Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Hi Everyone, I would really appreciate some imput. Elijah is almost fully SCD, we just have to address the processed meats and are waiting to start the beginners diet until after his 3rd b-day and party this coming weekend. We started chelation 10 days ago and he has been on Amphotericin for 2 months after being on Saccharomyes Boulardii and Nystatin for a month each. In light of the the recent post about Elaine stating that one should have a year of healing before chelation, which makes a lot of sense, we want to stop. But should we continue now that we have started and should we wean down? And I'm concerned that being on an antifungal for a prolonged period of time would create super bugs. In between each antifungal he was off for 5 days before going on the next. During that time he was a mess in all areas. Behavior was the worst I've ever seen. On Saccharomyes Boulardii he was a mess for the whole month, melt downs and uncomfortable. On Nystatin he was quite and withdrawn and would say, " I sad mommy. Elijah's sad, Mommy's sad, Kayla's sad, Daddy's sad, everybodys sad " nearly everyday the whole month. The second day on Amphotericin he told me, " I happy now Mommy " and behavior is the best ever! But I don't want to stay on it if it is creating super bugs. I read a post where people were rotating, and if that's what might be best I'll do it. I suppose it might be different a second time around on the antifungal he has tried previously since many of those bugs may have been killed. I will be contacting his DAN, but I cannot rely on her fully. I like her a lot in many areas, but she has only had two patients try SCD after 2 years of other therapies. She says having Elijah on illegal vits is ok and if he can't drink water because he chokes on thin liquids, having him drink an illegal like rice milk is ok. She didn't even say that down the line we have to get him off rice milk or give any indication that it absoultly needed to happen. By the way we slowly sneaked in juice a half ounce at a time. He didn't want it at first but he got thristy enough and has only been drinking juice and no illegal liquids for the past week. We saw a huge die off. Anyways, as you can see our DAN just is not on target. We want to do SCD right because we know it is right. I'm looking for someone else right now so I'm going to be relying on those with experience a lot. Thanks so much, , mom to Elijah UC and a --------------------------------- Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.