Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 > > In answer to: > Date: Mon, 21 Nov 2005 17:07:51 -0600 > From: " Jim & Jennie " > Subject: casein > > I need a study on what the effects casein has on the body when you are autistic and show the very hyper intolerance to it. My mother-in-law is trying to learn about the benefits of not including casein in my little one's diet. Does it actually destroy brain cells like some drugs do? Please if anyone has info. on this, SEND to me. My private email is jlessard@n... Thank in advance!! Jenn & Kali 6 months scd non-dairy > > > and Seroussi, the first well-known proponents of GF/CF diet, had a very informative Frequently Asked Questions section on their website: www.autismndi.com > Karyn and have opposed the use of dairy on SCD for as long as I recall since my being on this group. It doesn't seem to impact that we repeat and repeat that dairy is not mandatory on SCD despite the fact that the yogurt effacy is supported by the millions more friendly bacteria it generates that restore balance in the gut. However, Karyn agrees that there are children who can tolerate casein. Her concern is for those that do not. The proof is in how many parents here have transitioned from GFCF to SCD and experienced success or improvement. Their is a difference between true casein intolerance and general reactions from an immune sytem that perceives danger in many foods and in a random manner. When I last made an estimate, 85% of pecanbread members were originally GFCF and had either reached a plateau or ceased to make progress. they will tell you and your husband's mom in their own words about their histories with dairy and especially the yogurt. Carol F. Toronto, Celiac, SCD 5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 > > In answer to: > Date: Mon, 21 Nov 2005 17:07:51 -0600 > From: " Jim & Jennie " > Subject: casein > > I need a study on what the effects casein has on the body when you are autistic and show the very hyper intolerance to it. My mother-in-law is trying to learn about the benefits of not including casein in my little one's diet. Does it actually destroy brain cells like some drugs do? Please if anyone has info. on this, SEND to me. My private email is jlessard@n... Thank in advance!! Jenn & Kali 6 months scd non-dairy > > > and Seroussi, the first well-known proponents of GF/CF diet, had a very informative Frequently Asked Questions section on their website: www.autismndi.com > Karyn and have opposed the use of dairy on SCD for as long as I recall since my being on this group. It doesn't seem to impact that we repeat and repeat that dairy is not mandatory on SCD despite the fact that the yogurt effacy is supported by the millions more friendly bacteria it generates that restore balance in the gut. However, Karyn agrees that there are children who can tolerate casein. Her concern is for those that do not. The proof is in how many parents here have transitioned from GFCF to SCD and experienced success or improvement. Their is a difference between true casein intolerance and general reactions from an immune sytem that perceives danger in many foods and in a random manner. When I last made an estimate, 85% of pecanbread members were originally GFCF and had either reached a plateau or ceased to make progress. they will tell you and your husband's mom in their own words about their histories with dairy and especially the yogurt. Carol F. Toronto, Celiac, SCD 5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Kali's grandma won't even send me or tell me her email address. She is the kind of person that sticks with whatever the dr.'s say and will not hear about anything that will discredit what she already knows and that appears to be everything! Jenn & Kali 6 months scd --- Original Message ----- To: " SCD Listserve " pecanbread > Sent: Tuesday, November 22, 2005 5:24 AM Subject: Casein > In answer to: > Date: Mon, 21 Nov 2005 17:07:51 -0600 > > Subject: casein > > I need a study on what the effects casein has on the body when you are autistic and show the very hyper intolerance to it. My mother-in-law is trying to learn about the benefits of not including casein in my little one's diet. Does it actually destroy brain cells like some drugs do? Please if anyone has info. on this, SEND to me. My private email is jlessard@.... Thank in advance!! Jenn & Kali 6 months scd non-dairy > > > and Seroussi, the first well-known proponents of GF/CF diet, had a very informative Frequently Asked Questions section on their website: www.autismndi.com > > The direct link to the FAQ's page is below. I don't see as their answers are as in-depth as I have found in the past, but the in-depth answer to your question may be elsewhere on the website. Also, the original FAQ's that I found so helpful were listed in the book: