New Here

March 28, 2003

----- Original Message -----

maggie61750 Wrote:

i am trying to cope with this problem but it is hard,been in

hospital 2 times already, haveing problems eating low fat foods need

help here.

Hi maggie and welcome to PAI.

It is frustrating to say the least! I try to keep my fat intake to 15 to 25

grams per day. Sometimes I go higher with no problems. Other times I end

up with pain for 2 or 3 days. I am now just getting over a 3 day bout with

pain. All I can say is keep track of your fat intake and experiment to find

what works for you.

You didn't say where you were from, if you are seeing a gastoenterologist or

pancreas speciallist.

I am 50 years old and live in South Carolina. I just found out I was

approved for SSDI which is a relief as there is no way I could hold down a

job what with all the pain and the weight loss and the weakness caused by

it. I would be out of work too often due to the pain and trips to the ER.

Floyd

Columbia, SC

God Bless

---

Outgoing mail is certified Virus Free.

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March 28, 2003

----- Original Message -----

maggie61750 Wrote:

i am trying to cope with this problem but it is hard,been in

hospital 2 times already, haveing problems eating low fat foods need

help here.

Hi maggie and welcome to PAI.

It is frustrating to say the least! I try to keep my fat intake to 15 to 25

grams per day. Sometimes I go higher with no problems. Other times I end

up with pain for 2 or 3 days. I am now just getting over a 3 day bout with

pain. All I can say is keep track of your fat intake and experiment to find

what works for you.

You didn't say where you were from, if you are seeing a gastoenterologist or

pancreas speciallist.

I am 50 years old and live in South Carolina. I just found out I was

approved for SSDI which is a relief as there is no way I could hold down a

job what with all the pain and the weight loss and the weakness caused by

it. I would be out of work too often due to the pain and trips to the ER.

Floyd

Columbia, SC

God Bless

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.463 / Virus Database: 262 - Release Date: 3/17/03

March 28, 2003

----- Original Message -----

maggie61750 Wrote:

i am trying to cope with this problem but it is hard,been in

hospital 2 times already, haveing problems eating low fat foods need

help here.

Hi maggie and welcome to PAI.

It is frustrating to say the least! I try to keep my fat intake to 15 to 25

grams per day. Sometimes I go higher with no problems. Other times I end

up with pain for 2 or 3 days. I am now just getting over a 3 day bout with

pain. All I can say is keep track of your fat intake and experiment to find

what works for you.

You didn't say where you were from, if you are seeing a gastoenterologist or

pancreas speciallist.

I am 50 years old and live in South Carolina. I just found out I was

approved for SSDI which is a relief as there is no way I could hold down a

job what with all the pain and the weight loss and the weakness caused by

it. I would be out of work too often due to the pain and trips to the ER.

Floyd

Columbia, SC

God Bless

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.463 / Virus Database: 262 - Release Date: 3/17/03

April 25, 2003

Welcome ,

I hope that you find some answers here, and I'm sure you will get

lots of support. The look of RSS kids usually involves a small

body, short as well as skinny arms and legs. Most RSS kids have a

normal sized head (50th percentile) while their height is below the

5th percentile. With my son his head is 50th percentile but his

chin and jaw are very small, which gives them the triangular shaped

face. With some RSS kids they also have very small teeth. Many of

the other RSS traits do not show up on every child. I'm not sure if

any of the tests they did could point to RSS since there really

isn't a test for it.

Posting a picture is a great way to get some of the parents ideas

here on the site. If you go to the photos section you can make a

folder and adding a picture is not too hard if you have a digital

picture or can scan a photo in.

Remember that many pediatricians do not know very much abut RSS so

you shouldn't be surprised if they wouldn't catch it. Also if you

feel comfortable telling us where you are located, someone might

have a pediatrician you could go to who might know more about the

syndrome.

Pattie

> Hi There,

> I just joined today and thought I'd introduce myself and tell you

a

> little about my sons story. Here goes.....

> My name is and I have a gorgeous wee boy named ,

Joshie

> was born full term, bang on his due date but weighed only 5lb

13ozs.

