Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Patty, Yes, Thank you. I am really glad I found the Saline Support. I saw the doctors list there and it is really helpful. I am pretty scared about the surgery, but I think it's my best chance to be normal again. If I knew that the implant does not last forever and if I knew this devastating effect it would have on my health I would never have put it in my body. My plastic surgeon never explained this at all. I didn't even know that the implant only lasts about 10 years!! Sunny From: glory2glory1401 <glory2glory1401@...> Sent: Thu, April 1, 2010 12:42:27 PMSubject: Re: Painful lumps? Sunny,Everything Dede has told you is true! And just for the record, one of the most common solutions that the doctors seem to default to is going the anti-depressant route. They did with me too, but I wasn't depressed, I was SICK!!!! To get at the root of the problem, the implants need to be removed. I look at it this way...the implants certainly aren't doing any good, and if there is to be any chance of recovery, the implants should be removed. This gives your body the best chance to get back to its former state of health, minus ANY possible interference with a chemically laden foreign object that the immune system is going to react to. It just makes good sense, doesn't it?And in fact, as we get older, the presence of the implants just becomes a liability. Sooner or later, they need to go. They don't last forever, and the chances of them doing severe damage goes only up, not down. More good sense, right?There are good surgeons in only a few parts of the country. Many plastic surgeons discredit our needs for a proper removal because they don't believe in our illnesses. So, it becomes important to find the right surgeon. We have a list if you are interested in looking at it. You can find it in the files section.We are here to help. I've been living life to the fullest for the past few months, and so have not spent as much time with the group as I'd like, but I'm always just an email away. You will have more questions, so go ahead and ask away. We've got lots of success stories, so we know we are on the right track, contrary to what many doctors say. As Dede pointed out, they have a vested interest in saying that the implants are fine, so you can keep coming back to get your replacements. I believe it's better to be done with them once and for all and learn to love your natural body. I've learned to do that, so if I can, I know others can.Sending hugs and well wishes...you' ve found sisters who know what you are going through. It's a hard road to walk, but there is hope...never give up hope that you will get better.Hugs,Patty>> Dede,> Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them.> > Thanks for all the information. I am glad I have a support group> > Sunny> > > > > ____________ _________ _________ __> From: "DGRAHAMA@.. ." <DGRAHAMA@.. .>> > Sent: Thu, April 1, 2010 12:07:14 PM> Subject: Re: Painful lumps?> >  > Sunny ~ > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. >  > There are many pics in the photo section of saline implants that are full> of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... .>  > Follow your gut instincts. They are usually always right....... read all you can> so you can know what questions to ask, and even copy some of the articles> for your doctor...... should you keep this one. > Many doctors just believe what they are told by the drug companies that> sell the implants.... ...they dont use common sense and really learn about> them. Part of the problem is they arent studying us, the ones that get really > ill from them, and there are hundreds of thousands of us over the years......> There is so much money to be made from them that they just do what they do> to make it easy to sell and hide the sick ones........ many people are ill from implants> and just think it is other things...... even old age. > You know, when I look at my father, and see him live, then look at myself, > I realize the impact chemicals have on the body. My father is 83, on his second> round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma.> This man is active with his church, volunteers at the hospital, comes and visits> me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age.......> OK.....off my high horse.....LOL. ......Educate you ! > Happy reading ! > Hugs ~ Dede> > > > > Painful lumps?> > >  > > One of our former girls is writing to ask if anyone else has had these> painful lumps? Dede, do you or have you heard of anyone else? I have> not heard much about these, but I need to research it in our archives. > The pain I certainly have heard about...just wondering about the lumps?> > It's disheartening to hear of her having issues again, after a period of> recovery. It seems that there are residual problems that creep back> into our lives if we are not vigilant! Here's her letter:> > Hi Patty, I am so sorry it's been so long since I've talked to you! > Unfortunately I am not as well as I was the last time we spoke. I had a> period of complete recovery for about 2 years and then it hit me again> like a ton of bricks. Several things seemed to spark it and I'm not> sure which ones...hormone change, severe sun rash, car accident and a> freak accident at the beach where I broke a rib! After that, I was in> pain all the time and severely fatigued. I have had a severe rash from> sun exposure for 3 years now, hair loss, lumps everywhere and blood as> well as white cells in my urine without any bacteria.> > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are> SOOOO painful to touch. I have over 50 of them, most concentrated areas> are from behind my knee up to mid thigh, stomach from pubic bone to> above belly button, upper chest/breasts. The biggest one seems to be on> my sternum. I had a punch biopsy on one of them on my calf and it just> showed it was a lipoma. I am going to ask the doctor to actually remove> one or two of the most painful to test them fully...perhaps they only> caught a fatty area of the lump the first time??? I did read about an> illness called Dercum's Disease and other than the fact that most who> have the disease are obese, it is me to a T! I mentioned it to my> primary care doc and she wrote it down but hasn't called me to say she's> read up on it, so I'm not sure if she is even researching it.> > Also, I am severely hypermobile and have been since birth. I was> finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.> It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It> can get the sympathetic nervous system all out of wack because it> perceives that the body is always in a fight/flight mode because of how> hard the body has to work just to maintain proper alignment. Along with> EDS, I have a slight Chiarri Malformation where the tonsils of my brain> are lower than they should be which causes headaches because of the> increased cerebral spinal pressure.> > Anyways, I can deal with the EDS and the headaches - currently they are> not that frequent. What I'm concerned about is the blood/white cells in> the urine and the lumps. I need to schedule a cytoscopy so they can> look at my bladder, but haven't done it yet because I owe the urologist> money for a previous test that my insurance didn't cover! I had over> $13,000 in out of pocket expenses last year!> > I'm wondering if other girls have complained about painful lumps> everywhere - I think the only place I don't have them are my neck,> hands, feet and possibly buttocks. Just to give you an idea how painful> they are, before I even knew I had them, I was at the beach 2 years ago> and fell really hard onto a chaise lounge and broke a rib. The rib pain> was so bad I was throwing up. I went to the ER and the nurse put a> turnequet (sp?) on my arm so he could draw blood and I screamed and> cried and begged him to take it off and he wouldn't! From then on, he> treated me like I was a drug seeker and not a tourist who had a terrible> accident within 4 hours of her first day of vacation!!! It wasn't until> at least a year and a half later that I realized he must have put direct> pressure on one of the lumps. I first found them in my chest and> breasts and then the back of my knees and one day I decided to put some> massage oil on my skin and try to find others and that's when I found> the one on my arm as well as everywhere else.> > I hope you are doing well. Every time I see something on TV about Vegas> I think about you. I'm happily re-married and I'm working selling> advertising at 2 local radio stations and having a great time. This> past fall and winter I thought about quitting, but I'm not going to let> this illness steal anymore of my life!