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Sara

We are probably going to try Kent on Adderal too. My 16 year old son is on

it. He has ADHD. I asked him how he felt when not taking it and when taking

it. He said he focuses better and is less anxious when on it. We notice

when he is not on it he is all over the place, sassy, etc. He only takes it

once a day but they usually prescribe it twice a day.

Judy

ytribe@...

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We are going to try the extended day Adderall, once early in the morning.

Hopefully, it won't worsen the go to sleep issues. Yes, removing anxiety

for anything new would be nice.

Sara

----Original Message Follows----

From: ytribe@...

Reply-

Subject: Re: Adderall

Date: Mon, 13 May 2002 20:14:35 EDT

Sara

We are probably going to try Kent on Adderal too. My 16 year old son is on

it. He has ADHD. I asked him how he felt when not taking it and when

taking

it. He said he focuses better and is less anxious when on it. We notice

when he is not on it he is all over the place, sassy, etc. He only takes it

on

ce a day but they usually prescribe it twice a day.

Judy

ytribe@...

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The doctor at Pathfinder Village put Ian on adderall (extended release) for

a few weeks, and his behavior deteriorated so dramatically he was switched

back to dexedrine. There was a strong rebound effect that left him reeling.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

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  • 2 months later...
Guest guest

In a message dated 8/9/02 7:38:47 PM Pacific Daylight Time,

hsmyangels@... writes:

<< I just looked at MIL and said, " so now do you feel sorry for me? " She said

she always had. I ended up getting a migraine and having to take meds for

it, which didn't do what they normally do, and knock me out.

>>

Wow Loriann......How different we are, yet how much we have in common. I get

angry when someone feels sorry for me. I always tell them it's not an awful

life with Seth, just a different life. I know me well enough to know if I

accepted sympathy, I'd join right in a feel sorry for myself right along with

them. I hope settles down and goes to sleep so you can get some rest

tonight. Hopefully, taking him off the med will be easy and quick.

(((((hugs)))))

Gail :-)

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He talked non-stop all day. When the in-laws finally got over here, they

lasted about 40 minutes and were talking duct tape (only partially kidding).

I just looked at MIL and said, " so now do you feel sorry for me? " She said

she always had. I ended up getting a migraine and having to take meds for

it, which didn't do what they normally do, and knock me out.

It's 9:30, and 's normal bed time is 8:00. He's still in there

babbling away, wired as ever. He is definitely NOT getting this med

tomorrow. He is less impulsive, but he doesn't even hear me he's wound so

tight. It's not worth that. Now, my meds are kicking in, but I can't go to

sleep until he does, or he'll be up roaming the house.

It may be a LONG night.

Loriann AKA Flitter the Christian clown

Wife to Dewight

Mom to , 12 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 3 years and Strong Willed

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  • 4 months later...

Adderall is a stimulant just like Ritalin. Evan's brothers were put on it

for their ADHD. Not a good idea if they are bipolar and not on a mood

stablisher. It helped them at first and then they went manic. Now they

both are on mood stablishers and the Adderall is doing its job. Adderall

was suggested for Evan by his telemedicine doctor thru the Regional Center.

The doctor who was caring for him at the time did not stick with his

recommendations though and gave Evan a larger dose. It did not work out.

Evan became very violent. Had severe meltdowns. IF the original

instructions had been followed he might not have had a problem with it. And

then too, he might have since his brothers are bipolar, he might also be.

Adderall is suppose to help with their concentration. and

cannot function without it. Well, not very well anyway. It is as necessary

for them as their Depakote/Tegretol is.

Betty Effexor, Omega 3's

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Omega 3's

Evan - 8 yo nonverbal autism on 3 mg Risperdal

- 6 - Bipolar/ADHD/RAD/PTSD on Tegretol, Adderall, clonidine .1 mg,

Omega 3's

mother to , their mom - Bipolar/ADHD on Topamax

wife to Bob too many meds to remember

Quality if like buying oats. If you want nice clean oats, you must pay a

price. However if you are satisfied with oats that have already been though

the horse--that comes a little cheaper!!

