Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 I hear ya, even the things we know are good for us can be a chore at times. I wonder if the Eucerin will thin if you heat it and make it easier to apply. I'd pay for a neck/back rub, shoulder massage, a good back scratchin' or even just someone to wash my hair once a week so I could lay back and feel something pleasant without having to use my muscles. lol I can't relax if my house is dirty or cluttered and with the construction going on here plus my husband's gear for a week long hunting trip laying everywhere it's been hell lately. BUT! He leaves tomorrow, the contractors won't be back until Tuesday and it's going to be clean and quiet here for a while thank god! Shot night went well. I took it late, wrapped my hips in an electric blanket because that's where my pain always is (arthritis) and slept through most of the night and am not hurting this morning. I must be a slow learner because I should have tried that after the first shot. lol Take care, Gayle The nurse practitioner just called and > > my > > > > 4 week blood work shows the HCV is > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > > Prescript to > > > > > be delivered to me ASAP. I didn't realize that this is > > something > > > I > > > > would be > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > The other issue is that I have had some soreness in my upper > > arm > > > > and now > > > > > some pain in my left shoulder. I feels like I might have > slept > > on > > > > it wrong > > > > > or pulled something. It hurts more when I take a deep breath. > I > > > > told her > > > > > that and she was quite concerned. I happen to have 2 > > appointments > > > > tomorrow > > > > > - my rheumatologist in the morning and the internist in the > > > > afternoon so > > > > > she's going to fax the report over to the internist. She told > > me > > > if > > > > it gets > > > > > worse, I should go to the ER. > > > > > > > > > > While I'm excited about the good news, I'm concerned about > the > > > bad > > > > news :-( > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 I hear ya, even the things we know are good for us can be a chore at times. I wonder if the Eucerin will thin if you heat it and make it easier to apply. I'd pay for a neck/back rub, shoulder massage, a good back scratchin' or even just someone to wash my hair once a week so I could lay back and feel something pleasant without having to use my muscles. lol I can't relax if my house is dirty or cluttered and with the construction going on here plus my husband's gear for a week long hunting trip laying everywhere it's been hell lately. BUT! He leaves tomorrow, the contractors won't be back until Tuesday and it's going to be clean and quiet here for a while thank god! Shot night went well. I took it late, wrapped my hips in an electric blanket because that's where my pain always is (arthritis) and slept through most of the night and am not hurting this morning. I must be a slow learner because I should have tried that after the first shot. lol Take care, Gayle The nurse practitioner just called and > > my > > > > 4 week blood work shows the HCV is > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > > Prescript to > > > > > be delivered to me ASAP. I didn't realize that this is > > something > > > I > > > > would be > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > The other issue is that I have had some soreness in my upper > > arm > > > > and now > > > > > some pain in my left shoulder. I feels like I might have > slept > > on > > > > it wrong > > > > > or pulled something. It hurts more when I take a deep breath. > I > > > > told her > > > > > that and she was quite concerned. I happen to have 2 > > appointments > > > > tomorrow > > > > > - my rheumatologist in the morning and the internist in the > > > > afternoon so > > > > > she's going to fax the report over to the internist. She told > > me > > > if > > > > it gets > > > > > worse, I should go to the ER. > > > > > > > > > > While I'm excited about the good news, I'm concerned about > the > > > bad > > > > news :-( > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 HI Gayle, don't feel bad, I kept fogeting to take some pain & fever reducer before I took my shot, & to leave it out for awhile so it wouldn't be so cold going in. Hurts less. I have a real bad aphobia with needles, I'm not kidding I freak out real bad, always have. But I'm glad everything went well with your shot. You havn't been trying to make any new oulets there @ your house, have you??? I told my sister about that, she about died. We were both rolling over that one. I'll tell ya the shit that goes through our minds. I think those tx do something to us, other than the sides we experience. Well I woke up up with my head banging & my eyes all bumpy & swallon. I have alot of trouble with my eyes. I'm going back to the opthamoligist, jesus I don't even know if I spelled that right. Talk @ you soon. Take Care! Gayle <mollydamaula@...> wrote: I hear ya, even the things we know are good for us can be a chore at times. I wonder if the Eucerin will thin if you heat it and make it easier to apply. I'd pay for a neck/back rub, shoulder massage, a good back scratchin' or even just someone to wash my hair once a week so I could lay back and feel something pleasant without having to use my muscles. lol I can't relax if my house is dirty or cluttered and with the construction going on here plus my husband's gear for a week long hunting trip laying everywhere it's been hell lately. BUT! He leaves tomorrow, the contractors won't be back until Tuesday and it's going to be clean and quiet here for a while thank god! Shot night went well. I took it late, wrapped my hips in an electric blanket because that's where my pain always is (arthritis) and slept through most of the night and am not hurting this morning. I must be a slow learner because I should have tried that after the first shot. lol Take care, Gayle The nurse practitioner just called and > > my > > > > 4 week blood work shows the HCV is > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > > Prescript to > > > > > be delivered to me ASAP. I didn't realize that this is > > something > > > I > > > > would be > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > The other issue is that I have had some soreness in my upper > > arm > > > > and now > > > > > some pain in my left shoulder. I