Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Wow......what a trip.......I had many painful lumps popping up in my chest for a few years, and they did surgery every 6 months to remove a bunch of them. They varied from cysts to siliconomas, to granulomas. One was cystic and filled with silicone. It was huge. This last 8 months or so, I have been getting these strange lumps. They are movable, and I have no clue what they are. I havent checked my whole body as there is nothing I can do about them right now. I am working on this next heart surgery, and before it I have to have a scan of my lungs for the nodules that appeared in them...... So......that takes up any monies there are........The disability is slim and the medicare coverage I have leaves me with 20 percent to come up with. Its a mess...... anyway, the answer is yes......I have problems with odd lumps and things....... Not sure about anyone else....... I hope you are able to get some good care. Good Luck with your journey.......I am sorry it has been so tough for you..... Hugs N Prayers ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Wow, thanks for the reply Dede...I am sending this on to her. I wonder why these are forming? Patty > > > Wow......what a trip.......I had many painful lumps popping up > in my chest for a few years, and they did surgery every 6 months > to remove a bunch of them. They varied from cysts to siliconomas, > to granulomas. One was cystic and filled with silicone. It was huge. > This last 8 months or so, I have been getting these strange lumps. > They are movable, and I have no clue what they are. I havent checked > my whole body as there is nothing I can do about them right now. > I am working on this next heart surgery, and before it I have to > have a scan of my lungs for the nodules that appeared in them...... > So......that takes up any monies there are........The disability is slim > and the medicare coverage I have leaves me with 20 percent to > come up with. > Its a mess...... > anyway, the answer is yes......I have problems with odd lumps > and things....... > Not sure about anyone else....... > I hope you are able to get some good care. Good Luck with your > journey.......I am sorry it has been so tough for you..... > Hugs N Prayers ~ > Dede > > > > > > > > > > Painful lumps? > > > > > > One of our former girls is writing to ask if anyone else has had these > painful lumps? Dede, do you or have you heard of anyone else? I have > not heard much about these, but I need to research it in our archives. > The pain I certainly have heard about...just wondering about the lumps? > > It's disheartening to hear of her having issues again, after a period of > recovery. It seems that there are residual problems that creep back > into our lives if we are not vigilant! Here's her letter: > > Hi Patty, I am so sorry it's been so long since I've talked to you! > Unfortunately I am not as well as I was the last time we spoke. I had a > period of complete recovery for about 2 years and then it hit me again > like a ton of bricks. Several things seemed to spark it and I'm not > sure which ones...hormone change, severe sun rash, car accident and a > freak accident at the beach where I broke a rib! After that, I was in > pain all the time and severely fatigued. I have had a severe rash from > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > well as white cells in my urine without any bacteria. > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > SOOOO painful to touch. I have over 50 of them, most concentrated areas > are from behind my knee up to mid thigh, stomach from pubic bone to > above belly button, upper chest/breasts. The biggest one seems to be on > my sternum. I had a punch biopsy on one of them on my calf and it just > showed it was a lipoma. I am going to ask the doctor to actually remove > one or two of the most painful to test them fully...perhaps they only > caught a fatty area of the lump the first time??? I did read about an > illness called Dercum's Disease and other than the fact that most who > have the disease are obese, it is me to a T! I mentioned it to my > primary care doc and she wrote it down but hasn't called me to say she's > read up on it, so I'm not sure if she is even researching it. > > Also, I am severely hypermobile and have been since birth. I was > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > can get the sympathetic nervous system all out of wack because it > perceives that the body is always in a fight/flight mode because of how > hard the body has to work just to maintain proper alignment. Along with > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > are lower than they should be which causes headaches because of the > increased cerebral spinal pressure. > > Anyways, I can deal with the EDS and the headaches - currently they are > not that frequent. What I'm concerned about is the blood/white cells in > the urine and the lumps. I need to schedule a cytoscopy so they can > look at my bladder, but haven't done it yet because I owe the urologist > money for a previous test that my insurance didn't cover! I had over > $13,000 in out of pocket expenses last year! > > I'm wondering if other girls have complained about painful lumps > everywhere - I think the only place I don't have them are my neck, > hands, feet and possibly buttocks. Just to give you an idea how painful > they are, before I even knew I had them, I was at the beach 2 years ago > and fell really hard onto a chaise lounge and broke a rib. The rib pain > was so bad I was throwing up. I went to the ER and the nurse put a > turnequet (sp?) on my arm so he could draw blood and I screamed and > cried and begged him to take it off and he wouldn't! From then on, he > treated me like I was a drug seeker and not a tourist who had a terrible > accident within 4 hours of her first day of vacation!!! It wasn't until > at least a year and a half later that I realized he must have put direct > pressure on one of the lumps. I first found them in my chest and > breasts and then the back of my knees and one day I decided to put some > massage oil on my skin and try to find others and that's when I found > the one on my arm as well as everywhere else. > > I hope you are doing well. Every time I see something on TV about Vegas > I think about you. I'm happily re-married and I'm working selling > advertising at 2 local radio stations and having a great time. This > past fall and winter I thought about quitting, but I'm not going to let > this illness steal anymore of my life! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Hi Dede: I am curious about these lumps that you all are finding. Are these implant related, and since this is a saline implant support group, did you all have saline implants? I can't remember your history, Dede, I'm sorry, but I have just read so much, that I get it all mixed up, and along with this brain fog that I am in, it makes it difficult to sort out thoughts. I have heard of these lumps happening, related to silicone implants, but not quite sure if this happens with saline. Could you please clarify for me? Thank you. I am so sorry that you all have to go through this. I will be praying for you. xoxo From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Wed, March 31, 2010 10:12:56 PMSubject: Re: Painful lumps? Wow......what a trip.......I had many painful lumps popping up in my chest for a few years, and they did surgery every 6 months to remove a bunch of them. They varied from cysts to siliconomas, to granulomas. One was cystic and filled with silicone. It was huge. This last 8 months or so, I have been getting these strange lumps. They are movable, and I have no clue what they are. I havent checked my whole body as there is nothing I can do about them right now. I am working on this next heart surgery, and before it I have to have a scan of my lungs for the nodules that appeared in them...... So......that takes up any monies there are........The disability is slim and the medicare coverage I have leaves me with 20 percent to come up with. Its a mess...... anyway, the answer is yes......I have problems with odd lumps and things...... . Not sure about anyone else....... I hope you are able to get some good care. Good Luck with your journey..... ..I am sorry it has been so tough for you..... Hugs N Prayers ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Hello ~ All implants are made of silicone, and then filled with different things. The silicone outter shell degrades, and flecks of it can be found inside of lymph nodes and any place that it can go. I had silicone filled implants first, with a slow leak that ended up in a massive rupture when I had a mammogram where the silicone of the right implant blew out the top of the scar capsule and migrated up and over my right shoulder as well as all inside my chest wall cavity. The implants were under the muscle. The doctor left me that way a few weeks until he had an opening to do the surgery. I was told it was perfectly safe. NOT, had many surgeries to remove silicone that my body encapsulated. Had to have my entire chest wall detatched to do it too.........I still have some ... I did some research on some of your other issues last night. I have salines in there now, and they are old.......but I have been dealing with heart problems and my heart has been too weak to have surgery to remove them until now, my heart is stronger, but I need a new heart device before I can have the breast surgery.........so I have to wait.... Saline implants have many problems too since they can become full of mold and other organisms.......... I think once you have implants in for awhile, your body becomes permeated with all those neuro-toxic chemicals that they use to make the silicone for implants, outside shell as well as inside silicone, and what happens it alters your body so that many of the tests they run are no longer valid......we do not fall in to the normal ranges that they set for people without the chemical altered state. Anyway......if you have any questions, please share with me, and as you learn things please share those with me too........ Hugs N prayers ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 HI I've had saline implant for 11 years now and I started to get slowly sick about 3 years ago then it turned really severe last year. I could not even walk because I had no strength. When I walk or excercise even 10 minutes I would get out of breath. My implant is still intact and good and doctor does not recommend removing them. I developed movable lump on my left breast too and biopsy indicated it to be benign. I also developed many fibroids and I am not sure if this is related and have many cysts on my body. I get dizzy, headaches, fatique, intestinal problems, indigestion, heart palpitation, insomia, anxiety attacks, hypoglycemia. I went to see so so many doctors and they could not figure it out until I saw the Saline Support site and started making connection that it may be my implant that's causing all these health issues. Do you think I should remove the implant even though it is intact and appears to look good? Just recently I started to get better by getting acupuncture and moxa therapy. Now I can excercise and eat normal and I am almost back to myself again. I talk to my plastic surgeon and she said that the implant does not cause all these symptoms and said I should not take them out, but I think it may be that's what's causing it. Thanks! Sunny From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Thu, April 1, 2010 10:25:38 AMSubject: Re: Painful lumps? Hello ~ All implants are made of silicone, and then filled with different things. The silicone outter shell degrades, and flecks of it can be found inside of lymph nodes and any place that it can go. I had silicone filled implants first, with a slow leak that ended up in a massive rupture when I had a mammogram where the silicone of the right implant blew out the top of the scar capsule and migrated up and over my right shoulder as well as all inside my chest wall cavity. The implants were under the muscle. The doctor left me that way a few weeks until he had an opening to do the surgery. I was told it was perfectly safe. NOT, had many surgeries to remove silicone that my body encapsulated. Had to have my entire chest wall detatched to do it too......... I still have some ... I did some research on some of your other issues last night. I have salines in there now, and they are old.......but I have been dealing with heart problems and my heart has been too weak to have surgery to remove them until now, my heart is stronger, but I need a new heart device before I can have the breast surgery..... ....so I have to wait.... Saline implants have many problems too since they can become full of mold and other organisms... ....... I think once you have implants in for awhile, your body becomes permeated with all those neuro-toxic chemicals that they use to make the silicone for implants, outside shell as well as inside silicone, and what happens it alters your body so that many of the tests they run are no longer valid......we do not fall in to the normal ranges that they set for people without the chemical altered state. Anyway...... if you have any questions, please share with me, and as you learn things please share those with me too........ Hugs N prayers ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Sunny ~ The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. There are many pics in the photo section of saline implants that are full of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths.......Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things....... Follow your gut instincts. They are usually always right.......read all you can so you can know what questions to ask, and even copy some of the articles for your doctor......should you keep this one. Many doctors just believe what they are told by the drug companies that sell the implants......they dont use common sense and really learn about them. Part of the problem is they arent studying us, the ones that get really ill from them, and there are hundreds of thousands of us over the years...... There is so much money to be made from them that they just do what they do to make it easy to sell and hide the sick ones........many people are ill from implants and just think it is other things......even old age. You know, when I look at my father, and see him live, then look at myself, I realize the impact chemicals have on the body. My father is 83, on his second round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma. This man is active with his church, volunteers at the hospital, comes and visits me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age....... OK.....off my high horse.....LOL.......Educate you ! Happy reading ! Hugs ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Dede, Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so. All the doctors think I am going crazy and recommended that I take anti-depressant. I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them. Thanks for all the information. I am glad I have a support group Sunny From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Thu, April 1, 2010 12:07:14 PMSubject: Re: Painful lumps? Sunny ~ The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. There are many pics in the photo section of saline implants that are full of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... . Follow your gut instincts. They are usually always right....... read all you can so you can know what questions to ask, and even copy some of the articles for your doctor...... should you keep this one. Many doctors just believe what they are told by the drug companies that sell the implants.... ..they dont use common sense and really learn about them. Part of the problem is they arent studying us, the ones that get really ill from them, and there are hundreds of thousands of us over the years...... There is so much money to be made from them that they just do what they do to make it easy to sell and hide the sick ones........ many people are ill from implants and just think it is other things...... even old age. You know, when I look at my father, and see him live, then look at myself, I realize the impact chemicals have on the body. My father is 83, on his second round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma. This man is active with his church, volunteers at the hospital, comes and visits me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age....... OK.....off my high horse.....LOL. ......Educate you ! Happy reading ! Hugs ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Sunny, Everything Dede has told you is true! And just for the record, one of the most common solutions that the doctors seem to default to is going the anti-depressant route. They did with me too, but I wasn't depressed, I was SICK!!!! To get at the root of the problem, the implants need to be removed. I look at it this way...the implants certainly aren't doing any good, and if there is to be any chance of recovery, the implants should be removed. This gives your body the best chance to get back to its former state of health, minus ANY possible interference with a chemically laden foreign object that the immune system is going to react to. It just makes good sense, doesn't it? And in fact, as we get older, the presence of the implants just becomes a liability. Sooner or later, they need to go. They don't last forever, and the chances of them doing severe damage goes only up, not down. More good sense, right? There are good surgeons in only a few parts of the country. Many plastic surgeons discredit our needs for a proper removal because they don't believe in our illnesses. So, it becomes important to find the right surgeon. We have a list if you are interested in looking at it. You can find it in the files section. We are here to help. I've been living life to the fullest for the past few months, and so have not spent as much time with the group as I'd like, but I'm always just an email away. You will have more questions, so go ahead and ask away. We've got lots of success stories, so we know we are on the right track, contrary to what many doctors say. As Dede pointed out, they have a vested interest in saying that the implants are fine, so you can keep coming back to get your replacements. I believe it's better to be done with them once and for all and learn to love your natural body. I've learned to do that, so if I can, I know others can. Sending hugs and well wishes...you've found sisters who know what you are going through. It's a hard road to walk, but there is hope...never give up hope that you will get better. Hugs, Patty > > Dede, > Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them. > > Thanks for all the information. I am glad I have a support group > > Sunny > > > > > ________________________________ > From: " DGRAHAMA@... " <DGRAHAMA@...> > > Sent: Thu, April 1, 2010 12:07:14 PM > Subject: Re: Painful lumps? > >  > Sunny ~ > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. >  > There are many pics in the photo section of saline implants that are full > of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... . >  > Follow your gut instincts. They are usually always right....... read all you can > so you can know what questions to ask, and even copy some of the articles > for your doctor...... should you keep this one. > Many doctors just believe what they are told by the drug companies that > sell the implants.... ..they dont use common sense and really learn about > them. Part of the problem is they arent studying us, the ones that get really > ill from them, and there are hundreds of thousands of us over the years...... > There is so much money to be made from them that they just do what they do > to make it easy to sell and hide the sick ones........ many people are ill from implants > and just think it is other things...... even old age. > You know, when I look at my father, and see him live, then look at myself, > I realize the impact chemicals have on the body. My father is 83, on his second > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma. > This man is active with his church, volunteers at the hospital, comes and visits > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age....... > OK.....off my high horse.....LOL. ......Educate you ! > Happy reading ! > Hugs ~ Dede > > > > > Painful lumps? > > >  > > One of our former girls is writing to ask if anyone else has had these > painful lumps? Dede, do you or have you heard of anyone else? I have > not heard much about these, but I need to research it in our archives. > The pain I certainly have heard about...just wondering about the lumps? > > It's disheartening to hear of her having issues again, after a period of > recovery. It seems that there are residual problems that creep back > into our lives if we are not vigilant! Here's her letter: > > Hi Patty, I am so sorry it's been so long since I've talked to you! > Unfortunately I am not as well as I was the last time we spoke. I had a > period of complete recovery for about 2 years and then it hit me again > like a ton of bricks. Several things seemed to spark it and I'm not > sure which ones...hormone change, severe sun rash, car accident and a > freak accident at the beach where I broke a rib! After that, I was in > pain all the time and severely fatigued. I have had a severe rash from > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > well as white cells in my urine without any bacteria. > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > SOOOO painful to touch. I have over 50 of them, most concentrated areas > are from behind my knee up to mid thigh, stomach from pubic bone to > above belly button, upper chest/breasts. The biggest one seems to be on > my sternum. I had a punch biopsy on one of them on my calf and it just > showed it was a lipoma. I am going to ask the doctor to actually remove > one or two of the most painful to test them fully...perhaps they only > caught a fatty area of the lump the first time??? I did read about an > illness called Dercum's Disease and other than the fact that most who > have the disease are obese, it is me to a T! I mentioned it to my > primary care doc and she wrote it down but hasn't called me to say she's > read up on it, so I'm not sure if she is even researching it. > > Also, I am severely hypermobile and have been since birth. I was > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > can get the sympathetic nervous system all out of wack because it > perceives that the body is always in a fight/flight mode because of how > hard the body has to work just to maintain proper