sorry you can't make the covention, but don't worry. You will get everything you need from Dr. H. Just ask us if you need anything more. We are here to help! Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Hi Nisha, We also travelled a very long way to see Dr. H (from New Zealand, but my family lives in the US so it wasn't too difficult for us). I just wanted to let you know that it was COMPLETELY WORTH THE TRIP!!! One of the best things that we got from Dr. H was seeing a doctor who finally understood that our child needs desperate help! Unfortunately, the system in NZ doesn't allow many RSS/SGA children to easily be given the medical treatment they could get in the US. So despite the doctors being well-trained here, their hands are tied by the system. Dr. H took one look at our son and finally said everything that we knew but most doctors hadn't been able to say - he desperately needed treatment! Getting that understanding from a doctor who looks at how RSS/SGA affects the WHOLE child was so important. The decisions we make to treat our children can be very difficult, and we needed to talk to a doctor who PASSIONATELY agreed that he needed help. Tyler was severly underweight when we saw her, and she was the first doctor we'd seen in nearly 4 years who drilled it in that gaining weight was critical to his whole well-being. He just got a g-tube (I'll write more about this in another post - he's not really an " older " child, but at age 4, not really young to be getting a g-tube), so she should be happy about that when we see her next. I really think you'll be so glad that you made such a long journey to see Dr. H. She will answer so many of your questions and let you know what needs to be done to help Arjun. One warning: our appointment was at 9:00; we saw the first doctor at 11:00 but had to wait until 3:00 to see Dr. H. That's a long wait for a 2 or 3 year old. Other people have had good ideas about waiting in the hallway or being allowed out to take a walk if they know Dr. H will be awhile. Just be prepared. Also, we had to show an ID to get into the hospital (definitely not standard practice here - luckily I had a driver's licence on me). Good luck with your appointment and with your travels. (Tyler, age 4, 11.5 kgs, 94 cms - in New Zealand) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 I am so very sorry for your loss. I hope they can find the problem and fix it so you can have a successful pregnancy. ibahve had 2 MC's myself and I know it is very heartbreaking and I was infertile for many, many years before I was succcessful so do not give up hope. I will have you in my prayers. God Bless, Robin, NorthEastern, NY EDD- July 27th, 2004 Mommy to: & (twin boys 7 1/2), Madison, daughter, 5 years and Wife to Pup 15 years (October 31, 1988) Gastric Bypass Surgery- October 18th 2002 Start-378, current- 246(pregnant) goal 170 after baby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 if it is progesterone that is the problem...then let me tell you....prometrum...one in the morning two at night vaginally...the yellow ones...200mg ones...my wife started them the day she ovulated and she is taking her last two tonight!!! she will be 12 weeks pregnant tomorrow!!! Hope this helps Adam & e Gaspard > >Reply-To: OSSG-pregnant >To: OSSG-pregnant >Subject: Thank you >Date: Mon, 16 Feb 2004 16:02:20 -0000 > _________________________________________________________________ Choose now from 4 levels of MSN Hotmail Extra Storage - no more account overload! http://click.atdmt.com/AVE/go/onm00200362ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Adam, When e takes the prometrium vaginally, does she puncture the capsule? Tracie:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 no...it melts and ruptures itself RE: Thank you Adam, When e takes the prometrium vaginally, does she puncture the capsule? Tracie:) Children are a blessing, and a gift from the Lord. -Psalm 127:3 ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Check out these websites: www.umdf.org www.mdausa.org These are the united mitochondrial disease foundation and the united muscular dystrophy association. I think the MDA site may be a little easier to read than the UMDF. Don't get me wrong the UMDF is a great site, but not worded for beginners. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 , Have you gone to the WWW.UMDF.Org site? There are several articles there about Mito, and some other family stories ect. Hugs, O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 , Have you gone to the WWW.UMDF.Org site? There are several articles there about Mito, and some other family stories ect. Hugs, O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 , Have you gone to the WWW.UMDF.Org site? There are several articles there about Mito, and some other family stories ect. Hugs, O Quote Link to comment Share on other sites More sharing options...
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