Biological Treatments for Autism and PDD by Shaw, PhD. About 5 years ago, these 2 sources explained well to me how casein is a protein that breaks down into peptides, and in a leaky (damaged) gut like our children have, these peptides go straight to the body's systems through the blood, rather than getting broken down properly to be used like healthy people may use them. In the brain, these peptides act as an opiate to our kids. Take the casein out, peptides don't go to the brain, the child's brain is suddenly functioning more clearly, often described as a lifting of fog by older children/adults with autism. For my daughter, when we removed the opiate, just like breaking any addiction to an opiate, she sudde > > http://www.autismndi.com/faq/ > > P.S. I hope the mother-in-law's interest is to help Kali, not to disprove this as hogwash. (I fear for you that the latter is the case, particularly because it's Thanksgiving week and relatives tend to be less understanding of diet restrictions when it's time to lay out the traditional feast.) I know what it's like to have in-laws doubt every choice you make, no matter that your choices have brought about obvious improvement. Likely, no matter what you do, this type of person's judgment of you and negativity won't change. So, hand them books and printouts from the internet (which they probably won't read, if they're like my in-laws) but don't let anyone make you doubt your choices for your daughter. Get your affirmations and doubts from how Kali is doing, not from anyone who doesn't have experience raising or being a hurting child. > > Nannette, IBS, SCD 2 months > daughter, , autism, 13yo, SCD 2 months > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 After reading you posts about casein I was wondering...Doesn't it make sense too that while on SCD the gut will heal. And this healing will aid in the breakdown of casein, prevent it from leaking from the gut and going to the brain? This would permanently break the cycle of opiate addiction from casein and gluten because they are no longer in the opiate form going to the brain causeing the opiate " high " ??????? Just a thought mother of Caden 2.5 years, SCD since 2/05 for intestinal yeast and Emmalynn 11 months > > Kali's grandma won't even send me or tell me her email address. She is the > kind of person that sticks with whatever the dr.'s say and will not hear > about anything that will discredit what she already knows and that appears > to be everything! Jenn & Kali 6 months scd --- Original Message ---- - > From: " Nannette Silvernail " > To: " SCD Listserve " pecanbread > > Sent: Tuesday, November 22, 2005 5:24 AM > Subject: Casein > > > > In answer to: > > Date: Mon, 21 Nov 2005 17:07:51 -0600 > > From: " Jim & Jennie " > > Subject: casein > > > > I need a study on what the effects casein has on the body when you are > autistic and show the very hyper intolerance to it. My mother-in- law is > trying to learn about the benefits of not including casein in my little > one's diet. Does it actually destroy brain cells like some drugs do? Please > if anyone has info. on this, SEND to me. My private email is > jlessard@n... Thank in advance!! Jenn & Kali 6 months scd non-dairy > > > > > > and Seroussi, the first well-known proponents of GF/CF > diet, had a very informative Frequently Asked Questions section on their > website: www.autismndi.com > > > > The direct link to the FAQ's page is below. I don't see as their answers > are as in-depth as I have found in the past, but the in-depth answer to your > question may be elsewhere on the website. Also, the original FAQ's that I > found so helpful were listed in the book: Biological Treatments for Autism > and PDD by Shaw, PhD. About 5 years ago, these 2 sources explained > well to me how casein is a protein that breaks down into peptides, and in a > leaky (damaged) gut like our children have, these peptides go straight to > the body's systems through the blood, rather than getting broken down > properly to be used like healthy people may use them. In the brain, these > peptides act as an opiate to our kids. Take the casein out, peptides don't > go to the brain, the child's brain is suddenly functioning more clearly, > often described as a lifting of fog by older children/adults with autism. > For my daughter, when we removed the opiate, just like breaking any > addiction to an opiate, she sudde > > > > http://www.autismndi.com/faq/ > > > > P.S. I hope the mother-in-law's interest is to help Kali, not to disprove > this as hogwash. (I fear for you that the latter is the case, particularly > because it's Thanksgiving week and relatives tend to be less understanding > of diet restrictions when it's time to lay out the traditional feast.) I > know what it's like to have in-laws doubt every choice you make, no matter > that your choices have brought about obvious improvement. Likely, no matter > what you do, this type of person's judgment of you and negativity won't > change. So, hand them books and printouts from the internet (which they > probably won't read, if they're like my in-laws) but don't let anyone make > you doubt your choices for your daughter. Get your affirmations and doubts > from how Kali is doing, not from anyone who doesn't have experience raising > or being a hurting child. > > > > Nannette, IBS, SCD 2 months > > daughter, , autism, 13yo, SCD 2 months > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 > > Kali's grandma won't even send me or tell me her email address. She is the > kind of person that sticks with whatever the dr.'s say and will not hear > about anything that will discredit what she already knows and that appears > to be everything! I do not like to meddle in family relationships but we frequently encounter grandparents or a divorced parent who opposes SCD and this poses so much additional stress and anxiety in an already challenging situation. Try to be as firm and tactful as possible, perhaps saying you will give SCD a one month trial (with or without yogurt) and ask her to desist from criticism for that short period of time. Tell her you appreciate her input and concern. Do you speak with her on the phone or have the blessing of occasional visits? :-) Carol F. Toronto, Celiac, SCD 5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Yes, you are so right! The latest scientific studies show that the gut microorganisms are responsible for the problems with dairy. Here I wrote about one such study. http://health.groups.yahoo.com/group/pecanbread/message/38263 I will try to send another one later tonight. Mimi > > After reading you posts about casein I was wondering...Doesn't it > make sense too that while on SCD the gut will heal. And this > healing will aid in the breakdown of casein, prevent it from leaking > from the gut and going to the brain? This would permanently break > the cycle of opiate addiction from casein and gluten because they are > no longer in the opiate form going to the brain causeing the > opiate " high " ??????? > > Just a thought > mother of Caden 2.5 years, SCD since 2/05 for intestinal yeast > and Emmalynn 11 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 > > We do not speak on the phone. We do not speak much at all. We do not agree > about most things. We haven't in the last 10 yrs. I do have compassion for > her though as she is also ill and needs some real help. We just disagree > when it comes to how I am raising my daughter for the most part. She always > tells me that she must have done something right because all her kids are > still here. She couldn't be farther from the truth about that. 2/3 of her > kids have attention problems badly and they are trying to live their lives > the best they can now as they are in their 20's. I only have the blessing of > visits about 4 times a year. I will take K away for a year if I have to in > order for her to heal. Anyone want to put us up? Just kidding. Thanks for > all the input though. Jenn & Kali 6 monthd scd Re: Casein Years ago there was a Dr. Bruno Bettleheim who blamed mothers for their children's autism. He called them " Refrigerator Moms " and implied they were somehow rejecting their children. This did irreparable damage to families of autistic children. Elaine was horrified by this attitude to her dying day Do not be compromised or intimidated by aspersions on your parenting! You have enogh to deal with. http://www.sentex.net/~nexus23/md_01.html Carol F. Toronto, Celiac, SCD 5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 In response to: Message: 9 Date: Tue, 22 Nov 2005 12:17:24 -0000 Subject: Re: Casein " Karyn agrees that there are children who can tolerate casein. Her concern is for those that do not. The proof is in how many parents here have transitioned from GFCF to SCD and experienced success or improvement. " I'm sorry, my brain momentarily lapsed and I forgot that some casein is within the SCD diet. This explanation of harm from casein is still accurate IF your child has a system which is leaky and can't tolerate the casein yet--so use with in-laws boldly if desired. :-) I imagine that the leaks will soon be fixed if you are following SCD diligently! I will add that my daughter was casein-free for many years and we have introduced some legal casein now that we're on SCD and she seems to have no negative reaction. Still can't get yogurt into her, but I make it for myself and will keep trying to tempt her with it, and to sneak it into things. Nannette IBS, SCD 2 months daughter, , autism, 13yo, SCD 2 months Quote Link to comment Share on other sites More sharing options...
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