alignment. Along with > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > are lower than they should be which causes headaches because of the > increased cerebral spinal pressure. > > Anyways, I can deal with the EDS and the headaches - currently they are > not that frequent. What I'm concerned about is the blood/white cells in > the urine and the lumps. I need to schedule a cytoscopy so they can > look at my bladder, but haven't done it yet because I owe the urologist > money for a previous test that my insurance didn't cover! I had over > $13,000 in out of pocket expenses last year! > > I'm wondering if other girls have complained about painful lumps > everywhere - I think the only place I don't have them are my neck, > hands, feet and possibly buttocks. Just to give you an idea how painful > they are, before I even knew I had them, I was at the beach 2 years ago > and fell really hard onto a chaise lounge and broke a rib. The rib pain > was so bad I was throwing up. I went to the ER and the nurse put a > turnequet (sp?) on my arm so he could draw blood and I screamed and > cried and begged him to take it off and he wouldn't! From then on, he > treated me like I was a drug seeker and not a tourist who had a terrible > accident within 4 hours of her first day of vacation!!! It wasn't until > at least a year and a half later that I realized he must have put direct > pressure on one of the lumps. I first found them in my chest and > breasts and then the back of my knees and one day I decided to put some > massage oil on my skin and try to find others and that's when I found > the one on my arm as well as everywhere else. > > I hope you are doing well. Every time I see something on TV about Vegas > I think about you. I'm happily re-married and I'm working selling > advertising at 2 local radio stations and having a great time. This > past fall and winter I thought about quitting, but I'm not going to let > this illness steal anymore of my life! > > > ________________________________ > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Sunny ~ Where do you live ? There is a list of recommended doctors in the archives....... Good Luck with your journey and we are here when you need us. Hugs N Prayers ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Hi Dede: Thank you for your e-mail. I had my saline implant in for 9 years, under the muscle and had them out in January. They are with Dr. Blais. He told me that my left one was ready to rupture, and it did when the PS took it out. Also, the valves had come open initially upon implant but the valves both fused close after this, so there were no leaks after. I realize that the silicone shell will degrade, and flake off, and I guess that was what I was asking. So the answer is that I am at risk of these silicone lumps as well. I will certainly keep my eyes open for these. I am so sorry that you have to go through all of this. Take care of yourself. xoxo From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Thu, April 1, 2010 12:25:38 PMSubject: Re: Painful lumps? Hello ~ All implants are made of silicone, and then filled with different things. The silicone outter shell degrades, and flecks of it can be found inside of lymph nodes and any place that it can go. I had silicone filled implants first, with a slow leak that ended up in a massive rupture when I had a mammogram where the silicone of the right implant blew out the top of the scar capsule and migrated up and over my right shoulder as well as all inside my chest wall cavity. The implants were under the muscle. The doctor left me that way a few weeks until he had an opening to do the surgery. I was told it was perfectly safe. NOT, had many surgeries to remove silicone that my body encapsulated. Had to have my entire chest wall detatched to do it too......... I still have some ... I did some research on some of your other issues last night. I have salines in there now, and they are old.......but I have been dealing with heart problems and my heart has been too weak to have surgery to remove them until now, my heart is stronger, but I need a new heart device before I can have the breast surgery..... ....so I have to wait.... Saline implants have many problems too since they can become full of mold and other organisms... ....... I think once you have implants in for awhile, your body becomes permeated with all those neuro-toxic chemicals that they use to make the silicone for implants, outside shell as well as inside silicone, and what happens it alters your body so that many of the tests they run are no longer valid......we do not fall in to the normal ranges that they set for people without the chemical altered state. Anyway...... if you have any questions, please share with me, and as you learn things please share those with me too........ Hugs N prayers ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Dede, I live in sunny California, Los Angeles area. I saw the list and I am going to visit couple of them before I make my decision on the doctors. Does anyone know Dr. Jae Chun because he was listed and is close to where I live? I guess I just have to face it and go through with it. I am glad that I have someone to talk to. Thank you! Sunny From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Thu, April 1, 2010 5:07:16 PMSubject: Re: Painful lumps? Sunny ~ Where do you live ? There is a list of recommended doctors in the archives.... ... Good Luck with your journey and we are here when you need us. Hugs N Prayers ~ Dede Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Hello ~ My pleasure ! Yes, you need to continue doing lump checks...and journal where they are and how they feel. We had a gal a couple years ago that had to have surgery every couple months because her body kept encapsulating silicone from the shell. She had saline ! and even her doctors couldnt believe all the lumps that formed, and that they had silicone in them . They become cystic and granulomas, thickened scar tissue, and some even get necrosis ( cell death ) . My biggest one had it......It didnt show up on xrays or mri's and it was huge, filled an entire urine cup ! It took me 2 years of testing and goin to the doc to convince them to just go in and explore it. For 2 years doctor to doctor, test after test, they sat me down and told me it was all in my head and put me on zoloft. Read everything you can, follow your gut instinct, get many opinions until you feel comfortable with what your decisions are, and go with it. Exercise, even if it is movement in a chair or on a bed, stretch and walk if you can....drink water, eat a clean diet, and as much raw vegetables as you can. Breathe, when we dont feel well, we sometimes forget to breathe so doing consious breathing several times a day helps alot. Be in tune with yourself, and note any changes. Watch for patterns. One gal did a food journal and also wrote down how she felt physically and emotionally in the journal and discovered the days she ate eggs, around 3 in the afternoon she would become real emotional....so, she was reacting to the eggs ! Anyway, have a beautiful day ! ! ! Dede Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 I am gonna forward this note to Gretchen , she lives in Calif, and perhaps she knows this gentleman. I know we have others in Calif. I hope others will chime in.... Hugs Dede Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Thank you Dede. I haven't notice any lumps, anywhere on my body. These lumps can also form in organs, can't they, like heart, lungs and kidneys. Might they not be more prevalent in the lymph nodes? I did not have all of the capsule removed when my implants were removed. The capsule was so thin and adhered to my chest muscle. The doctor did not want to cause hemorrhage and hematoma. He did remove the front part of the capsule, however. The rest will just stay adhered to the chest wall. I did talk to Dr. Blais about this, and he had no problem with this technique. Dr. Blais actually recommended my surgeon. I however, wonder about that bit of capsule being left in me and what it might contain, along with the silicone that came off of the implant itself, I probably do have silicone floating around inside of me. Thank you for all of your wisdom. I do watch what I eat. My downfall is coffee. I drink far too much, but am trying to cut back. Have a good day, and thank you again. xoxo From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Fri, April 2, 2010 10:38:12 AMSubject: Re: Painful lumps? Hello ~ My pleasure ! Yes, you need to continue doing lump checks...and journal where they are and how they feel. We had a gal a couple years ago that had to have surgery every couple months because her body kept encapsulating silicone from the shell. She had saline ! and even her doctors couldnt believe all the lumps that formed, and that they had silicone in them . They become cystic and granulomas, thickened scar tissue, and some even get necrosis ( cell death ) . My biggest one had it......It didnt show up on xrays or mri's and it was huge, filled an entire urine cup ! It took me 2 years of testing and goin to the doc to convince them to just go in and explore it. For 2 years doctor to doctor, test after test, they sat me down and told me it was all in my head and put me on zoloft. Read everything you can, follow your gut instinct, get many opinions until you feel comfortable with what your decisions are, and go with it. Exercise, even if it is movement in a chair or on a bed, stretch and walk if you can....drink water, eat a clean diet, and as much raw vegetables as you can. Breathe, when we dont feel well, we sometimes forget to breathe so doing consious breathing several times a day helps alot. Be in tune with yourself, and note any changes. Watch for patterns. One gal did a food journal and also wrote down how she felt physically and emotionally in the journal and discovered the days she ate eggs, around 3 in the afternoon she would become real emotional... .so, she was reacting to the eggs ! Anyway, have a beautiful day ! ! ! Dede Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 I am glad you havent noticed any lumps so far. You know, you may be lucky and your lymph nodes may just filter any debris right on out. This does happen ! The main thing is to be well educated from your research, very aware, and very in tune with your body. and dont worry ! Worry in itself is very unhealthy for you. I still drink coffee. About a cup a day in the mornings. I am not going to remove all my vices, lol....I really enjoy my cup of coffee in the mornings, the pleasure I get, and the fact I limit it, I feel is ok......I used to drink about 6 cups every morning........ The scar tissue left inside of you may be ok, and it may not.....the main thing is to not worry, keep up with your self breast exams so you know if there are any differences. Enjoy life ! Hugs Dede Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 I found this article in the internet: Silicone Breast Implants and Injections From Doctor Myhill I have now been consulted by over 300 patients with chronic ill health following silicone breast implants or injections. Silicone leaks (so called "gel bleed") out of the implant where it is picked up by the reticulo-endothelial cells and distributed widely throughout the whole body. The government body responsible for licensing silicone, the Medical Devices Agency, claims that silicone is inert and does no harm despite this gel bleed. However, silicone injections are now banned. My clinical experience and the scientific literature suggests otherwise. With silicone I am not just looking for the obvious breast implant or silicone injections (siliconosis) - many other prostheses have biologically active materials. Examples include: other breast implants - all breast implants including saline ones have silicone in them, testicular implants, lens implants, Norplant contraceptive device (silicone rods), TMJ work, facial contouring - chin implants etc, meshes for hernia repairs or wound repairs "sting" injection of teflon for treating urinary reflux in children and many others There are many problems with implants, of which the most obvious is reaction at the time of insertion. The majority of women who have silicone implants do not seem to react to the silicone - the immune system ignores it. However for an unfortunate few the immune system is activated against the silicone. This can cause problems immediately after implantation when the body tries to get rid of the silicone. It does this by throwing up a fibrous capsule around the implant which then contracts, trying to squeeze the implant out. This is akin to the mechanism by which the body gets rid of any foreign body that gets into it such as a thorn. In this event the implant goes hard and becomes painful. Surgeons often treat this by crushing the breast between their hands, either to rupture the implant or break the pseudo-capsule. However this often creates just more problems. This technique is called external capsulotomy. However, the long term effects are far more malign. This stems from the fact that silicone cannot be broken down by any enzyme system in the body, is engulfed by macrophages, carried to distant sites by embolisation and there it acts as an immune adjuvant, stimulating immune activity. This means that these patients may suffer from multisystem disease. Therefore we see disregulation of the immune system with: Autoimmunity, eg missed connective tissue disease,demyelinating conditions such as MS, autoimmune endocrinopathies, vasculitis and myopathies. Chronic fatigue syndromes. Disregulation of the immune system leading to multiple allergies which may be to foods, to chemicals, to inhalants, or to micro organisms. My clinical impression is that the silicone poisoned patients suffer more from pain than those suffering from virally or OP induced CFS. I have concluded from my own observations that silicone causes a new disease unique to silicone but resembling other diseases. All of these cases I have reported to the MDA. None of these cases were reported to the MDA by either their plastic surgeon or rheumatologist or oncologist. This simply reflects the level of gross under-reporting of side effects. MECHANISM OF DAMAGE BY SILICONE It is well recognised that the silicone bleeds out of the implants very readily and is widely distributed throughout the body by the reticulo-endothelial system. Silicone leaks out as soon as the implants are put in. I know this because the Medical Devices Agency, which is the government body responsible for licensing these products, tells me so. However, where we disagree is what happens to the silicone then. The MDA maintains that it is inert, but actually silicone is well recognised as being an immune adjuvant and I suspect in susceptible individuals we get an inflammatory reaction against the silicone which results in multi-system disease. The Louisiana ruling on 19.8.97 showed that Dow Corning was developing silicone for use as an active pharmaceutical agent at the same time as when it was being declared "inert". There is no known mechanism by which silicone can be excreted from the body. Silicone leakage is accelerated when implants rupture, of which 50% do so by 12 years and 95% by 20 years. Most of these ruptures are spontaneous but some follow closed capsulotomy, road traffic accident or whatever. A Lancet paper (November 1997) recommends that all implants are replaced every 8 years. Silicone leakage can be a problem locally whereby the body throws up a scar capsule against the implant to try to prevent the silicone from leaking. As this scar contracts this causes local hardening of the breast, often with pain. Surgeons treat this by crushing the breast between their hands (often with no anaesthetic!) to rupture the scar capsule (this unproven, extremely painful procedure has been sanitised by giving it a name: closed capsulotomy). The implant may also be ruptured by this procedure. Once ruptured, the silicone may migrate in a lump to the axilla and brachial plexus causing pain and blockage of lymphatics, across the breast causing a mis-shapen breast (one patient had to have her nipples surgically re-sited), or down the chest wall. SECOND GENERATION EFFECTS There is every reason to expect silicone to cross the placenta into the unborn child. The effects of this are uncertain. Prof Shanklin has looked at a group of 190 women who had babies before and after their implant. There were 127 pre-implant children of which 100 were in good health, 27 in fair health (minor transient problems) and none sick. This compares to 252 post-implant children, of which 78 were in good health 81 in fair health with 93 WHO WERE MORE SERIOUSLY ILL (compares to none in the pre-implant group!). This experience certainly accords with what I am seeing in my patients. TESTS FOR SILICONE POISONING The most sensitive test available in this country to assess the reaction of white cells to silicone in the body is a lymphocyte chemical sensitivity (silicone) test. This just involves sending a blood sample to ACUMEN. My clinical impression of tests done so far is that the worst affected women have the highest levels of sensitivity. TREATMENT Explantation. I have been in direct contact with Professor Radford Shanklin from the States who has been most helpful with clinical management. We had a long meeting at the Royal Society of Medicine where I could pick his brains. The priority is to have the silicone removed by a surgeon skilled in explantation. However, the problem with explantation is that it is thought to stir up a reaction against silicone and patients often see a worsening of their symptoms which may last up to 3 years. Prof. Shanklin tells me that reactions against silicone are medicated by T cells and interleukin 2. He has been trying Plaquenil 200mgs twice daily for 30 days before and 60 days after surgery and believes this damps down the T cell activity and prevents this post operative flare. Plaquenil is a standard immunosuppressive drug used to treat rheumatoid arthritis and systemic lupus erythematosis. It is a fairly benign drug and it is felt that for short term treatment no special monitoring is required although it is probably medically prudent to check a white cell count and eye test before and during treatment. Explantation needs to be done by a skilled surgeon aware of the need not to rupture the capsule inadvertently. Furthermore, the scar capsule also needs removing because it will be impregnated with silicone. Insist on being given the implant after surgery and don't allow the surgeon to make up an excuse. I had one patient who was told the implant was removed intact, but it was "scrubbed" to make it look better and ruptured in that process, therefore it was not available to be seen! Let's face it - you've paid for it - it belongs to you! Reducing the autoimmunity. High dose vitamin D, by which I mean 50,000 i.u. per week, together with high dose essential fatty acids such as VegEPA very much help to reduce the immune reactions generally. Detoxing. Unfortunately, there is no mechanism by which silicones can be excreted from the body. I am not aware of any method of detoxing to facilitate this. One simply has to put in place all of the above measures and hope that the immune system eventually loses interest in silicone and "burns itself out". This is certainly my experience with women who are able to hold the above regimes in place. Also see Chemical poisoning - general principles of diagnosis and treatment From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Fri, April 2, 2010 9:59:59 AMSubject: Re: Painful lumps? I am glad you havent noticed any lumps so far. You know, you may be lucky and your lymph nodes may just filter any debris right on out. This does happen ! The main thing is to be well educated from your research, very aware, and very in tune with your body. and dont worry ! Worry in itself is very unhealthy for you. I still drink coffee. About a cup a day in the mornings. I am not going to remove all my vices, lol....I really enjoy my cup of coffee in the mornings, the pleasure I get, and the fact I limit it, I feel is ok......I used to drink about 6 cups every morning..... ... The scar tissue left inside of you may be ok, and it may not.....the main thing is to not worry, keep up with your self breast exams so you know if there are any differences. Enjoy life ! Hugs Dede Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Ya, Dr Myhill is in England and well known. We have girls that have seen her. Great article ! Thank you for sharing this ! Painful lumps? One of our former girls is writing to ask if anyone else has had these painful lumps? Dede, do you or have you heard of anyone else? I have not heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps? It's disheartening to hear of her having issues again, after a period of recovery. It seems that there are residual problems that creep back into our lives if we are not vigilant! Here's her letter: Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had a period of complete recovery for about 2 years and then it hit me again like a ton of bricks. Several things seemed to spark it and I'm not sure which ones...hormone change, severe sun rash, car accident and a freak accident at the beach where I broke a rib! After that, I was in pain all the time and severely fatigued. I have had a severe rash from sun exposure for 3 years now, hair loss, lumps everywhere and blood as well as white cells in my urine without any bacteria. The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are SOOOO painful to touch. I have over 50 of them, most concentrated areas are from behind my knee up to mid thigh, stomach from pubic bone to above belly button, upper chest/breasts. The biggest one seems to be on my sternum. I had a punch biopsy on one of them on my calf and it just showed it was a lipoma. I am going to ask the doctor to actually remove one or two of the most painful to test them fully...perhaps they only caught a fatty area of the lump the first time??? I did read about an illness called Dercum's Disease and other than the fact that most who have the disease are obese, it is me to a T! I mentioned it to my primary care doc and she wrote it down but hasn't called me to say she's read up on it, so I'm not sure if she is even researching it. Also, I am severely hypermobile and have been since birth. I was finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It can get the sympathetic nervous system all out of wack because it perceives that the body is always in a fight/flight mode because of how hard the body has to work just to maintain proper alignment. Along with EDS, I have a slight Chiarri Malformation where