Adderall

> Has anyone ever tried this medication??? I have read about ritalin

> and respidal. My devel.ped prescribed for my son, who is PDD. He is

> terrible with medications and this comes in capsule form and has no

> taste so it is easier to give to him, but I have not heard about it

> too much. Thanks

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Adderdal is in the same family as ritalin. We tried it & it made by daughter

more miserable. She was moodier, had crying spells for no reasons & just

wasn't very happy. The dr told us that may happen and if this was going to

be the case -- you will know immediately. We are currently on risperdal & it

seems to be working.

Adderall

> Has anyone ever tried this medication??? I have read about ritalin

> and respidal. My devel.ped prescribed for my son, who is PDD. He is

> terrible with medications and this comes in capsule form and has no

> taste so it is easier to give to him, but I have not heard about it

> too much. Thanks

>

>

>

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Oh no! Adderal is a stimulant, just like Ritalin and Concerta. It

actually causes more agression than the Ritalin, from what I've heard.

My daughter couldn't tolerate it at all. That drug should be left to a

psychiatrist! EEk!

Good luck!

Jen, Lexapro

mom to:

Breanna: 9, PDD-NOS, BP: Lithium 300mg BID, Risperdal .5mg TID, Nadolol

20mg BID, Welbutrin 100mg AM

3rd Grade, Self-Contained w/IEP

Brennalyn: 7, gifted, first grade

Liam: 3 PDD-NOS, Reflux: Zantac BID

wife to:

Louisiana

Adderall

Has anyone ever tried this medication??? I have read about ritalin

and respidal. My devel.ped prescribed for my son, who is PDD. He is

terrible with medications and this comes in capsule form and has no

taste so it is easier to give to him, but I have not heard about it

too much. Thanks

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Adderall causes restricted blood flow to the part of the brain affecting speech-

and completely stagnated my son's progress in that area....ugh

Adderall

Has anyone ever tried this medication??? I have read about ritalin

and respidal. My devel.ped prescribed for my son, who is PDD. He is

terrible with medications and this comes in capsule form and has no

taste so it is easier to give to him, but I have not heard about it

too much. Thanks

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How do you keep up with all these medications? You must be a saint! We gave

Karac Depakote along with Zydis and it made him totally unmanageable. We

haven't tried Adderall. Pat K

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My son's psychiatrist put him on Adderall before we knew he was

autistic, and not just ADHD/ODD, and it was the WORST thing we could

have ever done!! It made him head bang more, he was more socially

withdrawn, and emotional lability was at an all-time high....it was

AWFUL! Later, after I got my son to a developemental pediatrician,

the doctor told us that Adderall is very bad for children diagnosed

with autism. It is known to increase the autistic behaviors and cause

more aggression in these kids. Methylphenidate(brand name Ritalin)is

actually preferable if a stimulant is absolutely necessary and then,

only in a very low dose so as not to overstimulate an already

overstimulated system. Also, the doctor said it is never recommended

that any of these kids take the extended release forms of the

stimulant medications because they are even harder on the kids

systems.

Vicci

> Has anyone ever tried this medication??? I have read about ritalin

> and respidal. My devel.ped prescribed for my son, who is PDD. He is

> terrible with medications and this comes in capsule form and has no

> taste so it is easier to give to him, but I have not heard about it

> too much. Thanks

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The big problem with all these meds, is that you never know how any one is

going to react to one of them. Each person reacts in a different way. I

watched a video of Temple Grandhin who says she cannot function without her

meds. Her recommendation is that any med be started with the lowest

possible dose and worked up. That is how Evan's telemedicine works.

and Evan's pdoc does the same thing. Sometimes we might get impatient when

a child is having meltdowns but it is still best to start small and work up.

A big problem with bipolar kids (from parents on the bipolar lists) is that

as the child grows his, her reaction to the meds changes and the meds have

to be changed. I have a sister who is scizophrenic and her meds must be

changed ever so often. She really hates it because she usually has to go

into the hospital when they do it so that it can been done faster and

easier. If a woman in her 50s can fight med changes when she knows she

must, no wonder our kids hate them.

