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Lu

That was a good one! Pretty scary when you think about it!

Lots of Love

Glenda

> Alarming Statistics... There ought to be a law

> Statistically, doctors are approximately 9,000 times more dangerous

than gun

> owners.

>

> " Remember, Not everyone has a gun, but everyone has at least one

Doctor. "

>  

> Please alert your friends to this alarming threat. We must ban

doctors before

> this gets out of hand.

>

> Remember guns don't kill people, doctors do!

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That is so true, back in 1982 I went to three doctors and they couldn't

diagose appendix. Gave me all the wrong things to do, enemas, laxatives, etc.

Finally after 10 days when I got so dehydrated my husband took me to

hopsital. Appendix had ruptured and flipped on my intestine. 14 days in

hospital, antibiotics like crazy. Had one doctor come in and he told me it

was time to quit smoking because it was bad for my health....told him

" doctors are bad for my health. " Then after not eating for two weeks he

wanted to give me aspirin.....dah....Sue

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That is so true, back in 1982 I went to three doctors and they couldn't

diagose appendix. Gave me all the wrong things to do, enemas, laxatives, etc.

Finally after 10 days when I got so dehydrated my husband took me to

hopsital. Appendix had ruptured and flipped on my intestine. 14 days in

hospital, antibiotics like crazy. Had one doctor come in and he told me it

was time to quit smoking because it was bad for my health....told him

" doctors are bad for my health. " Then after not eating for two weeks he

wanted to give me aspirin.....dah....Sue

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Guest guest

That is so true, back in 1982 I went to three doctors and they couldn't

diagose appendix. Gave me all the wrong things to do, enemas, laxatives, etc.

Finally after 10 days when I got so dehydrated my husband took me to

hopsital. Appendix had ruptured and flipped on my intestine. 14 days in

hospital, antibiotics like crazy. Had one doctor come in and he told me it

was time to quit smoking because it was bad for my health....told him

" doctors are bad for my health. " Then after not eating for two weeks he

wanted to give me aspirin.....dah....Sue

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In a message dated 05/03/2001 3:48:22 AM Central Daylight Time,

Lu1953@... writes:

<< Alarming Statistics... There ought to be a law >>

Lu, I don't agree at all. I have had to put my life in my doctor's hands

forever (or so it seems) and I have never been disappointed, misdiagnosed or

injured! They keep me alive (no mean feat) I thank God every day that He

gave the knowledge and wisdom to the doctors who care for me! I hope you

were being faceitious, were you? Love, Judy

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Judy,

It happens all to often I'm afraid.

My mother died because a student nurse thought she was sleeping while

bathing her and actually, she had stopped breathing all together. They

revived her, but she was brain dead by the time the stupid nurse realized

she wasn't sleeping at all.

My father died because the doctor said he had picked up a virus and in fact

his symptoms were that of a blood clot and he died that night. (Virus and

blood clots???? Same symptoms????? Not at all!!!!!)

My best friend's son died because he was treated for an allergic reaction,

TWICE, when in fact he had sepsis and a simple blood test would have shown

it.

No, my friend, it happens too often I'm afraid.

W

>>>>>>>>>>>>>>>>>>>>>>>>

Lu, I don't agree at all. I have had to put my life in my doctor's hands

forever (or so it seems) and I have never been disappointed, misdiagnosed or

injured! They keep me alive (no mean feat) I thank God every day that He

gave the knowledge and wisdom to the doctors who care for me! I hope you

were being faceitious, were you? Love, Judy

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Judy,

It happens all to often I'm afraid.

My mother died because a student nurse thought she was sleeping while

bathing her and actually, she had stopped breathing all together. They

revived her, but she was brain dead by the time the stupid nurse realized

she wasn't sleeping at all.

My father died because the doctor said he had picked up a virus and in fact

his symptoms were that of a blood clot and he died that night. (Virus and

blood clots???? Same symptoms????? Not at all!!!!!)

My best friend's son died because he was treated for an allergic reaction,

TWICE, when in fact he had sepsis and a simple blood test would have shown

it.

No, my friend, it happens too often I'm afraid.

W

>>>>>>>>>>>>>>>>>>>>>>>>

Lu, I don't agree at all. I have had to put my life in my doctor's hands

forever (or so it seems) and I have never been disappointed, misdiagnosed or

injured! They keep me alive (no mean feat) I thank God every day that He

gave the knowledge and wisdom to the doctors who care for me! I hope you

were being faceitious, were you? Love, Judy

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Judy,

It happens all to often I'm afraid.

My mother died because a student nurse thought she was sleeping while

bathing her and actually, she had stopped breathing all together. They

revived her, but she was brain dead by the time the stupid nurse realized

she wasn't sleeping at all.