> No-one questioned at the time why he was so small or said whether

he

> had siffered from IUGR or not although our GP did say that I had

> always been small for my dates. In the first couple of months he

did

> gain some weight but at about 4 months he started losing weight

for

> awhile which he took forever to regain, since then he has really

> stuggled with his growth and he is now 19mos old and weighs 17lb

5ozs

> and is just 29inches long. As Joshie also has severe peno-scrotal

> Hypospadias I was on the Hypospadias support group site and saw a

> post from someone questioning a link between RSS and Hypospadias,

I

> had no idea then what RSS was so I investigated, from what I've

read

> Joshie does have some of the markers of RSS although by no means

all

> of them. When we saw the paediatrician a few weeks ago about his

> growth I brought up RSS but he just Poo Pooed the idea saying " He

> doesnt have the look of an RSS child " he told me Joshie was just

> going to be small and left it at that. He then phoned me a week

> later and told me he had spoken with the consultant paediatrician

who

> was of the opinion that they should investigate his lack of growth

so

> in the last few weeks he's had 4 blood tests, a bone density x-ray

> and an ultrasound of his head so hopefully they should get back to

us

> soon with the results! In the mean time I've joined this site to

try

> to get more info. I looked at the photos on this group and to be

> honest I think he does have the RSS " look " as he looks very

similar

> to most of the children I looked at unfortunately I don't know how

to

> put photos on the site so I can't put any on for anyone to look at

> and tell me what they think :-(

> Anyway sorry for rambling on I hope I can learn lots from all of

you,

> I was going to try to read all the posts until I eralised there's

> more than 20,000 of them!

> Thanks for listening

> x

April 25, 2003

- your story is VERY familiar!!! Most of us have had " smaller

babies " while in-utero. Many of us had doctors who didn't know what

to do with those facts. My own doctor kept moving my due date back,

and I kept telling him - listen, I know the HOUR I conceived!!!!

My daughter was born fullterm as well, at 5lbs 2oz and 17 "

long. She was a rare one, because after getting reflux resolved very

early with meds, she has almost always had a good appetite. Just

can't gain weight on her own, without cyproheptadine (don't worry,

you'll learn more about that later). At 2 years old, my daughter

weighed 19lbs or so. Your son's measurements seem pretty right in

the middle for an RSS/SGA boy.

Gosh, there is so much to tell you. FIrst of all, call MAGIC on

Monday tollfree at 800-3MAGIC3. Ask them to mail you all the RSS/SGA

information, and a packet on our convention. I am a volunteer with

MAGIC and many of us on this listserve belong. It is the only

nonprofit with a division dedicated to RSS/SGA kids (SGA=idiopathic

small for gestational age kids -- kids who were born small and every

reason has been ruled out and by age 2 they still aren't caught up).

Katy is our parent contact/networking director. You can email her

directly at rss2katy@ hotmail.com. She can give you directions on

getting a bunch of literature to read. Regardless of whether or not

your son is RSS, he is definitely SGA!!

The tests they are running are undoubtedly basic. Making sure they

rule out the host of genetic disorders, checking his bone age (SGA

kids have bone ages that are " delayed " - meaning their bone growth is

similar to that of a younger child.)

If you live anywhere near Chicago, or if you can afford it (and even

if you can't, we have scholarships), we have a medical convention

July 24-27th in Chicago. Tons of speakers on RSS/SGA --

presentations on how you can help your son gain weight! You can also

have him seen by an endocrinologist who many of us have seen who has

130 RSS patients (and many more SGA kids). No doctor in the US has

more knowledge about RSS/SGA, in my perspective. Remember, many

local doctors can be great doctors, it is just that RSS/SGA issues

are relatively rare, and they may not have seen any kids, if not just

1-3 kids.

I have probably typed enough. Good luck!!! I hope to see you at the

convention. There should be about 120 of our RSS/SGA families

attending!

> Hi There,

> I just joined today and thought I'd introduce myself and tell you a

> little about my sons story. Here goes.....

> My name is and I have a gorgeous wee boy named , Joshie

> was born full term, bang on his due date but weighed only 5lb

13ozs.

