Hot Flashes

[Guest guest]

Hi and Jane,

After six years with lyme I can tell you sadly that your body thermomether is

shot, can't tolerate heat or cold, it just doesn't work, drives me nuts.

Can't we buy a new one like at a car repair shop, they have temperature

reguglators? LOL

Connie, MI

[Guest guest]

--- Cslyme@... wrote:

> From: Cslyme@...

>

> Hi and Jane,

>

> After six years with lyme I can tell you sadly that

> your body thermomether is

> shot, can't tolerate heat or cold, it just doesn't

> work, drives me nuts.

> Can't we buy a new one like at a car repair shop,

> they have temperature

> reguglators? LOL

> Connie, MI

> Connie-

Think at this point I am ready for a complete overhaul. New body,engine

etc... LOL

Thanks for the info. Does it ever return or is it just another learn to

live with it thing???

L(MI)

> ---------------------------

[Guest guest]

Hi ,

I am always, temperature intollerant, I don't know if it will every

straighten out, I am always hotter or colder than the other person.

love ya,

Connie

[Guest guest]

--- Cslyme@... wrote:

> From: Cslyme@...

>

> Hi ,

> I am always, temperature intollerant, I don't know

> if it will every

> straighten out, I am always hotter or colder than

> the other person.

> love ya,

> Connie

> Connie-

Well guess I better get used toit then. I can handle cold a whole lot

better than heat so maybe this winter wont be so bad.

> ---------------------------

[Guest guest]

<<<Good morning all:

A simple blood test by your gynocologist can determine IF you may in fact

being beginning menopause..........many women today begin in their 30's. Just

a thought.>>>

A couple of months ago I asked doc if I can be going through menopause at age

24. lol

)

Cheryl (LI, NY)

[Guest guest]

<<< Many described not flashes. When you think

about the neurological effects of the disease and the question of whether

some of the inflammatory mediators that circulate on a chronic basis in

the face of this infection, the obvious question is the effect of this

organism on the autonomic nervous system. For anyone who is interested,

there were some nice review papers published in the New England Journal of

Medicine about 3-4 years ago on autonomic neuropathies. I believe that was

the exact

title and that it was a two part review paper. When you look at what is

described, I could not help but think they were describing many of the

phenomena reported in Lyme disease but not recorded as such.

Best,

Lynn Shepler, MD, JD >>>

Thanks for suggesting the NEJM papers. This info hound will havta check

it out! If you can think of anything that would help in a search for

these papers, I'd be interested, as I didn't find it on quick search, but

will continue to look. thanks. ;o)

I'm in my twenties and swear I'm going through menopause! teeehehe My

doctor thinks I'm crazy. ;o) But....

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I'm not crazy, I'm burgdorferied!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

<<< Many described not flashes. When you think

about the neurological effects of the disease and the question of whether

some of the inflammatory mediators that circulate on a chronic basis in

the face of this infection, the obvious question is the effect of this

organism on the autonomic nervous system. For anyone who is interested,

there were some nice review papers published in the New England Journal of

Medicine about 3-4 years ago on autonomic neuropathies. I believe that was

the exact

title and that it was a two part review paper. When you look at what is

described, I could not help but think they were describing many of the

phenomena reported in Lyme disease but not recorded as such.

Best,

Lynn Shepler, MD, JD >>>

Thanks for suggesting the NEJM papers. This info hound will havta check

it out! If you can think of anything that would help in a search for

these papers, I'd be interested, as I didn't find it on quick search, but

will continue to look. thanks. ;o)

I'm in my twenties and swear I'm going through menopause! teeehehe My

doctor thinks I'm crazy. ;o) But....

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I'm not crazy, I'm burgdorferied!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

I used to get hot flashes following an injection (24-48 hours later)

but not in connection with exercise. I don't get them on the patch.

I know exactly what my wife is going through.

> What causes hot flashes? My endocrinologist said once that

> they involve an interaction among the sex hormone, thyroid, and

> growth hormone systems. I still get them once in a while.

> Usually it is when I have just undergone some mild exertion

> such as walking very rapidly for several minutes.

[Guest guest]

First, you will probably feel better by cutting your dose in half

and taking it weekly instead of biweekly (ie. 100mg a week instead

of 200mg every two).

The hot flashes are most likely caused by high estradiol. You should

definitely get your estradiol checked.

Armyguy

> Hi,

>

> I have been taking testosterone injections for about two months. I

> take 200mg every two weeks. 1 month ago I accidentaly shot 400mgs.

> And last week, I shot a week too early.

>

> I feel like I am getting hot flashes. Even when its cold in the

house

> I am hot. I feel heat eminating from my body and sometimes sweat

> forms on my brow.

>

> Any insight would be appreciated.