the tonsils of my brain are lower than they should be which causes headaches because of the increased cerebral spinal pressure. Anyways, I can deal with the EDS and the headaches - currently they are not that frequent. What I'm concerned about is the blood/white cells in the urine and the lumps. I need to schedule a cytoscopy so they can look at my bladder, but haven't done it yet because I owe the urologist money for a previous test that my insurance didn't cover! I had over $13,000 in out of pocket expenses last year! I'm wondering if other girls have complained about painful lumps everywhere - I think the only place I don't have them are my neck, hands, feet and possibly buttocks. Just to give you an idea how painful they are, before I even knew I had them, I was at the beach 2 years ago and fell really hard onto a chaise lounge and broke a rib. The rib pain was so bad I was throwing up. I went to the ER and the nurse put a turnequet (sp?) on my arm so he could draw blood and I screamed and cried and begged him to take it off and he wouldn't! From then on, he treated me like I was a drug seeker and not a tourist who had a terrible accident within 4 hours of her first day of vacation!!! It wasn't until at least a year and a half later that I realized he must have put direct pressure on one of the lumps. I first found them in my chest and breasts and then the back of my knees and one day I decided to put some massage oil on my skin and try to find others and that's when I found the one on my arm as well as everywhere else. I hope you are doing well. Every time I see something on TV about Vegas I think about you. I'm happily re-married and I'm working selling advertising at 2 local radio stations and having a great time. This past fall and winter I thought about quitting, but I'm not going to let this illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Yes, very good article. I sent it to a friend of mine from church. She knows a lady who waited 4 years after double mastectomy to have silicone implants put in. She just wanted to feel normal again. She had to have expanders put into her chest to make the area big enough for the implants. This was a very painful process, and now she has the silicone implants. My friend didn't want to tell her that she is probably worse off than before the implants. Now she not only has to deal with having a fear of the return of cancer, but now has to probably fight everything that goes with silicone poisoning. Hopefully, some day my friend will be able to share the reality of breast implants with this lady. Thank you for the article. xoxo From: "DGRAHAMA@..." <DGRAHAMA@...> Sent: Fri, April 2, 2010 12:45:04 PMSubject: Re: Painful lumps? Ya, Dr Myhill is in England and well known. We have girls that have seen her. Great article ! Thank you for sharing this ! Painful lumps? One of our former girls is writing to ask if anyone else has had thesepainful lumps? Dede, do you or have you heard of anyone else? I havenot heard much about these, but I need to research it in our archives. The pain I certainly have heard about...just wondering about the lumps?It's disheartening to hear of her having issues again, after a period ofrecovery. It seems that there are residual problems that creep backinto our lives if we are not vigilant! Here's her letter:Hi Patty, I am so sorry it's been so long since I've talked to you! Unfortunately I am not as well as I was the last time we spoke. I had aperiod of complete recovery for about 2 years and then it hit me againlike a ton of bricks. Several things seemed to spark it and I'm notsure which ones...hormone change, severe sun rash, car accident and afreak accident at the beach where I broke a rib! After that, I was inpain all the time and severely fatigued. I have had a severe rash fromsun exposure for 3 years now, hair loss, lumps everywhere and blood aswell as white cells in my urine without any bacteria.The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They areSOOOO painful to touch. I have over 50 of them, most concentrated areasare from behind my knee up to mid thigh, stomach from pubic bone toabove belly button, upper chest/breasts. The biggest one seems to be onmy sternum. I had a punch biopsy on one of them on my calf and it justshowed it was a lipoma. I am going to ask the doctor to actually removeone or two of the most painful to test them fully...perhaps they onlycaught a fatty area of the lump the first time??? I did read about anillness called Dercum's Disease and other than the fact that most whohave the disease are obese, it is me to a T! I mentioned it to myprimary care doc and she wrote it down but hasn't called me to say she'sread up on it, so I'm not sure if she is even researching it.Also, I am severely hypermobile and have been since birth. I wasfinally diagnosed last year with Ehler's Danlos Syndrome, Classic Style.It causes severe joint pain, myofascial pain syndrome, fatigue, etc. Itcan get the sympathetic nervous system all out of wack because itperceives that the body is always in a fight/flight mode because of howhard the body has to work just to maintain proper alignment. Along withEDS, I have a slight Chiarri Malformation where the tonsils of my brainare lower than they should be which causes headaches because of theincreased cerebral spinal pressure.Anyways, I can deal with the EDS and the headaches - currently they arenot that frequent. What I'm concerned about is the blood/white cells inthe urine and the lumps. I need to schedule a cytoscopy so they canlook at my bladder, but haven't done it yet because I owe the urologistmoney for a previous test that my insurance didn't cover! I had over$13,000 in out of pocket expenses last year!I'm wondering if other girls have complained about painful lumpseverywhere - I think the only place I don't have them are my neck,hands, feet and possibly buttocks. Just to give you an idea how painfulthey are, before I even knew I had them, I was at the beach 2 years agoand fell really hard onto a chaise lounge and broke a rib. The rib painwas so bad I was throwing up. I went to the ER and the nurse put aturnequet (sp?) on my arm so he could draw blood and I screamed andcried and begged him to take it off and he wouldn't! From then on, hetreated me like I was a drug seeker and not a tourist who had a terribleaccident within 4 hours of her first day of vacation!!! It wasn't untilat least a year and a half later that I realized he must have put directpressure on one of the lumps. I first found them in my chest andbreasts and then the back of my knees and one day I decided to put somemassage oil on my skin and try to find others and that's when I foundthe one on my arm as well as everywhere else.I hope you are doing well. Every time I see something on TV about VegasI think about you. I'm happily re-married and I'm working sellingadvertising at 2 local radio stations and having a great time. Thispast fall and winter I thought about quitting, but I'm not going to letthis illness steal anymore of my life! The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Ask a question on any topic and get answers from real people. Go to Answers. Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 Sunny, Most women had no idea what they were getting into with breast implants. I certainly had no idea I could get as sick as I did. The doctors don't help, because they continue to deny that implants are making women ill, when we've seen evidence of this for over 40 years now. And everything keeps changing...when I got implants, I was told they would last my lifetime. About 2 months after my implant surgery, my doctor sent me information that said implants would have to be replaced every 7 years! Wow, talk about bait and switch. It's understandable that you would be scared of the surgery..it's an unknown to you. But it really isn't too bad...if you have an experience like mine for explant, you will find that the pain is much, much less, and recovery much quicker. I hope you can find the right surgeon...you really need to have the surgery done correctly (en bloc or at least a total capsulectomy with drains). This will be one surgery you want done right the first time. Let me know if you have further questions. I will try to keep in touch as much as possible on the group....just challenged right now! I hope you had a great Easter. Patty > > > > Dede, > > Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them. > > > > Thanks for all the information. I am glad I have a support group > > > > Sunny > > > > > > > > > > ____________ _________ _________ __ > > From: " DGRAHAMA@ . " <DGRAHAMA@ .> > > > > Sent: Thu, April 1, 2010 12:07:14 PM > > Subject: Re: Painful lumps? > > > >  > > Sunny ~ > > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. > >  > > There are many pics in the photo section of saline implants that are full > > of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... ..Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... . > >  > > Follow your gut instincts. They are usually always right....... read all you can > > so you can know what questions to ask, and even copy some of the articles > > for your doctor...... should you keep this one. > > Many doctors just believe what they are told by the drug companies that > > sell the implants.... ..they dont use common sense and really learn about > > them. Part of the problem is they arent studying us, the ones that get really > > ill from them, and there are hundreds of thousands of us over the years...... > > There is so much money to be made from them that they just do what they do > > to make it easy to sell and hide the sick ones........ many people are ill from implants > > and just think it is other things...... even old age. > > You know, when I look at my father, and see him live, then look at myself, > > I realize the impact chemicals have on the body. My father is 83, on his second > > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma. > > This man is active with his church, volunteers at the hospital, comes and visits > > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age....... > > OK.....off my high horse.....LOL. ......Educate you ! > > Happy reading ! > > Hugs ~ Dede > > > > > > > > > > Painful lumps? > > > > > >  > > > > One of our former girls is writing to ask if anyone else has had these > > painful lumps? Dede, do you or have you heard of anyone else? I have > > not heard much about these, but I need to research it in our archives. > > The pain I certainly have heard about...just wondering about the lumps? > > > > It's disheartening to hear of her having issues again, after a period of > > recovery. It seems that there are residual problems that creep back > > into our lives if we are not vigilant! Here's her letter: > > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > Unfortunately I am not as well as I was the last time we spoke. I had a > > period of complete recovery for about 2 years and then it hit me again > > like a ton of bricks. Several things seemed to spark it and I'm not > > sure which ones...hormone change, severe sun rash, car accident and a > > freak accident at the beach where I broke a rib! After that, I was in > > pain all the time and severely fatigued. I have had a severe rash from > > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > > well as white cells in my urine without any