> > > ____________ _________ _________ __> The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Patty ~ I have no idea why they are forming.......and right now I dont have the money to go see someone. I have to take care of the lung thing and this upcoming heart surgery first. You know 20 percent doesnt sound like much to spend but with the diagnoses I have, its very high...cuz the more serious sounding the diagnoses, the more they can charge and get by with it. Since I am on disability and have medicare coverage, I am no longer a person, I am a number in the medical field........its sad, but true... I would do almost anything to have my health back and be able to work.... I hate living in almost isolation, so I have taken it and I make happy the best I can with it. I am so lucky and blessed to have been born with the " always happy " gene......and the " easy to occupy myself " gene..... Dont get me wrong, I have had some down times......but for the most part I can make happy of most anything......... Love ya girl ! ! Dede Painful lumps? > > > > > > One of our former girls is writing to ask if anyone else has had these > painful lumps? Dede, do you or have you heard of anyone else? I have > not heard much about these, but I need to research it in our archives. > The pain I certainly have heard about...just wondering about the lumps? > > It's disheartening to hear of her having issues again, after a period of > recovery. It seems that there are residual problems that creep back > into our lives if we are not vigilant! Here's her letter: > > Hi Patty, I am so sorry it's been so long since I've talked to you! > Unfortunately I am not as well as I was the last time we spoke. I had a > period of complete recovery for about 2 years and then it hit me again > like a ton of bricks. Several things seemed to spark it and I'm not > sure which ones...hormone change, severe sun rash, car accident and a > freak accident at the beach where I broke a rib! After that, I was in > pain all the time and severely fatigued. I have had a severe rash from > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > well as white cells in my urine without any bacteria. > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > SOOOO painful to touch. I have over 50 of them, most concentrated areas > are from behind my knee up to mid thigh, stomach from pubic bone to > above belly button, upper chest/breasts. The biggest one seems to be on > my sternum. I had a punch biopsy on one of them on my calf and it just > showed it was a lipoma. I am going to ask the doctor to actually remove > one or two of the most painful to test them fully...perhaps they only > caught a fatty area of the lump the first time??? I did read about an > illness called Dercum's Disease and other than the fact that most who > have the disease are obese, it is me to a T! I mentioned it to my > primary care doc and she wrote it down but hasn't called me to say she's > read up on it, so I'm not sure if she is even researching it. > > Also, I am severely hypermobile and have been since birth. I was > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > can get the sympathetic nervous system all out of wack because it > perceives that the body is always in a fight/flight mode because of how > hard the body has to work just to maintain proper alignment. Along with > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > are lower than they should be which causes headaches because of the > increased cerebral spinal pressure. > > Anyways, I can deal with the EDS and the headaches - currently they are > not that frequent. What I'm concerned about is the blood/white cells in > the urine and the lumps. I need to schedule a cytoscopy so they can > look at my bladder, but haven't done it yet because I owe the urologist > money for a previous test that my insurance didn't cover! I had over > $13,000 in out of pocket expenses last year! > > I'm wondering if other girls have complained about painful lumps > everywhere - I think the only place I don't have them are my neck, > hands, feet and possibly buttocks. Just to give you an idea how painful > they are, before I even knew I had them, I was at the beach 2 years ago > and fell really hard onto a chaise lounge and broke a rib. The rib pain > was so bad I was throwing up. I went to the ER and the nurse put a > turnequet (sp?) on my arm so he could draw blood and I screamed and > cried and begged him to take it off and he wouldn't! From then on, he > treated me like I was a drug seeker and not a tourist who had a terrible > accident within 4 hours of her first day of vacation!!! It wasn't until > at least a year and a half later that I realized he must have put direct > pressure on one of the lumps. I first found them in my chest and > breasts and then the back of my knees and one day I decided to put some > massage oil on my skin and try to find others and that's when I found > the one on my arm as well as everywhere else. > > I hope you are doing well. Every time I see something on TV about Vegas > I think about you. I'm happily re-married and I'm working selling > advertising at 2 local radio stations and having a great time. This > past fall and winter I thought about quitting, but I'm not going to let > this illness steal anymore of my life! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Hi, I have been following your conversation, and you may not know this, but Dr. Blais told me that the life of a saline implant is only 2 to 4 years. I had my implants for 9 years, and my doctor had added Solumedrol to the saline. Dr. Blais said that reduces their life to a year. You will receive really good advice from the support group, Sunny. You are in good hands. xoxo From: Sun Lee <sunloves@...> Sent: Thu, April 1, 2010 2:52:02 PMSubject: Re: Re: Painful lumps? Patty, Yes, Thank you. I am really glad I found the Saline Support. I saw the doctors list there and it is really helpful. I am pretty scared about the surgery, but I think it's my best chance to be normal again. If I knew that the implant does not last forever and if I knew this devastating effect it would have on my health I would never have put it in my body. My plastic surgeon never explained this at all. I didn't even know that the implant only lasts about 10 years!! Sunny From: glory2glory1401 <glory2glory1401> Sent: Thu, April 1, 2010 12:42:27 PMSubject: Re: Painful lumps? Sunny,Everything Dede has told you is true! And just for the record, one of the most common solutions that the doctors seem to default to is going the anti-depressant route. They did with me too, but I wasn't depressed, I was SICK!!!! To get at the root of the problem, the implants need to be removed. I look at it this way...the implants certainly aren't doing any good, and if there is to be any chance of recovery, the implants should be removed. This gives your body the best chance to get back to its former state of health, minus ANY possible interference with a chemically laden foreign object that the immune system is going to react to. It just makes good sense, doesn't it?And in fact, as we get older, the presence of the implants just becomes a liability. Sooner or later, they need to go. They don't last forever, and the chances of them doing severe damage goes only up, not down. More good sense, right?There are good surgeons in only a few parts of the country. Many plastic surgeons discredit our needs for a proper removal because they don't believe in our illnesses. So, it becomes important to find the right surgeon. We have a list if you are interested in looking at it. You can find it in the files section.We are here to help. I've been living life to the fullest for the past few months, and so have not spent as much time with the group as I'd like, but I'm always just an email away. You will have more questions, so go ahead and ask away. We've got lots of success stories, so we know we are on the right track, contrary to what many doctors say. As Dede pointed out, they have a vested interest in saying that the implants are fine, so you can keep coming back to get your replacements. I believe it's better to be done with them once and for all and learn to love your natural body. I've learned to do that, so if I can, I know others can.Sending hugs and well wishes...you' ve found sisters who know what you are going through. It's a hard road to walk, but there is hope...never give up hope that you will get better.Hugs,Patty>> Dede,> Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them.> > Thanks for all the information. I am glad I have a support group> > Sunny> > > > > ____________ _________ _________ __> From: "DGRAHAMA@.. ." <DGRAHAMA@.. .>> > Sent: Thu, April 1, 2010 12:07:14 PM> Subject: Re: Painful lumps?> >  > Sunny ~ > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. >  > There are many pics in the photo section of saline implants that are full> of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... .>  > Follow your gut instincts. They are usually always right....... read all you can> so you can know what questions to ask, and even copy some of the articles> for your doctor...... should you keep this one. > Many doctors just believe what they are told by the drug companies that> sell the implants.... ...they dont use common sense and really learn about> them. Part of the problem is they arent studying us, the ones that get really > ill from them, and there are hundreds of thousands of us over the years......> There is so much money to be made from them that they just do what they do> to make it easy to sell and hide the sick ones........ many people are ill from implants> and just think it is other things...... even old age. > You know, when I look at my father, and see him live, then look at myself, > I realize the impact chemicals have on the body. My father is 83, on his second> round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma.> This man is active with his church, volunteers at the hospital, comes and visits> me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age.......> OK.....off my high horse.....LOL. ......Educate you ! > Happy reading ! > Hugs ~ Dede> > > > > Painful lumps?