My father died because the doctor said he had picked up a virus and in fact

his symptoms were that of a blood clot and he died that night. (Virus and

blood clots???? Same symptoms????? Not at all!!!!!)

My best friend's son died because he was treated for an allergic reaction,

TWICE, when in fact he had sepsis and a simple blood test would have shown

it.

No, my friend, it happens too often I'm afraid.

W

>>>>>>>>>>>>>>>>>>>>>>>>

Lu, I don't agree at all. I have had to put my life in my doctor's hands

forever (or so it seems) and I have never been disappointed, misdiagnosed or

injured! They keep me alive (no mean feat) I thank God every day that He

gave the knowledge and wisdom to the doctors who care for me! I hope you

were being faceitious, were you? Love, Judy

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, I couldn't agree more. I could make a list a mile long. I

will only tell about my latest. My friends son is an upholsterer.

He had staples in his jean pocket. He fell and a staple made a small

cut in his thigh. He didn't think anything of it. Next day his leg

was sore and running a fever of 101. his mom took him to urgent care

and the dr told him he had an " ear infection " !!! Put him on

antibiotics.. By next morning his fever was 105 and gangreen had set

in. He spent 3 months in hospital and only lost his leg, not his

life. Had gone into his abdomen. Ear infection and leg wound???? I

think not....! I'm sure we all have stories to tell, sad but true.

claudia c

> Judy,

> It happens all to often I'm afraid.

> My mother died because a student nurse thought she was sleeping

while

> bathing her and actually, she had stopped breathing all together.

They

> revived her, but she was brain dead by the time the stupid nurse

realized

> she wasn't sleeping at all.

> My father died because the doctor said he had picked up a virus and

in fact

> his symptoms were that of a blood clot and he died that night.

(Virus and

> blood clots???? Same symptoms????? Not at all!!!!!)

> My best friend's son died because he was treated for an allergic

reaction,

> TWICE, when in fact he had sepsis and a simple blood test would

have shown

> it.

> No, my friend, it happens too often I'm afraid.

> W

> >>>>>>>>>>>>>>>>>>>>>>>>

> Lu, I don't agree at all. I have had to put my life in my doctor's

hands

> forever (or so it seems) and I have never been disappointed,

misdiagnosed or

> injured! They keep me alive (no mean feat) I thank God every day

that He

> gave the knowledge and wisdom to the doctors who care for me! I

hope you

> were being faceitious, were you? Love, Judy

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Guest guest

, I couldn't agree more. I could make a list a mile long. I

will only tell about my latest. My friends son is an upholsterer.

He had staples in his jean pocket. He fell and a staple made a small

cut in his thigh. He didn't think anything of it. Next day his leg

was sore and running a fever of 101. his mom took him to urgent care

and the dr told him he had an " ear infection " !!! Put him on

antibiotics.. By next morning his fever was 105 and gangreen had set

in. He spent 3 months in hospital and only lost his leg, not his

life. Had gone into his abdomen. Ear infection and leg wound???? I

think not....! I'm sure we all have stories to tell, sad but true.

claudia c

> Judy,

> It happens all to often I'm afraid.

> My mother died because a student nurse thought she was sleeping

while

> bathing her and actually, she had stopped breathing all together.

They

> revived her, but she was brain dead by the time the stupid nurse

realized

> she wasn't sleeping at all.

> My father died because the doctor said he had picked up a virus and

in fact

> his symptoms were that of a blood clot and he died that night.

(Virus and

> blood clots???? Same symptoms????? Not at all!!!!!)

> My best friend's son died because he was treated for an allergic

reaction,

> TWICE, when in fact he had sepsis and a simple blood test would

have shown

> it.

> No, my friend, it happens too often I'm afraid.

> W

> >>>>>>>>>>>>>>>>>>>>>>>>

> Lu, I don't agree at all. I have had to put my life in my doctor's

hands

> forever (or so it seems) and I have never been disappointed,

misdiagnosed or

> injured! They keep me alive (no mean feat) I thank God every day

that He

> gave the knowledge and wisdom to the doctors who care for me! I

hope you

> were being faceitious, were you? Love, Judy

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Guest guest

, I couldn't agree more. I could make a list a mile long. I

will only tell about my latest. My friends son is an upholsterer.

He had staples in his jean pocket. He fell and a staple made a small

cut in his thigh. He didn't think anything of it. Next day his leg

was sore and running a fever of 101. his mom took him to urgent care

and the dr told him he had an " ear infection " !!! Put him on

antibiotics.. By next morning his fever was 105 and gangreen had set

in. He spent 3 months in hospital and only lost his leg, not his

life. Had gone into his abdomen. Ear infection and leg wound???? I

think not....! I'm sure we all have stories to tell, sad but true.

claudia c

> Judy,

> It happens all to often I'm afraid.

