Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Welcome to the group! My name is and I am a SAHM to 6 boys and a soon to be Grandma in March. I have hypothyroidism.mitral valve prolapse,menieres disease,and a few other misc. illnesses.Some still undiagnosed. I am glad that you joined us! I look forward to getting to know you. -- 's Introduction My name's and I live in the Portland Metro Area of Oregon with my husband, one year old son and two pets -- a dog and cat, both of which lack serious brain power. I'm on disability for a variety of medical issues including an inner ear / vestibular / balance disorder and panic / anxiety disorder without agoraphobia. My issues make it difficult for me to not only work but have any type of socialization or life outside our living quarters. Due to this, I spend a great deal of time on the computer - - about 90 percent of my weekly socialization comes from computer related activities -- and being a Mother. I try and occupy myself with as many things as possible to keep me from going stir-crazy. Currently, I'm looking at trying to put together an activity club / group for the children and younger adults in the community. I am also involved in web design and have a site dedicated to those with chronic illness and disease as well as those who care for them. Besides all of the above, I read, primarily fantasy, science fiction, computer related material and arts and crafts things; I write, not only for my website but romance related material and fantasy inspired "stuff"; I love playing board games; am interested in a variety of shows, movies and music, and making my son laugh. I love to talk, as you can probably imagine, and love to help whenever and where ever I can. I am looking for any information regarding LEGAL and DOABLE work at home "things" -- I hate being on disability but I can't hold down a job in the outside world -- as well as people to connect with. PDX, OR ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick Community Message Archives-/messages Chat:- Scheduled Chats at /chat Bookmarks:- Add a website URL you have found useful. /links Personal Complaints or problems:- Please contact a moderator email: -owner Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into groups at your convenience and receive no email. To modify your subscription settings please visit:- /join To subscribe or unsubscribe please email:- -subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician. ~~~~ *** ~~~ *** ~~~ *** ~~~~ When nothing is sure, everything is possible. --- Margaret Drabble ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 I am sorry I can't help you, but welcome and good luck! Christin 's Introduction > > > > My name's and I live in the Portland Metro Area of Oregon with > my husband, one year old son and two pets -- a dog and cat, both of > which lack serious brain power. > > I'm on disability for a variety of medical issues including an inner > ear / vestibular / balance disorder and panic / anxiety disorder > without agoraphobia. My issues make it difficult for me to not only > work but have any type of socialization or life outside our living > quarters. Due to this, I spend a great deal of time on the computer - > - about 90 percent of my weekly socialization comes from computer > related activities -- and being a Mother. I try and occupy myself > with as many things as possible to keep me from going stir-crazy. > > Currently, I'm looking at trying to put together an activity club / > group for the children and younger adults in the community. I am > also involved in web design and have a site dedicated to those with > chronic illness and disease as well as those who care for them. > > Besides all of the above, I read, primarily fantasy, science > fiction, computer related material and arts and crafts things; I > write, not only for my website but romance related material and > fantasy inspired " stuff " ; I love playing board games; am interested > in a variety of shows, movies and music, and making my son laugh. > > I love to talk, as you can probably imagine, and love to help > whenever and where ever I can. > > I am looking for any information regarding LEGAL and DOABLE work at > home " things " -- I hate being on disability but I can't hold down a > job in the outside world -- as well as people to connect with. > > > PDX, OR > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > > Message Archives-/messages > > Chat:- Scheduled Chats at > /chat > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator > email: -owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to > browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into groups at your > convenience and receive no email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > This group is not intended to diagnose or treat illnesses. No one on this > group is qualified to diagnose medical conditions. If you feel you need > medical attention, seek the advice of a qualified physician. > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > When nothing is sure, everything is possible. > > --- Margaret Drabble > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 Hi , Welcome to the list. I haven't heard from you for some time. We worked for OMS at the same time. I hope to see more from you on the list. Owen Donnelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 I recently joined your support group as I want to solidify my decision not to reconstruct with implants. I have learned a lot by reading many of your archived messages. I would encourage some of you who have gone through breast cancer and explanted to please join breastcancer2/ which is a breast cancer support group. I think your experiences could help women make more informed decisions. Here's my story... I support each woman's right to search for her own answers and make her own choice. In August, 2007, I was homeschooling my two sons (7 and 14). My husband's job had him working an unpredictable schedule. My extended family was living 2-3 days drive away. When I found the lump on the left underarm area and also small lumps going