Guest guest Posted September 27, 2002 Report Share Posted September 27, 2002 I guess I should introduce myself. My name is and I had RNY surgery 9/00. I was on these lists initially and then lost my computer in the divorce(so to speak). I really have felt the need to reconnect again, so I am back on the lists. I began to live like a " normal " person and subsequently have regained a little. I have about 30 more pounds or so to go. I need to be reminded that I am not alone out there. I'm mostly a lurker, but will chime in from time to time. Thanks RNY 9/00 295/190 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2002 Report Share Posted November 24, 2002 , I hope that he doesn't have CF, but if he does, then you are in the right place. Share along with us as we travel the road. Much love, - Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD? Canberra Australia- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2002 Report Share Posted November 24, 2002 , I hope that he doesn't have CF, but if he does, then you are in the right place. Share along with us as we travel the road. Much love, - Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD? Canberra Australia- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2002 Report Share Posted November 24, 2002 , I hope that he doesn't have CF, but if he does, then you are in the right place. Share along with us as we travel the road. Much love, - Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD? Canberra Australia- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 no he isnt on the emzymes yet and they have not done any of those other tests yet and to the other question about the sweat i have no idea on that someone else asked me that and i asked them what am i suppose to taste it and they didn't answear me on that one we have the sweat test on wednesday with some blood work also but there was some good news since last monday he gained 13 ounces biggest weight gain ever woo woo > Hi , > > welcome to the list! Is your son on enzymes already? And have they done a > throat swab on him to find out what kind of bacteria he harbours in his > airways? Regardless whether he has CF or not those steps could be helpful to > solve some of his problems. I hope that you'll get a dx soon and your son > will receive the correct treatments. There are other preemies on this list > too and some who are also in limbo with the diagnosis. > > Peace > Torsten, dad of Fiona 5wcf > e-mail: torstenkrafft@w... > new here > > > > hi > > they have not yet done the test on my son to see if he has cf or not > > but they do want to do it seeing that he has alot of the signs of > > having it. he has the loose stools all the time failure to gain > > weight the breathing troubles he has colds all the time or lungs > > infections in and out of the hospital he is 11 months old but seeing > > that he was born 11 weeks early he should only be 9 months old. he > > has a g-tube he got it in august and has stayed at 14 pounds or > > around there since then. he is on 24 cal an ounce formula and that > > isnt helping with weight issues either he has had about 12 surgeries > > already and i just dont want him to have any more it at all possible > > he also has cp > > there was a quick introduction > > heather > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 no he isnt on the emzymes yet and they have not done any of those other tests yet and to the other question about the sweat i have no idea on that someone else asked me that and i asked them what am i suppose to taste it and they didn't answear me on that one we have the sweat test on wednesday with some blood work also but there was some good news since last monday he gained 13 ounces biggest weight gain ever woo woo > Hi , > > welcome to the list! Is your son on enzymes already? And have they done a > throat swab on him to find out what kind of bacteria he harbours in his > airways? Regardless whether he has CF or not those steps could be helpful to > solve some of his problems. I hope that you'll get a dx soon and your son > will receive the correct treatments. There are other preemies on this list > too and some who are also in limbo with the diagnosis. > > Peace > Torsten, dad of Fiona 5wcf > e-mail: torstenkrafft@w... > new here > > > > hi > > they have not yet done the test on my son to see if he has cf or not > > but they do want to do it seeing that he has alot of the signs of > > having it. he has the loose stools all the time failure to gain > > weight the breathing troubles he has colds all the time or lungs > > infections in and out of the hospital he is 11 months old but seeing > > that he was born 11 weeks early he should only be 9 months old. he > > has a g-tube he got it in august and has stayed at 14 pounds or > > around there since then. he is on 24 cal an ounce formula and that > > isnt helping with weight issues either he has had about 12 surgeries > > already and i just dont want him to have any more it at all possible > > he also has cp > > there was a quick introduction > > heather > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 no he isnt