> > >  > > One of our former girls is writing to ask if anyone else has had these> painful lumps? Dede, do you or have you heard of anyone else? I have> not heard much about these, but I need to research it in our archives. > The pain I certainly have heard about...just wondering about the lumps?> > It's disheartening to hear of her having issues again, after a period of> recovery. It seems that there are residual problems that creep back> into our lives if we are not vigilant! Here's her letter:> > Hi Patty, I am so sorry it's been so long since I've talked to you! > Unfortunately I am not as well as I was the last time we spoke. I had a> period of complete recovery for about 2 years and then it hit me again> like a ton of bricks. Several things seemed to spark it and I'm not> sure which ones...hormone change, severe sun rash, car accident and a> freak accident at the beach where I broke a rib! After that, I was in> pain all the time and severely fatigued. I have had a severe rash from> sun exposure for 3 years now, hair loss, lumps everywhere and blood as> well as white cells in my urine without any bacteria.> > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are> SOOOO painful to touch. I have over 50 of them, most concentrated areas> are from behind my knee up to mid thigh, stomach from pubic bone to> above belly button, upper chest/breasts. The biggest one seems to be on> my sternum. I had a punch biopsy on one of them on my calf and it just> showed it was a lipoma. I am going to ask the doctor to actually remove> one or two of the most painful to test them fully...perhaps they only> caught a fatty area of the lump the first time??? I did read about an> illness called Dercum's Disease and other than the fact that most who> have the disease are obese, it is me to a T! I mentioned it to my> primary care doc and she wrote it down but hasn't called me to say she's> read up on it, so I'm not sure if she is even researching it.> > Also, I am severely hypermobile and have been since birth. I was> finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.> It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It> can get the sympathetic nervous system all out of wack because it> perceives that the body is always in a fight/flight mode because of how> hard the body has to work just to maintain proper alignment. Along with> EDS, I have a slight Chiarri Malformation where the tonsils of my brain> are lower than they should be which causes headaches because of the> increased cerebral spinal pressure.> > Anyways, I can deal with the EDS and the headaches - currently they are> not that frequent. What I'm concerned about is the blood/white cells in> the urine and the lumps. I need to schedule a cytoscopy so they can> look at my bladder, but haven't done it yet because I owe the urologist> money for a previous test that my insurance didn't cover! I had over> $13,000 in out of pocket expenses last year!> > I'm wondering if other girls have complained about painful lumps> everywhere - I think the only place I don't have them are my neck,> hands, feet and possibly buttocks. Just to give you an idea how painful> they are, before I even knew I had them, I was at the beach 2 years ago> and fell really hard onto a chaise lounge and broke a rib. The rib pain> was so bad I was throwing up. I went to the ER and the nurse put a> turnequet (sp?) on my arm so he could draw blood and I screamed and> cried and begged him to take it off and he wouldn't! From then on, he> treated me like I was a drug seeker and not a tourist who had a terrible> accident within 4 hours of her first day of vacation!!! It wasn't until> at least a year and a half later that I realized he must have put direct> pressure on one of the lumps. I first found them in my chest and> breasts and then the back of my knees and one day I decided to put some> massage oil on my skin and try to find others and that's when I found> the one on my arm as well as everywhere else.> > I hope you are doing well. Every time I see something on TV about Vegas> I think about you. I'm happily re-married and I'm working selling> advertising at 2 local radio stations and having a great time. This> past fall and winter I thought about quitting, but I'm not going to let> this illness steal anymore of my life!> > > ____________ _________ _________ __> The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!> Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 One of our gals had saline implants for only 9 months..... There was mold and fungi in them upon removal....the pics are in the archives......so you just never know....... Painful lumps? > > >  > > One of our former girls is writing to ask if anyone else has had these > painful lumps? Dede, do you or have you heard of anyone else? I have > not heard much about these, but I need to research it in our archives. > The pain I certainly have heard about...just wondering about the lumps? > > It's disheartening to hear of her having issues again, after a period of > recovery. It seems that there are residual problems that creep back > into our lives if we are not vigilant! Here's her letter: > > Hi Patty, I am so sorry it's been so long since I've talked to you! > Unfortunately I am not as well as I was the last time we spoke. I had a > period of complete recovery for about 2 years and then it hit me again > like a ton of bricks. Several things seemed to spark it and I'm not > sure which ones...hormone change, severe sun rash, car accident and a > freak accident at the beach where I broke a rib! After that, I was in > pain all the time and severely fatigued. I have had a severe rash from > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > well as white cells in my urine without any bacteria. > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > SOOOO painful to touch. I have over 50 of them, most concentrated areas > are from behind my knee up to mid thigh, stomach from pubic bone to > above belly button, upper chest/breasts. The biggest one seems to be on > my sternum. I had a punch biopsy on one of them on my calf and it just > showed it was a lipoma. I am going to ask the doctor to actually remove > one or two of the most painful to test them fully...perhaps they only > caught a fatty area of the lump the first time??? I did read about an > illness called Dercum's Disease and other than the fact that most who > have the disease are obese, it is me to a T! I mentioned it to my > primary care doc and she wrote it down but hasn't called me to say she's > read up on it, so I'm not sure if she is even researching it. > > Also, I am severely hypermobile and have been since birth. I was > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > can get the sympathetic nervous system all out of wack because it > perceives that the body is always in a fight/flight mode because of how > hard the body has to work just to maintain proper alignment. Along with > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > are lower than they should be which causes headaches because of the > increased cerebral spinal pressure. > > Anyways, I can deal with the EDS and the headaches - currently they are > not that frequent. What I'm concerned about is the blood/white cells in > the urine and the lumps. I need to schedule a cytoscopy so they can > look at my bladder, but haven't done it yet because I owe the urologist > money for a previous test that my insurance didn't cover! I had over > $13,000 in out of pocket expenses last year! > > I'm wondering if other girls have complained about painful lumps > everywhere - I think the only place I don't have them are my neck, > hands, feet and possibly buttocks. Just to give you an idea how painful > they are, before I even knew I had them, I was at the beach 2 years ago > and fell really hard onto a chaise lounge and broke a rib. The rib pain > was so bad I was throwing up. I went to the ER and the nurse put a > turnequet (sp?) on my arm so he could draw blood and I screamed and > cried and begged him to take it off and he wouldn't! From then on, he > treated me like I was a drug seeker and not a tourist who had a terrible > accident within 4 hours of her first day of vacation!!! It wasn't until > at least a year and a half later that I realized he must have put direct > pressure on one of the lumps. I first found them in my chest and > breasts and then the back of my knees and one day I decided to put some > massage oil on my skin and try to find others and that's when I found > the one on my arm as well as everywhere else. > > I hope you are doing well. Every time I see something on TV about Vegas > I think about you. I'm happily re-married and I'm working selling > advertising at 2 local radio stations and having a great time. This > past fall and winter I thought about quitting, but I'm not going to let > this illness steal anymore of my life! > > > ____________ _________ _________ __ > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! > Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 Hi, Patty I am currently searching for a good plastic surgeon to do the implant so I just saw a plastic surgeon over the weekend and he looked at me funny when I told him that I wanted explantation. He asked me how long I had the implant and when I told him that I had 11 years. He said that I don't have to take it out unless it deflates! He aid it is only salt water and the body would just absorbe it without any problems. He also said that I should replace them and not just take them out. When I asked him if the silicon shells deteriorate over the years he said yes, but he said that it is the most inert substance and has no affect on the body. Can you believe it? Most plastic surgeons either do not know everything about the implant or do not want to disclose accurate information. I also developed a lump in my breast 6 years after I put these implant in and the surgeon said I would have to remove them. Anyway, I will work on it one step at a time. Each one of us need to take charge of our health and our bodies as no one else can. Thanks! Sunny From: glory2glory1401 <glory2glory1401@...