>

> Thanks,

>

>

[Guest guest]

Hi,

There is a tempation to use more. Don't do that.

I can't give you the explanation I got as to what goes wrong but it

jerks your body around. When you have the right level to enjoy the

benefits, have trust in your doctor is he is a good one and follow his

dosage.

ernestnolan

> Hi,

>

> I have been taking testosterone injections for about two months. I

> take 200mg every two weeks. 1 month ago I accidentaly shot 400mgs.

> And last week, I shot a week too early.

>

> I feel like I am getting hot flashes. Even when its cold in the house

> I am hot. I feel heat eminating from my body and sometimes sweat

> forms on my brow.

>

> Any insight would be appreciated.

>

> Thanks,

>

>

[Guest guest]

Yes - Too much E.

> All, I sometimes have many hot flashes during the day and

sometimes I

> wake up at night sweating.

>

> Do hot flashes point to something?

> Too much T?

> Too much E?

>

> Currently on 10G Testim a day.

>

>

> Thanks,

> Nickso

[Guest guest]

> > All, I sometimes have many hot flashes during the day and

> sometimes I

> > wake up at night sweating.

> >

> > Do hot flashes point to something?

> > Too much T?

> > Too much E?

> >

> > Currently on 10G Testim a day.

> >

> >

> > Thanks,

> > Nickso

*******Hurry up and get a blood test. Probably too much e. Maybe too

little T. You may have some absorption problems with the testim and

need to alter your application sites or change to another form of trt

like androgel or a compound. Also, use ivory soap and a washcloth to

completely remove the testim before re-applying. If you use the wifes

frilly froo soap or something you may have your skin saturated with

something besides T. Regardless, hurry up and get a blood test!

Davec

[Guest guest]

I has a blood test this morning and then put Testim on after.

Question:

If I have too much T or E, will it still be in my blood 1 day later.

I also want to apply testim in the morning and have a blood test that

afternoon after the half-life of the T has gone.

Thanks,

Nickso

> > > All, I sometimes have many hot flashes during the day and

> > sometimes I

> > > wake up at night sweating.

> > >

> > > Do hot flashes point to something?

> > > Too much T?

> > > Too much E?

> > >

> > > Currently on 10G Testim a day.

> > >

> > >

> > > Thanks,

> > > Nickso

> *******Hurry up and get a blood test. Probably too much e. Maybe

too

> little T. You may have some absorption problems with the testim and

> need to alter your application sites or change to another form of

trt

> like androgel or a compound. Also, use ivory soap and a washcloth

to

> completely remove the testim before re-applying. If you use the

wifes

> frilly froo soap or something you may have your skin saturated with

> something besides T. Regardless, hurry up and get a blood test!

> Davec

[Guest guest]

Also, I use Coast soap and clean my application area (inner thighs

and upper legs) with a baby wipe before application.

Nickso

> > > All, I sometimes have many hot flashes during the day and

> > sometimes I

> > > wake up at night sweating.

> > >

> > > Do hot flashes point to something?

> > > Too much T?

> > > Too much E?

> > >

> > > Currently on 10G Testim a day.

> > >

> > >

> > > Thanks,

> > > Nickso

> *******Hurry up and get a blood test. Probably too much e. Maybe

too

> little T. You may have some absorption problems with the testim and

> need to alter your application sites or change to another form of

trt

> like androgel or a compound. Also, use ivory soap and a washcloth

to

> completely remove the testim before re-applying. If you use the

wifes

> frilly froo soap or something you may have your skin saturated with

> something besides T. Regardless, hurry up and get a blood test!

> Davec

[Guest guest]

Nick,

I realized after listening to something about menopause in women that

I had been having hot flashes for years. Told my nurse practitioner

about it and that was the first time I was tested for low T. T

levels were very low.

Mark

> All, I sometimes have many hot flashes during the day and sometimes

I

> wake up at night sweating.

>

> Do hot flashes point to something?

> Too much T?

> Too much E?

>

> Currently on 10G Testim a day.

>

>

> Thanks,

> Nickso

[Guest guest]

On Mon, 26 Apr 2004 20:40:11 -0000, you wrote:

>

>I has a blood test this morning and then put Testim on after.

>

>Question:

>If I have too much T or E, will it still be in my blood 1 day later.

>

>I also want to apply testim in the morning and have a blood test that

>afternoon after the half-life of the T has gone.

This article on fematrix says the half life of E2 is 5.24 hours. This

is for females who taken E2 in patch form after removal of the patch.

Not sure if it'd be comparable for men.

http://emc.medicines.org.uk/emc/assets/c/html/DisplayDoc.asp?DocumentID=5325

Also your body will keep converting.

[Guest guest]

On Mon, 26 Apr 2004 19:18:35 -0000, you wrote:

>All, I sometimes have many hot flashes during the day and sometimes I

>wake up at night sweating.