> No-one questioned at the time why he was so small or said whether

he

> had siffered from IUGR or not although our GP did say that I had

> always been small for my dates. In the first couple of months he

did

> gain some weight but at about 4 months he started losing weight for

> awhile which he took forever to regain, since then he has really

> stuggled with his growth and he is now 19mos old and weighs 17lb

5ozs

> and is just 29inches long. As Joshie also has severe peno-scrotal

> Hypospadias I was on the Hypospadias support group site and saw a

> post from someone questioning a link between RSS and Hypospadias, I

> had no idea then what RSS was so I investigated, from what I've

read

> Joshie does have some of the markers of RSS although by no means

all

> of them. When we saw the paediatrician a few weeks ago about his

> growth I brought up RSS but he just Poo Pooed the idea saying " He

> doesnt have the look of an RSS child " he told me Joshie was just

> going to be small and left it at that. He then phoned me a week

> later and told me he had spoken with the consultant paediatrician

who

> was of the opinion that they should investigate his lack of growth

so

> in the last few weeks he's had 4 blood tests, a bone density x-ray

> and an ultrasound of his head so hopefully they should get back to

us

> soon with the results! In the mean time I've joined this site to

try

> to get more info. I looked at the photos on this group and to be

> honest I think he does have the RSS " look " as he looks very similar

> to most of the children I looked at unfortunately I don't know how

to

> put photos on the site so I can't put any on for anyone to look at

> and tell me what they think :-(

> Anyway sorry for rambling on I hope I can learn lots from all of

you,

> I was going to try to read all the posts until I eralised there's

> more than 20,000 of them!

> Thanks for listening

> x

April 25, 2003

Hi ,

Welcome to our group.

I hope we can answer all your questions.

I see by your e-mail address that you may be living in England. If

that is true then you are living near one of the world experts in

RSS. His name is Dr. Stanhope and he works out of the Great

Ormand Street Hospital in London.

He will becoming to the States in July to speak at the Magic

convention about RSS.

If you I would recommned trying to get and see him. He might be

able to tell you if your child has RSS.

To post a picture, use your web browser and navigate to

http://groups.yahoo.com/group/RSS-Support/Photos.

Next clcik on the creat album button.

Then click on upload photo. You will then need to locate the

photo on your computer. Once the photo is uploaded, then move

it into your album.

If you run in to trouble, feel free to give me a shout. I am the

moderator and I can usually do things that other members have

trouble with because yahoo has given me a few more controls

than the rest.

I hope this helps.

Ken M

> Hi There,

> I just joined today and thought I'd introduce myself and tell you

a

> little about my sons story. Here goes.....

> My name is and I have a gorgeous wee boy named

, Joshie

> was born full term, bang on his due date but weighed only 5lb

13ozs.

> No-one questioned at the time why he was so small or said

whether he

> had siffered from IUGR or not although our GP did say that I

had

> always been small for my dates. In the first couple of months

he did

> gain some weight but at about 4 months he started losing

weight for

> awhile which he took forever to regain, since then he has really

> stuggled with his growth and he is now 19mos old and weighs

17lb 5ozs

> and is just 29inches long. As Joshie also has severe

peno-scrotal

> Hypospadias I was on the Hypospadias support group site

and saw a

> post from someone questioning a link between RSS and

Hypospadias, I

> had no idea then what RSS was so I investigated, from what

I've read

> Joshie does have some of the markers of RSS although by no

means all

> of them. When we saw the paediatrician a few weeks ago

about his

> growth I brought up RSS but he just Poo Pooed the idea saying

" He

> doesnt have the look of an RSS child " he told me Joshie was

just

> going to be small and left it at that. He then phoned me a week

> later and told me he had spoken with the consultant

paediatrician who

> was of the opinion that they should investigate his lack of

growth so

> in the last few weeks he's had 4 blood tests, a bone density

x-ray

> and an ultrasound of his head so hopefully they should get

back to us

> soon with the results! In the mean time I've joined this site to

try

> to get more info. I looked at the photos on this group and to be

> honest I think he does have the RSS " look " as he looks very

similar

> to most of the children I looked at unfortunately I don't know

how to

> put photos on the site so I can't put any on for anyone to look at

> and tell me what they think :-(

> Anyway sorry for rambling on I hope I can learn lots from all of

you,

> I was going to try to read all the posts until I eralised there's

> more than 20,000 of them!

> Thanks for listening

> x

April 25, 2003

Hi ,

Welcome to our group.

I hope we can answer all your questions.

I see by your e-mail address that you may be living in England. If

that is true then you are living near one of the world experts in

RSS. His name is Dr. Stanhope and he works out of the Great

Ormand Street Hospital in London.

He will becoming to the States in July to speak at the Magic

convention about RSS.

If you I would recommned trying to get and see him. He might be

able to tell you if your child has RSS.

To post a picture, use your web browser and navigate to

http://groups.yahoo.com/group/RSS-Support/Photos.