> Sent: Mon, April 5, 2010 11:17:14 PMSubject: Re: Painful lumps? Sunny,Most women had no idea what they were getting into with breast implants. I certainly had no idea I could get as sick as I did.The doctors don't help, because they continue to deny that implants are making women ill, when we've seen evidence of this for over 40 years now. And everything keeps changing...when I got implants, I was told they would last my lifetime. About 2 months after my implant surgery, my doctor sent me information that said implants would have to be replaced every 7 years! Wow, talk about bait and switch.It's understandable that you would be scared of the surgery..it' s an unknown to you. But it really isn't too bad...if you have an experience like mine for explant, you will find that the pain is much, much less, and recovery much quicker.I hope you can find the right surgeon...you really need to have the surgery done correctly (en bloc or at least a total capsulectomy with drains). This will be one surgery you want done right the first time.Let me know if you have further questions. I will try to keep in touch as much as possible on the group....just challenged right now!I hope you had a great Easter.Patty> >> > Dede,> > Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them.> > > > Thanks for all the information. I am glad I have a support group> > > > Sunny> > > > > > > > > > ____________ _________ _________ __> > From: "DGRAHAMA@ ." <DGRAHAMA@ .>> > > > Sent: Thu, April 1, 2010 12:07:14 PM> > Subject: Re: Painful lumps?> > > >  > > Sunny ~ > > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. > >  > > There are many pics in the photo section of saline implants that are full> > of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... .> >  > > Follow your gut instincts. They are usually always right....... read all you can> > so you can know what questions to ask, and even copy some of the articles> > for your doctor...... should you keep this one. > > Many doctors just believe what they are told by the drug companies that> > sell the implants.... ..they dont use common sense and really learn about> > them. Part of the problem is they arent studying us, the ones that get really > > ill from them, and there are hundreds of thousands of us over the years......> > There is so much money to be made from them that they just do what they do> > to make it easy to sell and hide the sick ones........ many people are ill from implants> > and just think it is other things...... even old age. > > You know, when I look at my father, and see him live, then look at myself, > > I realize the impact chemicals have on the body. My father is 83, on his second> > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma.> > This man is active with his church, volunteers at the hospital, comes and visits> > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age.......> > OK.....off my high horse.....LOL. ......Educate you ! > > Happy reading ! > > Hugs ~ Dede> > > > > > > > > > -----Original Message-----> > From: Sun Lee <sunloves (DOT) com>> > > > Sent: Thu, Apr 1, 2010 1:19 pm> > Subject: Re: Painful lumps?> > > > > >  > > HI> > I've had saline implant for 11 years now and I started to get slowly sick about 3 years ago then it turned really severe last year. I could not even walk because I had no strength.  When I walk or excercise even 10 minutes I would get out of breath.  My implant is still intact and good and doctor does not recommend removing them.  I developed movable lump on my left breast too and biopsy indicated it to be benign. I also developed many fibroids and I am not sure if this is related and have many cysts on my body.> > > > I get dizzy, headaches, fatique, intestinal problems, indigestion, heart palpitation, insomia, anxiety attacks, hypoglycemia. I went to see so so many doctors and they could not figure it out until I saw the Saline Support site and started making connection that it may be my implant that's causing all these health issues. Do you think I should remove the implant even though it is intact and appears to look good?  Just recently I started to get better by getting acupuncture and moxa therapy. Now I can excercise and eat normal and I am almost back to myself again. I talk to my plastic surgeon and she said that the implant does not cause all these symptoms and said I should not take them out, but I think it may be that's what's causing it.> > > > Thanks!> > Sunny> > > > > > > > > > ____________ _________ _________ __> > From: "DGRAHAMAAOL (DOT) COM" <DGRAHAMAAOL (DOT) COM>> > > > Sent: Thu, April 1, 2010 10:25:38 AM> > Subject: Re: Painful lumps?> > > >  > > Hello ~ > >  > > All implants are made of silicone, and then filled with different things. The silicone outter shell degrades, and flecks of it can be found inside of lymph nodes and any place that it can go.> >  > > I had silicone filled implants first, with a slow leak that ended up in a massive> > rupture when I had a mammogram where the silicone of the right implant blew out the top of the scar capsule and migrated up and over my right shoulder as well as all inside my chest wall cavity. The implants were under the muscle. The doctor left me that way a few weeks until he had an opening to do the surgery. I was told it was perfectly safe.  NOT, had many surgeries to remove silicone that my body encapsulated.> > Had to have my entire chest wall detatched to do it too......... I still have some ...> >  > > I did some research on some of your other issues last night. > > I have salines in there now, and they are old.......but I have been dealing with heart problems and my heart has been too weak to have surgery to remove them until now, my heart is stronger, but I need a new heart device before I can  have the breast surgery..... ....so I have to wait....> >  > > Saline implants have many problems too since they can become full of> > mold and other organisms... .......> >  > > I think once you have implants in for awhile, your body becomes permeated> > with all those neuro-toxic chemicals that they use to make the silicone for implants, outside shell as well as inside silicone, and what happens it alters your body> > so that many of the tests they run are no longer valid......we do not fall in to> > the normal ranges that they set for people without the chemical altered state.> >  > > Anyway...... if you have any questions, please share with me, and as you learn> > things please share those with me too........> >  > > Hugs N prayers ~ > > Dede> > > > > > > > > > Painful lumps?> > > > > >  > > > > One of our former girls is writing to ask if anyone else has had these> > painful lumps? Dede, do you or have you heard of anyone else? I have> > not heard much about these, but I need to research it in our archives. > > The pain I certainly have heard about...just wondering about the lumps?> > > > It's disheartening to hear of her having issues again, after a period of> > recovery. It seems that there are residual problems that creep back> > into our lives if we are not vigilant! Here's her letter:> > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > Unfortunately I am not as well as I was the last time we spoke. I had a> > period of complete recovery for about 2 years and then it hit me again> > like a ton of bricks. Several things seemed to spark it and I'm not> > sure which ones...hormone change, severe sun rash, car accident and a> > freak accident at the beach where I broke a rib! After that, I was in> > pain all the time and severely fatigued. I have had a severe rash from> > sun exposure for 3 years now, hair loss, lumps everywhere and blood as> > well as white cells in my urine without any bacteria.> > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are> > SOOOO painful to touch. I have over 50 of them, most concentrated areas> > are from behind my knee up to mid thigh, stomach from pubic bone to> > above belly button, upper chest/breasts. The biggest one seems to be on> > my sternum. I had a punch biopsy on one of them on my calf and it just> > showed it was a lipoma. I am going to ask the doctor to actually remove> > one or two of the most painful to test them fully...perhaps they only> > caught a fatty area of the lump the first time??? I did read about an> > illness called Dercum's Disease and other than the fact that most who> > have the disease are obese, it is me to a T! I mentioned it to my> > primary care doc and she wrote it down but hasn't called me to say she's> > read up on it, so I'm not sure if she is even researching it.> > > > Also, I am severely hypermobile and have been since birth. I was> > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.> > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It> > can get the sympathetic nervous system all out of wack because it> > perceives that the body is always in a fight/flight mode because of how> > hard the body has to work just to maintain proper alignment. Along with> > EDS, I have a slight Chiarri Malformation where the tonsils of my brain> > are lower than they should be which causes headaches because of the> > increased cerebral spinal pressure.