feels like I might have > slept > > on > > > > it wrong > > > > > or pulled something. It hurts more when I take a deep breath. > I > > > > told her > > > > > that and she was quite concerned. I happen to have 2 > > appointments > > > > tomorrow > > > > > - my rheumatologist in the morning and the internist in the > > > > afternoon so > > > > > she's going to fax the report over to the internist. She told > > me > > > if > > > > it gets > > > > > worse, I should go to the ER. > > > > > > > > > > While I'm excited about the good news, I'm concerned about > the > > > bad > > > > news :-( > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 HI Gayle, don't feel bad, I kept fogeting to take some pain & fever reducer before I took my shot, & to leave it out for awhile so it wouldn't be so cold going in. Hurts less. I have a real bad aphobia with needles, I'm not kidding I freak out real bad, always have. But I'm glad everything went well with your shot. You havn't been trying to make any new oulets there @ your house, have you??? I told my sister about that, she about died. We were both rolling over that one. I'll tell ya the shit that goes through our minds. I think those tx do something to us, other than the sides we experience. Well I woke up up with my head banging & my eyes all bumpy & swallon. I have alot of trouble with my eyes. I'm going back to the opthamoligist, jesus I don't even know if I spelled that right. Talk @ you soon. Take Care! Gayle <mollydamaula@...> wrote: I hear ya, even the things we know are good for us can be a chore at times. I wonder if the Eucerin will thin if you heat it and make it easier to apply. I'd pay for a neck/back rub, shoulder massage, a good back scratchin' or even just someone to wash my hair once a week so I could lay back and feel something pleasant without having to use my muscles. lol I can't relax if my house is dirty or cluttered and with the construction going on here plus my husband's gear for a week long hunting trip laying everywhere it's been hell lately. BUT! He leaves tomorrow, the contractors won't be back until Tuesday and it's going to be clean and quiet here for a while thank god! Shot night went well. I took it late, wrapped my hips in an electric blanket because that's where my pain always is (arthritis) and slept through most of the night and am not hurting this morning. I must be a slow learner because I should have tried that after the first shot. lol Take care, Gayle The nurse practitioner just called and > > my > > > > 4 week blood work shows the HCV is > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > > Prescript to > > > > > be delivered to me ASAP. I didn't realize that this is > > something > > > I > > > > would be > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > The other issue is that I have had some soreness in my upper > > arm > > > > and now > > > > > some pain in my left shoulder. I feels like I might have > slept > > on > > > > it wrong > > > > > or pulled something. It hurts more when I take a deep breath. > I > > > > told her > > > > > that and she was quite concerned. I happen to have 2 > > appointments > > > > tomorrow > > > > > - my rheumatologist in the morning and the internist in the > > > > afternoon so > > > > > she's going to fax the report over to the internist. She told > > me > > > if > > > > it gets > > > > > worse, I should go to the ER. > > > > > > > > > > While I'm excited about the good news, I'm concerned about > the > > > bad > > > > news :-( > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Hi Gayle, My hair is doing the same as yours, I had just started growing it out last year, and it is killing me also to see it in my brush. I am going on my 5th shot Tuesday. The side effects, besides my hair, are not too bad. I have joint pain usually after the shot, maybe a little nausea. My worst side is probably tiredness, I am extremely tired after the shot. I consider myself lucky, I could be sick like others are. I saw the doctor today, and he was thrilled that I was doing so good. I have to have blood drawn tomorrow, so we will see how that looks. Re: Tim Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 I never thought to take the syringe out of the fridge before hand, I always just roll it in my hands to warm it. You're right though it does hurt more when it's cold, I know because I didn't warm it enough once so I'll try it your way. lol That sucks having a fear of needles and having to take injections. I guess it's clear you didn't contract hcv though iv drug abuse. lol lol Nope, no new holes in my husband or anything but the day is young. He asked me the other day why the .357 was in the kitchen and I just smiled and said, " I dunno " . lmao He's scared of me sometimes but really it was sitting there because we have building materials on a trailer in the yard and the gun is for whoever wants to try and take it. I just like to mess with him once in a while. lol Cripes, your eyes sound painful! Hope the opta-doc (I don't know how to spell it. lol) can help you out with that. Do you have eye problems to begin with that the tx is making worse?? I kicked back in the tub the other night (We have an old claw foot) and put that gel pack over my eyes that came with the Pegasys kit and it was like heaven. You did get a care kit when you startd tx, didn't you? If not you can get one from the Pegassist site I think. Regarding your other message... ROFL Imagine you and I getting together! LOOK OUT WORLD!!! lol catch ya later, I need to go clean my Browning. Hubby is taking it as a back up on his hunting trip this week. Hope yer eyes feel better!! Gayle The nurse practitioner just called > and > > > my > > > > > 4 week blood work shows the HCV is > > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to > order > > > > > Prescript to > > > > > > be delivered to me ASAP. I didn't realize that this is > > > something > > > > I > > > > > would be > > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > > > The other issue is that I have had some soreness in my > upper > > > arm > > > > > and now > > > > > > some pain in my left shoulder. I feels like I might have > > slept > > > on > > > > > it wrong > > > > > > or pulled something. It hurts more when I take a deep > breath. > > I > > > > > told her > > > > > > that and she was quite concerned. I happen to have 2 > > > appointments > > > > > tomorrow > > > > > > - my rheumatologist in the morning