> My mother died because a student nurse thought she was sleeping

while

> bathing her and actually, she had stopped breathing all together.

They

> revived her, but she was brain dead by the time the stupid nurse

realized

> she wasn't sleeping at all.

> My father died because the doctor said he had picked up a virus and

in fact

> his symptoms were that of a blood clot and he died that night.

(Virus and

> blood clots???? Same symptoms????? Not at all!!!!!)

> My best friend's son died because he was treated for an allergic

reaction,

> TWICE, when in fact he had sepsis and a simple blood test would

have shown

> it.

> No, my friend, it happens too often I'm afraid.

> W

> >>>>>>>>>>>>>>>>>>>>>>>>

> Lu, I don't agree at all. I have had to put my life in my doctor's

hands

> forever (or so it seems) and I have never been disappointed,

misdiagnosed or

> injured! They keep me alive (no mean feat) I thank God every day

that He

> gave the knowledge and wisdom to the doctors who care for me! I

hope you

> were being faceitious, were you? Love, Judy

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In a message dated 05/05/2001 12:00:03 AM Central Daylight Time,

grandm4@... writes:

<< diagose appendix. >>

Sue, I almost had an emergency appendectomy, fortunately they did a blood

test first and my appendix was fine, was something called (are you ready for

this?) Middleschmetctz (which I am sure is not the medical spelling, but

that's how it sounded). The said that instead of the egg going slowly into

the fallopian tubes, it was exploding into it, hence the excruciating pain!

Only happened a couple of times, but I'll remember it forever! I still feel

they do more good than harm. Love,Judy

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In a message dated 05/05/2001 12:00:03 AM Central Daylight Time,

grandm4@... writes:

<< diagose appendix. >>

Sue, I almost had an emergency appendectomy, fortunately they did a blood

test first and my appendix was fine, was something called (are you ready for

this?) Middleschmetctz (which I am sure is not the medical spelling, but

that's how it sounded). The said that instead of the egg going slowly into

the fallopian tubes, it was exploding into it, hence the excruciating pain!

Only happened a couple of times, but I'll remember it forever! I still feel

they do more good than harm. Love,Judy

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In a message dated 05/05/2001 12:00:03 AM Central Daylight Time,

grandm4@... writes:

<< diagose appendix. >>

Sue, I almost had an emergency appendectomy, fortunately they did a blood

test first and my appendix was fine, was something called (are you ready for

this?) Middleschmetctz (which I am sure is not the medical spelling, but

that's how it sounded). The said that instead of the egg going slowly into

the fallopian tubes, it was exploding into it, hence the excruciating pain!

Only happened a couple of times, but I'll remember it forever! I still feel

they do more good than harm. Love,Judy

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In a message dated 05/05/2001 4:49:37 AM Central Daylight Time,

RCColloran@... writes:

<< I'm sure we all have stories to tell, sad but true. >>

Makes me greatful for all the great care I had! Love, Judy

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In a message dated 05/06/2001 12:24:58 AM Central Daylight Time,

susuw@... writes:

<< No, my friend, it happens too often I'm afraid. >>

, wow! REALLY makes me realize how fortunate I am to have such good

doctors. I wonder if it has anything to do where one lives? I'm right

outside of Chicago and have access to many specialists from the University of

Chicago, Rush-Presbytarian St. Lukes, and many teaching hospitals. One of

the hospitals used to have a field day every time they admitted me. Since

they had never seen anyone like me, they would bring classes of med students

in to talk and/or examine me. I finally had to stop it, felt like a freak

show! I worry about my mom who lives in a small town in CT with not the

best health care! Plus she is 81 and will stick with her doctor even if he

kills her! I have fits over it, but she won't listen, she " likes " him!

Well, I sure don't! But my hands are tied, I would love to have her move out

here (IL) and see my doctors, but she won't hear of it! What can you do?

Love, Judy

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Hi, everyone: I have to put my two pen'orth here. Of

course it does happen, and we should try and take

care, but doctors and nurses do a difficult job in

stressful circumstances, and they are only human.

Also there is such an enormous amount of medic al

info, that no one persone can possibly keep it all in

his head. I have to say my overwhelming experience

has been positive, and without them I am sure I would

have popped off several years ago!!!. Love Liz

--- Woods susuw@...> wrote:

> Judy,

> It happens all to often I'm afraid.