> > > > Anyways, I can deal with the EDS and the headaches - currently they are> > not that frequent. What I'm concerned about is the blood/white cells in> > the urine and the lumps. I need to schedule a cytoscopy so they can> > look at my bladder, but haven't done it yet because I owe the urologist> > money for a previous test that my insurance didn't cover! I had over> > $13,000 in out of pocket expenses last year!> > > > I'm wondering if other girls have complained about painful lumps> > everywhere - I think the only place I don't have them are my neck,> > hands, feet and possibly buttocks. Just to give you an idea how painful> > they are, before I even knew I had them, I was at the beach 2 years ago> > and fell really hard onto a chaise lounge and broke a rib. The rib pain> > was so bad I was throwing up. I went to the ER and the nurse put a> > turnequet (sp?) on my arm so he could draw blood and I screamed and> > cried and begged him to take it off and he wouldn't! From then on, he> > treated me like I was a drug seeker and not a tourist who had a terrible> > accident within 4 hours of her first day of vacation!!! It wasn't until> > at least a year and a half later that I realized he must have put direct> > pressure on one of the lumps. I first found them in my chest and> > breasts and then the back of my knees and one day I decided to put some> > massage oil on my skin and try to find others and that's when I found> > the one on my arm as well as everywhere else.> > > > I hope you are doing well. Every time I see something on TV about Vegas> > I think about you. I'm happily re-married and I'm working selling> > advertising at 2 local radio stations and having a great time. This> > past fall and winter I thought about quitting, but I'm not going to let> > this illness steal anymore of my life!> > > > > > ____________ _________ _________ __> > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 Like what I have said before, that the implant manufacturers do NOT (as expected) discuss the dangers of their products to us doctors. Of course, a used car salesman will never tell you negative about the car they are selling.Yes, sad to say, a lot of doctors will also not do research on their implants, they just implant and implant without any concern whatsoever.Doctors that do proper explantation are rare to find, but you can find one near you, it's just a matter of looking. It is, of course, not a popular procedure and hence is not being advertised.Good luck in finding the right surgeon for you. From: Sun Lee <sunloves@...>Subject: Re: Re: Painful lumps? Date: Wednesday, April 7, 2010, 12:31 AM Hi, Patty I am currently searching for a good plastic surgeon to do the implant so I just saw a plastic surgeon over the weekend and he looked at me funny when I told him that I wanted explantation. He asked me how long I had the implant and when I told him that I had 11 years. He said that I don't have to take it out unless it deflates! He aid it is only salt water and the body would just absorbe it without any problems. He also said that I should replace them and not just take them out. When I asked him if the silicon shells deteriorate over the years he said yes, but he said that it is the most inert substance and has no affect on the body. Can you believe it? Most plastic surgeons either do not know everything about the implant or do not want to disclose accurate information. I also developed a lump in my breast 6 years after I put these implant in and the surgeon said I would have to remove them. Anyway, I will work on it one step at a time. Each one of us need to take charge of our health and our bodies as no one else can. Thanks! Sunny From: glory2glory1401 <glory2glory1401> Sent: Mon, April 5, 2010 11:17:14 PMSubject: Re: Painful lumps? Sunny,Most women had no idea what they were getting into with breast implants. I certainly had no idea I could get as sick as I did.The doctors don't help, because they continue to deny that implants are making women ill, when we've seen evidence of this for over 40 years now. And everything keeps changing...when I got implants, I was told they would last my lifetime. About 2 months after my implant surgery, my doctor sent me information that said implants would have to be replaced every 7 years! Wow, talk about bait and switch.It's understandable that you would be scared of the surgery..it' s an unknown to you. But it really isn't too bad...if you have an experience like mine for explant, you will find that the pain is much, much less, and recovery much quicker.I hope you can find the right surgeon...you really need to have the surgery done correctly (en bloc or at least a total capsulectomy with drains). This will be one surgery you want done right the first time.Let me know if you have further questions. I will try to keep in touch as much as possible on the group....just challenged right now!I hope you had a great Easter.Patty> >> > Dede,> > Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them.> > > > Thanks for all the information. I am glad I have a support group> > > > Sunny> > > > > > > > > > ____________ _________ _________ __> > From: "DGRAHAMA@ ." <DGRAHAMA@ .>> > > > Sent: Thu, April 1, 2010 12:07:14 PM> > Subject: Re: Painful lumps?> > > >  > > Sunny ~ > > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. > >  > > There are many pics in the photo section of saline implants that are full> > of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... .> >  > > Follow your gut instincts. They are usually always right....... read all you can> > so you can know what questions to ask, and even copy some of the articles> > for your doctor...... should you keep this one. > > Many doctors just believe what they are told by the drug companies that> > sell the implants.... ..they dont use common sense and really learn about> > them. Part of the problem is they arent studying us, the ones that get really > > ill from them, and there are hundreds of thousands of us over the years......> > There is so much money to be made from them that they just do what they do> > to make it easy to sell and hide the sick ones........ many people are ill from implants> > and just think it is other things...... even old age. > > You know, when I look at my father, and see him live, then look at myself, > > I realize the impact chemicals have on the body. My father is 83, on his second> > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma.> > This man is active with his church, volunteers at the hospital, comes and visits> > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age.......> > OK.....off my high horse.....LOL. ......Educate you ! > > Happy reading ! > > Hugs ~ Dede> > > > > > > > > > -----Original Message-----> > From: Sun Lee <sunloves (DOT) com>> > > > Sent: Thu, Apr 1, 2010 1:19 pm> > Subject: Re: Painful lumps?> > > > > >  > > HI> > I've had saline implant for 11 years now and I started to get slowly sick about 3 years ago then it turned really severe last year. I could not even walk because I had no strength.  When I walk or excercise even 10 minutes I would get out of breath.  My implant is still intact and good and doctor does not recommend removing them.  I developed movable lump on my left breast too and biopsy indicated it to be benign. I also developed many fibroids and I am not sure if this is related and have many cysts on my body.> > > > I get dizzy, headaches, fatique, intestinal problems, indigestion, heart palpitation, insomia, anxiety attacks, hypoglycemia. I went to see so so many doctors and they could not figure it out until I saw the Saline Support site and started making connection that it may be my implant that's causing all these health issues. Do you think I should remove the implant even though it is intact and appears to look good?  Just recently I started to get better by getting acupuncture and moxa therapy. Now I can excercise and eat normal and I am almost back to myself again. I talk to my plastic surgeon and she said that the implant does not cause all these symptoms and said I should not take them out, but I think it may be that's what's causing it.> > > > Thanks!> > Sunny> > > > > > > > > > ____________ _________ _________ __> > From: "DGRAHAMAAOL (DOT) COM" <DGRAHAMAAOL (DOT) COM>> > > > Sent: Thu, April 1, 2010 10:25:38 AM> > Subject: Re: Painful lumps?> > > >  > > Hello ~ > >  > > All implants are made of silicone, and then filled with different things. The silicone outter shell degrades, and flecks of it can be found inside of lymph nodes and any place that it can go.> >  > > I had silicone filled implants first, with a slow leak that ended up in a massive> > rupture when I had a mammogram where the silicone of the right implant blew out the top of the scar capsule and migrated up and over my right shoulder as well as all inside my chest wall cavity. The implants were under the muscle. The doctor left me that way a few weeks until he had an opening to do the surgery. I was told it was perfectly safe.  NOT, had many surgeries to remove silicone that my body encapsulated.> > Had to have my entire chest wall detatched to do it too......... I still have some ...> >  > > I did some research on some of your other issues last night. > > I have salines in there now, and they are old.......but I have been dealing with heart problems and my heart has been too weak to have surgery to remove them until now, my heart is stronger, but I need a new heart device before I can  have the breast surgery..... ....so I have to wait....