and the internist in the > > > > > afternoon so > > > > > > she's going to fax the report over to the internist. She > told > > > me > > > > if > > > > > it gets > > > > > > worse, I should go to the ER. > > > > > > > > > > > > While I'm excited about the good news, I'm concerned about > > the > > > > bad > > > > > news :-( > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Isn't it the pits? You just start liking your hair and it falls out. lol It'll grow back though according to everyone I've talked to so don't fret, and there's always wigs! (I'm going to get a big slutty one if I have to wear a wig. lol) Yeah the tiredness is my biggest downfall too and I seem to be getting nothing done these days. Heat packs or a heating pad will help with the joint pain. I wrap my hips in a heating blanket on shot night now and it seems to help. I'm glad you're doing so well and hope your labs say good things. I just had blood drawn this week then go to the doc this coming Wednesday and I'm hoping for good news. I'll keep my fingers crossed for us both! Take care. Gayle The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 I did treatment 3 times (not peg) and my hail thinned but not enough to have to have a wig. I cut my hair short and then it was not so devastating as it didn't look like as much hair....I have had extreemely think and curly hair and always wanted beautiful straight hair...well when my hair started comming in after the first time it was very strait and i could not figure out what to do with it ....it was terriable...then with each secession of treatments when the new hair would come in it was a little curlier ..So now even though it is not as thick as it once was it is still pretty curly...when my thyrooid went wacko after last treatment my hair started thinning also..and i can tell when i am not getting enough meds for thyroid as it starts falling out .....so hang in there you should do fine ... GOD BLESS .....tricia S SAVE A LIFE https://www.donatelifenw.org/register/ TODAY IS GOD'S GIFT TO YOU, WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! " I am responsible for my own well-being,my own happiness. The choices and decicions I make regarding my life directly influences the quality of my days. " Kathleen Andrus Check out our site: http://www.shepswoodncrafts.com/home.html http://rslaserkits.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Thanks Trish, I won't worry about it now since yours came back all 3 times. I know the thyroid regulates all kinds of things and I think I recall my doc telling me that includes hair. I'll have to look into that organ and learn a little more about it. Thanks again! Gayle > > I did treatment 3 times (not peg) and my hail thinned but not enough to have to have a wig. I cut my hair short and then it was not so devastating as it didn't look like as much hair....I have had extreemely think and curly hair and always wanted beautiful straight hair...well when my hair started comming in after the first time it was very strait and i could not figure out what to do with it ...it was terriable...then with each secession of treatments when the new hair would come in it was a little curlier ..So now even though it is not as thick as it once was it is still pretty curly...when my thyrooid went wacko after last treatment my hair started thinning also..and i can tell when i am not getting enough meds for thyroid as it starts falling out .....so hang in there you should do fine ... GOD BLESS .....tricia S > > SAVE A LIFE > https://www.donatelifenw.org/register/ > > TODAY IS GOD'S GIFT TO YOU, > WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! > " I am responsible for my own well-being,my own happiness. > The choices and decicions I make regarding my life > directly influences the quality of my days. " > Kathleen Andrus > Check out our site: > http://www.shepswoodncrafts.com/home.html > > http://rslaserkits.com/ > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Hey Gayle, well 1 thing I can say is never a dull moment with you! Y ou do keep me laughing, and I thank you for that. And yes is does make a difference letting the shots sit out for a couple hours. And no I never did receive any kind of welcome pack from peg. What kind of welcome pack is it? Welcome to Hell!!! My eyes are getting worse, so tomorrow i'm going in to have some blood work done & my liver doc. wants me to see one of his associates. It's pretty cool they have certain hours on sat. Which I really don't wana go, but I don't wana go blind either. I just with I new what the hells going on! Guess I'm gonna find out. Well Take Care, & be nice to hubby, ok? By the way where do you live if you don't mind me asking? I'm in Royal Oak, Mi. People on here have told me before where they live, but imagine this one, I can't remember! see ya! Gayle <mollydamaula@...> wrote: I never thought to take the syringe out of the fridge before hand, I always just roll it in my hands to warm it. You're right though it does hurt more when it's cold, I know because I didn't warm it enough once so I'll try it your way. lol That sucks having a fear of needles and having to take injections. I guess it's clear you didn't contract hcv though iv drug abuse. lol lol Nope, no new holes in my husband or anything but the day is young. He asked me the other day why the .357 was in the kitchen and I just smiled and said, " I dunno " . lmao He's scared of me sometimes but really it was sitting there because we have building materials on a trailer in the yard and the gun is for whoever wants to try and take it. I just like to mess with him once in a while. lol Cripes, your eyes sound painful! Hope the opta-doc (I don't know how to spell it. lol) can help you out with that. Do you have eye problems to begin with that the tx is making worse?? I kicked back in the tub the other night (We have an old claw foot) and put that gel pack over my eyes that came with the Pegasys kit and it was like heaven. You did get a care kit when you startd tx, didn't you? If not you can get one from the Pegassist site I think. Regarding your other message... ROFL Imagine you and I getting together! LOOK OUT WORLD!!! lol catch ya later, I need to go clean my Browning. Hubby is taking it as a back up on his hunting trip this week. Hope yer eyes feel better!! Gayle The nurse practitioner just called > and > > > my > > > > > 4 week blood work shows the HCV is > > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to > order > > > > > Prescript to > > > > > > be delivered to me ASAP. I didn't realize that this is > > > something > > > > I > > > > > would be > > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > > > The other issue is that I have had some soreness in my > upper > > > arm > > > > > and now > > > > > > some pain in my left shoulder. I feels like I might have > > slept > > > on > > > > > it wrong > > > > > > or pulled something. It hurts more when I take a deep > breath. > > I > > > > > told her > > > > > > that and she was quite concerned. I happen to have 2 > > > appointments > > > > > tomorrow > > > > > > - my rheumatologist in the morning and the internist in the > > > > > afternoon so > > > > > > she's going to fax the report over to the internist. She > told > > > me > > > > if > > > > > it gets > > > > > > worse, I should go to the ER. > > > > > > > > > > > > While I'm excited about the good news, I'm concerned about > > the > > > > bad > > > > > news :-( > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Well imagine that, one of us not being able to remember something. lmao I'm in north central Indiana about 5o miles south of the MI state line. Howdy neighbor! Oh man they gave me this great kit in a nice black contoured shoulder bag that had a sharps container, video on self injections, freezer gel eye mask, preg test, some Tylonal, a little travel bag, all kinds of pamphlets.... They gave me that right at the doc's office and it's supposed to be something everyone gets when they start Pegasys. I think they probably get used up by the office staff a lot of times though. ;-) I didn't read the other posts yet but glanced through and see sites, names and numbers to call to get your kit so you're probably all set up to find it. So are you going to that doc today for your eyes? I know you don't feel like going but get your ass in there anyway!! How are you going to stick yourself if you can't see the needle?? lol Seriously though I hope it's something very simple and fixable with drops or meds you can take. For sure let me know! After hubby left yesterday I went and bought some do it yourself track lighting that said takes only 15 minutes and a pair of scissors to install. It took me 3 hours, a drill, 2 strips of wood and every cuss word known to mankind to get it up. rofl It's up though and I wore myself out enough that I slept right through the night for the first time in weeks. lol Ha! My hubby has it better than he knows. lol Not only did I clean and let him take my favorite gun but I washed and detailed the truck, helped him pack, lied and told him I'd miss him (lol), and even went to breakfast with him and his buds before they left yesterday. I was so friggin' tired I was all over the road on the way home then tackled that lighting job and cleaned the house. No wonder I slept good last night. lmao Now it's time to relax and concentrate on gayle for a week. Ahhhhhhhh........big sigh...... Take care of those eyes. ;-) Gayle The nurse practitioner just called > > and > > > > my > > > > > > 4 week blood work shows the HCV is > > > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to > > order > > > > > > Prescript to > > > > > > > be delivered to me ASAP. I didn't realize that this is > > > > something > > > > > I > > > > > > would be > > > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > > > > > The other issue is that I have had some soreness in my > > upper > > > > arm > > > > > > and now > > > > > > > some pain in my left shoulder. I feels like I might have > > > slept > > > > on > > > > > > it wrong > > > > > > > or pulled something. It hurts more when I take a deep > > breath. > > > I > > > > > > told her > > > > > > > that and she was quite concerned. I happen to have 2 > > > > appointments > > > > > > tomorrow > > > > > > > - my rheumatologist in the morning and the internist in > the > > > > > > afternoon so > > > > > > > she's going to fax the report over to the internist. She > > told > > > > me > > > > > if > > > > > > it gets > > > > > > > worse, I should go to the ER. > > > > > > > > > > > > > > While I'm excited about the good news, I'm concerned > about > > > the > > > > > bad > > > > > > news :-( > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Yes, I'm getting ready to leave in about an hour. I hope they can do something simple. I hope I don't have to go through a bunch of shitt! And I sure hope they don't have to keep me, that would really suck!!! Oh and one thing thats nice about me taking my shots is, my sister gives them to me. any who, I hope you ejoy your weeks vacation, the peace & quiet huh? Well @ least I won't have to worry about you installing any new outlets in the house, for the next week. And you better slow it down some, you're gonna kill yourself doing all that work. Well I'll let you know when I get back from the Docs. Have a good day, get lots of rest. Take Care! Gayle <mollydamaula@...> wrote: Well imagine that, one of us not being able to remember something. lmao I'm in north central Indiana about 5o miles south of the MI state line. Howdy neighbor! Oh man they gave me this great kit in a nice black contoured shoulder bag that had a sharps container, video on self injections, freezer gel eye mask, preg test, some Tylonal, a little travel bag, all kinds of pamphlets.... They gave me that right at the doc's office and it's supposed to be something everyone gets when they start Pegasys. I think they probably get used up by the office staff a lot of times though. ;-) I didn't read the other posts yet but glanced through and see sites, names and numbers to call to get your kit so you're probably all set up to find it. So are you going to that doc today for your eyes? I know you don't feel like going but get your ass in there anyway!! How are you going to stick yourself if you can't see the needle?? lol Seriously though I hope it's something very simple and fixable with drops or meds you can take. For sure let me know! After hubby left yesterday I went and bought some do it yourself track lighting that said takes only 15 minutes and a pair of scissors to install. It took me 3 hours, a drill, 2 strips of wood and every cuss word known to mankind to get it up. rofl It's up though and I wore myself out enough that I slept right through the night for the first time in weeks. lol Ha! My hubby has it better than he knows. lol Not only did I clean and let him take my