> My mother died because a student nurse thought she

> was sleeping while

> bathing her and actually, she had stopped breathing

> all together. They

> revived her, but she was brain dead by the time the

> stupid nurse realized

> she wasn't sleeping at all.

> My father died because the doctor said he had picked

> up a virus and in fact

> his symptoms were that of a blood clot and he died

> that night. (Virus and

> blood clots???? Same symptoms????? Not at all!!!!!)

> My best friend's son died because he was treated for

> an allergic reaction,

> TWICE, when in fact he had sepsis and a simple blood

> test would have shown

> it.

> No, my friend, it happens too often I'm afraid.

> W

> >>>>>>>>>>>>>>>>>>>>>>>>

> Lu, I don't agree at all. I have had to put my life

> in my doctor's hands

> forever (or so it seems) and I have never been

> disappointed, misdiagnosed or

> injured! They keep me alive (no mean feat) I thank

> God every day that He

> gave the knowledge and wisdom to the doctors who

> care for me! I hope you

> were being faceitious, were you? Love, Judy

>

>

>

>

__________________________________________________

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  • 4 months later...

Yikes, ! I hope you're not using the triamcinolone. It's an

extremely potent steroid, which I'm sure you know. Please do other

rosaceans a favor and advise your doctor that cortisone/steroids are

a big no-no for rosacea. The ignorance among dermatologists is

astounding!

> So I'm stuck with prescriptions for cortisone or

> triamcinolone and tetracycline when flushing and burning are my

> problems.

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Hi ,

Sunday, October 07, 2001, 12:19:27 AM, you wrote:

MW> To the moderator: Is there any way we can start a list of doctors and

MW> photoderm operators who are knowledgeable about rosacea? I think if we

MW> only list positive experiences we can avoid legal issues. Perhaps this

MW> could be an ongoing list that could be searched by city or state or

MW> region?

I guess there are 2 main reasons that this hasn't happened to date 1) it

is a decent amount of work and 2) it would tricky to do it in a way that

is fair to all i.e. not slander doctors and also not get people's hopes

too high.

If anyone in the US was willing to create and manage such a list for

American doctors then great, please do.

Not that this helps you, but I have a listing of all the IPL machines in

Australia, but cannot really collect information on particular doctors and

make is available publicly. It, sadly, is still up to individuals to do

their own research and make up their mind. This is somewhere that all

rosaceans still need lots of help, how exactly does one find a photoderm

doctor if you want this treatment ?

Australian cea Page: http://rosacea.ii.net/aus.html

cheers,

davidp.

--

Pascoe, dp@..., South Perth, Western Australia

cea Support: http://rosacea.ii.net

List Highlights: http://rosacea.ii.net/toc.html

Dr. Nase's cea Gallery: http://rosacea.ii.net/gnase.html

Beating cea Book: http://www.drnase.com

cea FAQ: http://www.faqs.org/faqs/medicine/rosacea

Mailing List: http://rosacea.ii.net/ml.html

cea

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  • 7 months later...
Guest guest

Aletta,

I did not know about your audio tape but I have found it to be true

that most neurologist do not know about rare neuroloigical diseases.

It is a shame that so many who have one have to be totally insulted

and not taken care of usually in the first 2 years of their illness.

It is usually only stumbling upon a neurologist who does know about

movement disorders that a person gets help. The new residents do need

to know about these rare diseases,at least recognize them to the

point of recommending the patient to a doctor specializing in the

disorders.

God bless,

Belinda

> I think it might be an appropriate time to relate this again. I

have an

> audio tape of a local neurologist teaching new residents. On the

tape a

> students asks to go into more detail about Shy-Drager. The doctor

laughs,

> and says , that there is little point, because it is likely a

doctor will

> never come accross one during their entire practice. No wonder

they cannot

> spot MSA when they see it. We really need to find a way to educate

the

> educators so future doctors will know, just how many are not

diagnosed and

> suffer unneccsarily from improper or a lack of treatment. I found

the past

> many years seeking answers the most demoralizing and humiliating

time of my

> life.

>

> My current doctor knew nothing about it either (he graduated 1998),

but at

> least he was willing to read learn and consider the possibility.

>

> aletta mes

> vancouver, bc Canada

> web: http://aletta.0catch.com

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Guest guest

Greetings Ann!

Do you mind if I hijack your example to reemphasize my point? Your

example in a shows the good, bad, and ugly in a short paragraph.

> My sister-in-law was having trouble ... she told me that

> something was wrong.

She noticed the symptoms and took action.

> The doctor in Panama City Fa. said that she was in the

> change of life (had a hystermocy 20 years before).

> Sent her to a physiatrist.