Next clcik on the creat album button.

Then click on upload photo. You will then need to locate the

photo on your computer. Once the photo is uploaded, then move

it into your album.

If you run in to trouble, feel free to give me a shout. I am the

moderator and I can usually do things that other members have

trouble with because yahoo has given me a few more controls

than the rest.

I hope this helps.

Ken M

> Hi There,

> I just joined today and thought I'd introduce myself and tell you

a

> little about my sons story. Here goes.....

> My name is and I have a gorgeous wee boy named

, Joshie

> was born full term, bang on his due date but weighed only 5lb

13ozs.

> No-one questioned at the time why he was so small or said

whether he

> had siffered from IUGR or not although our GP did say that I

had

> always been small for my dates. In the first couple of months

he did

> gain some weight but at about 4 months he started losing

weight for

> awhile which he took forever to regain, since then he has really

> stuggled with his growth and he is now 19mos old and weighs

17lb 5ozs

> and is just 29inches long. As Joshie also has severe

peno-scrotal

> Hypospadias I was on the Hypospadias support group site

and saw a

> post from someone questioning a link between RSS and

Hypospadias, I

> had no idea then what RSS was so I investigated, from what

I've read

> Joshie does have some of the markers of RSS although by no

means all

> of them. When we saw the paediatrician a few weeks ago

about his

> growth I brought up RSS but he just Poo Pooed the idea saying

" He

> doesnt have the look of an RSS child " he told me Joshie was

just

> going to be small and left it at that. He then phoned me a week

> later and told me he had spoken with the consultant

paediatrician who

> was of the opinion that they should investigate his lack of

growth so

> in the last few weeks he's had 4 blood tests, a bone density

x-ray

> and an ultrasound of his head so hopefully they should get

back to us

> soon with the results! In the mean time I've joined this site to

try

> to get more info. I looked at the photos on this group and to be

> honest I think he does have the RSS " look " as he looks very

similar

> to most of the children I looked at unfortunately I don't know

how to

> put photos on the site so I can't put any on for anyone to look at

> and tell me what they think :-(

> Anyway sorry for rambling on I hope I can learn lots from all of

you,

> I was going to try to read all the posts until I eralised there's

> more than 20,000 of them!

> Thanks for listening

> x

April 27, 2003

Welcome to the group. I am also a newbie, joining in late March. I

just wanted to tell you, that this group has offered me so much

support and help. It is an great place to be. I also have trouble

w/ doctors, mostly our surgeon who placed Pippin's GT, and nurses

while we've been in the hosp. I've learned quickly that we really

have to educate lots of medical people.

> Hi There,

> I just joined today and thought I'd introduce myself and tell you a

> little about my sons story. Here goes.....

> My name is and I have a gorgeous wee boy named , Joshie

> was born full term, bang on his due date but weighed only 5lb

13ozs.

> No-one questioned at the time why he was so small or said whether

he

> had siffered from IUGR or not although our GP did say that I had

> always been small for my dates. In the first couple of months he

did

> gain some weight but at about 4 months he started losing weight for

> awhile which he took forever to regain, since then he has really

> stuggled with his growth and he is now 19mos old and weighs 17lb

5ozs

> and is just 29inches long. As Joshie also has severe peno-scrotal

> Hypospadias I was on the Hypospadias support group site and saw a

> post from someone questioning a link between RSS and Hypospadias, I

> had no idea then what RSS was so I investigated, from what I've

read

> Joshie does have some of the markers of RSS although by no means

all

> of them. When we saw the paediatrician a few weeks ago about his

> growth I brought up RSS but he just Poo Pooed the idea saying " He

> doesnt have the look of an RSS child " he told me Joshie was just

> going to be small and left it at that. He then phoned me a week

> later and told me he had spoken with the consultant paediatrician

who

> was of the opinion that they should investigate his lack of growth

so

> in the last few weeks he's had 4 blood tests, a bone density x-ray

> and an ultrasound of his head so hopefully they should get back to

us

> soon with the results! In the mean time I've joined this site to

try

> to get more info. I looked at the photos on this group and to be

> honest I think he does have the RSS " look " as he looks very similar

> to most of the children I looked at unfortunately I don't know how

to

> put photos on the site so I can't put any on for anyone to look at

> and tell me what they think :-(

> Anyway sorry for rambling on I hope I can learn lots from all of

you,

> I was going to try to read all the posts until I eralised there's

> more than 20,000 of them!