favorite gun but I washed and detailed the truck, helped him pack, lied and told him I'd miss him (lol), and even went to breakfast with him and his buds before they left yesterday. I was so friggin' tired I was all over the road on the way home then tackled that lighting job and cleaned the house. No wonder I slept good last night. lmao Now it's time to relax and concentrate on gayle for a week. Ahhhhhhhh........big sigh...... Take care of those eyes. ;-) Gayle The nurse practitioner just called > > and > > > > my > > > > > > 4 week blood work shows the HCV is > > > > > > > undetectable. She said that's great at this early stage. > > > > > > > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to > > order > > > > > > Prescript to > > > > > > > be delivered to me ASAP. I didn't realize that this is > > > > something > > > > > I > > > > > > would be > > > > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > > > > > > > The other issue is that I have had some soreness in my > > upper > > > > arm > > > > > > and now > > > > > > > some pain in my left shoulder. I feels like I might have > > > slept > > > > on > > > > > > it wrong > > > > > > > or pulled something. It hurts more when I take a deep > > breath. > > > I > > > > > > told her > > > > > > > that and she was quite concerned. I happen to have 2 > > > > appointments > > > > > > tomorrow > > > > > > > - my rheumatologist in the morning and the internist in > the > > > > > > afternoon so > > > > > > > she's going to fax the report over to the internist. She > > told > > > > me > > > > > if > > > > > > it gets > > > > > > > worse, I should go to the ER. > > > > > > > > > > > > > > While I'm excited about the good news, I'm concerned > about > > > the > > > > > bad > > > > > > news :-( > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 I avoided doctors and hospitals my whole life and it was a tough transition for me when I started dealing with this thing. Sounds like you aren't too fond of them either. lol You said you have bumps on your eyes? Is it your eyelids? I'm curious because I'm getting itchy red areas and little bumps around my eyes. Maybe it's a milder form of what your going through.... I don't know. Yes I'm ready to take it easy now and only work as long as I feel like it. I curled up with the dogs for a nice long nap today and it was great to have uninterrupted sleep. No blareing TV, no coming in to kiss me on the head to make sure I don't have a fever... lol Even when he's at work he calls 2-3 times a day and wakes me up half the time. It must suck to be that in love. lmao Just kidding, I love him we just fight like cats and dogs sometimes. Tell sis to type for you if you can't see the keys and let us know how the eye appointment went, and tell her that's really sweet to help you out as much as she is. She sounds really supportive and that's so important for you right now. Sometimes just having someone to lean on is all you need. ;-) Take care, I'm headed for bed! Gayle > Now it's time to relax and concentrate on gayle for a week. > Ahhhhhhhh........big sigh...... > Take care of those eyes. ;-) > Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Hi Gayle, I know your probably already gone to bed, but I thought I'd write you back right quick! Yes they are on my eyelids & underneath my eyes. There very swollan, itchy & red. They are starting to go into the corners of my eyelids & inside my eyes. My visit to the Doc. today sucked! I ended up seeing this women (so called Doc) that didn't know what the hell she was doing. Plus she treated me like shitt!! (BITCH)!!! I did have my bloodwork done, thank God! Even if I don't have an arm left. So this Doc. said she had no idea what was wrong with my eyes. She gave me a script for some drops & 1 for an antihistemine, (which I'm alergic to)!!! She told me to go see my Liver Doc. I tried to tell her he is a Liver specialist & that is why he sent me there. Finally I said the Hell with it, I didn't have the strengh to argue with her. So I'm gonna call my Liver Doc. Monday & just use the drops, after I make sure they won't interfere with my other meds. I mean it was a freaking joke! These people including the nurses didn't even know what Ribaviron was, they asked me how to spell it!!! So I was pisssssssssed! But than the day got better. Mysis & her family took me out to eat with them & shopping. I had to be pushed in a wheelchair at the mall but it was ok, my nephew enjoyed pushing me around. And you know thats the first time i've been out anywhere in months. I'm very blessed to have them in my life, they're very good to me. Ok I'm beat, talk to you tomorrow. Take Care!!! I'm glad you're enjoying the quietness!!! Gayle <mollydamaula@...> wrote: I avoided doctors and hospitals my whole life and it was a tough transition for me when I started dealing with this thing. Sounds like you aren't too fond of them either. lol You said you have bumps on your eyes? Is it your eyelids? I'm curious because I'm getting itchy red areas and little bumps around my eyes. Maybe it's a milder form of what your going through.... I don't know. Yes I'm ready to take it easy now and only work as long as I feel like it. I curled up with the dogs for a nice long nap today and it was great to have uninterrupted sleep. No blareing TV, no coming in to kiss me on the head to make sure I don't have a fever... lol Even when he's at work he calls 2-3 times a day and wakes me up half the time. It must suck to be that in love. lmao Just kidding, I love him we just fight like cats and dogs sometimes. Tell sis to type for you if you can't see the keys and let us know how the eye appointment went, and tell her that's really sweet to help you out as much as she is. She sounds really supportive and that's so important for you right now. Sometimes just having someone to lean on is all you need. ;-) Take care, I'm headed for bed! Gayle > Now it's time to relax and concentrate on gayle for a week. > Ahhhhhhhh........big sigh...... > Take care of those eyes. ;-) > Gayle __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Oh mine aren't anything like that. Real tiny, not inflammed at all and only a few of them. Oh my god you had to be beside yourself with anger not only from them not knowing what they're doing but to be treated like crap. I really hate uppity rude people and my husband is always lecturing me about burning bridges because I tend to let people know when they piss