For our meds and supplements, we have those weekly pill boxes with the boys'

names on them. At one time and were both taking the same meds

except takes more of the Depakote so the name on the box was

necessary. They have a morning and an evening box. Evan does not have a

box because he does not take as much. Because of this I forget his Omega 3s

sometimes. Evan just started taking Tenex yesterday 1/4 tablet twice a day.

Now that is fun to cut. Like trying to cut a grain of salt.

Betty Effexor, Omega 3's

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Omega 3's

Evan - 8 yo nonverbal autism on 3 mg Risperdal

- 6 - Bipolar/ADHD/RAD/PTSD on Tegretol, Adderall, clonidine .1 mg,

Omega 3's

mother to , their mom - Bipolar/ADHD on Topamax

wife to Bob too many meds to remember

Quality if like buying oats. If you want nice clean oats, you must pay a

price. However if you are satisfied with oats that have already been though

the horse--that comes a little cheaper!!

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  • 11 months later...

In a message dated 12/16/03 3:59:36 PM Central Standard Time,

writes:

> Anyone have their child on adderall? I know that I need to check the

> archives, but for some reason am having trouble accessing the archives.

>

>

>

> TIA

>

>

>

> Sue mom to Kate 14 and Karrie 7 w/ds and other issues

>

Sue,

takes adderall. He takes 5 mg twice a day. It is the only stimulant

medication that works for him. We have found that if we give any later than noon

it affects his sleep. Heck, it is the only med we have found that works for

him. Even the extended release doesn't work for him.

Only advice I have is to start with a very low dose and work up from

there-that is my rule with any medication for behavior for .

Feel free to e-mail me privately if you want more info.

Karyn

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  • 3 years later...
Guest guest

Nic is not on Aderall but on Dexadrine(also a stimulant used for treating

ADD/ADHD). He has been on it for 3 years now. Mostly for school use and at

home if there's a function we need to attend. At first he lost 15 lbs (he

was chunky so it was no big deal). Once his body got used to it, his

appetite went back to normal. If she has an appetite problem I suggest

giving her protein (Nic likes Slim Jims or ring bologna). His Dr suggested

milk shakes /ice cream also. It may also effect her sleep. I make sure he

doesn't get it too late. Nic takes Extended release so it lasts longer. He

can't swallow pills so I open the capsules and sprinkle it in applesauce.

He takes 10 mg in the morning right after breakfast and then at school they

give him another 5 mg at lunch to get him thru the rest of the school day.

We found he was only good until about 2 PM, that's why we added the extra 5

mg this school year. My friend's daughter is on Adderall (age 12, non-DS)

and when she's coming down from it, gets extremely emotional, you may want

to watch for that too.

It was a difficult decision for us but we are glad we decided to try it. He

does much better while on it. One time my DR was out of town and we

couldn't get a script (they cannot write for refills and they aren't allowed

to phone in the script to the pharmacy-it's a strictly controlled substance)

so we were completely out by the time the Dr came back. After seeing Nic

without his meds he laughed and said, " If there was any doubt that he has

ADHD, there isn't any more! " LOL Nic was out of control, acting really

silly and running around .

One year we decided to try Strattera (it's used to treat ADD/ADHD but is not

a stimulant). BIG MISTAKE!! The Strattera made him extremely aggressive. It

also takes 2-3 weeks to build up in the system so you can't just stop it

cold, we had to wean him off-what a nightmare that was. I know of 2 other

children who reacted the same way.

