Gayle

[Guest guest]

Gayle - Is the cost of living very high in Colorado? How are the job

prospects? I

have always heard it was nice in Colorado. Hugs,

[Guest guest]

,

Colorado is beautiful. Job opportunities are incredible wish I was healthy

enough to jump on the bandwagon. Pay is very good. My field of work is

television which I have waited 10 years to open and now that it has I can't.

It is expensive to live here. Rental keep going up there is a high demand for

buying houses. And food is not cheap or gas. But I have always lived here and

I love the big noisy city with people everywhere. I love the climate and thin

air. Driving is an absolute nightmare any unskilled drivers haven't a chance.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

gayle, thanks for the info, it sounds nice if you don't mind me asking where

in Colorado do you live? Hugs,

[Guest guest]

,

I live on the West side of town closer to the mountains and kind of Midwest.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

Luanne,

Ty is one of the most courageous people I know. I wish I could meet him in

person some day so I could tell him how much we admire him. And, in my

opinion, you deserve Mother and Daughter of the Year awards. You have

really been put to the test(s) during recent years.

Take care,

Geri

[Guest guest]

AIH Colorado

My sister in law was looking for a Dr. cause she has breast cancer and just

moved here from NY and found a great little web site that lists the top Colorado

Drs. You can find it and www.5280pub.com.

P.S. Don't plan to meet without the north side :-)

Cyndi

galye@... wrote:

>

> Cyndi,

> Also my transplant was done at University. Any and all transplants are done

> only at University. They do treat you well. Dr. Wachs was the surgeon, he is

> a very talented excellent little child. He did the upside down Y incision

> which basically was cut from ear to ear. My incision really healed very

> nicely and looks good for scars now, for a teaching hospital they do try.

>

> gayle/trans.6-99

> galye@... ^0^

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[Guest guest]

Hi! gayle - Can you tell me if you had any symptoms of kidney failure? I

know you said you were very sick, but what I need to know is how do you know

when it starts?

Hugs,

[Guest guest]

,

I didn't have Kidney failure the liver gave out which in turn had I not

received a new liver the whole body was shutting down. The Kidneys were 2

hours away from dialysis. My symptoms at the end were. Flu like, cold,

throwing up blood, chills, I could not stay awake. My side hurt so bad. Yet I

didn't think I was sick. I kept telling my family to quit taking me the ER.

Went 4 times before I was even admitted. Then I turned neon yellow and

swelled to beyond recognition.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

Jen,

I never knew I was sick. I had had episodes like I have mentioned before. And

noticed a slow down for about 3 years. But never knew I was in Liver failure.

That was a total shock mine was an emergency transplant. I had 36 hours left

to live. So I never was prepared or the opportunity to do the things that all

of are doing now. Was very scary not having time to understand what was

happening.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

Were you on the list for a transplant or did things just take a turn for the

worse when you had your liver transplant?

Jen

On Thu, 21 Sep 2000 12:17:48 EDT, egroups wrote:

> ,

> I didn't have Kidney failure the liver gave out which in turn had I not

> received a new liver the whole body was shutting down. The Kidneys were 2

> hours away from dialysis. My symptoms at the end were. Flu like, cold,

> throwing up blood, chills, I could not stay awake. My side hurt so bad.

Yet I

> didn't think I was sick. I kept telling my family to quit taking me the

ER.

> Went 4 times before I was even admitted. Then I turned neon yellow and

> swelled to beyond recognition.

>

> gayle/trans.6-99

> galye@... ^0^

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[Guest guest]

Jen,

How has life been after the transplant....I have a niece who had a transplant

and is as normal as a perrson can be, she works, travels, parties the whole

nine yards. I ask because perhaps I will be needing one in the future and I

think....what if?

Lydia 2

[Guest guest]

Gayle,

I sent this question to jen instead of you......howevver, how is life after

the transplant? My niece had one and she is doing everything a normal person

does,

travel, work, relationships. How is it with you?

lydia 2

P.S. I just wondering how life would be if I were well.

[Guest guest]

Lydia 2,

I am a tad over 1 year with mine. I am very slowly getting better. I think

the younger you are the better, for resuming a quality life. I am on

disability and work part time 2 days a month. I recently went to Florida and

all of these activities wore me out so bad. I am not trying to discourage

you. Some people do very well. I have a lot of other medical problems on top

of this. And I take several drugs a day. You need to ask Cheryl and Randy

from here they can give you another kind of report.

gayle/trans.6-99

galye@... ^0^

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[Guest guest]

Gayle,

Thanks for responding.....Just talking to someone helps. I do hope for the

best with everyone in this group.

lydiad 2

[Guest guest]

Gayle,

I can readily identify with the feeling of uselessness.

Shireen

>From: galye@...

>Reply- egroups

> egroups

>Subject: Re: [ ] UPDATE/Gayle

>Date: Thu, 28 Sep 2000 00:50:22 EDT

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>

>Debra,

>Crying is good, but don't allow it power. Very important you look through

>your tears a minute at a time. You will get use to things. I thought I was

>useless and at times still feel that way. I want to do more things and just

>can't find the strength I had before. The best advice I have learned is to

>not have expectations because your body will rule you. And don't project

>this

>one will save you undue stress and disappointment. You will make it, you

>have

>no choice.

>

> gayle/trans.6-99

>galye@... ^0^

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[Guest guest]

gayle, thanks so much for your reply. I can tell that you feel very strongly

about this and know what you are talking about. Believe me, when Hunt is home

from college, he does not miss a dose, i would not dare let him BUT

unfortunately he is away from home at college. Of course he does not

intentionally miss a doseage but well you know how college is, sometimes you

are not where you plan to be or doing what you planned to be doing. He does

take it serious but as a 19year old he is not as responsible as he should be.