me off. lol Doesn't it just kill you to have to pay out money to someone who knows as little or less than you do about your problem? I think that aggitates me more than anything about seeing doctors, paying them to guess what's wrong with me. Hell, I can do that myself for free. If the drops don't work you're probably going to have to try a different doc because it sounds like whatever's going on with your eyes is getting worse and not better. That sucks and I'm really sorry you're having to deal with it. Keep me posted, eh? Sooner or later someone will figure out what's wrong so hang in there and keep trying. Maybe a dermatologist would be something to look into? I bet it felt good to get out and about. Sleep well last night?? Your family is truly a blessing! Gayle > > Hi Gayle, I know your probably already gone to bed, but I thought I'd write you back right quick! Yes they are on my eyelids & underneath my eyes. There very swollan, itchy & red. They are starting to go into the corners of my eyelids & inside my eyes. My visit to the Doc. today sucked! I ended up seeing this women (so called Doc) that didn't know what the hell she was doing. Plus she treated me like shitt!! (BITCH)!!! I did have my bloodwork done, thank God! Even if I don't have an arm left. So this Doc. said she had no idea what was wrong with my eyes. She gave me a script for some drops & 1 for an antihistemine, (which I'm alergic to)!!! She told me to go see my Liver Doc. I tried to tell her he is a Liver specialist & that is why he sent me there. Finally I said the Hell with it, I didn't have the strengh to argue with her. So I'm gonna call my Liver Doc. Monday & just use the drops, after I make sure they won't interfere with my other meds. I mean it was a > freaking joke! These people including the nurses didn't even know what Ribaviron was, they asked me how to spell it!!! So I was pisssssssssed! But than the day got better. Mysis & her family took me out to eat with them & shopping. I had to be pushed in a wheelchair at the mall but it was ok, my nephew enjoyed pushing me around. And you know thats the first time i've been out anywhere in months. I'm very blessed to have them in my life, they're very good to me. Ok I'm beat, talk to you tomorrow. Take Care!!! I'm glad you're enjoying the quietness!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Hey Gayle, yeah, I was beside myself. And I'm like you (no holds barred) I'll let you know real quick if you've pissed me off! But I just didn't have the strengh yesterday. I just wanted to get the Hellllll outa there. You know all kinds of thoughts go through your head when you get frustrated & upset & you're getting no where & you know what you have is very serious & can Kill you!!! So to say the least wanting to blow up the building ( it not being empty, of course) did cross my mind a few times. LOL! so I'm gonna call my Liver Doc. tomorrow & the opthamolagist. Because it's getting worse everyday & I would really like to keep my eyesight! At least I was able to get out for awhile yesterday & enjoy myself. My sis and her family are very good to me. And wednesday my Mom is coming to pick me up for the day. I can't wait! We are very close, I havn't got to see her in a couple wks. I miss her very much! So I'm really looking foward to seeing her. And she wants to take me to get some new clothes & out to lunch. Which I know I won't feel like going anywhere, but I'm just gonna push myself. I'll be glad I did. So what going on over there in your neck of the woods? You enjoy the peace & quiet? Have you heard from Hubby? Ok, well I guess I'll talk to you soon, take care. Have a good day! Gayle <mollydamaula@...> wrote: Oh mine aren't anything like that. Real tiny, not inflammed at all and only a few of them. Oh my god you had to be beside yourself with anger not only from them not knowing what they're doing but to be treated like crap. I really hate uppity rude people and my husband is always lecturing me about burning bridges because I tend to let people know when they piss me off. lol Doesn't it just kill you to have to pay out money to someone who knows as little or less than you do about your problem? I think that aggitates me more than anything about seeing doctors, paying them to guess what's wrong with me. Hell, I can do that myself for free. If the drops don't work you're probably going to have to try a different doc because it sounds like whatever's going on with your eyes is getting worse and not better. That sucks and I'm really sorry you're having to deal with it. Keep me posted, eh? Sooner or later someone will figure out what's wrong so hang in there and keep trying. Maybe a dermatologist would be something to look into? I bet it felt good to get out and about. Sleep well last night?? Your family is truly a blessing! Gayle > > Hi Gayle, I know your probably already gone to bed, but I thought I'd write you back right quick! Yes they are on my eyelids & underneath my eyes. There very swollan, itchy & red. They are starting to go into the corners of my eyelids & inside my eyes. My visit to the Doc. today sucked! I ended up seeing this women (so called Doc) that didn't know what the hell she was doing. Plus she treated me like shitt!! (BITCH)!!! I did have my bloodwork done, thank God! Even if I don't have an arm left. So this Doc. said she had no idea what was wrong with my eyes. She gave me a script for some drops & 1 for an antihistemine, (which I'm alergic to)!!! She told me to go see my Liver Doc. I tried to tell her he is a Liver specialist & that is why he sent me there. Finally I said the Hell with it, I didn't have the strengh to argue with her. So I'm gonna call my Liver Doc. Monday & just use the drops, after I make sure they won't interfere with my other meds. I mean it was a > freaking joke! These people including the nurses didn't even know what Ribaviron was, they asked me how to spell it!!! So I was pisssssssssed! But than the day got better. Mysis & her family took me out to eat with them & shopping. I had to be pushed in a wheelchair at the mall but it was ok, my nephew enjoyed pushing me around. And you know thats the first time i've been out anywhere in months. I'm very blessed to have them in my life, they're very good to me. Ok I'm beat, talk to you tomorrow. Take Care!!! I'm glad you're enjoying the quietness!!! > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I hear ya, when you feel that crappy