Di

adderall

> Recently I noticed someone in this group said their child with DS was

> taking adderall. I looked it up and am considering whether or not it

> would be beneficial for my 7 year old daughter, Amelia. Amelia is going

> to a summer program with her typical 6 year old brother. She has been in

> this program since she was 3. The kids, staff, and parents know her and

> accept her. It has served all of our child care needs for both kids for

> the last 4 years because it is infant through 12 including summer camp and

> before and after school. They'd never had a special needs kid before

> Amelia. They took her on with aboslute enthusiasm. Great experience all

> around for both kids. I spoke with her school teacher (special education)

> about it and she said adderall might do her some good. She likely isn't

> interested in being involved in such a decision and I understand that

> although she did volunteer that one of her other students is on it and

> it's worked wonders-but I don't think it's a

> kid with DS. Here are the reasons that I am considering it. Amelia

> struggles more each year whenever she is in an all inclusive setting.

> Like this summer program. She does have fun and it is very beneficial for

> her. However there are issues. One of them being that she simply isn't

> as social as the other 15-20 typical children in the program. They want

> her to play in group activities and she wants to play independently. If

> they persist she will become physically aggressive. Right now her brother

> has 3 scratch marks on his face and one bruise on his head because of

> her-he does provoke her but I consider it highly unacceptable, and I am

> getting more and more concerned. Also during quiet times-group reading or

> nap (actually it's optional nap, mandatory be quiet) she is highly

> disruptive. Waking the other kids up, wrestling, shouting, tickling

> (really being a little pain in the neck.) While the teachers have been

> very accomodating about this I do have concerns this

> year. My basic attitude about inclusion for Amelia has always been-let

> her hang with the typical kids and we won't ask for special treatment.

> Right or wrong it has always worked for us. So if the Adderall will help

> her fit in and do better with the typical kids should I consider it? Does

> it have hideous side effects that I should be concerned about? Is anyone

> else's kid on it? I'd like to hear anything and everything you all have

> felt or dealt with on this matter. Thanks.

> Ann (mother to Amelia with ds and Jake 5)

>

>

> ---------------------------------

> Be a better Globetrotter. Get better travel answers from someone who

> knows.

> Answers - Check it out.

>

>

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Here's the rest of my post. Not sure why they are getting cut.

He told us to not to try to physically move her because we would get hurt. I was

like " I know, what do we do?? " I was just about to tears at that point. He

explained that those outbursts were not her fault and that her wiring just

needed time to develop. He initially started us on the Daytrana patch, which was

way too much and she had crazy side effects the first day. She was diagnosed

with ADHD, OCD, and Tourette's. I guess it's a common combo diagnosis. The

Tourette's mainly comes out in an eye tick that gets worse under stress-that's

about it. You have to be careful what meds you try with the OCD and Tourette's

becuase some of the ADHD meds can make those worse. The Daytrana caused her to

" short curcuit " as I call it. Her OCD and Tourette's were in over drive and she

was miserable. We knew after one day and the doc siad we needed to try something

else. (I'm gald becuase that patch costs 130.00/mo with insurance). I was very

happy that he did not give up. He just said that we need to try something else

because Myah was out of control-which we very well know. (Plus we have the baby

due in 5 weeks which makes us nervous as to how she'll be with the baby.) We

waited a few days for that to clear from her system and then he started her on

Adderall at 1/4 a 5mg capsule (5mg is the lowest dose). He did this to try to

prevent the short circuit and it did. We worked up to 7 mg and that is working

very well. We can actually go places. I'm not saying that it's all peaches and

cream, but the impulsiveness has lessened tremendously. We actually went to a

family b-day party at a park and she only took off 2 times, but came back pretty

easily. In the past it would be a constant job to keep her around and I do mean

constant-hitting, kicking and all. She does have appetite supression and has

lost 9 pounds-now weighing 40 lbs. She is eating now so she may put a few back

on. I think it just takes a while to get used to. She does not have sleeping

issues that I have heard from some others. If anything she gets tired when she

starts to come down from the meds (about 7-8 hours later). We went from the

worst behavior marks in school every day to the best for 1 month solid. Everyone

who works with Myah has noticed a huge improvement. I tell you that for us, at

least, it has been a great thing. I feel half (lol) normal that we can function

as a family and not have to sit out all of the fun stuff.