> >  > > Saline implants have many problems too since they can become full of> > mold and other organisms... .......> >  > > I think once you have implants in for awhile, your body becomes permeated> > with all those neuro-toxic chemicals that they use to make the silicone for implants, outside shell as well as inside silicone, and what happens it alters your body> > so that many of the tests they run are no longer valid......we do not fall in to> > the normal ranges that they set for people without the chemical altered state.> >  > > Anyway...... if you have any questions, please share with me, and as you learn> > things please share those with me too........> >  > > Hugs N prayers ~ > > Dede> > > > > > > > > > Painful lumps?> > > > > >  > > > > One of our former girls is writing to ask if anyone else has had these> > painful lumps? Dede, do you or have you heard of anyone else? I have> > not heard much about these, but I need to research it in our archives. > > The pain I certainly have heard about...just wondering about the lumps?> > > > It's disheartening to hear of her having issues again, after a period of> > recovery. It seems that there are residual problems that creep back> > into our lives if we are not vigilant! Here's her letter:> > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > Unfortunately I am not as well as I was the last time we spoke. I had a> > period of complete recovery for about 2 years and then it hit me again> > like a ton of bricks. Several things seemed to spark it and I'm not> > sure which ones...hormone change, severe sun rash, car accident and a> > freak accident at the beach where I broke a rib! After that, I was in> > pain all the time and severely fatigued. I have had a severe rash from> > sun exposure for 3 years now, hair loss, lumps everywhere and blood as> > well as white cells in my urine without any bacteria.> > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are> > SOOOO painful to touch. I have over 50 of them, most concentrated areas> > are from behind my knee up to mid thigh, stomach from pubic bone to> > above belly button, upper chest/breasts. The biggest one seems to be on> > my sternum. I had a punch biopsy on one of them on my calf and it just> > showed it was a lipoma. I am going to ask the doctor to actually remove> > one or two of the most painful to test them fully...perhaps they only> > caught a fatty area of the lump the first time??? I did read about an> > illness called Dercum's Disease and other than the fact that most who> > have the disease are obese, it is me to a T! I mentioned it to my> > primary care doc and she wrote it down but hasn't called me to say she's> > read up on it, so I'm not sure if she is even researching it.> > > > Also, I am severely hypermobile and have been since birth. I was> > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.> > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It> > can get the sympathetic nervous system all out of wack because it> > perceives that the body is always in a fight/flight mode because of how> > hard the body has to work just to maintain proper alignment. Along with> > EDS, I have a slight Chiarri Malformation where the tonsils of my brain> > are lower than they should be which causes headaches because of the> > increased cerebral spinal pressure.> > > > Anyways, I can deal with the EDS and the headaches - currently they are> > not that frequent. What I'm concerned about is the blood/white cells in> > the urine and the lumps. I need to schedule a cytoscopy so they can> > look at my bladder, but haven't done it yet because I owe the urologist> > money for a previous test that my insurance didn't cover! I had over> > $13,000 in out of pocket expenses last year!> > > > I'm wondering if other girls have complained about painful lumps> > everywhere - I think the only place I don't have them are my neck,> > hands, feet and possibly buttocks. Just to give you an idea how painful> > they are, before I even knew I had them, I was at the beach 2 years ago> > and fell really hard onto a chaise lounge and broke a rib. The rib pain> > was so bad I was throwing up. I went to the ER and the nurse put a> > turnequet (sp?) on my arm so he could draw blood and I screamed and> > cried and begged him to take it off and he wouldn't! From then on, he> > treated me like I was a drug seeker and not a tourist who had a terrible> > accident within 4 hours of her first day of vacation!!! It wasn't until> > at least a year and a half later that I realized he must have put direct> > pressure on one of the lumps. I first found them in my chest and> > breasts and then the back of my knees and one day I decided to put some> > massage oil on my skin and try to find others and that's when I found> > the one on my arm as well as everywhere else.> > > > I hope you are doing well. Every time I see something on TV about Vegas> > I think about you. I'm happily re-married and I'm working selling> > advertising at 2 local radio stations and having a great time. This> > past fall and winter I thought about quitting, but I'm not going to let> > this illness steal anymore of my life!> > > > > > ____________ _________ _________ __> > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 Hi, Patty The person I saw was not on the list. His name is Dr. Altman. Do you know anyone in California? I saw on the list Jae Chun of Newport Beach. I have to go out of the country for 3 weeks and I plan to see him when I return. I get the feeling that the most plastic surgeons do not want to do just explant because they fear that you might be unhappy after removing the implant due to how it's going to look so they all recommend putting another implant in place. I don't want to put another one in because I don't want to go through another surgery. I guess I will have to live with my true self + scars. I feel that health is more important then cosmetics. Thanks again for your support Sunny From: glory2glory1401 <glory2glory1401@...> Sent: Wed, April 7, 2010 3:18:22 PMSubject: Re: Painful lumps? Sunny,You've got that right. I used to believe that doctors knew everything and that I could trust everything they said...found out that is only true of a very few doctors in the world, that are not sold out to being politically correct. It takes courage to take the high road and tell the truth.So, what did you decide regarding this surgeon? Are you still looking for another one? Who was it, by the way (wondering if he/she is on our list?)Sometimes the search for the right surgeon can be very disheartening and frustrating. In the cases where women just want the implants out ASAP and don't have too many hurdles to get over, we can recommend just going to the plastic surgeons we trust implicitly to do the right thing. That usually means traveling if you are not in the city where they practice. Here is who we recommend without batting an eye. These doctors KNOW about proper explant, and do it right every time, because they KNOW women are getting sick from implants:Dr. Lu Feng, Cleveland OHDr. Kolb, Atlanta, GADr. Huang, Denver, CODr. Ed Melmed, Dallas TX (please be sure to request a TOTAL capsulectomy and get it in writing that he will do it if you have saline implants.)If you need any further assistance with your search, please let us know. In the meantime, stay close with us and we will help you through any of your other concerns as much as we can.Sending hugs!Patty> > >> > > Dede,> > > Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them.> > > > > > Thanks for all the information. I am glad I have a support group> > > > > > Sunny> > > > > > > > > > > > > > > ____________ _________ _________ __> > > From: "DGRAHAMA@ ." <DGRAHAMA@ .>> > > > > > Sent: Thu, April 1, 2010 12:07:14 PM> > > Subject: Re: Painful lumps?> > > > > >  > > > Sunny ~ > > > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. > > >  > > > There are many pics in the photo section of saline implants that are full> > > of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... .> > >  > > > Follow your gut instincts. They are usually always right....... read all you can> > > so you can know what questions to ask, and even copy some of the articles> > > for your doctor...... should you keep this one. > > > Many doctors just believe what they are told by the drug companies that> > > sell the implants.... ..they dont use common sense and really learn about> > > them. Part of the problem is they arent studying us, the ones that get really > > > ill from them, and there are hundreds of thousands of us over the years......> > > There is so much money to be made from them that they just do what they do> > > to make it easy to sell and hide the sick ones........ many people are ill from implants> > > and just think it is other things...... even old age. > > > You know, when I look at my father, and see him live, then look at myself, > > > I realize the impact chemicals have on the body. My father is 83, on his second> > > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma.> > > This man is active with his church, volunteers at the hospital, comes and visits> > > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age.......> > > OK.....off my high horse.....LOL. ......Educate you ! > > > Happy reading ! > > > Hugs ~ Dede> > > > > > > > > > > > > > > Painful lumps?