on the emzymes yet and they have not done any of those other tests yet and to the other question about the sweat i have no idea on that someone else asked me that and i asked them what am i suppose to taste it and they didn't answear me on that one we have the sweat test on wednesday with some blood work also but there was some good news since last monday he gained 13 ounces biggest weight gain ever woo woo > Hi , > > welcome to the list! Is your son on enzymes already? And have they done a > throat swab on him to find out what kind of bacteria he harbours in his > airways? Regardless whether he has CF or not those steps could be helpful to > solve some of his problems. I hope that you'll get a dx soon and your son > will receive the correct treatments. There are other preemies on this list > too and some who are also in limbo with the diagnosis. > > Peace > Torsten, dad of Fiona 5wcf > e-mail: torstenkrafft@w... > new here > > > > hi > > they have not yet done the test on my son to see if he has cf or not > > but they do want to do it seeing that he has alot of the signs of > > having it. he has the loose stools all the time failure to gain > > weight the breathing troubles he has colds all the time or lungs > > infections in and out of the hospital he is 11 months old but seeing > > that he was born 11 weeks early he should only be 9 months old. he > > has a g-tube he got it in august and has stayed at 14 pounds or > > around there since then. he is on 24 cal an ounce formula and that > > isnt helping with weight issues either he has had about 12 surgeries > > already and i just dont want him to have any more it at all possible > > he also has cp > > there was a quick introduction > > heather > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 , about 90% of the people with CF have elevated numbers of sodium and chloride in their sweat. That's why a sweat test (if positive) is a very good indicator of CF and that's why pwcf often taste really salty. Unfortunately the sweat test isn't able to rule out CF, so when it comes back negative that doesn't mean that a child doesn't have CF. Many docs who don't deal with CF every day don't know that and their lack of information causes a lot of trouble. I hope that you'll attend a certified CF center. Anyway, congrats to the weight gain, that's a good sign that he may have something else than CF. Peace Torsten > > Hi , > > > > welcome to the list! Is your son on enzymes already? And have they > done a > > throat swab on him to find out what kind of bacteria he harbours > in his > > airways? Regardless whether he has CF or not those steps could be > helpful to > > solve some of his problems. I hope that you'll get a dx soon and > your son > > will receive the correct treatments. There are other preemies on > this list > > too and some who are also in limbo with the diagnosis. > > > > Peace > > Torsten, dad of Fiona 5wcf > > e-mail: torstenkrafft@w... > > new here > > > > > > > hi > > > they have not yet done the test on my son to see if he has cf or > not > > > but they do want to do it seeing that he has alot of the signs of > > > having it. he has the loose stools all the time failure to gain > > > weight the breathing troubles he has colds all the time or lungs > > > infections in and out of the hospital he is 11 months old but > seeing > > > that he was born 11 weeks early he should only be 9 months old. > he > > > has a g-tube he got it in august and has stayed at 14 pounds or > > > around there since then. he is on 24 cal an ounce formula and > that > > > isnt helping with weight issues either he has had about 12 > surgeries > > > already and i just dont want him to have any more it at all > possible > > > he also has cp > > > there was a quick introduction > > > heather > > > > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 , about 90% of the people with CF have elevated numbers of sodium and chloride in their sweat. That's why a sweat test (if positive) is a very good indicator of CF and that's why pwcf often taste really salty. Unfortunately the sweat test isn't able to rule out CF, so when it comes back negative that doesn't mean that a child doesn't have CF. Many docs who don't deal with CF every day don't know that and their lack of information causes a lot of trouble. I hope that you'll attend a certified CF center. Anyway, congrats to the weight gain, that's a good sign that he may have something else than CF. Peace Torsten > > Hi , > > > > welcome to the list! Is your son on enzymes already? And have they > done a > > throat swab on him to find out what kind of bacteria he harbours > in his > > airways? Regardless whether he has CF or not those steps could be > helpful to > > solve some of his problems. I hope that you'll get a dx soon and > your son > > will receive the correct treatments. There are other preemies on > this list > > too and some who are also in limbo with the diagnosis. > > > > Peace > > Torsten, dad of Fiona 5wcf > > e-mail: torstenkrafft@w... > > new here > > > > > > > hi > > > they have not yet done the test on my son to see if he has cf or > not > > > but