bacteria. > > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > > SOOOO painful to touch. I have over 50 of them, most concentrated areas > > are from behind my knee up to mid thigh, stomach from pubic bone to > > above belly button, upper chest/breasts. The biggest one seems to be on > > my sternum. I had a punch biopsy on one of them on my calf and it just > > showed it was a lipoma. I am going to ask the doctor to actually remove > > one or two of the most painful to test them fully...perhaps they only > > caught a fatty area of the lump the first time??? I did read about an > > illness called Dercum's Disease and other than the fact that most who > > have the disease are obese, it is me to a T! I mentioned it to my > > primary care doc and she wrote it down but hasn't called me to say she's > > read up on it, so I'm not sure if she is even researching it. > > > > Also, I am severely hypermobile and have been since birth. I was > > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > > can get the sympathetic nervous system all out of wack because it > > perceives that the body is always in a fight/flight mode because of how > > hard the body has to work just to maintain proper alignment. Along with > > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > > are lower than they should be which causes headaches because of the > > increased cerebral spinal pressure. > > > > Anyways, I can deal with the EDS and the headaches - currently they are > > not that frequent. What I'm concerned about is the blood/white cells in > > the urine and the lumps. I need to schedule a cytoscopy so they can > > look at my bladder, but haven't done it yet because I owe the urologist > > money for a previous test that my insurance didn't cover! I had over > > $13,000 in out of pocket expenses last year! > > > > I'm wondering if other girls have complained about painful lumps > > everywhere - I think the only place I don't have them are my neck, > > hands, feet and possibly buttocks. Just to give you an idea how painful > > they are, before I even knew I had them, I was at the beach 2 years ago > > and fell really hard onto a chaise lounge and broke a rib. The rib pain > > was so bad I was throwing up. I went to the ER and the nurse put a > > turnequet (sp?) on my arm so he could draw blood and I screamed and > > cried and begged him to take it off and he wouldn't! From then on, he > > treated me like I was a drug seeker and not a tourist who had a terrible > > accident within 4 hours of her first day of vacation!!! It wasn't until > > at least a year and a half later that I realized he must have put direct > > pressure on one of the lumps. I first found them in my chest and > > breasts and then the back of my knees and one day I decided to put some > > massage oil on my skin and try to find others and that's when I found > > the one on my arm as well as everywhere else. > > > > I hope you are doing well. Every time I see something on TV about Vegas > > I think about you. I'm happily re-married and I'm working selling > > advertising at 2 local radio stations and having a great time. This > > past fall and winter I thought about quitting, but I'm not going to let > > this illness steal anymore of my life! > > > > > > ____________ _________ _________ __ > > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 You are always such a trooper Dede, you are pretty amazing. I hope you can get the surgery you need and most importantly, the care that you need. It's sad about our health care...I don't like any of it, though I certainly appreciate life saving methods. But the rest of it is just too problematic. I hope to be able to stay away from docs for a long time, but I have no idea what is in my future after implants. I used to believe I could control it all and be really healthy, but now I'm wondering what is ahead. I have a few issues that are bothering me, like my ear! It's been painful for the last few weeks. I am sorry you are having to deal with all that you are. I know it's no fun. God bless you Dede, Hope you had a nice Easter. Love you! Patty > > > > > > Wow......what a trip.......I had many painful lumps popping up > > in my chest for a few years, and they did surgery every 6 months > > to remove a bunch of them. They varied from cysts to siliconomas, > > to granulomas. One was cystic and filled with silicone. It was huge. > > This last 8 months or so, I have been getting these strange lumps. > > They are movable, and I have no clue what they are. I havent checked > > my whole body as there is nothing I can do about them right now. > > I am working on this next heart surgery, and before it I have to > > have a scan of my lungs for the nodules that appeared in them...... > > So......that takes up any monies there are........The disability is slim > > and the medicare coverage I have leaves me with 20 percent to > > come up with. > > Its a mess...... > > anyway, the answer is yes......I have problems with odd lumps > > and things....... > > Not sure about anyone else....... > > I hope you are able to get some good care. Good Luck with your > > journey.......I am sorry it has been so tough for you..... > > Hugs N Prayers ~ > > Dede > > > > > > > > > > > > > > > > > > > > Painful lumps? > > > > > > > > > > > > One of our former girls is writing to ask if anyone else has had these > > painful lumps? Dede, do you or have you heard of anyone else? I have > > not heard much about these, but I need to research it in our archives. > > The pain I certainly have heard about...just wondering about the lumps? > > > > It's disheartening to hear of her having issues again, after a period of > > recovery. It seems that there are residual problems that creep back > > into our lives if we are not vigilant! Here's her letter: > > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > Unfortunately I am not as well as I was the last time we spoke. I had a > > period of complete recovery for about 2 years and then it hit me again > > like a ton of bricks. Several things seemed to spark it and I'm not > > sure which ones...hormone change, severe sun rash, car accident and a > > freak accident at the beach where I broke a rib! After that, I was in > > pain all the time and severely fatigued. I have had a severe rash from > > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > > well as white cells in my urine without any bacteria. > > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > > SOOOO painful to touch. I have over 50 of them, most concentrated areas > > are from behind my knee up to mid thigh, stomach from pubic bone to > > above belly button, upper chest/breasts. The biggest one seems to be on > > my sternum. I had a punch biopsy on one of them on my calf and it just > > showed it was a lipoma. I am going to ask the doctor to actually remove > > one or two of the most painful to test them fully...perhaps they only > > caught a fatty area of the lump the first time??? I did read about an > > illness called Dercum's Disease and other than the fact that most who > > have the disease are obese, it is me to a T! I mentioned it to my > > primary care doc and she wrote it down but hasn't called me to say she's > > read up on it, so I'm not sure if she is even researching it. > > > > Also, I am severely hypermobile and have been since birth. I was > > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > > can get the sympathetic nervous system all out of wack because it > > perceives that the body is always in a fight/flight mode because of how > > hard the body has to work just to maintain proper alignment. Along with > > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > > are lower than they should be which causes headaches because of the > > increased cerebral spinal pressure. > > > > Anyways, I can deal with the EDS and the headaches - currently they are > > not that frequent. What I'm concerned about is the blood/white cells in > > the urine and the lumps. I need to schedule a cytoscopy so they can > > look at my bladder, but haven't done it yet because I owe the urologist > > money for a previous test that my insurance didn't cover! I had over > > $13,000 in out of pocket expenses last year! > > > > I'm wondering if other girls have complained about painful lumps > > everywhere - I think the only place I don't have them are my neck, > > hands, feet and possibly buttocks. Just to give you an idea how painful > > they are, before I even knew I had them, I was at the beach 2 years ago > > and fell really hard onto a chaise lounge and broke a rib. The rib pain > > was so bad I was throwing up. I went to the ER and the nurse put a > > turnequet (sp?) on my arm so he could draw blood and I screamed and > > cried and begged him to take it off and he wouldn't! From then on, he > > treated me like I was a drug seeker and not a tourist who had a terrible > > accident within 4 hours of her first day of vacation!!! It wasn't until > > at least a year and a half later that I realized he must have put direct > > pressure on one of the lumps. I first found them in my chest and > > breasts and then the back of my knees and one day I decided to put some > > massage oil on my skin and try to find others and that's when I found > > the one on my arm as well as everywhere else. > > > > I hope you are doing well. Every time I see something on TV about Vegas > > I think about you. I'm happily re-married and I'm working selling > > advertising at 2 local radio stations and having a great time. This > > past fall and winter I thought about quitting, but I'm not going to let > > this illness steal anymore of my life! > > > > > > > > = > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 Sunny, You've got that right. I used to believe that doctors knew everything and that I could trust everything they said...found out that is only true of a very few doctors in the world, that are not sold out to being politically correct. It takes courage to take the high road and tell the truth. So, what did you decide regarding this surgeon? Are you still looking for another one? Who was it, by the way (wondering if he/she is on our list?) Sometimes the search for the right surgeon can be very disheartening and frustrating. In the cases where women just want the implants out ASAP and don't have too many hurdles to get over, we can recommend just going to the plastic surgeons we trust implicitly to do the right thing. That usually means traveling if you are not in the city where they practice. Here is who we recommend without batting an eye. These doctors KNOW about proper explant, and do it right every time, because they KNOW women are getting sick from implants: Dr. Lu Feng, Cleveland OH Dr. Kolb, Atlanta, GA Dr. Huang, Denver, CO Dr. Ed Melmed, Dallas TX (please be sure to request a TOTAL capsulectomy and get it in writing that he will do it if you have saline implants.) If you need any further assistance with your search, please let us know. In the meantime, stay close with us and we will help you through any of your other concerns as much as we can. Sending hugs! Patty > > > > > > Dede, > > > Yes, I don't think it's due to old age and I don't think it's normal part of aging process. Many doctors that I saw told me that I am going through perimenopause, but I don't think so.  All the doctors think I am going crazy and recommended that I take anti-depressant.  