Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 hello my name is shannon i had a child she was six monthes and eight days old she had leighs disease.. can you tell me what your child is doing you know some symtoms or somthing .... i am alittle lost i didnt read your last email so you might have done said this sorry i have not been on in a mint,...but i am interested in what is going on with your child can you let me know your friend shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 hello my name is shannon i had a child she was six monthes and eight days old she had leighs disease.. can you tell me what your child is doing you know some symtoms or somthing .... i am alittle lost i didnt read your last email so you might have done said this sorry i have not been on in a mint,...but i am interested in what is going on with your child can you let me know your friend shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 hello my name is shannon i had a child she was six monthes and eight days old she had leighs disease.. can you tell me what your child is doing you know some symtoms or somthing .... i am alittle lost i didnt read your last email so you might have done said this sorry i have not been on in a mint,...but i am interested in what is going on with your child can you let me know your friend shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Mia, Best wishes for the rest of your drive! We can't wait to hear your updates! another , Claire's mom > Thanks everyone for your support. I wrote your phone number > down so I will give you a call when we get settled at the RM House. > We are driving from New Mexico so it's a long trip. We have a lap > top with a dvd player on it so my 3 1/2 year old can watch his > movies. We got one of those lap tables for him and a ton of crayola > color wonder books to keep him occupied! I will post once we get to > Iowa and see Dr P on Monday! > > Mia > Addisyn 6/24/04 BL Atypical CF > Cody 2/6/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Mia, Best wishes for the rest of your drive! We can't wait to hear your updates! another , Claire's mom > Thanks everyone for your support. I wrote your phone number > down so I will give you a call when we get settled at the RM House. > We are driving from New Mexico so it's a long trip. We have a lap > top with a dvd player on it so my 3 1/2 year old can watch his > movies. We got one of those lap tables for him and a ton of crayola > color wonder books to keep him occupied! I will post once we get to > Iowa and see Dr P on Monday! > > Mia > Addisyn 6/24/04 BL Atypical CF > Cody 2/6/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 Jan I'm glad that your mom's hearing will come back and that you have nothing serious going on, as if total fitgue isn't serious to you. I know it is hard for you to rest, but do so whenever you can. Your body needs to recharge itself. I'll keep you in my thoughts. Laurie > > Thank you to every one who prayed for my Family and my self, > I took Mom to the DR today and she is on the mend it will take two to three > weeks to get back her hearing but she is healing and her hearing will come > back, and that is great, So thank you very much for the prayers for her. > > I went to the Dr today also and I will also be ok my potassium is down and > so they are checking that but every thing else is ok just very tired but > felling better emotionally. > > I did not take into consideration, taking Duane out of his environment and > what that would do to him or how he would react needless to say it was not > good. > We did make memories and that was good it was just hard on me taking care of > every one Duane and my Brother my mom did help also but obviously it took > its toll on us. > Thank you for the prayers > Hugs Jan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 A thank you to you all who spoke up about how difficult it is with our asd kids on scd. I am not making it as an excuse in my situation. I feel for those babies who rely on med.'s. We used to be there. Like I said before, we have seen a dramtic change in Kali and will continue to strive for progression. Jenn & Kali 6 months scd Quote Link to comment Share on other sites More sharing options...
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