Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 In a message dated 1/9/01 7:24:45 AM Pacific Standard Time, ticklemelui@... writes: I THOUGHT THAT IT WAS RARE NEAR IMPOSS FOR 2 PEOPLE IN 1 FAMILY TO HAVE AIH? So I'm confused, very very confused, I thought I wouldn't have to worry about my sister, my children getting it as well. Has anyone heard of this happening? (London UK) My understanding, just from general reading, is that autoimmune diseases in general are familial. Also, that people who have one autoimmune disease often have another. I hope that someone reading this message will tell us that I'm wrong. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Yes, Autoimmune diseases do run in families. MY Mom and I have Lupus she dosnt have liver problems though. But the Drs. told me the chances that my children will get them are small because there immune systems are much stronger than mine. , please dont worry. Christi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Leona your family sounds like mine. Keep your chin up. Christi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Unfortunately, Harper, you are so right. Although a lot of the AIH literature indicates it is rare for 2 or more in a family to have AIH, there is a high probablity of some kind of autoimmune disease occuring within the same family. For instance, I have an 11 year old son with autoimmune thyroid. While not a rare disease, statistically he does not fall into the ballpark @ all! It usually occurs in women of childbearing age, a ratio of 50 to 1, female to male. Go figure. We have other instances of autoimmune thyroid in other family members (all female). I would think then, that, although considered very unlikely, it is still possible for another family member to have AIH simply because of the propensity within the family to have autoimmune diseases. , AARDA is one organization that has a lot of info on autoimmune disease in general. I am @ work right now and do not have the site addy handy...and our puter at home has turned into a 50 pound paperweight...but will try to remember to bring the info to work tomorrow and post the addy. Maybe you can find more information there too. > In a message dated 1/9/01 7:24:45 AM Pacific Standard Time, > ticklemelui@y... writes: > > > > I THOUGHT THAT IT WAS RARE NEAR IMPOSS FOR 2 PEOPLE IN 1 FAMILY TO HAVE AIH? > > > > So I'm confused, very very confused, I thought I wouldn't have to worry > > about my sister, my children getting it as well. > > > > Has anyone heard of this happening? > > > > My understanding, just from general reading, is that autoimmune diseases in > general are familial. Also, that people who have one autoimmune disease > often have another. I hope that someone reading this message will tell us > that I'm wrong. > Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 It is www.aarda.org Lori C. [ ] Re: Mother >Unfortunately, Harper, you are so right. Although a lot of the AIH >literature indicates it is rare for 2 or more in a family to have AIH, >there is a high probablity of some kind of autoimmune disease occuring >within the same family. For instance, I have an 11 year old son with >autoimmune thyroid. While not a rare disease, statistically he does >not fall into the ballpark @ all! It usually occurs in women of >childbearing age, a ratio of 50 to 1, female to male. Go figure. We >have other instances of autoimmune thyroid in other family members >(all female). I would think then, that, although considered very >unlikely, it is still possible for another family member to have AIH >simply because of the propensity within the family to have autoimmune >diseases. > >, AARDA is one organization that has a lot of info on autoimmune >disease in general. I am @ work right now and do not have the site >addy handy...and our puter at home has turned into a 50 pound >paperweight...but will try to remember to bring the info to work >tomorrow and post the addy. Maybe you can find more information there >too. > > > > >> In a message dated 1/9/01 7:24:45 AM Pacific Standard Time, >> ticklemelui@y... writes: >> >> >> > I THOUGHT THAT IT WAS RARE NEAR IMPOSS FOR 2 PEOPLE IN 1 FAMILY TO >HAVE AIH? >> > >> > So I'm confused, very very confused, I thought I wouldn't have to >worry >> > about my sister, my children getting it as well. >> > >> > Has anyone heard of this happening? >> > >> >> My understanding, just from general reading, is that autoimmune >diseases in >> general are familial. Also, that people who have one autoimmune >disease >> often have another. I hope that someone reading this message will >tell us >> that I'm wrong. >> Harper (AIH 5/00) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Hi all; In my family my mother had rheum. arthritis, my father had aplastic anemia and my sister has MS. I am not sure that aplastic anemia is an autoimmune disease but have read it is thought may be. I was diagnosed with AIH Mar 97. Leona M ---- Original Message ----- From: flatcat9@... egroups Sent: Tuesday, January 09, 2001 9:14 AM Subject: Re: [ ] Mother In a message dated 1/9/01 7:24:45 AM Pacific Standard Time, ticklemelui@... writes: I THOUGHT THAT IT WAS RARE NEAR IMPOSS FOR 2 PEOPLE IN 1 FAMILY TO HAVE AIH? So I'm confused, very very confused, I thought I wouldn't have to worry about my sister, my children getting it as well. Has anyone heard of this happening? (London UK)My understanding, just from general reading, is that autoimmune diseases in general are familial. Also, that people who have one autoimmune disease often have another. I hope that someone reading this message will tell us that I'm wrong. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Autoimmunity runs in my family as well. Father had rheumatoid arthritis, I had rheumatic fever when I was a kid (long ago), and now AIH. According to my doc. autoimunity can run in families but other factors play a role. www.aarda.org has a good faq on this subject. Since my children are at higher risk to get an autoimmune diseases, I have met with their doctors and made it quite clear that this should be addressed in their medical records, and the doctors agreed. Clyde -- =========================================================+ Help save a life, become an organ and tissue donor today.| =========================================================+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Jon, no it is not unusual for someone with achalasia to not be able to swallow and retain water. This is one of the symptoms of achalasia. After treatment (dilatation or a myotomy) then you often need to drink a lot of water to wash down the food. She need to tell her doctor about this. It will probably get worse and you don't want her to become dehydrated. Maggie Alabama AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Liquids, by their very nature, flow more smoothly down thru the esophagus and into the stomach. Primary symptoms of achalasia are the cessation of peristalsis of the esophagus and the contraction of the LES (Lower Esophageal Sphincter) to the stomach. When the LES contracts tightly, nothing is going to pass through to the stomach (and for those discussing vomiting, nothing is going to shoot up from the stomach). To answer your question directly, it is not rare that achalasia sufferers can find drinking to be as difficult as eating at times. It goes with the disease. Since your mother has had achalasia diagnosed, I am assuming that you are now at the point of deciding which course of action to take. Please keep us informed so that our group can help you make an informed decision. If you read the recent file posted by Barbara, you will read how a well intentioned person suffering from achalasia her entire life, has gone thru hell. Like anything else, there are doctors and there are DOCTORS. Achalasia requires a surgeon who has done many surgeries (and has received the "Achalasian Certificate of Competency" (I just made that up). Take time to read many of the posts here. Its an education well worth the time. In a message dated 3/8/2007 8:48:50 A.M. Eastern Standard Time, jshkingswood@... writes: Can somebody tell me please if it is rare that achalasia sufferers find drinking as difficult as eating? My mother has had achalasia diagnosed, although from what i read on these pages, most people find it helps to wash food down with lots of fluid. She is unable to drink more than half a small cup in 40 minutes so is clearly different to some others - any ideas?Jon AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Before my husband finally went to the dr to see what was wrong, he couldn't even drink water. It just wouldn't go down and he had to throw it up. He lost about 30 pounds in a month. He had the dilation done because he need some immediate relief and that helped for a few months. Now he's going to have the surgery because it's getting bad again. But he's so stubborn. Last night (well this morning) when I saw that the time was only 4am I yelled at him to prop himself up so he would stop coughing and choking and throwing up. He finally did it and we managed to get a couple hours of sleep. mother Can somebody tell me please if it is rare that achalasia sufferers find drinking as difficult as eating? My mother has had achalasia diagnosed, although from what i read on these pages, most people find it helps to wash food down with lots of fluid. She is unable to drink more than half a small cup in 40 minutes so is clearly different to some others - any ideas?Jon New is the ultimate force in competitive emailing. Find out more at the Championships. Plus: play games and win prizes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Dear Jon, I was going to reply to your post but see you have got your answer. How old is your Mum, because that is relevant to what sort of treatment she should have? And also where do you live? There are several regular members of this Group who live in the UK. I am in West Yorkshire, there are Pippa and Joanne in Northamptonshire, Meena in St. Albans, Steve and in London and many others who pipe up now and again. Some of us are meeting up on 28th April. It would be good for your Mum if she was able to come along and see that she is not alone and also how good life can be after treatment. Best Wishes from Ann x Hurdle <jshkingswood@...> wrote: Can somebody tell me please if it is rare that achalasia sufferers find drinking as difficult as eating? My mother has had achalasia diagnosed, although from what i read on these pages, most people find it helps to wash food down with lots of fluid. She is unable to drink more than half a small cup in 40 minutes so is clearly different to some others - any ideas?Jon New is the ultimate force in competitive emailing. Find out more at the Championships. Plus: play games and win prizes. Now you can scan emails quickly with a reading pane. Get the new . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 Dear Jon, I find drinking very difficult most of the time. It will take me quite a while (over half and hour) to drink a small glass of water, as i can only have sip at a time and have to wait until it goes down, a burp comes up and then i can have another sip. I find it easier to drink a fizzy drink - usually Dry ginger Ale, or warm drinks as these seem to go down easier. I also find that most of the time it is better not to drink and eat - one or the other is quite enough for my oesophagus. Good luck to your mum, Deb in Melbourne, Australia. Hurdle <jshkingswood@...> wrote: Can somebody tell me please if it is rare that achalasia sufferers find drinking as difficult as eating? My mother has had achalasia diagnosed, although from what i read on these pages, most people find it helps to wash food down with lots of fluid. She is unable to drink more than half a small cup in 40 minutes so is clearly different to some others - any ideas?Jon New is the ultimate force in competitive emailing. Find out more at the Championships. Plus: play games and win prizes. Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Jon In reference to your question: Can somebody tell me please if it is rare that achalasia sufferers find drinking as difficult as eating? Not only is it not rare it is one of the things that help doctors diagnosis Achalasia. Some people have this difficulty right away and others as the disease progresses. I could not get water down early after the inability to swallow food and I was always so thirsty. This can also cause dehydration. With enough force she can get some water through, but her doctor should be told about that. I'd suggest she gulp a lot of water to try to force it through. In achalasia patients, the LES (the muscle which should open to let food and water enter the sstomach) does not relax and it can be tight enough to not even allow water to go through. After we have a procedure to open that muscle, either a dilation or myotomy, then water helps push the food down. This is because we still have no motility in the esophagus. As someone mentioned the vagus nerve dies or degenerates in that area which causes it to lose the rippling motion used to push the food through. Here are a couple articles that refer to the inability to get water down. Surgery for Achalasia Learning About Health & Illness I hope this helps. Maggie AlabamaAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Hello aries19ox@...,In reference to your comment: Can somebody tell me please if it is rare that achalasia sufferers find drinking as difficult as eating? AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 > > Can somebody tell me please if it is rare that achalasia sufferers find drinking as difficult as eating? My mother has had achalasia diagnosed, although from what i read on these pages, most people find it helps to wash food down with lots of fluid. She is unable to drink more than half a small cup in 40 minutes so is clearly different to some others - any ideas? > > Jon > I had several episodes of not being able to get the liquids through for several days. Even went to the emergency room and asked for nitroglycerol (which helped!). It didn't help the second time, however. But for the last month I have been surviving on 1:1 mix of carbonated water and lemonade. For some reason it helps to move down food and other liquids, like soup or coffee. So I have it now with every meal, and as long as my meals are soft/blended, I am OK. I wsa drinking mint tea before, but this mix works much better! > > --------------------------------- > New is the ultimate force in competitive emailing. Find out more at the Championships. Plus: play games and win prizes. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 It hurts me to swallow liquids, not always but yes daily. I also cannot eat and drink at the same time or I have horrible pain OR the fluid comes right back up. I think everyone has some degree of this problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 A young man shopping in a supermarket noticed a little old lady following him around. If he stopped, she stopped.. Furthermore she kept staring at him.The old lady finally overtook him at the checkout, And she turned to him and said, "I hope I haven't made you feel ill at ease; it's just that you look so much like my late son.'He answered, 'That's okay.''I know it's silly, but if you'd call out 'Good bye, Mom' as I leave the store, It would make me feel so happy."The old lady then went through the checkout, And as she was on her way out of the store, The man called out, 'Goodbye, Mom.'The little old lady waved, and smiled back at him. Pleased that he had brought a little sunshine into someone's day, he went to pay for his Groceries.'That comes to $121.85," said the clerk.'How come so much ... I only bought 5 items..The clerk replied, 'Yeah, but your Mother saidYou'd be paying for her things, too. Bet you thought this was going to be a tear jerker.Don't trust little Old Ladies!!! Quote Link to comment Share on other sites More sharing options...
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