from there to the nipple, I had a strong feeling that side was heading for a mastectomy. After I had the largest lump biopsied, the surgeon said he recommended that I have a modified radical on that side as he highly suspected the nodes would be effected too. I have a history of severe sciatica pain due to back issues. It is actually not an issue for me right now, but from 1999-2003 I was in screaming pain 24/7. With DD breasts, I wanted to avoid being unbalanced and the possibility of back/leg pain from that imbalance... I researched the archives of BreastCancer2 as well as many sites online and realized I also had cancer phobia and didn't want to worry about future mammograms, lump biopsies, etc. I asked group members to chime in an tell me what they would do if they had it to do over again. I loved that a lot of 20 year survivors said they were happy with their bilateral choice. Many said their mothers had long happy lives after their bilateral surgeries though they were not always happy with the prostheses available at the time. I felt certain I wanted one surgery only and would rather have both removed and minimize my time recovering. I wanted to minimize the trauma to my family life. I felt I was heading for chemo and didn't want to deal with recovering from any reconstruction at the same time. I wanted to be able to feel for lumps in the future. The good news is; the 2 years since my surgery have been free of back/sciatica pain. And, there was a lump found in the breast we all thought was clear. I'm glad it's gone. Everything healed well and I am pain free. The not-so-good news is that the mastectomy surgeon felt I might possibly want reconstruction somewhere in the future and surprised me by leaving my chest with lots of loose skin (no nipples) but " pockets " that had held all the DD breast tissue. (I regret not bringing in photos or insisting on seeing photos of what I wanted...a flat chest.) My chest is not a pretty sight, nor even a neutral sight when bare. It's pretty darn revolting. Maybe years from now I'll have the excess skin removed. 13 lymph nodes were removed. Two showed cancer. I ended up with quite a few months of lymph edema (huge uncomfortable swelling of the left arm and hand) before I found a way to control it. I was very concerned that any additional surgery or reconstruction would make the lymph edema flare again. I don't want any added pressure in there. I went flat at home and often in public for many months. Other months tried various $$$ prostheses, but they are quite heavy or hot by the end of the day. I now am happy using lightweight forms I found at Joanne's Fabric...who would have thought. They are cheap and very light weight. I have sewn them into my favorite high-necked swimming suits and a few bras. They stay in place comfortably. It's been a big adjustment to my wardrobe as all the sexy scoop- necked and V-necked things I acquired over YEARS have been replaced by jewel necked items. God bless second hand stores :-) Some husbands are supportive. Some struggle with the change. I won't share which it is in our house. Mostly, I am very happy with my decision as I know in my heart it was right for me. Hugs, M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Hi ! Thanks for sharing your important message! Welcome to our group. I am so very sorry to read of your struggles with breast cancer. It is devasting..I can only imagine. It sounds like you have been the victor though...a very incredible fight you can be proud of winning. I'm glad to hear that our group has helped you remain firm in your decision not to get implants. You are a smart woman...let me just congratulate you on your very intelligent decision. It sounds like you found the right answer for you! Those lightweight pads sound perfect. I love cheap solutions! I hope that some of our group members who have struggled with implants and cancer will join the group that you suggested. It is a tragedy to go through breast cancer; it is a needless tragedy to go through the suffering of illness from breast implants after cancer. Thanks again for sharing your story with us. I am hoping that you are in a supportive, loving relationship still after going through your battles. We need our men to be the knights and heros they were meant to be...life is just hard. God bless, Patty > > I recently joined your support group as I want to solidify my decision not to reconstruct with implants. I have learned a lot by reading many of your archived messages. I would encourage some of you who have gone through breast cancer and explanted to please join > breastcancer2/ which is a breast cancer support group. I think your experiences could help women make more informed decisions. > > Here's my story... > > I support each woman's right to search for her own answers and make her own choice. > > In August, 2007, I was homeschooling my two sons (7 and 14). My husband's job had him working an unpredictable schedule. My extended family was living 2-3 days drive away. > When I found the lump on the left underarm area and also small lumps going from there to the nipple, I had a strong feeling that side was heading for a mastectomy. After I had the largest lump biopsied, the surgeon said he recommended that I have a modified radical on that side as he highly suspected the nodes would be effected too. > I have a history of severe sciatica pain due to back issues. It is actually not an issue for me right now, but from 1999-2003 I was in screaming pain 24/7. With DD breasts, I wanted to avoid being unbalanced and the possibility of back/leg pain from that imbalance... > > I researched the archives of BreastCancer2 as well as many sites online and realized I also had cancer phobia and didn't want to worry about future mammograms, lump biopsies, etc. I asked group members to chime in an tell me what they would do if they had it to do over again. I loved that a lot of 20 year survivors said they were happy with their bilateral choice. Many said their mothers had long happy lives after their bilateral surgeries though they were not always happy with the