they do want to do it seeing that he has alot of the signs of > > > having it. he has the loose stools all the time failure to gain > > > weight the breathing troubles he has colds all the time or lungs > > > infections in and out of the hospital he is 11 months old but > seeing > > > that he was born 11 weeks early he should only be 9 months old. > he > > > has a g-tube he got it in august and has stayed at 14 pounds or > > > around there since then. he is on 24 cal an ounce formula and > that > > > isnt helping with weight issues either he has had about 12 > surgeries > > > already and i just dont want him to have any more it at all > possible > > > he also has cp > > > there was a quick introduction > > > heather > > > > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 , about 90% of the people with CF have elevated numbers of sodium and chloride in their sweat. That's why a sweat test (if positive) is a very good indicator of CF and that's why pwcf often taste really salty. Unfortunately the sweat test isn't able to rule out CF, so when it comes back negative that doesn't mean that a child doesn't have CF. Many docs who don't deal with CF every day don't know that and their lack of information causes a lot of trouble. I hope that you'll attend a certified CF center. Anyway, congrats to the weight gain, that's a good sign that he may have something else than CF. Peace Torsten > > Hi , > > > > welcome to the list! Is your son on enzymes already? And have they > done a > > throat swab on him to find out what kind of bacteria he harbours > in his > > airways? Regardless whether he has CF or not those steps could be > helpful to > > solve some of his problems. I hope that you'll get a dx soon and > your son > > will receive the correct treatments. There are other preemies on > this list > > too and some who are also in limbo with the diagnosis. > > > > Peace > > Torsten, dad of Fiona 5wcf > > e-mail: torstenkrafft@w... > > new here > > > > > > > hi > > > they have not yet done the test on my son to see if he has cf or > not > > > but they do want to do it seeing that he has alot of the signs of > > > having it. he has the loose stools all the time failure to gain > > > weight the breathing troubles he has colds all the time or lungs > > > infections in and out of the hospital he is 11 months old but > seeing > > > that he was born 11 weeks early he should only be 9 months old. > he > > > has a g-tube he got it in august and has stayed at 14 pounds or > > > around there since then. he is on 24 cal an ounce formula and > that > > > isnt helping with weight issues either he has had about 12 > surgeries > > > already and i just dont want him to have any more it at all > possible > > > he also has cp > > > there was a quick introduction > > > heather > > > > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Hi group, I would be very interested in any responses to 's questions as Barra (aged 16) is probably facing surgery for the first time in the summer. He has no immediate symptoms apart from scoliosis (mild) and now possible reflux. Cheers, Nicola. > >To: " chiari " chiari > >Subject: new here >Date: Tue, 11 Mar 2003 19:18:12 -0700 > >Hi, > My name is , I have a 4 1/2 year old son who has chiari. I >found this website from a friend on another support group for a condition >my other son has called craniosynostosis. My son Andy has chiari as a >result of his spina bifida. He doesn't have any major problems with the >chiari as far as breathing goes, but he does have a lot of oral >hypersensitivity, which over the years he has gotten much better at. The >biggest problems with him are fine motor control, he doesn't have much, he >is very weak in his hands and arms, he does not have very good coordination >or motor planning. He recently got glasses but his evaluation for school >indicated that his visual processing is not good. Also he seems to be >having a problem with auditory processing as well although our other son's >speech therapist noted that in order to test the auditory processing at >school they use pictures so if his visual processing is off that would have >an effect on the test, so I'm not sure. Our pedi mentioned that sometimes >with chiari it can pull on the optical nerve making things look blurry and >this isn't seen by the eye exam done in the doctors office unless it is >really bad. My son is having surgery for tethering on his spinal cord on >Apr 18th. The doctor feels that he should have at least some relief of his >chiari symptoms after this, because the spinal cord being pulled is pulling >on the chiari making it worse. As soon as the spinal cord is released he >should get at least a little better. He said if he isn't then we need to >start talking about a decompression. This is the main reason I am here. I >know that the decompression is a dangerous surgery. The tethering is risky >because it can damage the spinal cord more than it already is, but the >decompression is working with the brain stem which I know can have very >serious effects. I am wondering if it would be necessary to do a >decompression with no breathing problems