Re: Re: chelation and antifungal, GI's in CT

[Guest guest]

Hi Sheila,

Thank you so much for your response. It was compounded Nystatin and those

behavoirs were with epson salt baths (which are great!) and activated charcoal

(without his eating would drop by up to 100 calories a day). What are the other

natural antifungals besides Saccharomyes Boulardii? We already started

chelation and don't know if we want to continue for the whole month. Have you or

any one reading heard of it to be harmful to just stop after a few days? Thank

you so much for the link to supplements I was going to do my research today

because it does need to be addressed. You saved me some time ( : And I want to

do SCD 100% and I just don't know what to do about this Dr.!!! Does anyone know

a good GI Dr. in CT that really knows SCD. She is a DAN and I don't mind

keeping her around, although I don't know if we can ($$) but I would really want

a GI or ped. that is going to be fully focused fully on healing his gut.

Thanks,

, Elijah (ASD) and a

Sheila Trenholm sheilat@...> wrote:

Hi ,

> I would really appreciate some imput. Elijah is almost

fully SCD, we just have to address the processed meats and are

waiting to start the beginners diet until after his 3rd b-day and

party this coming weekend. We started chelation 10 days ago and he

has been on Amphotericin for 2 months after being on Saccharomyes

Boulardii and Nystatin for a month each. In light of the the recent

post about Elaine stating that one should have a year of healing

before chelation, which makes a lot of sense, we want to stop. But

should we continue now that we have started and should we wean

down? And I'm concerned that being on an antifungal for a prolonged

period of time would create super bugs.

Many rotate the antifungals (Natural antifungals also) to prevent

resistance developing.

There have been reports on this list and our old list that chelation

can cause (and did cause) an increase in harmful microbes. Another

of the reasons for either waiting on chelation or allowing the body

to do it naturally.

> In between each antifungal he was off for 5 days before

going on the next. During that time he was a mess in all areas.

Behavior was the worst I've ever seen. On Saccharomyes Boulardii

he was a mess for the whole month, melt downs and uncomfortable. On

Nystatin he was quite and withdrawn and would say, " I sad mommy.

Elijah's sad, Mommy's sad, Kayla's sad, Daddy's sad, everybodys sad "

nearly everyday the whole month.

Was it compounded Nystatin?

Were you using epsom salt baths/ or activated charcoal to help with

die off?

The second day on Amphotericin he told me, " I happy now Mommy " and

behavior is the best ever! But I don't want to stay on it if it is

creating super bugs. I read a post where people were rotating, and

if that's what might be best I'll do it. I suppose it might be

different a second time around on the antifungal he has tried

previously since many of those bugs may have been killed.

> I will be contacting his DAN, but I cannot rely on her

fully. I like her a lot in many areas, but she has only had two

patients try SCD after 2 years of other therapies. She says having

Elijah on illegal vits is ok and if he can't drink water because he

chokes on thin liquids, having him drink an illegal like rice milk

is ok. She didn't even say that down the line we have to get him

off rice milk or give any indication that it absoultly needed to

happen.

Illegals aren't okay, especially something like rice milk - it will

continue to feed the microbes you are trying to starve out.

There is a list of legal supplements at

http://pecanbread.com/supplements.html

> By the way we slowly sneaked in juice a half ounce at a time. He

didn't want it at first but he got thristy enough and has only been

drinking juice and no illegal liquids for the past week. We saw a

huge die off.

I am glad to hear he is drinking the legal juices now

Sheila, SCD 56 mos, 21 yrs UC

mom of , SCD 41 mos

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com