adderall

Recently I noticed someone in this group said their child with DS was taking

adderall. I looked it up and am considering whether or not it would be

beneficial for my 7 year old daughter, Amelia. Amelia is going to a summer

program with her typical 6 year old brother. She has been in this program since

she was 3. The kids, staff, and parents know her and accept her. It has served

all of our child care needs for both kids for the last 4 years because it is

infant through 12 including summer camp and before and after school. They'd

never had a special needs kid before Amelia. They took her on with aboslute

enthusiasm. Great experience all around for both kids. I spoke with her school

teacher (special education) about it and she said adderall might do her some

good. She likely isn't interested in being involved in such a decision and I

understand that although she did volunteer that one of her other students is on

it and it's worked wonders-but I don't think it's kid with DS. Here are th year.

My basic attitude about inclusion for Amelia has always been-let her hang with

the typical kids and we won't ask for special treatment. Right or wrong it has

always worked for us. So if the Adderall will help her fit in and do better with

the typical kids should I consider it? Does it have hideous side effects that I

should be concerned about? Is anyone else's kid on it? I'd like to hear anything

and everything you all have felt or dealt with on this matter. Thanks.

Ann (mother to Amelia with ds and Jake 5)

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Answers - Check it out.

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  • 1 year later...

,

As far as the weight gain-some kids with DS just have this in their

metabolism.

I have a friend that has a daughter with DS. She has always watched very

closely what she eats, and she has been VERY, VERY, BIG since she was 3 years

old. She is now 15, and doesn't loose any of it no matter how much

restriction or how careful her Mom watches her.

My own daughter started to pack on the weight around the middle and thighs

when she started into puberty.

She had ALWAYS been very small until then. And when it started, it seemed

there was nothing that would stop it or keep it off.

I am very careful about what she eats, too. And have stopped having

high-fat, salty snacks in the house. Only on special occasions such as a

birthday

party, or big cook-out. She loves popcorn, so I get her Orville Redinbocker

94% fat free butter flavored. I get the 100 calorie bags, because she wants

to eat the whole bag when she pops it, and it's a fight to get her to just eat

half of a regular size one.

But there she is, with that BIG BOOTY that so many kids with DS are prone to

get. And finding pants that will fit over that and still fit and look

decent around the waist is no fun!

The last time we went to the DR.she had lost around 5 lbs. though. The

amount she eats at one time (supper, lunch, etc) has gone down just a little

bit,

but not enough that I would think it would make a difference.

Maybe it's just that she is finally getting done with puberty, but her DR.

doesn't think so. She has one breast that is about a size " c " and the other

one is only a small " a " . I think he's just hoping she's not done with puberty

cause he's hoping the other one will get bigger and match the large one.

That's what he tells me. If any of you have delt with this problem, please

give me suggestions of what to do, and if there is a better way to go besides

using the sports bras.

When my two boys were going through puberty they gained a lot of weight,

too. But then when they were done with it they lost it again. Who knows?

Metabolism is a funny thing. Especially with our kids.

Then there's the popsicles. They're a great snack, but the regular ones are

full of sugar! When I get some, I get the sugar free ones. Wal Mart has

really good ones. At least she wouldn't be getting all that sugar.

Adderall-I take it myself. It has curbed my appitite some. More at first

than now. It's only been 4 days she's been on it. Give it at least 2 weeks

and then see what's happening. Try giving her a little smaller portions on

her plate and see if she is still satisfied. She may think she has to eat all

that is on her plate just because it's there.

Hope something in this rambling has given you some ideas.

