Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 I'm not sure what you've tried so far, but I would definitely begin your family on the Specific Carbohydrate Diet, and make sure that you're working with a qualified DAN! doctor. Begin the SCD by reading the book " Breaking the Vicious Cycle " . Marilyn leaky gut, SCD 9 weeks What Now >I feel the need to express myself to people who have been or are > experiencing some of the same things as myself and my family. At 3 yrs > old we were told that my son was austistic. It has been down hill > since then. I have reached out to get help from every organization > thats under the sun ( I think ). The problems dont seem to go away or > get any better. All of a sudden when he doesnt get his way he wets his > clothes and then wants to change in to fresh ones. He is now 10 yrs > old, very combative and the whole nine yards. He is on medication but > it doesnt seem to help. I am looking for any support groups that may > be avaiable to me and my family. I live in Wayne county. Anybody that > can help or lead me in the right direction please do so. > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 I am looking for any support groups that may > > be avaiable to me and my family. I live in Wayne county. Anybody > that > can help or lead me in the right direction please do so. Do you mean Wayne County MI? There is a woman on this list - am I correct in assuming you're new? - who sets people up with mentors for the diet. I don't know how complete her info is but maybe she can find someone whose child is on the diet for autism too, not IBD, etc. Also, have you tried this diet or any others? Those details may help people who can, help you. I wish you all the best and know that everyone here is thinking of you, and more than a few are likely to have some solid advice and direction. Take care, Fay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Dear Friend!!! Don't give up!!! www.nationalautismassociation.org is a great web page for resources. If you go to the link and scroll down to the section where it says yellow pages for kids with disabilities, you can type in your state and a lot of info (parents groups, kids groups, support groups, etc.) will be there. Another good web page is www.generationrescue.org. They list " rescue angels " or in other words, people who have been going through what you are in your area who are available via phone, email or perhaps in person at no charge. I agree, The SCD diet is absolutely wonderful. " Breaking the Vicious Cycle " is a must have book. My ASD son has shown remarkable improvements and has only been on the diet for 3 weeks. He has formed normal stools daily (he had 4 months of green river stools). Learned how to self-feed. Has never done this nor tried it before. I had him GF/CF for 6 months before trying the SCD diet. He initially did well on the GF/CF but then he was even worse after a few months. My other suggestion is to buy this book: " Autism: Effective Biomedical Treatments (Have We Done Everything We Can For This Child? Individuality In An Epidemic) " By M.D. Sidney Baker and Ph.d. Jon Pangborn I believe it is $30 on Amazon.com. They talk alot about the SCD diet in the book and have said that out of all the dietary interventions for ASD children, this one shows the most promise. They also say the initial step in helping your child is with diet and cleaning up the gut. Then adding vitamins & minerals, enzymes, probiotics, etc. There is a specific order and a specific way that these items should be introduced. I feel very fortunate to have found SCD as well as the book by Drs. Baker & Pangborn. I really feel that my son will improve physically and mentally if we stick with it. Hope this helps! Let me know if you need further information. Regards, Tammy ( (Autistic) 2 years, 8 months; -- SCD 3 weeks) > > I feel the need to express myself to people who have been or are > experiencing some of the same things as myself and my family. At 3 yrs > old we were told that my son was austistic. It has been down hill > since then. I have reached out to get help from every organization > thats under the sun ( I think ). The problems dont seem to go away or > get any better. All of a sudden when he doesnt get his way he wets his > clothes and then wants to change in to fresh ones. He is now 10 yrs > old, very combative and the whole nine yards. He is on medication but > it doesnt seem to help. I am looking for any support groups that may > be avaiable to me and my family. I live in Wayne county. Anybody that > can help or lead me in the right direction please do so. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Dear Friend!!! Don't give up!!! www.nationalautismassociation.org is a great web page for resources. If you go to the link and scroll down to the section where it says yellow pages for kids with disabilities, you can type in your state and a lot of info (parents groups, kids groups, support groups, etc.) will be there. Another good web page is www.generationrescue.org. They list " rescue angels " or in other words, people who have been going through what you are in your area who are available via phone, email or perhaps in person at no charge. I agree, The SCD diet is absolutely wonderful. " Breaking the Vicious Cycle " is a must have book. My ASD son has shown remarkable improvements and has only been on the diet for 3 weeks. He has formed normal stools daily (he had 4 months of green river stools). Learned how to self-feed. Has never done this nor tried it before. I had him GF/CF for 6 months before trying the SCD diet. He initially did well on the GF/CF but then he was even worse after a few months. My other suggestion is to buy this book: " Autism: Effective Biomedical Treatments (Have We Done Everything We Can For This Child? Individuality In An Epidemic) " By M.D. Sidney Baker and Ph.d. Jon Pangborn I believe it is $30 on Amazon.com. They talk alot about the SCD diet in the book and have said that out of all the dietary interventions for ASD children, this one shows the most promise. They also say the initial step in helping your child is with diet and cleaning up the gut. Then adding vitamins & minerals, enzymes, probiotics, etc. There is a specific order and a specific way that these items should be introduced. I feel very fortunate to have found SCD as well as the book by Drs. Baker & Pangborn. I really feel that my son will improve physically and mentally if we stick with it. Hope this helps! Let me know if you need further information. Regards, Tammy ( (Autistic) 2 years, 8 months; -- SCD 3 weeks) > > I feel the need to express myself to people who have been or are > experiencing some of the same things as myself and my family. At 3 yrs > old we were told that my son was austistic. It has been down hill > since then. I have reached out to get help from every organization > thats under the sun ( I think ). The problems dont seem to go away or > get any better. All of a sudden when he doesnt get his way he wets his > clothes and then wants to change in to fresh ones. He is now 10 yrs > old, very combative and the whole nine yards. He is on medication but > it doesnt seem to help. I am looking for any support groups that may > be avaiable to me and my family. I live in Wayne county. Anybody that > can help or lead me in the right direction please do so. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Dear Friend!!! Don't give up!!! www.nationalautismassociation.org is a great web page for resources. If you go to the link and scroll down to the section where it says yellow pages for kids with disabilities, you can type in your state and a lot of info (parents groups, kids groups, support groups, etc.) will be there. Another good web page is www.generationrescue.org. They list " rescue angels " or in other words, people who have been going through what you are in your area who are available via phone, email or perhaps in person at no charge. I agree, The SCD diet is absolutely wonderful. " Breaking the Vicious Cycle " is a must have book. My ASD son has shown remarkable improvements and has only been on the diet for 3 weeks. He has formed normal stools daily (he had 4 months of green river stools). Learned how to self-feed. Has never done this nor tried it before. I had him GF/CF for 6 months before trying the SCD diet. He initially did well on the GF/CF but then he was even worse after a few months. My other suggestion is to buy this book: " Autism: Effective Biomedical Treatments (Have We Done Everything We Can For This Child? Individuality In An Epidemic) " By M.D. Sidney Baker and Ph.d. Jon Pangborn I believe it is $30 on Amazon.com. They talk alot about the SCD diet in the book and have said that out of all the dietary interventions for ASD children, this one shows the most promise. They also say the initial step in helping your child is with diet and cleaning up the gut. Then adding vitamins & minerals, enzymes, probiotics, etc. There is a specific order and a specific way that these items should be introduced. I feel very fortunate to have found SCD as well as the book by Drs. Baker & Pangborn. I really feel that my son will improve physically and mentally if we stick with it. Hope this helps! Let me know if you need further information. Regards, Tammy ( (Autistic) 2 years, 8 months; -- SCD 3 weeks) > > I feel the need to express myself to people who have been or are > experiencing some of the same things as myself and my family. At 3 yrs > old we were told that my son was austistic. It has been down hill > since then. I have reached out to get help from every organization > thats under the sun ( I think ). The problems dont seem to go away or > get any better. All of a sudden when he doesnt get his way he wets his > clothes and then wants to change in to fresh ones. He is now 10 yrs > old, very combative and the whole nine yards. He is on medication but > it doesnt seem to help. I am looking for any support groups that may > be avaiable to me and my family. I live in Wayne county. Anybody that > can help or lead me in the right direction please do so. > Quote Link to comment Share on other sites More sharing options...
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