I am on his case about it all the time and after what you said, i will stress

it to him ever sooooo much. I needed that info, his doc told him to take his

meds but did not stress any importance on what would happen if he missed a

dose and quite honestly i did not know that it would do so much damage with

just one missed dose. I am very greatful to you. for letting me know all of

this

Bless you

Rosemary

[Guest guest]

Rosemary,

Hope this helps to understand. I do understand it is difficult for a kid his

age to deal with being sick. It can be embarrassing around peers. Hunt must

decide that nothing will matter in this young life if he is too sick or worse

yet, to live it.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

Hi Gayle, believe it or not Jodi is feeling better than she has in weeks. I

don't understand it, her blood counts are high where supposed to be low and

low where supposed to be high. She was having a lot of nose bleeds when her

platelets were around 30,000 but hasn't had any lately. What is your

platelet count right now? Her medical alert bracelet is supposed to be here

soon, wish it would hurry. She had to get with her Gastro to find out what

needed to be on it. He said you have to be careful what you put on it

because most people would not know what AIH is. Hope you are feeling good

today. Have a good week. God bless, Genny/Jodi's Mom

[Guest guest]

gayle - do you have any idea why I would be having discomfort been watching

diet everything, also have sharp pain in right shoulder that is bad. The

upper right

quadrant pain is like anything I eat is just staying right there in my liver

can't understand what's going on. Can you help? Thanks, Hug's,

[Guest guest]

Genny,

This disease is so unpredictable. Never know what is coming next. But it is

important that Jodi get her numbers stable. Sucks we have to deal with the

side effects to live, sometimes I wonder what is worse the meds or the AIH. I

don't know what my platelet count is. At this time it is low.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

,

What does your doctor tell you about the pain? Sounds to me it could be from

the meds, or a flare of the liver gallbladder. I know there is a lot of pain

that goes along with liver disease. I am having pain in my shoulder and neck

ribs actually the whole body. I think my pain is from arthritis which is

flaring big time. Another auto immune problem. Let your doctor know of your

pain if you haven't already. They can follow your progress based on pain and

other symptoms. Keep us informed.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

Cyndi,

My problem with Denver General is the nonchalant attitude I get and they take

forever to do anything. My liver transplant might have been avoided had the

tests been done. I am not totally unhappy with them but very frustrated.

Having no insurance really hurts. I have been in the process of having to

have a Hysterectomy for 2 years, they have decided to make me go through the

process of several biopsies without pain control. The last biopsy I had to

demand pain control before the process took place they gave me an ativan I

have a very high tolerance to drugs so that didn't even phase me and again

the pain was awful. Then they gave me Ibuprofen for the pain candy would have

been better I had to tell them not to do that. Then because of the Ibuprofen

the pharmacy decided to not refill my arthritis pills and left me for 2 weeks

without any pain control even though I called the clinic begging them to help

me crying, they gave me an appointment 2 weeks later. I am sick of the put

offs and the run around. I am a liver transplant and none of them want to

help me they are afraid of me. University on the other hand has helped me

tremendously and I feel they are much more efficient and cleaner. I

appreciate the things they have helped me with. I go crying to the transplant

team when Denver General runs me around. I see Trotter, Everson, and

Truillot. I don't have a hep that I see there, but now Denver General wants

me to go through their heps. Fine with me especially when I go through this

surgery. I am also thrilled to have my surgery done at University. University

believes that all transplant patients when needing hospitalization should go

to 7 west transplant wing. The docs feel being with nurses and doctors we are

familiar with we do better healing. They are very personal. Tim the CO

ordinator you mentioned I am not convinced I like him. I like better.

for me is hard to build a bond with. But I have to accept I am stuck

with them for life and I need to settle in for the duration. Good luck for

yourself. I really hope you never have the run around I have to go through it

sucks.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

Hi Gayle, did you read my post to Debra the other day? Her son has ITP and

so does my mother. Her platelets have been as low as 14,000. The Oncologist

put her on 80 mg. of Prednisone and they went up to 200,000. He decreased

the drug until she was completely off now her platelets are dropping again.

She has her labs Thursday and he is talking about a spleenectomy. Two of my

close family members have been diagnosed with autoimmune diseases in the last

eight months and the doctors say they aren't related at all. I find that

hard to believe. How is your daughter Jodi

doing? I hope well, you have a good week. God bless, Genny

[Guest guest]

Poor Ginger I have asked her four times for the hepatitis letter for family

and friends and everytime she sends it I end up getting it deleted. I need

to take a course in

computers if I could stay awake that long. Gayle in your other post you

mentioned that the pain may be coming from the gallbladder they finally took

the infected thing out after 7years of begging. I just can't figure the pain

in my shoulder it happens out of the blue and it feels like a hot poker.

gayle just wonder if she has anything on

Billary Cirrosis ( not spelled right) or if you can tell when cirrosis has

started in your liver. Thans, Hug's,

[Guest guest]

Genny,

I wonder the same thing about autoimmune diseases? The docs can tell me they

are unrelated and I will not believe it. Discovering liver diseases is so new

to the study block they have no idea. And I am not going to accept a snap

judgment. How is your mother doing with the low platelet count? It is awful

to have low platelet count makes you feel so sick. Each thing makes you feel

bad in its own way. How is Jodi doing? Is she taking care of herself and

slowing down? My Jodi is great she can be a pain in the butt. But don't know

what I would do without her. I was thinking with all the fund raisers going

on for breast cancer awareness, looking for cures, sometimes I don't think

that we get as much attention as we should.

gayle/trans.6-99

galye@... ^0^

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