Toni-Mom to Jasmine-17-DS

In a message dated 10/2/2008 8:47:33 A.M. Eastern Daylight Time,

anndmasch@... writes:

I have not posted in awhile but I always lurk. Amelia 8 w/ds has been

prescribed adderall by her pediatrician. The main reason for this I believe is

her weight gain since age 5. While he has asked me behavior related questions

they seem to be more of a " give me a reason to put her on this med so as to

help arrest this weight gain " nature. For the last two years he has been

recommending the adderall and I have declined it. When we went to the

pediatrician last week for a sinus infection the scale had gone up AGAIN. She

has gained

53 pounds in three years. I am disturbed by her weight and disturbed by her

medication. Amelia wants to eat all the time. She requests food

constantly. I am sorry to say that while I have denied her fatty snacks and

fatty

meals she does consume an obscene number of popsicles. Between 4 and 10 each

day. She also favors ketchup and starchy foods (particularly brown rice) for

dinner. The reason I mention

this is that I know the weight gain is my fault for letting her eat this

stuff. As she grows older she is in more control of what she eats, insisting

on

buying lunch rather then packing. While I do excercise parental rights

regarding what she is allowed to eat or not what I see is that the kid is a

weight gainer. Big time. I could control every bite she takes in but at her

age

I want her to have some control over her own life. But what to do about the

weight? Back to my question-Can anyone else relay their own experience

with Adderall and their kid with DS? It seems to make her more defiant

(although honestly she is so defiant by nature that I could be imagining the

medications affect) and I don't see a dent in the appetite. She is on day 4

with

this med. Any info would be appreciated.

Ann (mom to Amelia and Jake 7)

[Non-text portions of this message have been removed]

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

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Food, and the control issues and eating disorders that come along with

it, is a very challenging problem, and you are wise to realize that it's

a balance between controlling every bite and letting her make choices.

I think that knowing what her preferences are, maybe just either not

having them around the house (for example, either sugar free or no

popsicles, or just not serving rice with dinner if you know she's going

to eat too much.) How about finding some low-cal or portion-controlled

snacks, and then putting them in a place where she can choose.... if

she's going to choose too many per day, then maybe limit the number of

items that are in her " snack box " each day.... she still gets her

choices, but not unlimited. Or, serving several fruit and veggie

choices with dinner.... it's really hard to eat too many green beans :-)

Probably right now, it's Adderall vs. Habit....if you could reduce the

" habit " foods that she eats frequently and in large amounts, perhaps the

Adderall could help her not start eating lots of a new type of food? I

know that for me (I eat junk when I'm stressed or bored, not hungry), I

usually go for a particular thing, and if there isn't any of that, I

don't necessarily look that hard for something else, which is why there

are generally no sweet snacks in the house :-)

worries me because she is starting to eat more and more, and

I'm not sure if it's just puberty and growing (she's actually grown a

couple inches in height recently). All my kids serve themselves at the

table (and have since they were really little), and usually do a very

good job choosing the right amount, but we've noticed that is

taking a lot more food these days (and eating it, most of the time) so I

just wonder if she's hungry and needs it, or she'd just got into a new

(bad) habit. Also, with her newfound microwave permissions and skill,

she's more likely to grab some leftover dinner and eat something more

substantial as a mid-afternoon snack, rather than a granola bar or

pudding, which is a new thing as well... only time will tell.

Good luck Ann, and I hope you see some effect of the Adderall one way or

another so that it will make it easier to decide what to do for your

daughter.

, mom to (12), (10 DS), and Sammy (9)

Ann Masch wrote:

>

> I have not posted in awhile but I always lurk. Amelia 8 w/ds has been

> prescribed adderall by her pediatrician. The main reason for this I

> believe is her weight gain since age 5. While he has asked me

> behavior related questions they seem to be more of a " give me a reason

> to put her on this med so as to help arrest this weight gain "

> nature. For the last two years he has been recommending the adderall

> and I have declined it. When we went to the pediatrician last week

> for a sinus infection the scale had gone up AGAIN. She has gained 53

> pounds in three years. I am disturbed by her weight and disturbed by

> her medication. Amelia wants to eat all the time. She requests

> food constantly. I am sorry to say that while I have denied her fatty

> snacks and fatty meals she does consume an obscene number of

> popsicles. Between 4 and 10 each day. She also favors ketchup and

> starchy foods (particularly brown rice) for dinner. The reason I mention

> this is that I know the weight gain is my fault for letting her eat

> this stuff. As she grows older she is in more control of what she

> eats, insisting on buying lunch rather then packing. While I do

> excercise parental rights regarding what she is allowed to eat or not

> what I see is that the kid is a weight gainer. Big time. I could

> control every bite she takes in but at her age I want her to have

> some control over her own life. But what to do about the weight?