prostheses available at the time. > I felt certain I wanted one surgery only and would rather have both removed and minimize my time recovering. > I wanted to minimize the trauma to my family life. > I felt I was heading for chemo and didn't want to deal with recovering from any reconstruction at the same time. > I wanted to be able to feel for lumps in the future. > > The good news is; the 2 years since my surgery have been free of back/sciatica pain. And, there was a lump found in the breast we all thought was clear. I'm glad it's gone. Everything healed well and I am pain free. > > The not-so-good news is that the mastectomy surgeon felt I might possibly want reconstruction somewhere in the future and surprised me by leaving my chest with lots of loose skin (no nipples) but " pockets " that had held all the DD breast tissue. (I regret not bringing in photos or insisting on seeing photos of what I wanted...a flat chest.) My chest is not a pretty sight, nor even a neutral sight when bare. It's pretty darn revolting. Maybe years from now I'll have the excess skin removed. > 13 lymph nodes were removed. Two showed cancer. I ended up with quite a few months of lymph edema (huge uncomfortable swelling of the left arm and hand) before I found a way to control it. > I was very concerned that any additional surgery or reconstruction would make the lymph edema flare again. I don't want any added pressure in there. > > I went flat at home and often in public for many months. Other months tried various $$$ prostheses, but they are quite heavy or hot by the end of the day. > I now am happy using lightweight forms I found at Joanne's Fabric...who would have thought. They are cheap and very light weight. I have sewn them into my favorite high-necked swimming suits and a few bras. They stay in place comfortably. > > It's been a big adjustment to my wardrobe as all the sexy scoop- necked and V-necked things I acquired over YEARS have been replaced by jewel necked items. God bless second hand stores :-) > > Some husbands are supportive. Some struggle with the change. I won't share which it is in our house. > > Mostly, I am very happy with my decision as I know in my heart it was right for me. > > Hugs, > M. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Thank you for the welcome, Patty. I do hope some of the list members from the Saline Support group pop in to share their stories at the BC2 group. The topic of implants comes up almost daily. They are all so hopeful and seem to listen only to their plastic surgeons. M. > > > > > I recently joined your support group as I want to solidify my decision not to reconstruct with implants. I have learned a lot by reading many of your archived messages. I would encourage some of you who have gone through breast cancer and explanted to please join > > breastcancer2/ which is a breast cancer support group. I think your experiences could help women make more informed decisions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 I love the name "rosary acres"! Darlene To: RawDairy Sent: Fri, November 5, 2010 10:23:07 PMSubject: 's Introduction Hi All,My family and I have been drinking raw goats milk for a while from our dairy goats. We have just started drinking raw cows milk from a local dairy and are hooked!We have a small farm in PA and have dairy goats, horses and chickens. We are looking for a family cow...preferably a Jersey.We are also very interested in the Westin Price Foundation.Thanks for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010  Depending on where you are in PA , we have threeJersey Holstein crosses, that are short and used to families. Two would be suitable for a family milker, easy to milk by hand or machine and stand very nicely. One has a calf on her and if you bought both calf and cow you could "take vacations" if you needed and separate the calf if you wanted milk. If interested email goatmilk@... Rhonda in town, NY 's Introduction Hi All,My family and I have been drinking raw goats milk for a while from our dairy goats. We have just started drinking raw cows milk from a local dairy and are hooked!We have a small farm in PA and have dairy goats, horses and chickens. We are looking for a family cow...preferably a Jersey.We are also very interested in the Westin Price Foundation.Thanks for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010  Depending on where you are in PA , we have threeJersey Holstein crosses, that are short and used to families. Two would be suitable for a family milker, easy to milk by hand or machine and stand very nicely. One has a calf on her and if you bought both calf and cow you could "take vacations" if you needed and separate the calf if you wanted milk. If interested email goatmilk@... Rhonda in town, NY 's Introduction Hi All,My family and I have been drinking raw goats milk for a while from our dairy goats. We have just started drinking raw cows milk from a local dairy and are hooked!We have a small farm in PA and have dairy goats, horses and chickens. We are looking for a family cow...preferably a Jersey.We are also very interested in the Westin Price Foundation.Thanks for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010  Depending on where you are in PA , we have threeJersey Holstein crosses, that are short and used to families. Two would be suitable for a family milker, easy to milk by hand or machine and stand very nicely. One has a calf on her and if you bought both calf and cow you could "take vacations" if you needed and separate the calf if you wanted milk. If interested email goatmilk@... Rhonda in town, NY 's Introduction Hi All,My family and I have been drinking raw goats milk for a while from our dairy goats. We have just started drinking raw cows milk from a local dairy and are hooked!We have a small farm in PA and have dairy goats, horses and chickens. We are looking for a family cow...preferably a Jersey.We are also very interested in the Westin Price Foundation.Thanks for listening! Quote Link to comment Share on other sites More sharing options...
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