>

>Do hot flashes point to something?

>Too much T?

>Too much E?

>

>Currently on 10G Testim a day.

When I was taken off shots my endo asked me if I'd had hot flashes.

She told me low T could cause that effect same as menopausal women

have hot flashes when E levels fall too low or too fast.

[Guest guest]

No when my E2 was very high I got them all the time. It is when it is going up

into the range that gives me trouble I have them at night. This tells me to

take more meds to keep it in check. I also get very hard nipples on day when I

got out of the shower I wiped it to hard and tore it man did that bleed.

Phil

Greg Kevorkian <grekkevork@...> wrote:

If the E was up would you get the hot flashes only at night?

---------------------------------

[Guest guest]

Personally, I have had hot-flashes ever since I was

bitten. I have seen no increase or decrease due abx.

I have only been disgnosed since March of this year,

so I wasn't even on abx for years. Also, I'm a male,

so I assume it is totally related to Lyme.

__________________________________________________

[Guest guest]

Hubby gets terrible hot flashes usually proceeded by a seizure. They

come on all of a sudden. I get hot flashes proceeded by legs burning

and tingling then a numb sensation.

I am guessing it is lyme related but don't know 100%.

Anita

>

> Question -- All of a sudden I'm getting terrible hot flashes.

I've been on a low dose estrogen patch for years with no problems.

Right now I'm on Biaxin, Valtrex and Doxy for my lyme. Do you think

the hot flashes are a side effect or herx? I'm baffled. thanks. Judy

>

_______________________________________________________________________

_

> Check out AOL.com today. Breaking news, video search, pictures,

email and IM. All on demand. Always Free.

>

>

>

[Guest guest]

Hi Patty,

Your garden sounds really beautiful. I envy you. I only have a small space

here for flowers, our back yard is huge, but it is very steep at the very back

and then comes down to a level spot, and then bank again. The only thing the

upper part will grow is rocks so we just had a small flagstone area with a bench

set up on the ledge. The steps that lead to the ledge turned out to be too

steep for me so I don't get up there very often. I have a lot of geraniums

blooming now, but haven't gone to the nursery yet for the perrinials to set out.

I don't do outside pots either because I forget to water them since they aren't

on the drip system. I do have a beautiful purple rhodie in bloom and the red

one just about to open up. Everyone with this disease should have a garden or

even just a flower bed or window box, because nothing is more satisfying, at

least for me, than to sit and look at the wonder of the blooms and watch the

hummingbirds, wild finches and lizards enjoy them also.

Especially when I am having a day of pain.

At this point I only take MTX and ofcourse the meds for a fast pulse and

thyroid. My biggest problem now, other than with starting a new rheumy, are my

eyes that are hurting. I don't have many allergies thank God, or they would be

a mess. I must always wear a hat and sunglassses when I am outside. I agree

sometimes it is hard to pull yourself up when you are depressed, but since I

lived most of my life in the Northwest where it tends to be rainy and gray a lot

of the time, I know depression. I use music, books, meditation, my rocking

chair, and certain tv programs to help lift my spirits. Having my sister to

call at any time helps, too, because I don't know many people here. Also, I

spend a lot of time here on this post and that helps. My biggest project has

been the family tree. Trying to find the ancestors who never figured anyone

would be looking a hundred years later has proven to be a really time consuming

effort. Imagine my surprise when I learned that all of those

great grandfathers that I thought had lived in Oklahoma forever had fought for

the Union in the Civil

War! (I wonder if my Dad knew that.) I didn't mean to write a book, I hope

everyone is having a

" Sunshiny Day! "

Janet in Ca

-------------- Original message --------------

From: " Patty B " <patty.bacon@...>

The flowers have been

> absolutely gorgeous this year! The wisteria is still blooming along

> the river whereas it has stopped on land. At " the old place " , those

> that we kept trimmed into bushes will bloom 2-3 times a season after

> being pruned. Petunias have " naturalized " and come up in all shades

> from pale pink, lavender to dark purple. Roses, purple iris, daisies,

> Sweet , and assorted wild flowers are blooming now. The gardens

> are emotional therapy for me even if it kills my neck and back.

>

> Depression seems to go along with all the pain. I know I have to

> battle it ALL the time. It doesn't help that I'm already a bit of a

> pessimist,

>

[Guest guest]

Hot flashes. ugh.