> > > > > > > > >  > > > > > > One of our former girls is writing to ask if anyone else has had these> > > painful lumps? Dede, do you or have you heard of anyone else? I have> > > not heard much about these, but I need to research it in our archives. > > > The pain I certainly have heard about...just wondering about the lumps?> > > > > > It's disheartening to hear of her having issues again, after a period of> > > recovery. It seems that there are residual problems that creep back> > > into our lives if we are not vigilant! Here's her letter:> > > > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > > Unfortunately I am not as well as I was the last time we spoke. I had a> > > period of complete recovery for about 2 years and then it hit me again> > > like a ton of bricks. Several things seemed to spark it and I'm not> > > sure which ones...hormone change, severe sun rash, car accident and a> > > freak accident at the beach where I broke a rib! After that, I was in> > > pain all the time and severely fatigued. I have had a severe rash from> > > sun exposure for 3 years now, hair loss, lumps everywhere and blood as> > > well as white cells in my urine without any bacteria.> > > > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are> > > SOOOO painful to touch. I have over 50 of them, most concentrated areas> > > are from behind my knee up to mid thigh, stomach from pubic bone to> > > above belly button, upper chest/breasts. The biggest one seems to be on> > > my sternum. I had a punch biopsy on one of them on my calf and it just> > > showed it was a lipoma. I am going to ask the doctor to actually remove> > > one or two of the most painful to test them fully...perhaps they only> > > caught a fatty area of the lump the first time??? I did read about an> > > illness called Dercum's Disease and other than the fact that most who> > > have the disease are obese, it is me to a T! I mentioned it to my> > > primary care doc and she wrote it down but hasn't called me to say she's> > > read up on it, so I'm not sure if she is even researching it.> > > > > > Also, I am severely hypermobile and have been since birth. I was> > > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.> > > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It> > > can get the sympathetic nervous system all out of wack because it> > > perceives that the body is always in a fight/flight mode because of how> > > hard the body has to work just to maintain proper alignment. Along with> > > EDS, I have a slight Chiarri Malformation where the tonsils of my brain> > > are lower than they should be which causes headaches because of the> > > increased cerebral spinal pressure.> > > > > > Anyways, I can deal with the EDS and the headaches - currently they are> > > not that frequent. What I'm concerned about is the blood/white cells in> > > the urine and the lumps. I need to schedule a cytoscopy so they can> > > look at my bladder, but haven't done it yet because I owe the urologist> > > money for a previous test that my insurance didn't cover! I had over> > > $13,000 in out of pocket expenses last year!> > > > > > I'm wondering if other girls have complained about painful lumps> > > everywhere - I think the only place I don't have them are my neck,> > > hands, feet and possibly buttocks. Just to give you an idea how painful> > > they are, before I even knew I had them, I was at the beach 2 years ago> > > and fell really hard onto a chaise lounge and broke a rib. The rib pain> > > was so bad I was throwing up. I went to the ER and the nurse put a> > > turnequet (sp?) on my arm so he could draw blood and I screamed and> > > cried and begged him to take it off and he wouldn't! From then on, he> > > treated me like I was a drug seeker and not a tourist who had a terrible> > > accident within 4 hours of her first day of vacation!!! It wasn't until> > > at least a year and a half later that I realized he must have put direct> > > pressure on one of the lumps. I first found them in my chest and> > > breasts and then the back of my knees and one day I decided to put some> > > massage oil on my skin and try to find others and that's when I found> > > the one on my arm as well as everywhere else.> > > > > > I hope you are doing well. Every time I see something on TV about Vegas> > > I think about you. I'm happily re-married and I'm working selling> > > advertising at 2 local radio stations and having a great time. This> > > past fall and winter I thought about quitting, but I'm not going to let> > > this illness steal anymore of my life!> > > > > > > > > ____________ _________ _________ __> > > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2010 Report Share Posted April 8, 2010 Sunny ~ There are lots of girls that have explant, and the doctors took pride in their artistic work, and they look very good ! just alittle smaller, but not always smaller. There are pixs of gals after explant in shutterfly the password is implants......just go to the bottom of the page here and find the link and click it on..... you will see how good the girls still look......... Blessings ~ Dede Painful lumps? > > > > > > > > >  > > > > > > One of our former girls is writing to ask if anyone else has had these > > > painful lumps? Dede, do you or have you heard of anyone else? I have > > > not heard much about these, but I need to research it in our archives. > > > The pain I certainly have heard about...just wondering about the lumps? > > > > > > It's disheartening to hear of her having issues again, after a period of > > > recovery. It seems that there are residual problems that creep back > > > into our lives if we are not vigilant! Here's her letter: > > > > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > > Unfortunately I am not as well as I was the last time we spoke. I had a > > > period of complete recovery for about 2 years and then it hit me again > > > like a ton of bricks. Several things seemed to spark it and I'm not > > > sure which ones...hormone change, severe sun rash, car accident and a > > > freak accident at the beach where I broke a rib! After that, I was in > > > pain all the time and severely fatigued. I have had a severe rash from > > > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > > > well as white cells in my urine without any bacteria. > > > > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > > > SOOOO painful to touch. I have over 50 of them, most concentrated areas > > > are from behind my knee up to mid thigh, stomach from pubic bone to > > > above belly button, upper chest/breasts. The biggest one seems to be on > > > my sternum. I had a punch biopsy on one of them on my calf and it just > > > showed it was a lipoma. I am going to ask the doctor to actually remove > > > one or two of the most painful to test them fully...perhaps they only > > > caught a fatty area of the lump the first time??? I did read about an > > > illness called Dercum's Disease and other than the fact that most who > > > have the disease are obese, it is me to a T! I mentioned it to my > > > primary care doc and she wrote it down but hasn't called me to say she's > > > read up on it, so I'm not sure if she is even researching it. > > > > > > Also, I am severely hypermobile and have been since birth. I was > > > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > > > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > > > can get the sympathetic nervous system all out of wack because it > > > perceives that the body is always in a fight/flight mode because of how > > > hard the body has to work just to maintain proper alignment. Along with > > > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > > > are lower than they should be which causes headaches because of the > > > increased cerebral spinal pressure. > > > > > > Anyways, I can deal with the EDS and the headaches - currently they are > > > not that frequent. What I'm concerned about is the blood/white cells in > > > the urine and the lumps. I need to schedule a cytoscopy so they can > > > look at my bladder, but haven't done it yet because I owe the urologist > > > money for a previous test that my insurance didn't cover! I had over > > > $13,000 in out of pocket expenses last year! > > > > > > I'm wondering if other girls have complained about painful lumps > > > everywhere - I think the only place I don't have them are my neck, > > > hands, feet and possibly buttocks. Just to give you an idea how painful > > > they are, before I even knew I had them, I was at the beach 2 years ago > > > and fell really hard onto a chaise lounge and broke a rib. The rib pain > > > was so bad I was throwing up. I went to the ER and the nurse put a > > > turnequet (sp?) on my arm so he could draw blood and I screamed and > > > cried and begged him to take it off and he wouldn't! From then on, he > > > treated me like I was a drug seeker and not a tourist who had a terrible > > > accident within 4 hours of her first day of vacation!!! It wasn't until > > > at least a year and a half later that I realized he must have put direct > > > pressure on one of the lumps. I first found them in my chest and > > > breasts and then the back of my knees and one day I decided to put some > > > massage oil on my skin and try to find others and that's when I found > > > the one on my arm as well as everywhere else. > > > > > > I hope you are doing well. Every time I see something on TV about Vegas > > > I think about you. I'm happily re-married and I'm working selling > > > advertising at 2 local radio stations and having a great time. This > > > past fall and winter I thought about quitting, but I'm not going to let > > > this illness steal anymore of my life! > > > > > > > > > ____________ _________ _________ __ > > > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 Hi, Patty Thank you for the encouraging words! I am going to check out Dr. Lee Sunny From: glory2glory1401 <glory2glory1401@...