and he is doing fairly well with >the oral sensitivity. What I am really asking is in all your opinions what >warrants a decompression. I know with the adults if the symptoms are >interfering with life you consider it, but with a child it isn't like doing >it on me I am making decisions for a child who can't decide for himself. I >welcome the opinions of the adults who have had or considered having the >decompression, but I am really looking for parents of children who have >chiari. Particularly those who have not had problems with pain or >breathing. At this point I don't even want to consider it, and of course >we will wait until after this upcoming surgery to see how much improvement >he has, but I had always thought that he had to be having a lot more >problems until the doctor mentioned it, and if it causes problems with >vision and he does have a LOT of problems with his hands I just don't know >if it would be worth the risk. Anyway thanks for any input on this that >you can give. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Hi group, I would be very interested in any responses to 's questions as Barra (aged 16) is probably facing surgery for the first time in the summer. He has no immediate symptoms apart from scoliosis (mild) and now possible reflux. Cheers, Nicola. > >To: " chiari " chiari > >Subject: new here >Date: Tue, 11 Mar 2003 19:18:12 -0700 > >Hi, > My name is , I have a 4 1/2 year old son who has chiari. I >found this website from a friend on another support group for a condition >my other son has called craniosynostosis. My son Andy has chiari as a >result of his spina bifida. He doesn't have any major problems with the >chiari as far as breathing goes, but he does have a lot of oral >hypersensitivity, which over the years he has gotten much better at. The >biggest problems with him are fine motor control, he doesn't have much, he >is very weak in his hands and arms, he does not have very good coordination >or motor planning. He recently got glasses but his evaluation for school >indicated that his visual processing is not good. Also he seems to be >having a problem with auditory processing as well although our other son's >speech therapist noted that in order to test the auditory processing at >school they use pictures so if his visual processing is off that would have >an effect on the test, so I'm not sure. Our pedi mentioned that sometimes >with chiari it can pull on the optical nerve making things look blurry and >this isn't seen by the eye exam done in the doctors office unless it is >really bad. My son is having surgery for tethering on his spinal cord on >Apr 18th. The doctor feels that he should have at least some relief of his >chiari symptoms after this, because the spinal cord being pulled is pulling >on the chiari making it worse. As soon as the spinal cord is released he >should get at least a little better. He said if he isn't then we need to >start talking about a decompression. This is the main reason I am here. I >know that the decompression is a dangerous surgery. The tethering is risky >because it can damage the spinal cord more than it already is, but the >decompression is working with the brain stem which I know can have very >serious effects. I am wondering if it would be necessary to do a >decompression with no breathing problems and he is doing fairly well with >the oral sensitivity. What I am really asking is in all your opinions what >warrants a decompression. I know with the adults if the symptoms are >interfering with life you consider it, but with a child it isn't like doing >it on me I am making decisions for a child who can't decide for himself. I >welcome the opinions of the adults who have had or considered having the >decompression, but I am really looking for parents of children who have >chiari. Particularly those who have not had problems with pain or >breathing. At this point I don't even want to consider it, and of course >we will wait until after this upcoming surgery to see how much improvement >he has, but I had always thought that he had to be having a lot more >problems until the doctor mentioned it, and if it causes problems with >vision and he does have a LOT of problems with his hands I just don't know >if it would be worth the risk. Anyway thanks for any input on this that >you can give. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi Pat, Hawthorne berry herbal capsules are effective for reducing cardiac symptoms, but you should check with your doctor before taking them. A dose of 500 mg twice daily is efective at lowering blood pressure. With the correct tests, primarily a test for TSI, the antibodies that cause Graves' disease, you doctor will know if you have GD or not. If so, treatment designed at lowering your thryoid hormone levels and mildly suppressing your immune system is very effective for both Graves' disease and multinodular goiter. The meds are called anti-thryoid drugs and include PTU and methimazole. The usual starting dose of PTU is 300 mg daily taken in divided doses. The maximum effects of the meds take 6-8weeks to show up. At this time the dose is reduced to usually 100-150 mg daily. The meds are taken until you achieve remission, that is, your immune system stops producing TSI. PTU takes about a week to kick in at which time your symptoms will improve. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi Pat, Hawthorne berry herbal capsules are effective for reducing cardiac symptoms, but you should check with your doctor before taking them. A dose of 500 mg twice daily is efective at lowering blood pressure. With the correct tests, primarily a test for TSI, the antibodies that cause Graves' disease, you doctor will know if you have GD or not. If so, treatment designed at lowering your thryoid hormone levels and mildly suppressing your immune system is very effective for both Graves' disease and multinodular goiter. The meds are called anti-thryoid drugs and include PTU and methimazole. The usual starting dose of PTU is 300 mg daily taken in divided doses. The maximum effects of the meds take 6-8weeks to show up. At this time the dose is reduced to usually 100-150 mg daily. The meds are taken until you achieve remission, that is, your immune system stops producing TSI. PTU takes about a week to kick in at which time your symptoms will improve. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 The usual starting dose of PTU is 300 mg daily > taken in > divided doses. The maximum effects of the meds take 6-8weeks to show > up. At > this time the dose is reduced to usually 100-150 mg daily. Might going from 300 to 150 mg be too drastic a cut for some people? I was under the impression that it's best to gradually reduce because of a possible rebound effect, Oh, and BTW, Pat, a good book for you to get hold of is Graves Disease: a Practical Guide, written by the same Elaine whose post I'm responding to. Parts of it may be overwhelmingly technical at this point but it's not a novel (though how many bad docs out there would call it science fiction? ;-) so skip them for now. Take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 The usual starting dose of PTU is 300 mg daily > taken in > divided doses. The maximum effects of the meds take 6-8weeks to show > up. At > this time the dose is reduced to usually 100-150 mg daily. Might going from 300 to 150 mg be too drastic a cut for some people? I was under the impression that it's best to gradually reduce because of a possible rebound effect, Oh, and BTW, Pat, a good book for you to get hold of is Graves Disease: a Practical Guide, written by the same Elaine whose post I'm responding to. Parts of it may be overwhelmingly technical at this point but it's not a novel (though how many bad docs out there would call it science fiction? ;-) so skip them for now. Take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 I don't think we assume this board is populated entirely by Christians. > But, I have yet to hear anyone say that I prayed and tried Jesus. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 I don't think we assume this board is populated entirely by Christians. > But, I have yet to hear anyone say that I prayed and tried Jesus. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 > I don't think we assume this board is populated entirely by > Christians. Nope ;-) Jean C - list mom :-) Something Wiccan this way comes http://www.uidaho.edu/~bjcraw/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 That was me. My mon said that all the time. We are givien minds so we can learn about our problems. Others are given the ablity to help us. God helps those who help themsielves. I also believe we should tolerate all religious views and realize that we don't all have the same beliefs and the same religious heritage. Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 That was me. My mon said that all the time. We are givien minds so we can learn about our problems. Others are given the ablity to help us. God helps those who help themsielves. I also believe we should tolerate all religious views and realize that we don't all have the same beliefs and the same religious heritage. Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 OK , I just read that we're going to take this to the other board which I'm not but I hope you'll let me get my $.02 in. Welcome . Since you snipped my letter let me just say that as a religious person I too believe that healing comes from G-d, but through His messengers. For some reason, in the 21st century, we have been given this test - to work with incompetent messengers! And you'll get some of the best advice out there on how to do so on this list! Besides prayer, crises like this are good times to take stock of one's spirituality in many different ways. One of the most empowering things for me has been to realize that despite diminished capacities due to intermittent insomnia (now) or muscle weakness and feeling poorly (when I had active Graves) I could still be giving, and with alot of hard work over the last two years smile and keep a good perspective. I hope my insomnia doesn't signify anything more. I kind of like my role on this list to be the encourager ( " in remission for a year and a half " ) but I've been a little anxious and angry lately. I'm hoping it's just due to insomnia that is NOT related to Graves. But, guess what - no I can't control the anxiety (which is thankfully not debilitating) but I have been able to deal with other emotions, and I really do credit this to spiritual (non-denominational ;-) work I've done on myself. Take care, Fay (who's very glad none of you lot will be in my home if I righteously erupt at my kids today ;-) ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 OK , I just read that we're going to take this to the other board which I'm not but I hope you'll let me get my $.02 in. Welcome . Since you snipped my letter let me just say that as a religious person I too believe that healing comes from G-d, but through His messengers. For some reason, in the 21st century, we have been given this test - to work with incompetent messengers! And you'll get some of the best advice out there on how to do so on this list! Besides prayer, crises like this are good times to take stock of one's spirituality in many different ways. One of the most empowering things for me has been to realize that despite diminished capacities due to intermittent insomnia (now) or muscle weakness and feeling poorly (when I had active Graves) I could still be giving, and with alot of hard work over the last two years smile and keep a good perspective. I hope my insomnia doesn't signify anything more. I kind of like my role on this list to be the encourager ( " in remission for a year and a half " ) but I've been a little anxious and angry lately. I'm hoping it's just due to insomnia that is NOT related to Graves. But, guess what - no I can't control the anxiety (which is thankfully not debilitating) but I have been able to deal with other emotions, and I really do credit this to spiritual (non-denominational ;-) work I've done on myself. Take care, Fay (who's very glad none of you lot will be in my home if I righteously erupt at my kids today ;-) ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Pat, I sure do know exactly how you feel--I'm pretty new to this whole thing myself, having just been diagnosed in early February. I can tell you one thing, it helps tremendously to know there are people out there going thru or having experience with the same thing and to be able to communicate with them such as you can at this support group. Chris -- In graves_support , patspaintings@a... wrote: > Hi Everyone, > > I just found out that I'm hyperthyroid. I have a goiter. When I went to the > Dr. a few days ago he said that he thinks I'm hyperthyroid and have Graves > disease. My blood pressure was 150/70 and he said my heart was racing. Said > my eyes were affected but when my husband and I don't notice any changes in > my eyes so not sure about that. > > I have asthma and can't take beta blockers so he gave me some samples of a > calcium channel blocker called Tiazac to take for my heart. Except that when > I got home and looked it up on the Internet, it said one of the side effects > is a pounding rapid heart. Sheesh!! Anybody know anything natural I can > take instead? > > I've very scared of this disease. I cry alot. I can't tell if people who > have it are able to live normal lives or not and do the things they were > doing before. Have you all been able to pretty much do what you enjoyed > before being diagnosed with Graves disease? > > I don't know anyone who has this and I feel like a freak. I joined this list > to learn. Sorry I sound so upset. > > Thanks, > Pat > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 Hi Pat, You have definatly found the right place here. You will learn soo much as well as maybe learning not to be afraid of graves. I do believe we all can lead normal lives it just takes some work/and finagling/patience/ and most of all being good to OURselves. You can find alot of help here, so stick around!! Luci > Hi Everyone, > > I just found out that I'm hyperthyroid. I have a goiter. When I went to the > Dr. a few days ago he said that he thinks I'm hyperthyroid and have Graves > disease. My blood pressure was 150/70 and he said my heart was racing. Said > my eyes were affected but when my husband and I don't notice any changes in > my eyes so not sure about that. > > I have asthma and can't take beta blockers so he gave me some samples of a > calcium channel blocker called Tiazac to take for my heart. Except that when > I got home and looked it up on the Internet, it said one of the side effects > is a pounding rapid heart. Sheesh!! Anybody know anything natural I can > take instead? > > I've very scared of this disease. I cry alot. I can't tell if people who > have it are able to live normal lives or not and do the things they were > doing before. Have you all been able to pretty much do what you enjoyed > before being diagnosed with Graves disease? > > I don't know anyone who has this and I feel like a freak. I joined this list > to learn. Sorry I sound so upset. > > Thanks, > Pat > > > Quote Link to comment Share on other sites More sharing options...
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