Yup! Blame the patient. Remember the student that finishes dead last

in his class is still called " Doctor " .

> She finally went to the eye Dr. because she was having

> trouble with focus.

Again, she resumed control. If the symptoms don't fit the " diagnosis " ,

then hunt for other answers.

> He told her she needed to see a neurologist.

He clearly listened to her. And she heeded his advice.

> Two months later after a trip to Gainsville, Fla for test

> that she had was told she had Lou Gherig disease.

I am very sorry to hear this. HOWEVER, because she searched for answers

early, she will be able to manage the symptoms to improve her overall

quality of life. Yes, she now has a terrible diagnosis that makes a

mockery of the first doctor she saw. But at least two in the process

listened and attempted to help.

Regards,

=jbf=

B. Fisher

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Guest guest

Greetings Ann!

Do you mind if I hijack your example to reemphasize my point? Your

example in a shows the good, bad, and ugly in a short paragraph.

> My sister-in-law was having trouble ... she told me that

> something was wrong.

She noticed the symptoms and took action.

> The doctor in Panama City Fa. said that she was in the

> change of life (had a hystermocy 20 years before).

> Sent her to a physiatrist.

Yup! Blame the patient. Remember the student that finishes dead last

in his class is still called " Doctor " .

> She finally went to the eye Dr. because she was having

> trouble with focus.

Again, she resumed control. If the symptoms don't fit the " diagnosis " ,

then hunt for other answers.

> He told her she needed to see a neurologist.

He clearly listened to her. And she heeded his advice.

> Two months later after a trip to Gainsville, Fla for test

> that she had was told she had Lou Gherig disease.

I am very sorry to hear this. HOWEVER, because she searched for answers

early, she will be able to manage the symptoms to improve her overall

quality of life. Yes, she now has a terrible diagnosis that makes a

mockery of the first doctor she saw. But at least two in the process

listened and attempted to help.

Regards,

=jbf=

B. Fisher

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Guest guest

Greetings Ann!

Do you mind if I hijack your example to reemphasize my point? Your

example in a shows the good, bad, and ugly in a short paragraph.

> My sister-in-law was having trouble ... she told me that

> something was wrong.

She noticed the symptoms and took action.

> The doctor in Panama City Fa. said that she was in the

> change of life (had a hystermocy 20 years before).

> Sent her to a physiatrist.

Yup! Blame the patient. Remember the student that finishes dead last

in his class is still called " Doctor " .

> She finally went to the eye Dr. because she was having

> trouble with focus.

Again, she resumed control. If the symptoms don't fit the " diagnosis " ,

then hunt for other answers.

> He told her she needed to see a neurologist.

He clearly listened to her. And she heeded his advice.

> Two months later after a trip to Gainsville, Fla for test

> that she had was told she had Lou Gherig disease.

I am very sorry to hear this. HOWEVER, because she searched for answers

early, she will be able to manage the symptoms to improve her overall

quality of life. Yes, she now has a terrible diagnosis that makes a

mockery of the first doctor she saw. But at least two in the process

listened and attempted to help.

Regards,

=jbf=

B. Fisher

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  • 2 months later...

I'm seeing a GI specialist, tomorrow, about my acid reflux. My esophagitis is

back, in spite of the Nexium, etc. My guess is, surgery will be the

recommendation. Like I need something else to pay for.

Dori... " If I haven't grown up by now, I'm never going to. "

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  • 3 years later...
Guest guest

Becky, I hear what you are saying and agree, but the fact is if you are going to get through this disease on top, you have to shop and search for good doctors. Even when you do get a good one for some reason they don't want to believe sarc can do the things it does. Hopefully with time and education things will get better...Take care, Connie Whitaker wrote: I can't believe that doctors are still so ignorant as to patient relations in general and treating this disease. I have been seeing the same neuro for 4 years and have went to NS specialist in Birmingham and Atlanta. When I first started having problems 5 years ago, they saw the sarcoid inflamation near the brain stem. I have had consistently elevated ACE levels and all the normal symptoms.I was recently diagnosed

with Meniere's so now the neuro is saying that maybe that was what it was all along which is pure BS. What explains the elevated ACE, difficulty walking, fatigue, neuropathy, myclonus, etcc. I think they have run out of options so they are just going to see how the ENT does with the Meniere's.Reading about the treatment you are receiving also makes me mad. We all need patient advocates. I for one do not have the patience, energy, time, or money to shop for doctors or to do all the struggling involved. I know there are a lot of websites with information, but is anyone doing anything to actually assist patients? Becky_______________________________________________Join Excite! - http://www.excite.comThe most personalized portal on the Web!

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice.

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