I think it is the implant. I am getting ready to have them removed. Currently I'm searching for a good plastic surgeon who can remove them. > > > > > > Thanks for all the information. I am glad I have a support group > > > > > > Sunny > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: " DGRAHAMA@ . " <DGRAHAMA@ .> > > > > > > Sent: Thu, April 1, 2010 12:07:14 PM > > > Subject: Re: Painful lumps? > > > > > >  > > > Sunny ~ > > > The implants DO infact cause all these problems. There are thousands and thousands of us.......we all have many of the same symptoms. Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed. This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris. > > >  > > > There are many pics in the photo section of saline implants that are full > > > of mold and other toxins. Some are black, some reddish, brownish, and it is really nasty. There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away. I am sorry this one does not have your best interest at heart, or is very inexperienced . Look in the archives, much of it comes from medical journals, and case reports and things...... . > > >  > > > Follow your gut instincts. They are usually always right....... read all you can > > > so you can know what questions to ask, and even copy some of the articles > > > for your doctor...... should you keep this one. > > > Many doctors just believe what they are told by the drug companies that > > > sell the implants.... ..they dont use common sense and really learn about > > > them. Part of the problem is they arent studying us, the ones that get really > > > ill from them, and there are hundreds of thousands of us over the years...... > > > There is so much money to be made from them that they just do what they do > > > to make it easy to sell and hide the sick ones........ many people are ill from implants > > > and just think it is other things...... even old age. > > > You know, when I look at my father, and see him live, then look at myself, > > > I realize the impact chemicals have on the body. My father is 83, on his second > > > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma. > > > This man is active with his church, volunteers at the hospital, comes and visits > > > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age....... > > > OK.....off my high horse.....LOL. ......Educate you ! > > > Happy reading ! > > > Hugs ~ Dede > > > > > > > > > > > > > > > Painful lumps? > > > > > > > > >  > > > > > > One of our former girls is writing to ask if anyone else has had these > > > painful lumps? Dede, do you or have you heard of anyone else? I have > > > not heard much about these, but I need to research it in our archives. > > > The pain I certainly have heard about...just wondering about the lumps? > > > > > > It's disheartening to hear of her having issues again, after a period of > > > recovery. It seems that there are residual problems that creep back > > > into our lives if we are not vigilant! Here's her letter: > > > > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > > Unfortunately I am not as well as I was the last time we spoke. I had a > > > period of complete recovery for about 2 years and then it hit me again > > > like a ton of bricks. Several things seemed to spark it and I'm not > > > sure which ones...hormone change, severe sun rash, car accident and a > > > freak accident at the beach where I broke a rib! After that, I was in > > > pain all the time and severely fatigued. I have had a severe rash from > > > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > > > well as white cells in my urine without any bacteria. > > > > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > > > SOOOO painful to touch. I have over 50 of them, most concentrated areas > > > are from behind my knee up to mid thigh, stomach from pubic bone to > > > above belly button, upper chest/breasts. The biggest one seems to be on > > > my sternum. I had a punch biopsy on one of them on my calf and it just > > > showed it was a lipoma. I am going to ask the doctor to actually remove > > > one or two of the most painful to test them fully...perhaps they only > > > caught a fatty area of the lump the first time??? I did read about an > > > illness called Dercum's Disease and other than the fact that most who > > > have the disease are obese, it is me to a T! I mentioned it to my > > > primary care doc and she wrote it down but hasn't called me to say she's > > > read up on it, so I'm not sure if she is even researching it. > > > > > > Also, I am severely hypermobile and have been since birth. I was > > > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > > > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > > > can get the sympathetic nervous system all out of wack because it > > > perceives that the body is always in a fight/flight mode because of how > > > hard the body has to work just to maintain proper alignment. Along with > > > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > > > are lower than they should be which causes headaches because of the > > > increased cerebral spinal pressure. > > > > > > Anyways, I can deal with the EDS and the headaches - currently they are > > > not that frequent. What I'm concerned about is the blood/white cells in > > > the urine and the lumps. I need to schedule a cytoscopy so they can > > > look at my bladder, but haven't done it yet because I owe the urologist > > > money for a previous test that my insurance didn't cover! I had over > > > $13,000 in out of pocket expenses last year! > > > > > > I'm wondering if other girls have complained about painful lumps > > > everywhere - I think the only place I don't have them are my neck, > > > hands, feet and possibly buttocks. Just to give you an idea how painful > > > they are, before I even knew I had them, I was at the beach 2 years ago > > > and fell really hard onto a chaise lounge and broke a rib. The rib pain > > > was so bad I was throwing up. I went to the ER and the nurse put a > > > turnequet (sp?) on my arm so he could draw blood and I screamed and > > > cried and begged him to take it off and he wouldn't! From then on, he > > > treated me like I was a drug seeker and not a tourist who had a terrible > > > accident within 4 hours of her first day of vacation!!! It wasn't until > > > at least a year and a half later that I realized he must have put direct > > > pressure on one of the lumps. I first found them in my chest and > > > breasts and then the back of my knees and one day I decided to put some > > > massage oil on my skin and try to find others and that's when I found > > > the one on my arm as well as everywhere else. > > > > > > I hope you are doing well. Every time I see something on TV about Vegas > > > I think about you. I'm happily re-married and I'm working selling > > > advertising at 2 local radio stations and having a great time. This > > > past fall and winter I thought about quitting, but I'm not going to let > > > this illness steal anymore of my life! > > > > > > > > > ____________ _________ _________ __ > > > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 It's always hard to tell women who are happy with their implants about the truth of our illnesses and how we have been ignored and downplayed. Patty > > Yes, very good article. I sent it to a friend of mine from church. She knows a lady who waited 4 years after double mastectomy to have silicone implants put in. She just wanted to feel normal again. She had to have expanders put into her chest to make the area big enough for the implants. This was a very painful process, and now she has the silicone implants. My friend didn't want to tell her that she is probably worse off than before the implants. Now she not only has to deal with having a fear of the return of cancer, but now has to probably fight everything that goes with silicone poisoning. Hopefully, some day my friend will be able to share the reality of breast implants with this lady. Thank you for the article. xoxo > > > > > ________________________________ > From: " DGRAHAMA@... " <DGRAHAMA@...> > > Sent: Fri, April 2, 2010 12:45:04 PM > Subject: Re: Painful lumps? > >  > Ya, Dr Myhill is in England and well known. We have girls that have > seen her. Great article ! Thank you for sharing this ! > > > > > Painful lumps? > > >  > > One of our former girls is writing to ask if anyone else has had these > painful lumps? Dede, do you or have you heard of anyone else? I have > not heard much about these, but I need to research it in our archives. > The pain I certainly have heard about...just wondering about the lumps? > > It's disheartening to hear of her having issues again, after a period of > recovery. It seems that there are residual problems that creep back > into our lives if we are not vigilant! Here's her letter: > > Hi Patty, I am so sorry it's been so long since I've talked to you! > Unfortunately I am not as well as I was the last time we spoke. I had a > period of complete recovery for about 2 years and then it hit me again > like a ton of bricks. Several things seemed to spark it and I'm not > sure which ones...hormone change, severe sun rash, car accident and a > freak accident at the beach where I broke a rib! After that, I was in > pain all the time and severely fatigued. I have had a severe rash from > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > well as white cells in my urine without any bacteria. > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > SOOOO painful to touch. I have over 50 of them, most concentrated areas > are from behind my knee up to mid thigh, stomach from pubic bone to > above belly button, upper chest/breasts. The biggest one seems to be on > my sternum. I had a punch biopsy on one of them on my calf and it just > showed it was a lipoma. I am going to ask the doctor to actually remove > one or two of the most painful to test them fully...perhaps they only > caught a fatty area of the lump the first time??? I did read about an > illness called Dercum's Disease and other than the fact that most who > have the disease are obese, it is me to a T! I mentioned it to my > primary care doc and she wrote it down but hasn't called me to say she's > read up on it, so I'm not sure if she is even researching it. > > Also, I am severely hypermobile and have been since birth. I was > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > can get the sympathetic nervous system all out of wack because it > perceives that the body is always in a fight/flight mode because of how > hard the body has to work just to maintain proper alignment. Along with > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > are lower than they should be which causes headaches because of the > increased cerebral spinal pressure. > > Anyways, I can deal with the EDS and the headaches - currently they are > not that frequent. What I'm concerned about is the blood/white cells in > the urine and the lumps. I need to schedule a cytoscopy so they can > look at my bladder, but haven't done it yet because I owe the urologist > money for a previous test that my insurance didn't cover! I had over > $13,000 in out of pocket expenses last year! > > I'm wondering if other girls have complained about painful lumps > everywhere - I think the only place I don't have them are my neck, > hands, feet and possibly buttocks. Just to give you an idea how painful > they are, before I even