> Back to my question-Can anyone else relay their own experience with

> Adderall and their kid with DS? It seems to make her more defiant

> (although honestly she is so defiant by nature that I could be

> imagining the medications affect) and I don't see a dent in the

> appetite. She is on day 4 with this med. Any info would be appreciated.

>

> Ann (mom to Amelia and Jake 7)

>

>

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Adderall works as soon as you take it. There really isn't much ramp up time.

When Myah took it she lost her appetite almost instantly, but it did lessen

even more over time. Then she became diabetic (not from the Adderall

obviously) and lost more weight-was at 38 pounds (not a preferred weight

loss program!). I would give it a while to see if it does help her appetite

and it might just help her attitude as well! J Wee started at 5mg and worked

our way up to a higher dose. It could be that she needs a little more too.

Spilios

Mom to Myah 7 (DS, Diabetic), Shianne 4, and Isabella 1!!

From: [mailto: ] On Behalf

Of Ann Masch

Sent: Thursday, October 02, 2008 8:47 AM

Subject: adderall

I have not posted in awhile but I always lurk. Amelia 8 w/ds has been

prescribed adderall by her pediatrician. The main reason for this I believe

is her weight gain since age 5. While he has asked me behavior related

questions they seem to be more of a " give me a reason to put her on this med

so as to help arrest this weight gain " nature. For the last two years he has

been recommending the adderall and I have declined it. When we went to the

pediatrician last week for a sinus infection the scale had gone up AGAIN.

She has gained 53 pounds in three years. I am disturbed by her weight and

disturbed by her medication. Amelia wants to eat all the time. She

requests food constantly. I am sorry to say that while I have denied her

fatty snacks and fatty meals she does consume an obscene number of

popsicles. Between 4 and 10 each day. She also favors ketchup and starchy

foods (particularly brown rice) for dinner. The reason I mention

this is that I know the weight gain is my fault for letting her eat this

stuff. As she grows older she is in more control of what she eats,

insisting on buying lunch rather then packing. While I do excercise

parental rights regarding what she is allowed to eat or not what I see is

that the kid is a weight gainer. Big time. I could control every bite she

takes in but at her age I want her to have some control over her own life.

But what to do about the weight? Back to my question-Can anyone else relay

their own experience with Adderall and their kid with DS? It seems to make

her more defiant (although honestly she is so defiant by nature that I could

be imagining the medications affect) and I don't see a dent in the appetite.

She is on day 4 with this med. Any info would be appreciated.

Ann (mom to Amelia and Jake 7)

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  • 1 month later...

Bonnie

Adderall has different effects on each person. My son, Tim was on it for a

while, and it actually calmed him. However, it surpressed his appetite so much

that he was barely gaining any weight at all. If I were you, I would call your

doctor and talk with him about her behavior and see if he would like to change

the dose or try a different medication.

Kristy

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH: 979-828-4177

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

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  • 1 year later...

Attached, please find Dr. Kolb’s book announcement.

Adderall is garbage !!

Oh my goodness do not take adderall

Obviously your doctor is not up to date

You can e-mail Dr. Kolb your symptoms

regarding fogginess and not retaining

things and she will e-mail you right back

Dr. Kolb is all to familiar with your symptoms

Don't delay e-mail her today

drkolb@...

1 of 1 File(s)

Kolb's Books Release - Goddess & Naked Truth.pdf

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How many mgs did you take ?

Hi Girls...recap. ..had implants 11/3 had removed 9/6 (I'm 50 )....still have some symptoms...but the fogginess and not retaining things is getting to me..I just got a promotion and I'm in a 6 months training class.....my doctor has suggested a low dose of Adderall.... has anyone taken this and if so what's your input ? My daughter 32 takes and it works great for her.

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