> Thanks for listening

> x

July 7, 2003

Hi..

Welcome! If your son is interested, there is a support group

dedicated to just people with RSS, moderated by Young. He

can go here to sign up: www.yahoogroups.com/groups/rss-people.

Also, I don't know where you live, but had you or your son ever

considered joining MAGIC (www.magicfoundation.org) and possibly going

to our convention (held every July in Chicago)? You will meet other

RSS people there!

http://www.magicfoundation.org/events/cv03program1.pdf

Another great contact is Jodi Zwain, the MAGIC RSS Teen Coordinator/

She can also be privately reached at: magicrss@....

Thanks!

kATY

Katy Badt Frissora

co-Consultant

Silver Syndome Division of MAGIC (www.magicfoundation.org)

126 Lexington Avenue

Fair Haven, NJ 07704

July 7, 2003

Hi:

I would like to know if your son used grown hormone, how many time and since the

age of??

thanks, my son is 3 years old and I woulk like to know this because I think 5'4 "

is a good height.

Betty

new here

My son was born Sept 83 at 5lbs, 17 inches long and we found out he

had silver russell syndrome, he is now 19 and is 5 feet 4 and one

half inchs tall. back when he was little they did not know as much

about it I was not offered a feeding tube, and he did not like to

eat, it was always a worry if he was getting enough to eat. When he

was sick we had to make sure he ate more because his blood surger

would drop. Now you could never tell anything , he is still a little

thin but eats like a horse lol, if anyone has any questions fell free

to ask.

July 7, 2003

We did not use any growth hormone, at that time the new growth

hormone just came out and I was worried about side afffects. They

tested him and he was not lacking any growth hormone and was not sure

it would help much anyway. We are very pleased about his height,

when he was little we always worried how tall he would be

-- In RSS-Support , " Real ez, Elvira Beatriz

(Elvira Beatriz) " wrote:

> Hi:

>

> I would like to know if your son used grown hormone, how many time

and since the age of??

>

> thanks, my son is 3 years old and I woulk like to know this because

I think 5'4 " is a good height.

>

> Betty

>

> new here

>

> My son was born Sept 83 at 5lbs, 17 inches long and we found out he

> had silver russell syndrome, he is now 19 and is 5 feet 4 and one

> half inchs tall. back when he was little they did not know as much

> about it I was not offered a feeding tube, and he did not like to

> eat, it was always a worry if he was getting enough to eat. When he

> was sick we had to make sure he ate more because his blood surger

> would drop. Now you could never tell anything , he is still a

little

> thin but eats like a horse lol, if anyone has any questions fell

free

> to ask.

>

July 7, 2003

My son ph was a challenge when he was little, always feeding him or at

least trying to , I always said if someone had him who did not care he would not

be alive, he was so hard to get to eat and if he did not eat enough his blood

sugar would drop.

When he was born we knew something was wrong his head was big for his

body and the dr. thought he had water on his brain, had a CT scan at 2 weeks

old and everything was normal. He still was not growing so our Dr. sent us

to a geneticist and we were told when he was 5 month he had silver russell

syndrome. We started taking him to a endrocolagist (not spelled right) at 9

months and he said he was even too small for that, we found out he had a kidney

problem called renal tubular acidosis, he had to take medicine 5 times a day

until he was 5 at that time her out grew it.

His size has always bothered him quite a bit, we always had comments

from people when he was little, like I could fatten him up just let me have

him for a while and why is he so small or skinny, I am sure he probably got

teased at school a little also.

He is very well adjusted now, he graduated from high school in 2002

and has a full time job at a car lot doing body work. He is 5 foor 4 inches

tall and weighs 105. He always was so smart when he was little , he talked

young only thing he did late eas walk he did not do that until he was 15 months

old, he has always been a little hyper but so am I lol. I hope U learned a

lttle more , feel free to co tact me anytime, I just wish I would of had

something like this when he was little to get imformation.

Karla

July 7, 2003

He went into puberty at the normal age, I always worried he would not.

July 7, 2003

PLEASE tell me more about your son! Mine is 15 now and about 4'11.

He is growing ever so slowly and has stomach problem to add to it

all. It would be such an inspiration to us all to hear about the

successes your son has had and what he is doing now. We all need a

little cheering up after the loss of Janelle.