knew I had them, I was at the beach 2 years ago > and fell really hard onto a chaise lounge and broke a rib. The rib pain > was so bad I was throwing up. I went to the ER and the nurse put a > turnequet (sp?) on my arm so he could draw blood and I screamed and > cried and begged him to take it off and he wouldn't! From then on, he > treated me like I was a drug seeker and not a tourist who had a terrible > accident within 4 hours of her first day of vacation!!! It wasn't until > at least a year and a half later that I realized he must have put direct > pressure on one of the lumps. I first found them in my chest and > breasts and then the back of my knees and one day I decided to put some > massage oil on my skin and try to find others and that's when I found > the one on my arm as well as everywhere else. > > I hope you are doing well. Every time I see something on TV about Vegas > I think about you. I'm happily re-married and I'm working selling > advertising at 2 local radio stations and having a great time. This > past fall and winter I thought about quitting, but I'm not going to let > this illness steal anymore of my life! > > > ________________________________ > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! > > > ________________________________ > > Canada Toolbar :Search from anywhere on the web and bookmark your favourite sites. Download it now! > ________________________________ > Ask a question on any topic and get answers from real people. Go to Answers. > > > > > __________________________________________________________________ > Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Get it Now for Free! at http://downloads./ca/internetexplorer/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 Hi Sunny, I'm not familiar enough with Dr. Jae Chun to know how good he is. There is a doctor in San Diego you might want to check out as well, his name is Dr. Gilbert Lee,11515 El Camino Real, Suite 150,San Diego, CA 92130 (858)720-1440. I've heard good things about him. And you are right, most doctors do not want to perform explant surgery. It is much more involved than implantation, takes more time, more skill, more everything. Doctors often use the fear tactic, saying that you won't like the way you look; you will become depressed; you'll just be back for more implants later, blah, blah, blah, or whatever, and they totally don't realize that they are speaking of their own ability to make you look good! Because we have lots of examples of women who have had explant and look fantastic when they've used Dr. Feng, Dr. Kolb, Dr. Huang and Dr. Melmed and others. So, don't fall for this game...you don't have to look bad at all! In fact, I've had some women tell me that they look better after explant than before implant. I'm one of them too! So, don't be discouraged about the outcome. YOu can look beautiful and do something that will help you get your health back! Patty > > > > > > > > Dede, > > > > Yes, I don't think it's due to old age and I don't think it's normal part of aging process.ÃÆ'‚ Many doctors that I saw told me that I am going through perimenopause, but I don't think so.ÃÆ'‚ ÃÆ'‚ All the doctors think I am going crazy and recommended that I take anti-depressant.ÃÆ'‚ ÃÆ'‚ I think it is the implant.ÃÆ'‚ I am getting ready to have them removed.ÃÆ'‚ Currently I'm searching for a good plastic surgeon who can remove them. > > > > > > > > Thanks for all the information.ÃÆ'‚ I am glad I have a support group > > > > > > > > Sunny > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > From: " DGRAHAMA@ . " <DGRAHAMA@ .> > > > > > > > > Sent: Thu, April 1, 2010 12:07:14 PM > > > > Subject: Re: Painful lumps? > > > > > > > > ÃÆ'‚ > > > > Sunny ~ > > > > The implants DO infact cause all these problems.ÃÆ'‚ There are thousands and thousands of us.......we all have many of the same symptoms.ÃÆ'‚ Many gals have completely recovered after having their implants removed and properly, the enbloc proceedure where the implants are still in the scar capsule and the whole thing removed.ÃÆ'‚ This makes you have a better chance of not dumping toxic waste into your chest wall, then drains put in for a few days to drain off the fluid and debris.ÃÆ'‚ > > > > ÃÆ'‚ > > > > There are many pics in the photo section of saline implants that are full > > > > of mold and other toxins.ÃÆ'‚ Some are black, some reddish, brownish, and it is really nasty.ÃÆ'‚ There are articles in the archives, that tell truths...... .Your doctor is in the business of selling a product, not taking it away.ÃÆ'‚ I am sorry this one does not have your best interest at heart, or is very inexperienced ..ÃÆ'‚ Look in the archives, much of it comes from medical journals, and case reports and things...... . > > > > ÃÆ'‚ > > > > Follow your gut instincts.ÃÆ'‚ They are usually always right....... read all you can > > > > so you can know what questions to ask, and even copy some of the articles > > > > for your doctor...... should you keep this one.ÃÆ'‚ > > > > Many doctors just believe what they are told by the drug companies that > > > > sell the implants.... ..they dont use common sense and really learn about > > > > them.ÃÆ'‚ Part of the problem is they arent studying us, the ones that get really > > > > ill from them, and there are hundreds of thousands of us over the years...... > > > > There is so much money to be made from them that they just do what they do > > > > to make it easy to sell and hide the sick ones........ many people are ill from implants > > > > and just think it is other things...... even old age.ÃÆ'‚ > > > > You know, when I look at my father, and see him live, then look at myself, > > > > I realize the impact chemicals have on the body.ÃÆ'‚ My father is 83, on his second > > > > round of cancer, first was gleason 8 prostate cancer, now its stage 4 lymphoma. > > > > This man is active with his church, volunteers at the hospital, comes and visits > > > > me a couple times a week, does yoga on fridays with a friend he also has coffee and visiting that day, and so,NO, many of us have extreme fatigue, or have it off and on, and it is NOT our age....... > > > > OK.....off my high horse.....LOL. ......Educate you !ÃÆ'‚ > > > > Happy reading ! > > > > Hugs ~ Dede > > > > > > > > > > > > > > > > > > > > Painful lumps? > > > > > > > > > > > > ÃÆ'‚ > > > > > > > > One of our former girls is writing to ask if anyone else has had these > > > > painful lumps? Dede, do you or have you heard of anyone else? I have > > > > not heard much about these, but I need to research it in our archives. > > > > The pain I certainly have heard about...just wondering about the lumps? > > > > > > > > It's disheartening to hear of her having issues again, after a period of > > > > recovery. It seems that there are residual problems that creep back > > > > into our lives if we are not vigilant! Here's her letter: > > > > > > > > Hi Patty, I am so sorry it's been so long since I've talked to you! > > > > Unfortunately I am not as well as I was the last time we spoke. I had a > > > > period of complete recovery for about 2 years and then it hit me again > > > > like a ton of bricks. Several things seemed to spark it and I'm not > > > > sure which ones...hormone change, severe sun rash, car accident and a > > > > freak accident at the beach where I broke a rib! After that, I was in > > > > pain all the time and severely fatigued. I have had a severe rash from > > > > sun exposure for 3 years now, hair loss, lumps everywhere and blood as > > > > well as white cells in my urine without any bacteria. > > > > > > > > The lumps are anywhere from bb size to odd shaped 3cm by 1cm. They are > > > > SOOOO painful to touch. I have over 50 of them, most concentrated areas > > > > are from behind my knee up to mid thigh, stomach from pubic bone to > > > > above belly button, upper chest/breasts. The biggest one seems to be on > > > > my sternum. I had a punch biopsy on one of them on my calf and it just > > > > showed it was a lipoma. I am going to ask the doctor to actually remove > > > > one or two of the most painful to test them fully...perhaps they only > > > > caught a fatty area of the lump the first time??? I did read about an > > > > illness called Dercum's Disease and other than the fact that most who > > > > have the disease are obese, it is me to a T! I mentioned it to my > > > > primary care doc and she wrote it down but hasn't called me to say she's > > > > read up on it, so I'm not sure if she is even researching it. > > > > > > > > Also, I am severely hypermobile and have been since birth. I was > > > > finally diagnosed last year with Ehler's Danlos Syndrome, Classic Style. > > > > It causes severe joint pain, myofascial pain syndrome, fatigue, etc. It > > > > can get the sympathetic nervous system all out of wack because it > > > > perceives that the body is always in a fight/flight mode because of how > > > > hard the body has to work just to maintain proper alignment. Along with > > > > EDS, I have a slight Chiarri Malformation where the tonsils of my brain > > > > are lower than they should be which causes headaches because of the > > > > increased cerebral spinal pressure. > > > > > > > > Anyways, I can deal with the EDS and the headaches - currently they are > > > > not that frequent. What I'm concerned about is the blood/white cells in > > > > the urine and the lumps. I need to schedule a cytoscopy so they can > > > > look at my bladder, but haven't done it yet because I owe the urologist > > > > money for a previous test that my insurance didn't cover! I had over > > > > $13,000 in out of pocket expenses last year! > > > > > > > > I'm wondering if other girls have complained about painful lumps > > > > everywhere - I think the only place I don't have them are my neck, > > > > hands, feet and possibly buttocks. Just to give you an idea how painful > > > > they are, before I even knew I had them, I was at the beach 2 years ago > > > > and fell really hard onto a chaise lounge and broke a rib. The rib pain > > > > was so bad I was throwing up. I went to the ER and the nurse put a > > > > turnequet (sp?) on my arm so he could draw blood and I screamed and > > > > cried and begged him to take it off and he wouldn't! From then on, he > > > > treated me like I was a drug seeker and not a tourist who had a terrible > > > > accident within 4 hours of her first day of vacation!!! It wasn't until > > > > at least a year and a half later that I realized he must have put direct > > > > pressure on one of the lumps. I first found them in my chest and > > > > breasts and then the back of my knees and one day I decided to put some > > > > massage oil on my skin and try to find others and that's when I found > > > > the one on my arm as well as everywhere else. > > > > > > > > I hope you are doing well. Every time I see something on TV about Vegas > > > > I think about you. I'm happily re-married and I'm working selling > > > > advertising at 2 local radio stations and having a great time. This > > > > past fall and winter I thought about quitting, but I'm not going to let > > > > this illness steal anymore of my life! > > > > > > > > > > > > ____________ _________ _________ __ > > > > The new Internet ExplorerÃÆ'‚® 8 - Faster, safer, easier. Optimized for Get it Now for Free! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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