> Sent: Fri, April 9, 2010 8:44:54 AMSubject: Re: Painful lumps? Hi Sunny,I'm not familiar enough with Dr. Jae Chun to know how good he is.There is a doctor in San Diego you might want to check out as well, his name is Dr. Gilbert Lee,11515 El Camino Real, Suite 150,San Diego, CA 92130 (858)720-1440. I've heard good things about him.And you are right, most doctors do not want to perform explant surgery. It is much more involved than implantation, takes more time, more skill, more everything. Doctors often use the fear tactic, saying that you won't like the way you look; you will become depressed; you'll just be back for more implants later, blah, blah, blah, or whatever, and they totally don't realize that they are speaking of their own ability to make you look good! Because we have lots of examples of women who have had explant and look fantastic when they've used Dr. Feng, Dr. Kolb, Dr. Huang and Dr. Melmed and others. So, don't fall for this game...you don't have to look bad at all! In fact, I've had some women tell me that they look better after explant than before implant. I'm one of them too! So, don't be discouraged about the outcome. YOu can look beautiful and do something that will help you get your health back!Patty> > > >> > > > Dede,> > > > Yes, I don't think it's due to old age and I don't think it's normal part of aging process.ÃÆ'‚ Many doctors that I saw told me that I am going through perimenopause, but I don't think so.ÃÆ'‚ ÃÆ'‚ All the doctors think I am going crazy and recommended that I take anti-depressant.ÃÆ'‚ ÃÆ'‚ I think it is the implant.ÃÆ'‚ I am getting ready to have them removed.ÃÆ'‚ Currently I'm searching for a good plastic surgeon who can remove them.> > > > > > > > Thanks for all the information.ÃÆ'‚ I am glad I have a support group> > > > > > > > Sunny> > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __> > > > From: "DGRAHAMA@ ." <DGRAHAMA@ .>> > > > > > > > Sent: Thu, April 1, 2010 12:07:14 PM> > > > Subject: Re: Painful lumps?> > > > > > > > ÃÆ'‚ > > > > Sunny ~ > > > > The implants DO infact cause all these problems.ÃÆ'‚ There are thousands and thousands of us.......we all have many of the same symptoms.ÃÆ'‚ Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed.ÃÆ'‚ This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris.ÃÆ'‚ > > > > ÃÆ'‚ > > > > There are many pics in the photo section of saline implants that are full> > > > of mold and other toxins.ÃÆ'‚ Some are black, some reddish, brownish, and it is really nasty.ÃÆ'‚ There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away.ÃÆ'‚ I am sorry this one does not have your best interest at heart, or is very inexperienced .ÃÆ'‚ Look in the archives, much of it comes from medical journals, and case reports and things...... .> > > > ÃÆ'‚ > > > > Follow your gut instincts.ÃÆ'‚ They are usually always right....... read all you can> > > > so you can know what questions to ask, and even copy some of the articles> > > > for your doctor...... should you keep this one.ÃÆ'‚ > > > > Many doctors just believe what they are told by the drug companies that> > > > sell the implants.... ..they dont use common sense and really learn about> > > > them.ÃÆ'‚ Part of the problem is they arent studying us, the ones that get really > > > > ill from them, and there are hundreds of thousands of us over the years......> > > > There is so much money to be made from them that they just do what they do> > > > to make it easy to sell and hide the sick ones........ many people are ill from implants> > > > and just think it is other things...... even old age.ÃÆ'‚ > > > > You know, when I look at my father, and see him live, then look at myself, > > > > I realize the impact chemicals have on the body.ÃÆ'‚ My father is 83, on his second> > > > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma.> > > > This man is active with his church, volunteers at the hospital, comes and visits> > > > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age.......> > > > OK.....off my high horse.....LOL. ......Educate you !ÃÆ'‚ > > > > Happy reading ! > > > > Hugs ~ Dede> > > > > > > > > > > > > > > > > > > > Painful lumps?> > > > > > > > > > > > ÃÆ'‚ > > > > > > > > One of our former girls is writing to ask if anyone else has had these> > > > painful lumps? Dede, do you or have you heard of anyone else? I have> > > > not heard much about these, but I need to research it in our archives. > > > > The pain I certainly have heard about...just wondering about the lumps?> > > > > > > > It's disheartening to hear of her having issues again, after a period of> > > > recovery. It seems that there are residual problems that creep back> > > > into our lives if we are not vigilant! Here's her letter:> > > > > > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > > > Unfortunately I am not as well as I was the last time we spoke. I had a> > > > period of complete recovery for about 2 years and then it hit me again> > > > like a ton of bricks. Several things seemed to spark it and I'm not> > > > sure which ones...hormone change, severe sun rash, car accident and a> > > > freak accident at the beach where I broke a rib! After that, I was in> > > > pain all the time and severely fatigued. I have had a severe rash from> > > > sun exposure for 3 years now, hair loss, lumps everywhere and blood as> > > > well as white cells in my urine without any bacteria.> > > > > > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are> > > > SOOOO painful to touch. I have over 50 of them, most concentrated areas> > > > are from behind my knee up to mid thigh, stomach from pubic bone to> > > > above belly button, upper chest/breasts. The biggest one seems to be on> > > > my sternum. I had a punch biopsy on one of them on my calf and it just> > > > showed it was a lipoma. I am going to ask the doctor to actually remove> > > > one or two of the most painful to test them fully...perhaps they only> > > > caught a fatty area of the lump the first time??? I did read about an> > > > illness called Dercum's Disease and other than the fact that most who> > > > have the disease are obese, it is me to a T! I mentioned it to my> > > > primary care doc and she wrote it down but hasn't called me to say she's> > > > read up on it, so I'm not sure if she is even researching it.> > > > > > > > Also, I am severely hypermobile and have been since birth. I was> > > > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.> > > > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It> > > > can get the sympathetic nervous system all out of wack because it> > > > perceives that the body is always in a fight/flight mode because of how> > > > hard the body has to work just to maintain proper alignment. Along with> > > > EDS, I have a slight Chiarri Malformation where the tonsils of my brain> > > > are lower than they should be which causes headaches because of the> > > > increased cerebral spinal pressure.> > > > > > > > Anyways, I can deal with the EDS and the headaches - currently they are> > > > not that frequent. What I'm concerned about is the blood/white cells in> > > > the urine and the lumps. I need to schedule a cytoscopy so they can> > > > look at my bladder, but haven't done it yet because I owe the urologist> > > > money for a previous test that my insurance didn't cover! I had over> > > > $13,000 in out of pocket expenses last year!> > > > > > > > I'm wondering if other girls have complained about painful lumps> > > > everywhere - I think the only place I don't have them are my neck,> > > > hands, feet and possibly buttocks. Just to give you an idea how painful> > > > they are, before I even knew I had them, I was at the beach 2 years ago> > > > and fell really hard onto a chaise lounge and broke a rib. The rib pain> > > > was so bad I was throwing up. I went to the ER and the nurse put a> > > > turnequet (sp?) on my arm so he could draw blood and I screamed and> > > > cried and begged him to take it off and he wouldn't! From then on, he> > > > treated me like I was a drug seeker and not a tourist who had a terrible> > > > accident within 4 hours of her first day of vacation!!! It wasn't until> > > > at least a year and a half later that I realized he must have put direct> > > > pressure on one of the lumps. I first found them in my chest and> > > > breasts and then the back of my knees and one day I decided to put some> > > > massage oil on my skin and try to find others and that's when I found> > > > the one on my arm as well as everywhere else.> > > > > > > > I hope you are doing well. Every time I see something on TV about Vegas> > > > I think about you. I'm happily re-married and I'm working selling> > > > advertising at 2 local radio stations and having a great time. This> > > > past fall and winter I thought about quitting, but I'm not going to let> > > > this illness steal anymore of my life!> > > > > > > > > > > > ____________ _________ _________ __> > > > The new Internet ExplorerÃÆ'‚® 8 - Faster, safer, easier. Optimized for Get it Now for Free!> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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