Jodi

July 7, 2003

---

Karla,

I was wondering if your son had early puberty, because 5'4 " sounds

pretty good to me without growth hormone or the drug they give our

kids to suppress puberty to give them more time to grow.

Did he have any other health problems?

Thanks.

Cindy

In RSS-Support , karla80@a... wrote:

> My son ph was a challenge when he was little, always feeding

him or at

> least trying to , I always said if someone had him who did not

care he would not

> be alive, he was so hard to get to eat and if he did not eat

enough his blood

> sugar would drop.

> When he was born we knew something was wrong his head was

big for his

> body and the dr. thought he had water on his brain, had a CT scan

at 2 weeks

> old and everything was normal. He still was not growing so our

Dr. sent us

> to a geneticist and we were told when he was 5 month he had silver

russell

> syndrome. We started taking him to a endrocolagist (not spelled

right) at 9

> months and he said he was even too small for that, we found out he

had a kidney

> problem called renal tubular acidosis, he had to take medicine 5

times a day

> until he was 5 at that time her out grew it.

> His size has always bothered him quite a bit, we always

had comments

> from people when he was little, like I could fatten him up just

let me have

> him for a while and why is he so small or skinny, I am sure he

probably got

> teased at school a little also.

> He is very well adjusted now, he graduated from high

school in 2002

> and has a full time job at a car lot doing body work. He is 5

foor 4 inches

> tall and weighs 105. He always was so smart when he was little ,

he talked

> young only thing he did late eas walk he did not do that until he

was 15 months

> old, he has always been a little hyper but so am I lol. I hope U

learned a

> lttle more , feel free to co tact me anytime, I just wish I would

of had

> something like this when he was little to get imformation.

>

> Karla

>

July 7, 2003

Karla - Welcome! It is wonderful to hear from a mom of an older

child. Does your son happen to live close to Chicago? The reason I

ask is that some other adults with RSS are getting together for the

first time ever at our MAGIC convention -- primarily on Friday, July

25th, in Chicago at the Chicago Marriott O'Hare. There are 7 adults

currently and I believe 5 teenagers gathering (plus about 100 other

RSS families). Plus, and I am guessing Jodi and Katy already wrote

this, there is a listserve similar to this one for adults with RSS

called RSS-People.

> My son was born Sept 83 at 5lbs, 17 inches long and we found out he

> had silver russell syndrome, he is now 19 and is 5 feet 4 and one

> half inchs tall. back when he was little they did not know as much

> about it I was not offered a feeding tube, and he did not like to

> eat, it was always a worry if he was getting enough to eat. When he

> was sick we had to make sure he ate more because his blood surger

> would drop. Now you could never tell anything , he is still a

little

> thin but eats like a horse lol, if anyone has any questions fell

free

> to ask.

July 9, 2003

> > My son was born Sept 83 at 5lbs, 17 inches long and we found out

he

> > had silver russell syndrome, he is now 19 and is 5 feet 4 and one

> > half inchs tall. back when he was little they did not know as

much

> > about it I was not offered a feeding tube, and he did not like to

> > eat, it was always a worry if he was getting enough to eat. When

he

> > was sick we had to make sure he ate more because his blood surger

> > would drop. Now you could never tell anything , he is still a

> little

> > thin but eats like a horse lol, if anyone has any questions fell

> free

> > to ask.

August 12, 2003

Hello ,

Welcome to our group. This is one of the best places to get information,

give support, get support, and vent. Everyone on this list is extremely

helpful and caring. My son also has RSS and we found out when he

was about 4 months old. He's 29 months old now and weighs about 23 lbs.

Sounds like your two boys are about the same ages as mine. also has

an older brother--they are 18 months apart. Of course there's also

little who just turned 14 months old, too. Anyhow, would you be

willing to give us some more information on your son such as his birth

weight and length? Also, one of the best sites you can check out in

regards to RSS is www.magicfoundation.org. Many of the members on this

site are also members of the Magic Foundation which the only

organization supportive of RSS. Well, welcome to the group!

, 's mom

new here

Hi everyone My name is and my son was just diagnosed with

RSS. He is 4 months old. I have already found numerous websites on RSS

but I joined the list for a " real life view " on what we are dealing

with. I am in Omaha, Ne , married, and I have one other son who will be

2 next month. NIce to meet you all

Blessings,

August 12, 2003