there's no argument worth winning and you just want to be left alone. They don't have explosives stores up there or anything do they?? lmao If so you need to steer clear of them! ) Those are entertaining thoughts though I must admit. lol Oh how cool that your Mom is coming to take you out. My Mom and brother are coming here tomorrow for a visit so I think I'll thaw a few steaks for the grill. Hubby called when he arrived at the cabin but I'm sure he's been busy nursing leg cramps at night after cleaning birds. lol A week long hunting trip sounds great until you realize how old and out of shape you are after beating brush for 6 hours a day. lol Everything is quiet here and I got enough done in the barn today to be happy, but not enough to wear me out. I took it easy. ;-) I should have that job wrapped up in a few days. (It's all in the e-mail I sent you) Talk to ya later, have a great day with Mom on Wednesday! Gayle > > Hey Gayle, yeah, I was beside myself. And I'm like you (no holds barred) I'll let you know real quick if you've pissed me off! But I just didn't have the strengh yesterday. I just wanted to get the Hellllll outa there. You know all kinds of thoughts go through your head when you get frustrated & upset & you're getting no where & you know what you have is very serious & can Kill you!!! So to say the least wanting to blow up the building ( it not being empty, of course) did cross my mind a few times. LOL! so I'm gonna call my Liver Doc. tomorrow & the opthamolagist. Because it's getting worse everyday & I would really like to keep my eyesight! At least I was able to get out for awhile yesterday & enjoy myself. My sis and her family are very good to me. And wednesday my Mom is coming to pick me up for the day. I can't wait! We are very close, I havn't got to see her in a couple wks. I miss her very much! So I'm really looking foward to seeing her. And she wants to > take me to get some new clothes & out to lunch. Which I know I won't feel like going anywhere, but I'm just gonna push myself. I'll be glad I did. So what going on over there in your neck of the woods? You enjoy the peace & quiet? Have you heard from Hubby? Ok, well I guess I'll talk to you soon, take care. Have a good day! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I hear ya, when you feel that crappy there's no argument worth winning and you just want to be left alone. They don't have explosives stores up there or anything do they?? lmao If so you need to steer clear of them! ) Those are entertaining thoughts though I must admit. lol Oh how cool that your Mom is coming to take you out. My Mom and brother are coming here tomorrow for a visit so I think I'll thaw a few steaks for the grill. Hubby called when he arrived at the cabin but I'm sure he's been busy nursing leg cramps at night after cleaning birds. lol A week long hunting trip sounds great until you realize how old and out of shape you are after beating brush for 6 hours a day. lol Everything is quiet here and I got enough done in the barn today to be happy, but not enough to wear me out. I took it easy. ;-) I should have that job wrapped up in a few days. (It's all in the e-mail I sent you) Talk to ya later, have a great day with Mom on Wednesday! Gayle > > Hey Gayle, yeah, I was beside myself. And I'm like you (no holds barred) I'll let you know real quick if you've pissed me off! But I just didn't have the strengh yesterday. I just wanted to get the Hellllll outa there. You know all kinds of thoughts go through your head when you get frustrated & upset & you're getting no where & you know what you have is very serious & can Kill you!!! So to say the least wanting to blow up the building ( it not being empty, of course) did cross my mind a few times. LOL! so I'm gonna call my Liver Doc. tomorrow & the opthamolagist. Because it's getting worse everyday & I would really like to keep my eyesight! At least I was able to get out for awhile yesterday & enjoy myself. My sis and her family are very good to me. And wednesday my Mom is coming to pick me up for the day. I can't wait! We are very close, I havn't got to see her in a couple wks. I miss her very much! So I'm really looking foward to seeing her. And she wants to > take me to get some new clothes & out to lunch. Which I know I won't feel like going anywhere, but I'm just gonna push myself. I'll be glad I did. So what going on over there in your neck of the woods? You enjoy the peace & quiet? Have you heard from Hubby? Ok, well I guess I'll talk to you soon, take care. Have a good day! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I hear ya, when you feel that crappy there's no argument worth winning and you just want to be left alone. They don't have explosives stores up there or anything do they?? lmao If so you need to steer clear of them! ) Those are entertaining thoughts though I must admit. lol Oh how cool that your Mom is coming to take you out. My Mom and brother are coming here tomorrow for a visit so I think I'll thaw a few steaks for the grill. Hubby called when he arrived at the cabin but I'm sure he's been busy nursing leg cramps at night after cleaning birds. lol A week long hunting trip sounds great until you realize how old and out of shape you are after beating brush for 6 hours a day. lol Everything is quiet here and I got enough done in the barn today to be happy, but not enough to wear me out. I took it easy. ;-) I should have that job wrapped up in a few days. (It's all in the e-mail I sent you) Talk to ya later, have a great day with Mom on Wednesday! Gayle > > Hey Gayle, yeah, I was beside myself. And I'm like you (no holds barred) I'll let you know real quick if you've pissed me off! But I just didn't have the strengh yesterday. I just wanted to get the Hellllll outa there. You know all kinds of thoughts go through your head when you get frustrated & upset & you're getting no where & you know what you have is very serious & can Kill you!!! So to say the least wanting to blow up the building ( it not being empty, of course) did cross my mind a few times. LOL! so I'm gonna call my Liver Doc. tomorrow & the opthamolagist. Because it's getting worse everyday & I would really like to keep my eyesight! At least I was able to get out for awhile yesterday & enjoy myself. My sis and her family are very good to me. And wednesday my Mom is coming to pick me up for the day. I can't wait! We are very close, I havn't got to see her in a couple wks. I miss her very much! So I'm really looking foward to seeing her. And she wants to > take me to get some new clothes & out to lunch. Which I know I won't feel like going anywhere, but I'm just gonna push myself. I'll be glad I did. So what going on over there in your neck of the woods? You enjoy the peace & quiet? Have you heard from Hubby? Ok, well I guess I'll talk to you soon, take care. Have a good day! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I hear ya, when you feel that crappy there's no argument worth winning and you just want to be left alone. They don't have explosives stores up there or anything do they?? lmao If so you need to steer clear of them! ) Those are entertaining thoughts though I must admit. lol Oh how cool that your Mom is coming to take you out. My Mom and brother are coming here tomorrow for a visit so I think I'll thaw a few steaks for the grill. Hubby called when he arrived at the cabin but I'm sure he's been busy nursing leg cramps at night after cleaning birds. lol A week long hunting trip sounds great until you realize how old and out of shape you are after beating brush for 6 hours a day. lol Everything is quiet here and I got enough done in the barn today to be happy, but not enough to wear me out. I took it easy. ;-) I should have that job wrapped up in a few days. (It's all in the e-mail I sent you) Talk to ya later, have a great day with Mom on Wednesday! Gayle > > Hey Gayle, yeah, I was beside myself. And I'm like you (no holds barred) I'll let you know real quick if you've pissed me off! But I just didn't have the strengh yesterday. I just wanted to get the Hellllll outa there. You know all kinds of thoughts go through your head when you get frustrated & upset & you're getting no where & you know what you have is very serious & can Kill you!!! So to say the least wanting to blow up the building ( it not being empty, of course) did cross my mind a few times. LOL! so I'm gonna call my Liver Doc. tomorrow & the opthamolagist. Because it's getting worse everyday & I would really like to keep my eyesight! At least I was able to get out for awhile yesterday & enjoy myself. My sis and her family are very good to me. And wednesday my Mom is coming to pick me up for the day. I can't wait! We are very close, I havn't got to see her in a couple wks. I miss her very much! So I'm really looking foward to seeing her. And she wants to > take me to get some new clothes & out to lunch. Which I know I won't feel like going anywhere, but I'm just gonna push myself. I'll be glad I did. So what going on over there in your neck of the woods? You enjoy the peace & quiet? Have you heard from Hubby? Ok, well I guess I'll talk to you soon, take care. Have a good day! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi - sorry it took me so long to get back to you, I got slammed with a severe case of the flu, and then my RA flared up.... It just sucked to say the least....but getting a little better each day. So how are you feeling? I know that sounds like a stupid question while on treatment, however, I did have days that were a little better than others.....not many, but some. Are you drinking lots of water, that always seemed to help me. Know that you are in my prayers daily - and please keep in touch and let me know how you are doing. May God keep and bless you and yours! Luv, hugs and prayers, marie -- Re: Re: Gayle Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister-in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi - sorry it took me so long to get back to you, I got slammed with a severe case of the flu, and then my RA flared up.... It just sucked to say the least....but getting a little better each day. So how are you feeling? I know that sounds like a stupid question while on treatment, however, I did have days that were a little better than others.....not many, but some. Are you drinking lots of water, that always seemed to help me. Know that you are in my prayers daily - and please keep in touch and let me know how you are doing. May God keep and bless you and yours! Luv, hugs and prayers, marie -- Re: Re: Gayle Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister-in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi - sorry it took me so long to get back to you, I got slammed with a severe case of the flu, and then my RA flared up.... It just sucked to say the least....but getting a little better each day. So how are you feeling? I know that sounds like a stupid question while on treatment, however, I did have days that were a little better than others.....not many, but some. Are you drinking lots of water, that always seemed to help me. Know that you are in my prayers daily - and please keep in touch and let me know how you are doing. May God keep and bless you and yours! Luv, hugs and prayers, marie -- Re: Re: Gayle Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister-in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi - sorry it took me so long to get back to you, I got slammed with a severe case of the flu, and then my RA flared up.... It just sucked to say the least....but getting a little better each day. So how are you feeling? I know that sounds like a stupid question while on treatment, however, I did have days that were a little better than others.....not many, but some. Are you drinking lots of water, that always seemed to help me. Know that you are in my prayers daily - and please keep in touch and let me know how you are doing. May God keep and bless you and yours! Luv, hugs and prayers, marie -- Re: Re: Gayle Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister-in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Even my eyes are crossed for you Gayle. Good luck sweetie. hugs..WW/pat Gayle <mollydamaula@...> wrote: My doc says my liver is not showing signs of healing and thinks the damage may be worse than originally suspected. I'm scheduled for an EGD (scope down the throat) on the 12th to see if my blood vessles are rerouting and going up into the esophagus. My AST's and ALT's are steadily rising and I'll know where my viral load stands around the 22nd to see if the tx is even helping. In the meantime I'm just going to do what I've been doing, staying clean and hoping for the best. Keep your fingers crossed for me. Gayle Quote Link to comment Share on other sites More sharing options...
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