It took forever for me to get relief. My gyno surgeon insisted on

HRT (estrogen since I had no uterus for progesterone to act upon)

which I hated and felt was unnecessary and a wee bit dangerous

considering everything else about my body. It was miserable since I

had no way of predicting when they would occur. Since I have no

ovaries, my burning, sweating (oops, Southern ladies 'glow' so s'cuse

me.), and really uncomfortably reddened, hot cheeks and body puzzled

me. The sun, which I was told 'helps' P, made me uncomfortable

unless the air temp was 50 or below. Living in Georgia, that does

not happen often enough for any long term benefit. This was during

the time when I was struggling to read everything I could find about

PA..and it was not easy to find anything at all then considering that

we were still using Win-3.1 and bulletin boards with UNIX commands on

the undernet. Finally, I left that wizened gyno surg and found a

progressive all-purpose doc who did not specialize in anything, which

was rare as well.

It helped talking to a woman (who I helped train as an intern, lol)

who could see the big picture instead of a narrow 'specialist'

view. She, being a doc who actually read current journals and

actually participated in continuing education courses, being very

open minded about treatments, meds, diagnoses, etc., recommended d/c-

ing the HRT for one thing, which we did. She sent me to a derm who

was not all about cosmetics and a rheumy who has only been in

practice for three years who, coincidentally, has PA and PP.

The results are specifically for me and the combined factors which

influence my PA and how my PA affects me, but maybe somebody else

will relate or get something out of this.... I learned that the hot

burning pain, wetness and discomfort (which sometimes felt cyclical)

was part of PA, not hormonal. I learned that PA is not just a joint

disease, it's systemic. Summer skin changes could further compromise

my health and well being, AND I learned that my PA affects my stress

hormones and vice versa which affected my temp regulation and

emotional responses. whew.

I felt like an elephant had landed on my chest. After all the tests,

trials on meds, along with traditional and alternative treatments, I

discovered that I had to find my own ways of relief because there was

no recipe for treatment that fit everyone. At the time, I was only

looking for relief for the hot flash syndrome stuff. My husband was

threatening to live in a hotel because it was 90 outside and 50 in

our bedroom, there was never any ice left for him in the

freezer...and he had received the power bill (eek!).

Finally, I discovered that my burning skin was relieved not only with

ice and A/C, but with plain old ibuprofen, plain aloe, yoga and

meditation, adequate sleep and pain management along with the end of

summer.

I notice now that diet triggers my 'hot flashes'...as well as wearing

tight anything aand allowing myself to become

physically/psychologically stressed. Mine seem to be connected to

anything that triggers intense perspiration or the 'fight or flight'

response. It makes sense really considering the way the nervous

system and it's partners work.

I hope you find your own solutions...and I hope you can find relief.

Waving a fan, offering ice,

Delane

[Guest guest]

Delane,

Brent wrote a post back in the fall I think, concerning the exact thing you were

talking about,

the " flight or fight response, " but he also went further with how that triggers

not only stress but a

host of other responses. It will be in the archives. Maybe he will even post

again to make it easy for

you. My response is working overtime today since I have an appointment with a

new rheumy and she is in downtown Sacramento and I allow myself to be

intimidated by new things since I have had PA. I am afraid of getting lost,

believe it or not, because the brain fog lets me get turned around if I don't

know exactly where I'm supposed to go. This disease is so debilitating in so

many ways besides the pain and the joint damage. Well, it is time to now to

list my 5 thankfuls. God Bless,

Janet in Ca

-------------- Original message --------------

From: " Delane " <adc1979@...>

> I felt like an elephant had landed on my chest. After all the tests, I notice

now that diet triggers my 'hot flashes'...as well as wearing

> tight anything and allowing myself to become

> physically/psychologically stressed. Mine seem to be connected to

> anything that triggers intense perspiration or the 'fight or flight'

> response. It makes sense really considering the way the nervous

> system and it's partners work.

>

> I hope you find your own solutions...and I hope you can find relief.

>

> Waving a fan, offering ice,

> Delane

[Guest guest]

Thanks, Janet, but my issues were resolved many years ago...I've learned how

to take care of

my burning/hot/etc. responses in a way that suits me. The one thing I

cannot change is

the weather down here, lol! Another thing that I cannot change is chronic

stress.

What I changed was how I handled it.

Perhaps he can post the description for those who don't understand or who

may not be aware of

that complex part of being human. It's important for many reasons other

than PA...

Literally, your life and health can depend upon understanding that

biochemical and neurological function.

Delane

==================================

Delane,

Brent wrote a post back in the fall I think, concerning the exact thing you

were talking about,

the " flight or fight response, " but he also went further with how that

triggers not only stress but a

host of other responses. It will be in the archives. Maybe he will even

post again to make it easy for

you.

Janet in Ca

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1:39 PM

[Guest guest]

I am having an awful....JUST AWFUL...time with HOT flashes!!!!!

Can anyone tell me how they overcame them, if you dealt with them?

I am using bio-identical hormones, but these hot flashes are just making me a

little crazy!!!

I haven't had time to read up much on it lately, with my heavy physics homework.

If you have any insight, please share,

Thanks,

Patty